"When i had my transplant, i became normal." Adolescent perspectives on life after kidney transplantation

Pediatric Transplantation

Volumn 15, Issue 3, 2011, Pages 285-293

  Tong, Allison ^a,b   Morton, Rachael ^b   Howard, Kirsten ^b   McTaggart, Steven ^c   Craig, Jonathan C ^a,b  

^a CHILDREN S HOSPITAL AT WESTMEAD   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

^c MATER CHILDREN S HOSPITAL   (Australia)

Author keywords

adolescent; interview; kidney transplantation; life style; psychosocial factors; qualitative research

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; AVERSION; CHILD; ENERGY; FEMALE; FREEDOM; GENDER IDENTITY; GRAFT RECIPIENT; HUMAN; IDENTITY; INTERVIEW; KIDNEY TRANSPLANTATION; LIFESTYLE; MALE; PATIENT ATTITUDE; PEER GROUP; SCHOOL CHILD; WELLBEING;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADOLESCENT MEDICINE; ADULT; ATTITUDE TO HEALTH; CHILD; CULTURAL CHARACTERISTICS; FEMALE; HUMANS; KIDNEY TRANSPLANTATION; LIFE STYLE; MALE; QUALITY OF LIFE; SELF CONCEPT; STRESS, PSYCHOLOGICAL;

EID: 79955043146     PISSN: 13973142     EISSN: 13993046     Source Type: Journal    
DOI: 10.1111/j.1399-3046.2010.01470.x     Document Type: Article

References (27)

1. Mintzer LL, Stubber ML, Seacord D, Castaneda M, Mesrkhani V, Glover D,. Traumatic stress symptoms in adolescent organ transplant recipients. Pediatrics 2005: 115: 1640-1644. (Pubitemid 43843174)
2. Olausson B, Utbult Y, Hansson S, et al., Transplanted children's experiences of daily living: Children's narratives about their lives following transplantation. Pediatr Transplant 2006: 10: 575-585.
3. Penkower L, Dew MA, Ellis D, Sereika SM, Kitutu JMM, Shapiro R,. Psychological distress and adherence to the medical regimen among adolescent renal transplant recipients. Am J Transplant 2003: 3: 1418-1425. (Pubitemid 37288088)
4. Bernstein DM,. Emotional reactions of children and adolescents to renal transplantation. Child Psychiatry Hum Dev 1970: 1: 102-111.
5. Crombie A, Franklin PM,. Family issues implicit in living donation. Mortality 2006: 11: 196-210. (Pubitemid 43670136)
6. Gallo AM, Schultz VA, Breitmayer MJ,. Description of the illness experiences by adolescents with chronic renal disease. ANNA J 1991: 19: 190-193.
7. Harwood L, Johnson B,. Weighing risks and taking chances: Adolescents' experiences of the regimen after renal transplantation. ANNA J 1999: 26: 17-23.
8. Hudson K, Hiott K,. Coping with pediatric renal transplant rejection. ANNA J 1986: 13: 261-263.
9. Karrfelt HME, Lindbald FIE, Crafoord J, Berg UB,. Renal transplantation: Long-term adaptation and the children's own reflections. Pediatr Transplant 2003: 7: 69-75. (Pubitemid 36314194)
10. Khan AU, Herndon CH, Ahmadian SY,. Social and emotional adaptations of children with transplanted kidneys and chronic hemodialysis. Am J Psych 1971: 127: 1194-1198.
11. Manificat S, Dazord A, Cochat P, Morin D, Plainguet F, Debray D,. Quality of life of children and adolescents after kidney or liver transplantation: Child, parents and caregiver's point of view. Pediatr Transplant 2003: 7: 228-235. (Pubitemid 36682148)
12. Simons LE, McCormick ML, Mee LL, Blount RL,. Parent and patient perspectives on barriers to medication adherence in adolescent transplant recipients. Pediatr Transplant 2009: 13: 338-347.
13. Snethen JA, Broome ME,. Adolescents' perception of living with end stage renal disease. Pediatr Nurs 2001: 27: 159-167.
14. Tong A, Morton R, Howard K, Craig JC,. Adolescent experiences following organ transplantation: A systematic review of qualitative studies. J Pediatr 2009: 155: 542-549.
15. Strauss A, Corbin J,. Basics of Qualitative Research. Techniques and Procedures for Developing Grounded Theory. Thousand Oaks, California: Sage Publications, 1998.
16. Tong A, Lowe A, Sainsbury P, Craig JC,. Experience of parents who have children with chronic kidney disease: A systematic review of qualitative studies. Pediatrics 2008: 121: 259-360.
17. Wise BV,. In their own words: The lived experience of pediatric liver transplantation. Qual Health Res 2002: 12: 74-90.
18. Franklin PM, Crombie A,. Live related renal transplantation: Psychological, social, and cultural issues. Transplant 2003: 76: 1247-1252. (Pubitemid 37339657)
19. Durst CL, Horn MV, MacLaughlin EF, Bowman CM, Starnes VA, Woo MS,. Psychosocial responses of adolescent cystic fibrosis patients to lung transplantation. Pediatr Transplant 2001: 5: 27-31. (Pubitemid 32178999)
20. Lawrence K, Stilley CS, Olshanksy E, Bender A, Webber SA,. Further exploration: Maturity and adherence in adolescent and young adult heart transplant recipients. Prog Transplant 2008: 18: 50-54. (Pubitemid 351416281)
21. Davis ID,. Pediatric renal transplantaiton: Back to school issues. Transplant Proc 1999: 31: s61-s62.
22. Cohen E, MacKenzie RG, Yates GL,. HEADSS, a psychosocial risk assessment instrument: Implications for designing effective intervention programs for runaway youth. J Adolesc Health 1991: 12: 539-544.
23. Dobbels FVD-LR, Vanhaeck J, De Geest S,. Growing pains: Non-adherence with the immunosuppressive regimen in adolescent transplant recipients. Pediatr Transplant 2005: 9: 381-390. (Pubitemid 40780372)
24. EBPG E xpert G roup on R enal T ransplantation. European Best Practice Guidelines for Renal Transplantation. Section IV: Long-term management of the transplant recipient: Pediatrics. Nephrol Dial Transplant 2002: 17: 55-58.
25. Feinstein S, Keich R, Becker-Cohen R, Rinat C, Schwartz SB, Frishberg Y,. Is noncompliance among adolescent renal transplant recipients inevitable? Pediatrics 2005: 115: 969-973.
26. Harden P, Lonsdale D, Bandler N, Davies K,. Interactive model of peer support of young adult transplant recipients: The Starbucks factor (015.07). In: XXIII International Congress. Vancouver, Canada; 2010.
27. Nevins TE,. Non-compliance and its management in teenagers. Pediatr Transplant 2002: 6: 475-479. (Pubitemid 35470544)