The consistency of self-reported preferences for everyday living: Implications for person-centered care delivery

Journal of Gerontological Nursing

Volumn 40, Issue 10, 2014, Pages 34-46

  van Haitsma, Kimberly ^a   Abbott, Katherine M ^b   Heid, Allison R ^c   Carpenter, Brian ^d   Curyto, Kimberly ^e   Kleban, Morton ^c   Eshraghi, Karen ^c   Duntzee, Christina I ^c   Spector, Abby ^f  

^a PENNSYLVANIA STATE UNIVERSITY   (United States)

^b MIAMI UNIVERSITY   (United States)

^c POLISHER RESEARCH INSTITUTE   (United States)

^d WASHINGTON UNIVERSITY   (United States)

^e VA Western New Healthcare System   (United States)

^f Spector Consulting   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGED; COMPARATIVE STUDY; DAILY LIFE ACTIVITY; FEMALE; HOME FOR THE AGED; HUMAN; MALE; MIDDLE AGED; NURSING HOME; PATIENT CARE; PATIENT PREFERENCE; PSYCHOLOGY; QUESTIONNAIRE; SELF CARE; SELF REPORT; STUDENT; UNIVERSITY; VERY ELDERLY; YOUNG ADULT;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; FEMALE; HOMES FOR THE AGED; HUMANS; MALE; MIDDLE AGED; NURSING HOMES; PATIENT PREFERENCE; PATIENT-CENTERED CARE; QUESTIONNAIRES; SELF CARE; SELF REPORT; STUDENTS; UNIVERSITIES; YOUNG ADULT;

EID: 84908552014     PISSN: 00989134     EISSN: None     Source Type: Journal    
DOI: 10.3928/00989134-20140820-01     Document Type: Article

References (33)

