Stories about life narrated by people with alzheimer's disease

Journal of Advanced Nursing

Volumn 70, Issue 12, 2014, Pages 2791-2799

  Karlsson, Eva ^a   Sävenstedt, Stefan ^a   Axelsson, Karin ^a   Zingmark, Karin ^b  

^a LULEÅ UNIVERSITY OF TECHNOLOGY   (Sweden)

^b Norrbotten County Council   (Sweden)

Author keywords

Alzheimer's disease; Analysis of narratives; Dementia; Identity; Life story; Nursing

Indexed keywords

AGED; ALZHEIMER DISEASE; FEMALE; HUMAN; LIFE EVENT; MALE; MIDDLE AGED; NURSING; PATIENT CARE; PROCEDURES; SELF CONCEPT; SWEDEN; VERBAL COMMUNICATION; VERY ELDERLY;

AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; FEMALE; HUMANS; LIFE CHANGE EVENTS; MALE; MIDDLE AGED; NARRATION; PATIENT-CENTERED CARE; SELF CONCEPT; SWEDEN;

EID: 84909644410     PISSN: 03092402     EISSN: 13652648     Source Type: Journal    
DOI: 10.1111/jan.12429     Document Type: Article

References (46)

1. Aggarwal N., Vass A.A., Minardi H.A., Ward R., Garfield C. & Cybyk B. (2003) People with dementia and their relatives: personal experiences of Alzheimer's and of the provision of care. Journal of Psychiatric and Mental Health Nursing 10(2), 187-197. doi:10.1046/j.1365-2850.2003.00550.x.
2. American Psychiatric Association (2000) Task Force on DSM-IV. Diagnostic and Statistical Manual of Mental Disorders: DSM-IV-TR, 4th edn. American Psychiatric Association, Washington, DC.
3. Angus J. & Bowen S. (2011) Quiet please, there's a lady on stage: centering the person with dementia in life story narrative. Journal of Aging Studies 25(2), 110-117. doi:http://dx.doi.org/10.1016/j.jaging.2010.08.010
4. Beard R.L. (2004) In their voices: identity preservation and experiences of Alzheimer's disease. Journal of Aging Studies, 18(4), 415-428. doi:http://dx.doi.org/10.1016/j.jaging.2004.06.005
5. Beard R.L., Knauss J. & Moyer D. (2009) Managing disability and enjoying life: how we reframe dementia through personal narratives. Journal of Aging Studies 23(4), 227-235. doi:http://dx.doi.org/10.1016/j.jaging.2008.01.002
6. Bourgeois M.S. (2002) 'Where is my wife and when am I going home?': the challenge of communicating with persons with dementia. Alzheimer's Care Quarterly 3(2), 132-144.
7. Caddell L.S. & Clare L. (2011) I'm still the same person: the impact of early-stage dementia on identity. Dementia 10(3), 379-398. doi:10.1177/1471301211408255.
8. Clarke A., Jane Hanson E. & Ross H. (2003) Seeing the person behind the patient: enhancing the care of older people using a biographical approach. Journal of Clinical Nursing 12(5), 697-706. doi:10.1046/j.1365-2702.2003.00784.x.
9. Downs M. (2005) Awareness in dementia: in the eye of the beholder. Aging & Mental Health 9(5), 381-383. doi:10.1080/13607860500215212.
10. Erikson E.H. (1982) The Life Cycle Completed: A Review. Norton, New York.
11. Folstein M.F., Folstein S.E. & McHugh P.R. (1975) 'Mini-mental state': a practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research 12(3), 189-198. doi:http://dx.doi.org/10.1016/0022-3956(75)90026-6
12. Gergen K.J. (1985) The social constructionist movement in modern psychology. American Psychologist 40(3), 266-275. doi:http://dx.doi.org/10.1037/0003-066X.40.3.266
13. Gilmour J.A. & Huntington A.D. (2005) Finding the balance: living with memory loss. International Journal of Nursing Practice 11(3), 118-124. doi:10.1111/j.1440-172X.2005.00511.x.
14. Harre R. & Gillett G. (1994) The Discursive Mind. SAGE publications, Thousand Oaks, CA.
15. Hellström I., Nolan M., Nordenfelt L. & Lundh U. (2007) Ethical and methodological issues in interviewing persons with dementia. Nursing Ethics 14(5), 608-619. doi:10.1177/0969733007080206.
16. Holloway I. & Freshwater D. (2007) Narrative Research in Nursing. Blackwell, Oxford.
17. Holst G. & Hallberg I.R. (2003) Exploring the meaning of everyday life, for those suffering from dementia. American Journal of Alzheimer's Disease and Other Dementias 18(6), 359-365. doi:10.1177/153331750301800605.
18. Hubbard G., Downs M.G. & Tester S. (2003) Including older people with dementia in research: challenges and strategies. Aging & Mental Health 7(5), 351-362. doi:10.1080/1360786031000150685.
19. Hydén L.C. & Antelius E. (2011) Communicative disability and stories: towards an embodied conception of narratives. Health 15(6), 588-603. doi:10.1177/1363459310364158.
20. Hydén L.C. & Örulv L. (2009) Narrative and identity in Alzheimer's disease: a case study. Journal of Aging Studies 23(4), 205-214. doi:http://dx.doi.org/10.1016/j.jaging.2008.01.001
21. Kunz J.A. & Gray Soltys F. (2007) Transformational Reminiscence. Life Story Work. Springer Publishing Company, New York.
