In their voices: Identity preservation and experiences of Alzheimer's disease

Journal of Aging Studies

Volumn 18, Issue 4, 2004, Pages 415-428

  Beard, Reńe L ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Alzheimer's disease; Defining moments; Identity preservation

Indexed keywords

AGED; ALZHEIMER DISEASE; AMNESIA; ARTICLE; CAREGIVER; EARLY DIAGNOSIS; EXPERIENCE; FEMALE; HUMAN; IDENTITY; MALE; MEDICAL RESEARCH; PATIENT CARE;

EID: 4644276768     PISSN: 08904065     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jaging.2004.06.005     Document Type: Article

References (57)

1. Adams S. Pill R. Jones A. Medication, chronic illness and identity: The perspective of people with asthma Social Science & Medicine 45 1997 189-201
2. Beach T.G. The history of Alzheimer's disease: Three debates Journal of the History of Medicine and Allied Sciences 42 1987 327-349
3. Beard R.L. Estes C.L. Medicalization of aging. In: Ekerdt D.J. (Ed.). Macmillan encyclopedia of aging 2002 883-886 Macmillan Publishing London, UK
4. Becker G. Disrupted lives: How people create meaning in a chaotic world 1997 University of California Press Berkeley
5. Bendelow G.A. Williams S.J. Transcending the dualisms: Towards a sociology of pain Sociology of Health and Illness 17 2 1995 139-165
6. Bender M. Cheston R. Inhabitants of a lost kingdom: A model of the subjective experiences of dementia Ageing and Society 17 1997 513-532
7. Berrios G. Memory and the cognitive paradigm of dementia during the 19th century: A conceptual history. In: Murray R.M. Turner T.H. (Eds.). Lectures on the history of psychiatry 1990 194-211 Gaskell/Royal College of Psychiatrists UK
8. Bury M. Chronic illness as biographical disruption Sociology of Health and Illness 4 1982 167-182
9. Canguilhem G. On the normal and the pathological 1991 Zone Books New York
10. Castleman M. Gallagher-Thompson D. Naythons M. There's still a person in there: The complete guide to treating and coping with Alzheimer's 1999 G. P. Putnam's Sons New York
11. Charmaz K. Good days, bad days: The self in chronic illness and time 1991 Rutgers University Press New Jersey
12. Cheston R. Bender M. Understanding dementia: The man with the worried eyes 1999 Jessica Kingsley Publishers UK
13. Cohen-Mansfield J. Golander H. Arnheim G. Self-identity in older persons suffering from dementia: Preliminary results Social Science & Medicine 51 2000 381-394
14. Conrad P. Medicalization, genetics, and human problems. In: Bird C.E. Conrad P. Fremont A.M. (Ed.). Handbook of medical sociology 5th edition 2000 322-333 Prentice Hall New Jersey
15. Conrad P. Schneider J. Deviance and medicalization: From badness to sickness 1980 C.W. Mosby St. Louis
16. Davis R. My journey into Alzheimer's disease 1989 Tyndale House Publishers Illinois
17. Denzin N. Symbolic interactionism and cultural studies: The politics of interpretation 1992 1-35 Blackwell Oxford
18. Featherstone M. Hepworth M. The mask of ageing and the postmodern life course. in: Featherstone M. Hepworth M. Turner B.S. (Eds.). The body: Social process and cultural theory 1991 371-389 Sage Publications London
19. Fox P. From senility to Alzheimer's disease: The rise of the Alzheimer's disease movement The Millbank Quarterly 67 1 1989 58-102
20. Friel-McGowin D.F. Living in the labyrinth: A personal journey through the maze of Alzheimer's 1993 Dell Publishing New York
21. Gatter P.N. Anthropology, HIV and contingent identities Social Science & Medicine 41 1995 1523-1533
22. Glaser B. Strauss A. Awareness of dying 1965 Aldine Publishing Chicago
23. Glaser B.G. Strauss A. The discovery of grounded theory: Strategies for qualitative research 1967 Aldine de Gruyter New York
24. Goffman E. The presentation of self in everyday life 1959 Doubleday New York
25. Harding N. Palfrey C. The social construction of dementia: Confused professionals? 1997 Jessica Kingsley Publishers London
26. Harris P.B. Sterin G.J. Insider's perspective: Defining and preserving the self of dementia Journal of Mental Health and Aging 5 3 1999 241-256
