Partnerships With Providers: Reflections From Parents of Children With Type 1 Diabetes

Western Journal of Nursing Research

Volumn 36, Issue 9, 2014, Pages 1238-1253

  Ayala, Judith ^a   Howe, Carol ^a   Dumser, Susan ^a   Buzby, Marianne ^a   Murphy, Kathryn ^a  

^a CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

Author keywords

children; chronic illness; diabetes; parents; patient provider relationship

Indexed keywords

ADOLESCENT; CHILD HEALTH; CHILD PARENT RELATION; DOCTOR PATIENT RELATION; FEMALE; HUMAN; INFORMATION PROCESSING; INSULIN DEPENDENT DIABETES MELLITUS; INTERPERSONAL COMMUNICATION; MALE; PARENT; PSYCHOLOGY; QUALITATIVE RESEARCH; QUESTIONNAIRE; SELF CARE; STANDARDS; TRENDS;

ADOLESCENT; CHILD HEALTH; COMMUNICATION; DIABETES MELLITUS, TYPE 1; FEMALE; FOCUS GROUPS; HUMANS; MALE; PARENT-CHILD RELATIONS; PARENTS; PHYSICIAN-PATIENT RELATIONS; QUALITATIVE RESEARCH; SELF CARE; SURVEYS AND QUESTIONNAIRES;

EID: 84907155293     PISSN: 01939459     EISSN: 15528456     Source Type: Journal    
DOI: 10.1177/0193945913518848     Document Type: Article

References (28)

1. Bendapudi N.,Berry L.,Frey K.,Parish J.,Rayburn W.Patient’s perspective on ideal physician behaviors.Mayo Clinic Proceedings. 2006;81:338-344
2. Bowes S.,Lowes L.,Warner J.,Gregory J.Chronic sorrow in parents of children with type 1 diabetes.Journal of Advanced Nursing. 2009;65:992-1000
3. Buford T. A.School-age children with asthma and their parents: Relationships with health care providers.Issues in Comprehensive Pediatric Nursing. 2005;28:153-162
4. Cavanagh S.Content analysis: Concepts, methods and applications.Nurse Researcher. 1997;4:5-15
5. Clark N.,Cabana M.,Nan B.,Gong Z.,Slish K.,Birk N.,Kaciroti N.The provider-patient partnership paradigm: Outcomes associated with physician communication behavior.Clinical Pediatrics. 2008;47:49-57
6. Dickenson A.Within the web: The family-practitioner relationship in the context of chronic childhood illness.Journal of Child Health Care. 2006;10:309-325
7. Fisher M.,Broome M.Parent-provider communication during hospitalization.Journal of Pediatric Nursing. 2011;26:58-69
8. Ginsburg K. R.Building resilience in children and teens. Elk Grove Village, IL: American Academy of Pediatrics; 2011:
9. Ginsburg K. R.,Howe C.,Jawad A. F.,Buzby M.,Ayala J. M.,Tuttle A.,Murphy K.Parents perceptions of factors that affect successful diabetes management of their children.Pediatrics. 2005;116:1095-1104
10. Haas L.,Maryniuk M.,Beck J.,Cox C. E.,Duker P.,Edwards L., Yousef G.National standards for diabetes self-management education and support.Diabetes Care. 2013;36:S100-S108
11. Haugstvedt A.,Wentzel-Larsen T.,Graue M.,Sovik O.,Rokne B.Fear of hypoglycaemia in mothers and fathers of children with type 1 diabetes is associated with poor glycaemic control and parental emotional distress: A population-based study.Diabetic Medicine. 2010;27:72-78
12. Howe C.,Ayala J.,Dumser S.,Buzby M.,Murphy K.Parental expectations in the care of their children and adolescents with diabetes.Journal of Pediatric Nursing. 2012;27:119-126
13. Knafl K.,Breitmayer B.,Gallo A.,Zoeller L.Parents’ views of health care providers: An exploration of the components of a positive working relationship.Journal of Child Healthcare. 1992;21:90-95
14. Kratz L.,Uding N.,Trahms C.,Villareale N.,Kieckhefer G.Managing childhood chronic illness: Parent perspectives and implications for parent-provider relationships.Family, Systems, & Health. 2009;27:303-313
15. Lincoln Y. S.,Guba E. G.Naturalistic inquiry. Beverly Hills, CA: SAGE; 1985:
16. Miles M. B.,Huberman A. M.Qualitative data analysis: An expanded sourcebook. Beverly Hills, CA: SAGE; 1994:
17. Miller A. R.,Condin C. J.,McKellin W. H.,Shaw N.,Klassen A. F.,Sheps S.Continuity of care for children with complex chronic health conditions: Parents’ perspectives.BMC Health Services Research. 2009;9:242-253
18. Burlington, MA: QSR International;
19. Richards T.,Oman D.,Hedberg J.,Thoresen C.,Bowden J.A qualitative examination of a spiritually-based intervention and self-management in the workplace.Nursing Science Quarterly. 2006;19:231-239
20. Sandelowski M.Whatever happened to qualitative description?.Research in Nursing & Health. 2000;12:334-340
21. Sandelowski M.What’s in a name? Qualitative description revisited.Research in Nursing & Health. 2010;33:77-84
22. Sleath B.,Ayala G.,Washington D.,Davis S.,Williams D.,Tudor G.,Gillette C.Caregiver rating of provider participatory decision-making style and caregiver and child satisfaction with pediatric asthma visits.Patient Education & Counseling. 2011;85:286-289
23. Smaldone A.,Ritholz M.Perceptions of parenting children with type 1 diabetes diagnosed in early childhood.Journal of Pediatric Healthcare. 2011;25:87-95
24. Stallwood L.Influence of caregiver stress and coping on glycemic control of young children with diabetes.Journal of Pediatric Healthcare. 2005;19:293-300
25. Streisand R.,Swift E.,Wickmark T.,Chen R.,Holmes C. S.Pediatric parenting stress among parents of children with type 1 diabetes: The role of self-efficacy, responsibility, and fear.Journal of Pediatric Psychology. 2005;30:513-521
26. Swedlund M.,Schumacher J.,Young H.,Cox E.Effective communication style and physician-family relationships on satisfaction with pediatric chronic disease.Health Community. 2012;27:498-505
27. Thorne S. E.,Robinson C. A.Guarded alliance: Health care relationships in chronic illness.Image: Journal of Nursing Scholarship. 1989;21:153-157
28. Zoffmann V.,Harder I.,Kirkevold M.A person-centered communication and reflection model: Sharing decision-making in chronic care.Qualitative Health Research. 2008;18:670-685