Long-term care preferences among older adults: A moving target?

Journal of Aging and Social Policy

Volumn 20, Issue 2, 2008, Pages 182-200

  Wolff, Jennifer L ^a   Kasper, Judith D ^a   Shore, Andrew D ^a  

^a JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

Home and community based care; Long term care; Nursing home; Patient preference

Indexed keywords

DISEASE; ELDERLY POPULATION; HEALTH CARE; PREFERENCE BEHAVIOR; WOMENS STATUS;

AGED; ARTICLE; DAILY LIFE ACTIVITY; DEMENTIA; DISABLED PERSON; FEMALE; HEALTH STATUS; HOME CARE; HOME FOR THE AGED; HUMAN; LONG TERM CARE; NURSING HOME; PATIENT SATISFACTION; PSYCHOLOGICAL ASPECT; SOCIOECONOMICS;

ACTIVITIES OF DAILY LIVING; AGED; AGED, 80 AND OVER; DEMENTIA; DISABLED PERSONS; FEMALE; HEALTH STATUS; HOME CARE SERVICES; HOMES FOR THE AGED; HUMANS; LONG-TERM CARE; NURSING HOMES; PATIENT SATISFACTION; SOCIOECONOMIC FACTORS;

EID: 54049117686     PISSN: 08959420     EISSN: 15450821     Source Type: Journal    
DOI: 10.1080/08959420801977574     Document Type: Article

References (40)