1. Alzheimer's Association. (2013). 2013 Alzheimer's disease: Facts and figures. Retrieved from http://www.alz.org/downloads/facts_figures_2013.pdf
2. Applebaum, R., Straker, J., & Geron, S. (2000). Assessing satisfaction in health and long-term care. New York, NY: Springer.
3. Brooker, D. (2007). Person-centered dementia care: Making services better. London, UK: Jessica Kingsley.
4. Carpenter, B.D., Kissel, E.C., & Lee, M.M. (2007). Preferences and life evaluations of older adults with and without dementia: Reliability, stability, and proxy knowledge. Psychology and Aging, 22, 650-655.
5. Centers for Medicare & Medicaid Services. (2012). F tag 309-Quality of care-Advance copy. Re-trieved from https://www.cms.gov/Medicare/Provider-Enrollment-and-Certification/SurveyCertificationGenInfo/Downloads/Survey-and-Cert-Letter-12-48.pdf
6. Clark, P.A., Tucke, S.S., & Whitlatch, C.J. (2008). Consistency of information from persons with dementia: An analysis of differences by question type. Dementia, 7, 341-358. doi:10.1177/1471301208093288
7. Cohen-Mansfield, J., & Jensen, B. (2007). Selfmaintenance Habits and Preferences in Elderly (SHAPE): Reliability of reports of self-care preferences in older persons. Aging Clinical and Experimental Research, 19, 61-68.
8. Cvengros, J.A., Christensen, A.J., Cunningham, C., Hillis, S.L., & Kaboli, P.J. (2009). Patient preference for and reports of provider behavior: Impact of symmetry on patient outcomes. Health Psychology, 28, 660-667. doi:10.1037/a0016087
9. Deci, E.L., & Ryan, R.M. (2000). The "what" and "why" of goal pursuits: Human needs and the self-determination of behavior. Psychological Inquiry, 11, 227-268.
10. Ditto, P.H., Smucker, W.D., Danks, J.H., Jacobson, J.A., Houts, R.M., Fagerlin, A., Gready, R.M. (2003). Stability of older adults' preferences for life-sustaining medical treatment. Health Psychology, 22, 605-615. doi:10.1037/0278-6133.22.6.605
11. Edvardsson, D., Varrailhon, P., & Edvardsson, K. (2014). Promoting person-centeredness in long-term care: An exploratory study. Journal of Gerontological Nursing, 40(4), 46-53. doi:10.3928/00989134-20131028-03
12. Feinberg, L.F., & Whitlatch, C.J. (2001). Are persons with cognitive impairment able to state consistent choices? The Gerontologist, 41, 374-382. doi:10.1093/geront/41.3.374
13. Folstein, M.F., Folstein, S.E., & McHugh, P.R. (1975). "Mini-mental state": A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198. doi:10.1016/0022-3956(75)90026-6
14. Ford, D.H. (1994). Humans as self constructing living systems: A developmental perspective on behavior and personality. State College, PA: IDEALS.
15. Gerdner, L.A. (2000). Effects of individualized versus classical "relaxation" music on the frequency of agitation in elderly persons with Alzheimer's disease and related disorders. International Psychogeriatrics, 12, 49-65. doi:10.1017/s1041610200006190
16. Goffman, E. (1961). Asylums: Essays on the social situation of mental patients and other inmates. Garden City, NJ: Anchor Books.
17. Heid, A.R., Eshraghi, K., Duntzee, C.I., Abbott, K., Curyto, K., & Van Haitsma, K. (2014). "It depends": Reasons why nursing home residents change their minds about care preferences. The Gerontologist. Advance online publication. doi:10.1093/geront/gnu040
18. Housen, P., Shannon, G.R., Simon, B., Edelen, M.O., Cadogan, M.P., Jones, M., Saliba, D.(2009). Why not just ask the resident? Journal of Gerontological Nursing, 35(11), 40-49. doi:10.3928/00989134-20091001-01
19. Jahng, K.H., Martin, L.R., Golin, C.E., & Di- Matteo, M.R. (2005). Preferences for medical collaboration: Patient-physician congruence and patient outcomes. Patient Education and Counseling, 57, 308-314. doi:10.1016/j. pec.2004.08.006
20. Lawton, M.P., Van Haitsma, K., Klapper, J., Kleban, M.H., Katz, I.R., & Corn, J. (1998). A stimulation-retreat special care unit for elders with dementing illness. International Psychogeriatrics, 10, 379-395. doi:10.1017/s104161029800547x
21. Mollot, R.J., & Butler, D. (2012). Federal requirements & regulatory provisions relevant to dementia care and the use of antipsychotic drugs. Retrieved from http://theconsumervoice. org/uploads/files/issues/ltccc-antipsychoticdrugs- oversight-ftags-2.pdf
22. Patient Protection and Affordable Care Act, Pub. L. No. 111-148, 124 Stat. 119. (2010).
23. Saliba, D., & Buchanan, J. (2008). Development and validation of a revised nursing home assessment tool: MDS 3.0. Santa Monica, CA: Rand Corporation Health.
24. Simmons, S.F., & Schnelle, J.F. (2004). Individualized feeding assistance care for nursing home residents: Staffing requirements to implement two interventions. Journals of Gerontology. Biological Sciences and Medical Sciences, 59, M966-M973. doi:10.1093/gerona/59.9.m966
25. Thompson, D.L., & Smith, D.A. (1998). Continence restoration in the cognitively impaired adult. Geriatric Nursing, 19, 87-90. doi:10.1016/s0197-4572(98)90044-1
26. Thorgrimsen, L., Selwood, A., Spector, A., Royan, L., de Madariaga Lopez, M., Woods, R.T., & Orrell, M. (2003). Whose quality of life is it anyway? The validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) scale. Alzheimer's Disease and Associated Disorders, 17, 201-208.
27. Van Haitsma, K., Crespy, S., Humes, S., Elliot, A., Mihelic, A., Scott, C., Abbott, K. (2014). New toolkit to measure quality of person-centered care: Development and pilot evaluation with nursing home communities. Journal of the American Medical Directors Association. Advance online publication. doi:10.1016/j.jamda.2014.02.004
28. Van Haitsma, K., Curyto, K., Spector, A., Towsley, G., Kleban, M., Carpenter, B., Koren, M.J. (2013). The preferences for everyday living inventory: Scale development and description of psychosocial preferences responses in community-dwelling elders. The Gerontologist, 53, 582-595. doi:10.1093/geront/gns102
29. Whitlatch, C.J., Feinberg, L.F., & Tucke, S. (2005a). Accuracy and consistency of responses from persons with cognitive impairment. Dementia, 4, 171-183. doi:10.1177/1471301205051091
30. Whitlatch, C.J., Feinberg, L.F., & Tucke, S.S. (2005b). Measuring the values and preferences for everyday care of persons with cognitiveimpairment and their family caregivers. The Gerontologist, 45, 370-380. doi:10.1093/geront/45.3.370
31. Whitlatch, C.J., Judge, K., Zarit, S.H., & Femia, E. (2006). Dyadic intervention for family caregivers and care receivers in early-stage dementia. The Gerontologist, 46, 688-694. doi:10.1093/geront/46.5.688
32. Winter, L., & Parker, B. (2007). Current health and preferences for life-prolonging treatments: An application of prospect theory to end-of-life decision making. Social Sciences & Medicine, 65, 1695-1707. doi:10.1016/j. socscimed.2007.06.012
33. Wolff, J.L., Kasper, J.D., & Shore, A.D. (2008). Long-term care preferences among older adults: A moving target? Journal of Aging & Social Policy, 20, 182-200.