Consistency of information from persons with dementia An analysis of differences by question type

Dementia

Volumn 7, Issue 3, 2008, Pages 341-358

  Clark, Patricia A ^a   Tucke, Shandra S ^a   Whitlatch, Carol J ^a  

^a Benjamin Rose Institute   (United States)

Author keywords

Accuracy; Caregiving dyad; Reliability

Indexed keywords

EID: 48649091839     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301208093288     Document Type: Article

References (47)

1. Abraham, I.L., Manning, C.A., Snustad, D.G., Brashear, H.R., Newman, M.C., & Wooford, A.B. (1994). Cognitive screening of nursing home residents: Factor structures of the mini-mental state examination. Journal of the American Geriatrics Society, 42, 750-756.
2. Albert, S., Marks, J., Barrett, V., & Gurland, B. (1997). Home health care and quality of life for patients with Alzheimer's disease. American Journal of Preventive Medicine, 13(6), 63-68.
3. Anthony-Bergstone, C.R., Zarit, S.H., & Gatz, M. (1988). Symptoms of psychological distress among caregivers of dementia patients. Psychology and Aging, 3, 245-248.
4. Beisecker, A.E., Chrisman, S.K., & Wright, L.J. (1997). Perceptions of family caregivers of persons with Alzheimer's disease: Communication with physicians. American Journal of Alzheimer's Disease and Other Dementias, 12, 73-83.
5. Bond, J. (1999). Quality of life for people with dementia. Approaches to the challenge of measurement. Ageing and Society, 19, 561-579.
6. Brod, M., Steward, A.L., Sands, L., & Walton, P. (1999). Conceptualization and measurement of quality of live in dementia: The dementia quality of life instrument (DQoL). The Gerontologist, 39, 25-35.
7. Callahan, C.M., Hendrie, J.C., & Tierney, W.M. (1995). Documentation and evaluation of cognitive impairment in elderly primary care patients. Annals of Internal Medicine, 122, 422-429.
8. Chenoweth, B., & Spenser, B. (1986). Dementia: The experience of family caregivers. The Gerontologist, 26, 267-272.
9. Cicirelli, V.G. (1992). Family caregiving: Autonomous and paternalistic decision making. Newbury Park, CA: SAGE.
10. Clare, L., (2002). We'll fight it as long as we can: Coping with the onset of Alzheimer's disease. Aging & Mental Health, 6(2), 139-148.
11. Clark, P.A., & Whitlatch, C.J. (2003, November). Communication and understanding of care preferences in caregiving dyads. Poster session presented at the annual meeting of the Gerontological Society of America, San Diego, CA.
12. Cohen, D. (1991). The subjective experience of Alzheimer's disease. The anatomy of an illness as perceived by patients and families. American Journal of Alzheimer's Care and Related Disorders and Research, 6, 6-11.
13. Cohen-Mansfield, J., Reisberg, B., Bonnema, J., Berg, L., Dastoor, D., Pfeffer, R. et al. (1996). Staging methods for the assessment of the dementias: Perspectives. Journal of Clinical Psychiatry, 57, 190-198.
14. Connell, C.M., & Gallant, M.P. (1996). Spouse caregiver's attitudes toward obtaining a diagnosis of a dementing illness. Journal of the American Geriatric Society, 44, 1003-1009.
15. Coriell, M., & Cohen, S. (1995). Concordance in the face of a stressful life event: When do members of a dyad agree that one person supported the other ? Journal of Personality & Social Psychology, 69, 289-299.
16. Cotrell, V., & Schultz, R. (1993). The perspective of the patient with Alzheimer's Disease: A neglected dimension of dementia research. The Gerontologist, 33, 205-211. Downs, M. (1997). Progress report: The emergence of the person in dementia research. Aging and Society, 17, 597-604.
17. Dresser, R., & Whitehouse, P.J. (1994). The incompetent patient on the slippery slope. Hastings Center Report, 42(4), 6-12.
18. Feinberg, L.F., & Whitlatch, C.J. (2001). Are persons with cognitive impairment able to state consistent and accurate choices? The Gerontologist, 41, 1-9.
19. Feinberg, L.F., & Whitlatch, C.J. (2002). Decision making for persons with cognitive impairment and their family caregivers. American Journal of Alzheimer's Disease and Other Dementias, 17(4), 237-244.
20. Folstein, M.F., Folstein, S., & McHugh, P.R. (1975). Mini-Mental State: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198.
21. Friss, L.R., & Whitlatch, C.J. (1991). Who's taking care? A statewide study of family caregivers. The American Journal of Alzheimer's Care and Related Disorders and Research, 6, 16-26.
22. Glosser, G., Wexler, D., & Balmelli, M. (1985). Physicians' and families' perspectives on the medical management of dementia. Journal of the American Geriatric Society, 33, 383-391.
