Losing one's memory in early Alzheimer's disease

Qualitative Health Research

Volumn 18, Issue 1, 2008, Pages 31-42

  Parsons Suhl, Karen ^a   Johnson, Mary E ^b   McCann, Judy J ^b   Solberg, Shirley ^a  

^a MEMORIAL UNIVERSITY OF NEWFOUNDLAND   (Canada)

^b RUSH UNIVERSITY   (United States)

Author keywords

Alzheimer's disease; Heideggerian; Hermeneutics; Memory; Mild cognitive impairment; Phenomenology

Indexed keywords

ADULT; AGED; ALZHEIMER DISEASE; AMNESIA; ARTICLE; CLINICAL ARTICLE; COGNITIVE DEFECT; DAILY LIFE ACTIVITY; DATA ANALYSIS; DISEASE SEVERITY; EXPERIENCE; FEMALE; HUMAN; INFORMATION PROCESSING; MALE; METHODOLOGY; PHENOMENOLOGY; PRIORITY JOURNAL; SCORING SYSTEM;

AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; AWARENESS; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MEMORY DISORDERS; MIDDLE AGED; QUALITATIVE RESEARCH; SELF CONCEPT;

EID: 37249091224     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732307308987     Document Type: Article

References (46)

1. Benner, P. (1994). The tradition and skill of interpretive phenomenology in studying health, illness, and caring practices. In P. Benner (Ed.), Interpretive phenomenology: Embodiment, caring, and ethics in health and illness (pp. 99-127). Thousand Oaks, CA: Sage.
2. Benner, P., & Wrubel, J. (1989). The primacy of caring: Stress and coping in health and illness. Menlo Park, CA: Addison-Wesley.
3. Carr, D.B., Gray, S., Batey, J., & Morris, J.C. (2000). The value of informant vs. individual's complaints of memory impairment in early dementia. Neurology, 55, 1724-1726.
4. Casey, E.S. (2000). Remembering: A phenomenological study (2 nd ed.). Indianapolis, IN: Library of Congress.
5. Cohen, D., Kennedy, G., & Eisdorfer, C. (1985). Phases of change in the patient with Alzheimer's disease. Journal of the American Geriatric Society, 32, 11-15.
6. Cohen-Mansfield, J. (1986). Agitated behaviors in the elderly: Preliminary results in the cognitively deteriorated. Journal of the American Geriatric Society, 34, 722-727.
7. Cohen-Mansfield, J., Marx, M.S., & Rosenthal, A.S. (1989). A description of agitation in a nursing home. Journal of Gerontology, 44, 77-84.
8. Cohen-Mansfield, J., Werner, P., & Marx, M. (1990). Screaming in nursing home residents. Journal of the American Geriatric Society, 38, 785-792.
9. Collins, C. (1999). Shared experience. Mental Health Care, 3, 96-99.
10. Cooper, J.K., Mungas, D., & Weiler, P.G. (1990). Relation of cognitive status and abnormal behaviors in Alzheimer's disease. Journal of the American Geriatrics Society, 38, 867-870.
11. Davis, L. (1989). My journey into Alzheimer's disease. Wheaton, IL: Tyndale House.
12. DeBaggio, T. (2002). Losing my mind. An intimate look at life with Alzheimer's disease. New York: Free Press.
13. Diekelmann, N., Allen, D., & Tanner, C. (1989). The NLN criteria for appraisal of baccalaureate programs: A critical hermeneutic analysis (Pub. No. 15-2253). New York: National League for Nursing. Available from http://www.nln.org
14. Diekelmann, N., & Magnussen-Ironside, P. (1998). Hermeneutics. In J. Fitzpatrick (Ed.), Encyclopedia of Nursing Research (pp. 243-245). New York: Springer.
15. Dreyfus, H.L. (1991). Being-in-the-world: A commentary on Heidegger's being and time. Division 1. Cambridge, MA: MIT Press.
16. Folstein, M.F., & Folstein, S.E., & McHugh, P.R. (1975). " Mini-Mental State": A Practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198.
17. Gillies, B.A. (2000). A memory like clockwork: Accounts of living through dementia. Aging and Mental Health, 4, 366-374.
18. Harris, P.B., & Sterin, G.J. (1999). Insider's perspective: Defining and preserving the self of dementia. Journal of Mental Health and Aging, 5, 241-256.
19. Heidegger, M. (1962). Being and time (J. MacQuarrie & E. Robinson, Trans.). New York: Harper and Row. (Original work published 1927)