22. Langdon S.A., Eagle A. & Warner J. (2007) Making sense of dementia in the social world: a qualitative study. Social Science & Medicine 64(4), 989-1000. doi:http://dx.doi.org/10.1016/j.socscimed.2006.10.029
23. Linde C. (1993) Life Stories: The Creation of Coherence. Oxford University Press, New York.
24. MacRae H. (2008) Making the best you can of it: living with early-stage Alzheimer's disease. Sociology of Health & Illness 30(3), 396-412. doi:10.1111/j.1467-9566.2007.01056.x.
25. McAdams D.P. (1993) The Stories We Live By. Personal Myths and the Making of the Self. The Guilford Press, New York.
26. McAdams D.P. (2001) The psychology of life stories. Review of General Psychology 5(2), 100-122. doi:http://dx.doi.org/10.1037/1089-2680.5.2.100
27. McAdams D.P. (2008) Personal narratives and the life story. In Handbook of Personality: Theory and Research (Pervin L.A., Robins R.W. & John O.P., eds), The Guilford Press, New York, pp. 242-262.
28. McKeown J., Clarke A. & Repper J. (2006) Life story work in health and social care: systematic literature review. Journal of Advanced Nursing 55(2), 237-247. doi:10.1111/j.1365-2648.2006.03897.x.
29. McKeown J., Clarke A., Ingleton C. & Repper J. (2010) Actively involving people with dementia in qualitative research. Journal of Clinical Nursing 19(13-14), 1935-1943. doi:10.1111/j.1365-2702.2009.03136.x.
30. Meininger H.P. (2005) Narrative ethics in nursing for persons with intellectual disabilities. Nursing Philosophy 6(2), 106-118. doi:10.1111/j.1466-769X.2005.00206.x.
31. Parsons-Suhl K., Johnson M.E., McCann J.J. & Solberg S. (2008) Losing one's memory in early Alzheimer'sdisease. Qualitative Health Research 18(1), 31-42. doi:10.1177/1049732307308987.
32. Polit D.F. & Beck T. (2012) Nursing Research: Generating and Assessing Evidence for Nursing Practise, 9th edn. Walter Kluwer Health/Lippincott Williams & Wilkins, Philadelphia, PA.
33. Polkinghorne D.E. (1995) Narrative configuration in qualitative analysis. International Journal of Qualitative Studies in Education 8(1), 5-23. doi:10.1080/0951839950080103.
34. Polkinghorne D.E. (1996) Transformative narratives: from victimic to agentic life plots. The American Journal of Occupational Therapy 50(4), 299-305. doi:10.5014/ajot.50.4.299.
35. Preston L., Marshall A. & Bucks R.S. (2007) Investigating the ways that older people cope with dementia: a qualitative study. Aging & Mental Health 11(2), 131-143. doi:10.1080/13607860600844572.
36. van der Roest H.G., Meiland F.J.M., Maroccini R., Comijs H.C., Jonker C. & Dröes R. (2007) Subjective needs of people with dementia: a review of the literature. International Psychogeriatrics 19(03), 559-592. doi:10.1017/S1041610206004716.
37. Sabat S.R. & Collins M. (1999) Intact social, cognitive ability and selfhood: a case study of Alzheimer's disease. American Journal of Alzheimer's Disease and Other Dementias 14(1), 11-19. doi:10.1177/153331759901400108.
38. Sabat S.R. & Harré R. (1992) The construction and deconstruction of self in Alzheimer's disease. Ageing & Society 12(04), 443-461. doi:10.1017/S0144686X00005262.
39. Steeman E., Godderis J., Grypdonck M., De Bal N. & De Casterlé B.D. (2007) Living with dementia from the perspective of older people: is it a positive story? Aging & Mental Health 11(2), 119-130. doi:10.1080/13607860600963364.
40. Subramaniam P., Woods B. & Whitaker C. (2014) Life review and life story books for people with mild to moderate dementia: a randomised controlled trial. Aging & Mental Health 18(3), 363-375.
41. Tappen R.M., Williams C., Fishman S. & Touhy T. (1999) Persistence of self in advanced Alzheimer's disease. Image - The Journal of Nursing Scholarship 31(2), 121. Retrieved from http://search.proquest.com/docview/236411347?accountid=27917 on 12 December 2013.
42. Warchol K. (2006) Facilitating functional and quality-of-life potential: strength-based assessment and treatment for all stages of dementia. Topics in Geriatric Rehabilitation 22(3), 213-227.
43. Webster G. & Fels D. (2013) Portraits of people with dementia: three case studies of creating portraits. American Journal of Alzheimer's Disease and Other Dementias 28(4), 371-376. doi:10.1177/1533317513488908.
44. Westius A., Andersson L. & Kallenberg K. (2009) View of life in persons with dementia. Dementia 8(4), 481-499. doi:10.1177/1471301209350287.
45. Westius A., Kallenberg K. & Norberg A. (2010) Views of life and sense of identity in people with Alzheimer's disease. Ageing and Society 30(7), 1257-1278. doi:http://dx.doi.org/10.1017/S0144686X10000309
46. Zingmark K. (2000) Experiences related to home in people with Alzheimer's disease. Doctoral dissertation, Umeå University, Department of Nursing.