23. Gwyther, L. (1997). The perspective of the person with Alzheimer disease: Which outcomes matter in early to middle stage of dementia? Alzheimer's Disease and Related Disorders, 11(Supplement 6), 18-24.
24. Haley, W.E., Clair, J.M., & Salsberry, K. (1992). Family caregiver satisfaction with medical care of their demented relatives. The Gerontologist, 32, 219-226. Horowitz, A., Silverstone, B.M., & Reinhardt, J.P. (1991). A conceptual and empirical exploration of personal autonomy issues within family caregiving relationships. The Gerontologist, 31(1), 23-31.
25. Howard, K., & Rockwood, K. (1995). Quality of life in Alzheimer's Disease. Dementia, 6, 113-116.
26. Kitwood, T. (1997). The experience of dementia. Aging and Mental Health, 1(1), 13-22.
27. Kitwood, T., & Benson, S. (1995). The new culture of dementia care. London: Hawker Publications.
28. Kitwood, T., & Bredin, K. (1992). Towards a theory of dementia care: Personhood and well-being. Ageing and Society, 12, 269-287.
29. Landis, J., & Koch, G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159-174.
30. Molloy, D.W., Alernayehu, E., & Roberts, R. (1991). A Standardized Mini-Mental State Examination (SMMSE): Its reliability compared to the traditional Mini-Mental State Examination (MMSE). The American Journal of Psychiatry, 148, 102-105.
31. Mozley, C.G., Huxley, P., Sutcliffe, C., Bagley, H., Burns, A., Challis, D., et al. (1999). Not knowing where I am doesn't mean I don't know what I like: Cognitive impairment and quality of life responses in elderly people. International Journal of Geriatric Psychiatry, 14, 776-783.
32. Mulgrew, C.L., Morgenstern, N., Shetterly, S.M., Baxter, J., Baron, A.E., & Hamman, R.F. (1999). Cognitive functioning and impairment among rural elderly Hispanic and non-Hispanic whites as assessed by the Mini-Mental State Examination. Journal of Gerontology: Psychological Sciences, 54B(4), P233-P230.
33. Pett, M. (1997). Non parametric statistics for health care research. Thousand Oaks, CA: SAGE.
34. Pruchno, R.A., Burant, C.J., & Peters, N.D. (1997). Typologies of caregiving families: Family congruence and individual well-being. The Gerontologist, 37, 157-167.
35. Rabins, R., Kasper, J.D., Kleinman, L., Black, B.S., & Patrick, D.L. (1999). Concepts and methods in the development of the ADRQL: An instrument for assessing health-related quality of life in persons with Alzheimer's disease. Journal of Mental Health and Aging, 5(1), 33-48.
36. Roberto, K.A. (1999). Making critical health care decisions for older adults: Consensus among family members. Family Relations, 48, 167-175.
37. Robinson, L., Clare, L., & Evans, K. (2005). Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples. Aging and Mental Health, 9(4), 337-347.
38. Sanifort, F., Becker, M., & Diamond, R. (1996). Judgments of quality of life of individuals with severe mental disorders: Patient self-report verses provider perspectives. American Journal of Psychiatry, 153, 497-502.
39. Sansone, P., Schmitt, R.L., & Nichols, J.N. (1996). The right to choose: Capacity study of demented residents in nursing homes. New York: Francis Schervier Home and Hospital.
40. Sansone, P., Schmitt, L., Nichols, J., Phillips, M., & Belisle, S. (1998). Determining the capacity of demented nursing home residents to name a health care proxy. Clinical Gerontologist, 19(4), 35-51.
41. Tombaugh, T.N., & McIntyre, N.J. (1992). The Mini-Mental State Examination: A comprehensive review. Journal of the American Geriatrics Society, 40, 922-935.
42. Whitlatch, C.J. (2001). Including the person with dementia in family caregiving research and practice. Aging and Mental Health, 5(Supplement), 72-74.
43. Whitlatch, C.J., & Feinberg, L.F. (2003). Planning for the future together in culturally diverse families: Making everyday care decisions. Alzheimer's Care Quarterly, 4(1), 50-61.
44. Whitlatch, C.J., Feinberg, L.F., & Tucke, S. (2005 a). Accuracy and consistency of responses from persons with cognitive impairment. Dementia, 4(2), 171-183.
45. Whitlatch, C.J., Feinberg, L.F., & Tucke, S.T. (2005 b). Measuring the values and preferences for everyday care of persons with cognitive impairment and their family caregivers. The Gerontologist, 45(3), 370-380.
46. Whitlatch, C.J., Judge, K., Zarit, S.H., & Femia, E. (2006). A dyadic intervention for family caregivers and care receivers in early-stage dementia. The Gerontologist, 46, 688-694.
47. Woods, B. (1999). The person in dementia care. Generations, 23, 35-39.