20. Henderson, C.S. (1998). Partial view: An Alzheimer's journey. Dallas, TX: Southern Methodist University Press.
21. Keady, J., & Nolan, M.R. (1994). Younger-onset dementia: Developing a longitudinal model as the basis for a research agenda as a guide to interventions with sufferers and carers. Journal of Advanced Nursing, 19, 659-669.
22. Koss, E., Patterson, M.B., Ownby, R., Stuckley, J.C., & Whitehore, P.J. (1993). Memory evaluation in Alzheimer's disease: Caregivers' appraisal and objective testing. Archives of Neurology, 47, 1189-1193.
23. Leonard, V.W. (1994). A Heideggerian phenomenological perspective on the concept of the person. In P. Benner (Ed.), Interpretive phenomenology: Embodiment, caring and ethics in health and illness (pp. 43-63). Thousand Oaks, CA: Sage.
24. Madjar, I. (1998). Giving comfort and inflicting pain. Edmonton, Canada: Qualitative Institute Press.
25. Madison, G.B. (1988). The hermeneutics of postmodernity. Bloomington, IN: Indiana University Press.
26. Marx, M.S., Cohen-Mansfield, J., & Werner, P. (1990). A profile of the aggressive nursing home resident. Behavior, Health and Aging, 1, 65-73.
27. McGowen, F.D. (1993). Living in the labyrinth: The personal journey through the maze of Alzheimer's disease. New York: Delta.
28. Meiser, B. (1992). Attachment theory and dementia. In G. Jones & B. Miesen (Eds.), Caregiving in dementia: Research and applications (pp. 673-698). New York: Tavistock/Routledge.
29. Merleau-Ponty, M. (1962). Phenomenology of perception (C. Smith, Trans.). Highlands, NJ: Humanities Press. (Original work published 1945)
30. Menne, H.L., Kinney, J.M., & Morhardt, D.J. (2002). Trying to continue to do as much as they can do: Theoretical insights regarding continuity and meaning making in the face of dementia. Dementia, 1 (3), 367-382.
31. Overall, J.E., Scott, J., Rhoades, H.M., & Lesser, J. (1990). Empirical scaling of the stages of cognitive decline in senile dementia. Journal of Geriatric Psychology and Neurology, 3, 212-220.
32. Patton, M.Q. (1990). Qualitative evaluation and research methods (2 nd ed.). Newbury Park, CA: Sage.
33. Phinney, A. (1998). Living with dementia from the patient's perspective. Journal of Gerontological Nursing, 24 (6), 8-15.
34. Phinney, A., & Chelsa, C.C. (2003). The lived body in dementia. Journal of Aging Studies, 17, 283-299.
35. Rose, L. (1996). Show me the way to go home. Menlo Park, CA: Library of Congress.
36. Ryden, M.D., Bossenmaier, M., & McLachlan, C. (1991). Aggressive behavior in cognitively impaired nursing home residents. Research in Nursing and Health, 14, 87-95.
37. Sandelowski, M. (1986). The problems of rigor in qualitative research. Advances in Nursing Science, 8 (3), 27-37.
38. Snyder, L. (1999). Speaking our minds. New York: W. H. Freeman.
39. Thomas, S.P. (2005). Through the lens of Merleau-Ponty: Advancing the phenomenological approach to nursing research. Nursing Philosophy, 6, 63-76.
40. Thomas, S.P., & Pollio, H.R. (2002). Listening to patients: A phenomenological approach to nursing research and practice. New York: Springer.
41. Tuohy, D. (2003). Student nurse-older person communication. Nurse Education Today, 3, 19-26.
42. van Manen, M. (1990). Researching lived experience: Human science for an action sensitive pedagogy. London, Canada: Althouse.
43. van Manen, M. (1998). Modalities of body experience in illness and health. Qualitative Health Research, 8, 7-24.
44. Werezak, L., & Stewart, N. (2002). Learning to live with early dementia. Canadian Journal of Nursing Research, 34 (1), 67-85.
45. Wilde, M. (1999). Why embodiment now? Advanced Nursing Science, 22 (2), 25-38.
46. Winger, J., Schirm, V., & Stewart, D. (1987). Aggressive behavior in long-term care. Journal of Psychosocial Nursing, 25 (4), 28-33.