1. Aykan, H. (2003) Effect of childlessness on nursing home and home health care use. Journal of Aging and Social Policy, 15:1, pp. 33-53.
2. Benjamin, A. E., Matthias, R. and Franke, T. M. (2000) Comparing consumer-directed and agency models for providing supportive services at home. Health Services Research, 35, pp. 351-366.
3. Biedenharn, P. J. and Normole, J. B. (1991) Elderly community residents' reactions to the nursing home: An analysis of nursing home-related beliefs. The Gerontologist, 31, pp. 107-115.
4. Chappell, N. L. (1989) Health and helping among the elderly: Gender differences. Journal of Aging and Health, 1, pp. 102-120.
5. Cleary, P. D. and Edgman-Levitan, S. (1997) Health care quality. Incorporating consumer perspectives. Journal of the American Medical Association, 278, pp. 1608-1612.
6. Dale, S., Brown, R., Phillips, B., Schore, J. and Carlson, B. L. (2003) The effects of Cash and Counseling on personal care services and Medicaid costs in Arkansas. Health Affairs, 19, pp. 566-575.
7. Doty, P., Kasper, J. and Litvak, S. (1996) Consumer-directed models of personal care: Lessons from Medicaid. Milbank Quarterly, 7, pp. 377-409.
8. Eckert, J. K., Morgan, L. A. and Swamy, N. (2004) Preferences for receipt of care among community-dwelling adults. Journal of Aging and Social Policy, 16, pp. 49-65.
9. Folstein, M. F., Folstein, S. E. and McHugh, P. R. (1975) Mini-Mental State: A practical method for grading the cognitive state of patients for the clinician. J Psychiatric Research, 12, pp. 189-198.
10. Foster, L., Brown, R., Phillips, B., Schore, J. and Carlson, B. L. (2003) Improving the quality of Medicaid personal assistance through consumer direction. Health Affairs (Millwood), pp. 162-175.
11. Freedman, V. A., Aykan, H., Wolf, D. A. and Marcotte, J. E. (2004) Disability and home care dynamics among older unmarried Americans. J Gerontology B Psychological and Social Sciences, 59, p. S25.
12. Fried, T. R., Van Doorn, C., O'Leary, J. R., Tinetti, M. E. and Drickamer, M. A. (1999) Older persons' preferences for site of terminal care. Annals of Internal Medicine, 131, pp. 109-112.
13. Guralnik, J. M., Fried, L. P., Simonsick, E. M., Kasper, J. D. and Lafferty, M. E. (1995) The Women's Health and Aging Study: Health and social characteristics of older women with disability, National Institute on Aging, Bethesda, MD
14. Kane, R. L. and Kane, R. A. (2001) What older people want from long-term care, and how they can get it. Health Affairs, 20, pp. 114-127.
15. Kane, R. A. (1997) Everyday matters in the lives of nursing home residents: Wish for and perception of choice and control. Journal of the American Geriatrics Society, 45, pp. 1086-1093.
16. Kane, R. L. (2005) Changing the face of long-term care. Journal of Aging and Social Policy, 17, pp. 1-18.
17. Kasper, J. D., Shapiro, S., Guralnik, J. M., Bandeen-Roche, K. J. and Fried, L. P. (1999) Designing a community study of moderately to severely disabled older women: The Women's Health and Aging Study. Annals of Epidemiology, 9, pp. 498-507.
18. Kasper, J. D., Shore, A. and Penninx, B. W. (2000) Caregiving arrangements of older disabled women, caregiving preferences, and views on adequacy of care. Aging Clinical and Experimental Research (Milano), 12, pp. 141-153.
19. Katz, S. J., Kabeto, M. and Langa, K. M. (2000) Gender disparities in the receipt of home care for elderly people with disability in the U.S. Journal of the American Medical Association, 284, pp. 3022-3027.
20. Kemper, P., Komisar, H. L. and Alecxih, L. (2005) Long-term care over an uncertain future: What can current retirees expect?. Inquiry, 42, pp. 335-350.
21. Keysor, J. J., Desai, T. and Mutran, E. J. (1999) Elders' preferences for care setting in short- and long-term disability scenarios. The Gerontologist, 39, pp. 334-344.
22. Knickman, J. R. and Snell, E. K. (2002) The 2030 problem: Caring for aging baby boomers. Health Services Research, 37, pp. 849-884.
23. Magaziner, J., German, P., Zimmerman, S. I., Hebel, J. R., Burton, L., Gruber-Baldini, A. L., May, C. and Kittner, S. (2000) The prevalence of dementia in a statewide sample of new nursing home admissions aged 65 and older: Diagnosis by expert panel. Epidemiology of Dementia in Nursing Homes Research Group. The Gerontologist, 40, pp. 663-672.
24. Mahoney, K. J., Simon-Rusinowitz, L., Loughlin, D. M., Desmond, S. M. and Squillace, M. R. (2004) Determining personal care consumers' preferences for a consumer-directed cash and counseling option: Survey results from Arkansas, Florida, New Jersey, and New York elders and adults with physical disabilities. Health Services Research, 39, pp. 643-664.
25. Mattimore, T. J., Wenger, N. S., Desbiens, N. A., Teno, J. M., Hamel, M. B., Liu Califf, H. R., Connors, A. F., Lynn, J. and Oye, R. K. (1997) Surrogate and physician understanding of patients' preferences for living permanently in a nursing home. Journal of the American Geriatrics Society, 45, pp. 818-824.
26. McAuley, W. J. and Blieszner, R. (1985) Selection of long-term care arrangements by older community residents. The Gerontologist, 25, pp. 188-193.
27. McCann, J. J., Hebert, L. E., Beckett, L. A., Morris, M. C., Scherr, P. A. and Evans, D. A. (2000) Comparison of informal caregiving by black and white older adults in a community population. Journal of the American Geriatrics Society, 48, pp. 1612-1617.
28. McCann, S. and Evans, D. S. (2002) Informal care: The views of people receiving care. Health Soc Care Community, 10, pp. 221-228.
29. Miller, N. A., Rubin, A., Elder, K. T., Kitchener, M. and Harrington, C. (2006) Strengthening home and community-based care through Medicaid waivers. Journal of Aging and Social Policy, 18, pp. 1-16.
30. Min, J. W. (2005) Preference for long-term care arrangement and its correlates for older Korean Americans. Journal of Aging and Health, 17, pp. 363-395.
31. Ory, M. G., Hoffman, R. R., Yee, J. L., Tennstedt, S. and Schulz, R. (1999) Prevalence and impact of caregiving: A detailed comparison between dementia and non-dementia caregivers. The Gerontologist, 39, pp. 177-185.
32. Pinquart, M. and Sorensen, S. (2002) Older adults' preferences for informal, formal, and mixed support for future care needs: A comparison of Germany and the United States.". International Journal of Aging and Human Development, 54, pp. 291-314.
33. Rabiner, D. J. (1996) Attitudes toward and use of subsequent nursing home services among a national sample of older adults. Journal of Aging and Health, 8, pp. 417-443.
34. Rhoades, J. and Krauss, N. (1999) Nursing home trends, 1987 and 1996. MEPS Chartbook No. 3, AHCPR Pub. No. 99-0032, Agency for Health Care Policy and Research, Rockville, MD
35. Stoller, E. P. and Cutler, S. J. (1993) Predictors of use of paid help among older people living in the community. The Gerontologist, 33, pp. 31-40.
36. Tilly, J., Wiener, J. M. and Cuellar, A. E. (2000) Consumer-directed home and community services programs in five countries: Policy issues for older people and government, The Urban Institute, Washington, DC
37. Wolff, J. L. and Agree, E. M. (2004) Depression among recipients of informal care: The effects of reciprocity, respect, and adequacy of support. Journal of Gerontology Social Sciences, 59, pp. S173-S180.
38. Wolff, J. L. and Kasper, J. D. (2006) Caregivers of frail elders: Updating a national profile. The Gerontologist, 46, pp. 344-356.
39. Worobey, J. L. and Angel, R. J. (1990) Functional capacity and living arrangements of unmarried elderly persons. Journal of Gerontology B Psychological Social Sciences, 45, pp. S95-S101.
40. Yesavage, J. A. and Brink, T. L. (1983) Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatric Research, 17, pp. 37-49.