27. Herskovits E. Struggling over subjectivity: Debates about the "self" and Alzheimer's disease Medical Anthropology Quarterly 9 2 1995 146-164
28. Holstein M. Alzheimer's disease and senile dementia: 1885-1920: An interpretive history of disease negotiation Journal of Aging Studies 11 1 1997 1-13
29. Karp D.A. Speaking of sadness: Depression, disconnection, and the meanings of illness 1996 Oxford University Press New York
30. Kaufman S. The ageless self: Sources of meaning in later life 1986 University of Wisconsin Press Wisconsin
31. Kaufman S. The social construction of frailty: An anthropological perspective Journal of Aging Studies 8 1994 45-58
32. Kitwood T. Person and process in dementia International Journal of Geriatric Psychiatry 8 1993 541-545
33. Kitwood T. Bredin K. Towards a theory of dementia care: Personhood and well-being Ageing and Society 12 1992 269-287
34. Lock M. Accounting for disease and distress: Morals of the normal and abnormal. In: Albrecht G.L. Fitzpatrick R. Scrimshaw S.C. (Eds.). Handbook of social studies in health and medicine 2000 259-276 Sage Thousand Oaks, CA
35. McIntosh J. McKeganey N. Addicts' narratives of recovery from drug use: Constructing a non-addict identity Social Science & Medicine 50 2000 1501-1510
36. Mills C.W. The sociological imagination 1959 Oxford University Press London
37. Mills M. Narrative identity and dementia: A study of emotion and narrative in older people with dementia Ageing and Society 17 1997 673-698
38. Ming C. Fernandez H. Alzheimer Movement re-examined 25 years later: Is it a "disease" or a senile condition in medical nature? Frontiers in Bioscience 6 2001 e30-e40
39. Oberg P. The absent body-A social gerontological paradox Ageing and Society 16 1996 701-719
40. Orona C.J. Temporality and identity loss due to Alzheimer's disease Social Science & Medicine 30 11 1990 1247-1256
41. Post S.G. The moral challenge of Alzheimer's disease 1995 Johns Hopkins Press Baltimore, MD
42. Post S.G. Concepts of Alzheimer's disease in a hypercognitive society. In: Whitehouse P.J. Maurer K. Ballenger J.F. (Eds.). Conceptions of Alzheimer's disease: Biological, clinical, and cultural perspectives 2000 245-256 The Johns Hopkins University Press Baltimore, MD
43. Robertson A. The politics of Alzheimer's disease: A case study in apocalyptic demography International Journal of Health Services 20 3 1990 429-442
44. Rose L. Show me the way to go home 1996 Elder Books San Francisco, CA
45. Sabat S.R. Harre R. The construction and deconstruction of self in Alzheimer's disease Ageing and Society 12 1992 443-461
46. Schutz A. The phenomenology of the social world 1967 Northwestern University Press Evanston, IL
47. Stafford P.B. The social construction of Alzheimer's disease. In: Sebeok T.A. Umiker-Sebeok J. (Eds.). Biosemiotics: The semiotic web 1991 393-406 Mouton de Gruyter Berlin
48. Steffen V. Life stories and shared experience Social Science & Medicine 45 1997 99-111
49. Strauss A. Mirrors and masks: The search for identity 1959 Sociology Press San Francisco
50. Strauss A. Chronic illness and the quality of life 1975 C.V. Mosby St. Louis
51. Strauss A. Corbin J. Basics of qualitative research: Grounded theory procedures and techniques 1990 Sage Publications Thousand Oaks
52. Strauss A. Corbin J. Grounded theory in practice 1997 Sage Publications Thousand Oaks
53. Usita P. Hyman I. Herman K. Narrative intentions: Listening to life stories in Alzheimer's disease Journal of Aging Studies 12 2 1998 185-197
54. Vittoria A.K. Preserving selves: Identity work and dementia Research on Aging 20 1 1998 91-136
55. Williams S.J. Bendelow G. The lived body: Sociological themes, embodied issues 1998 Routledge New York
56. Zola I. Medicine as an institution of social control. In: Conrad P. Kern R. (Eds.). The sociology of health and illness 1994 St. Martin's Press New York
57. Zola I. Missing pieces: A chronicle of living with a disability 1982 392-402 Temple University Press Philadelphia