Parental Expectations in the Care of Their Children and Adolescents With Diabetes

Journal of Pediatric Nursing

Volumn 27, Issue 2, 2012, Pages 119-126

  J Howe, Carol ^a   Ayala, Judith ^a   Dumser, Susan ^a   Buzby, Marianne ^a   Murphy, Kathryn ^a  

^a CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

Author keywords

Adolescence; Children; Parent provider relationships; Type 1 diabetes

Indexed keywords

ADOLESCENT; ARTICLE; BEHAVIOR; CHILD; DISEASE MANAGEMENT; DOCTOR PATIENT RELATION; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; PARENT; PATIENT SATISFACTION;

ADOLESCENT; CHILD; DIABETES MELLITUS, TYPE 1; DISEASE MANAGEMENT; HUMANS; PARENTS; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS; POWER (PSYCHOLOGY);

EID: 84857114790     PISSN: 08825963     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pedn.2010.10.006     Document Type: Article

References (32)

1. Cavanagh S. Content analysis: Concepts, methods and applications. Nurse Researcher 1997, 4:5-15.
2. Christian, B. J., D'Auria, J. P., & Fox, L. C. (1999). Gaining freedom: Self-responsibility in adolescents with diabetes. Pediatric Nursing, 25, 255-260, 266.
3. Dovey-Pearce G., Hurrell R., May C., Walker C., Dougherty Y. Young adults' (16-25 years) suggestions for providing developmentally appropriate diabetes services: A qualitative study. Health and Social Care in the Community 2005, 13:409-419.
4. Fareed A. The experience of reassurance: Patients' perspectives. Journal of Advanced Nursing 1996, 23:272-279.
5. Ginsburg K.R., Forke C.M., Cnaan A., Slap G.B. Important health provider characteristics: The perspective of urban ninth graders. Developmental and Behavioral Pediatrics 2002, 23:237-243.
6. Ginsburg K.R., Howe C.J., Jawad A.F., Buzby M., Ayala J.M., Tuttle A., et al. Parents perceptions of factors that affect successful diabetes management of their children. Pediatrics 2005, 116:1095-1104.
7. Helseth B.A., Susman J.L., Crabtree B.F., O'Connor P.J. Primary care physicians' perceptions of diabetes management. A balancing act. Journal of Family Practice 1999, 48:37-42.
8. Horsch A., McManus F., Kennedy P., Edge J. Anxiety, depressive, and posttraumatic stress symptoms in mothers of children with type 1 diabetes. Journal of Traumatic Stress 2007, 20:881-891.
9. Hornsten A., Lundman B., Selstam E.K., Sandstrom H. Issues and innovations in nursing practice: Patient satisfaction with diabetes care. Journal of Advanced Nursing 2004, 51:609-617.
10. Hsieh H.F., Shannon S. Three approaches to qualitative content analysis. Qualitative Health Research 2005, 15:1277-1287.
11. Knafl K., Breitmayer B., Gallo A., Zoeller L. Parents' views of health care providers: An exploration of the components of a positive working relationship. Journal of Child Healthcare 1992, 21:90-95.
12. Lincoln Y.S., Guba E.G. Naturalistic inquiry 1985, Sage, Beverly Hills, CA.
13. Miles M.B., Huberman A.M. Qualitative data analysis: An expanded sourcebook 1994, Sage, Beverly Hills, CA.
14. Miller A.R., Condin C.J., McKellin W.H., Shaw N., Klassen A.F., Sheps S. Continuity of care for children with complex chronic health conditions: Parents' perspectives. BMC Health Services Research 2009, 9:242-253.
15. NVivo qualitative data analysis software (Version 2) [Computer software]. (2002). Australia: QSR International.
16. Paterson B. Myth of empowerment in chronic illness. Journal of Advanced Nursing 2001, 34:574-581.
17. Patton M. Qualitative research & evaluation methods 2002, Sage, Thousand Oaks, ca. 3rd ed.
18. Powers S.W., Byars K.C., Mitchell M.J., Patton S.R., Standiford D.A., Dolan L.M. Parent report of mealtime behavior and parenting stress in young children with type 1 diabetes and in healthy control subjects. Diabetes Care 2002, 25:313-318.
19. Richards G., Morris M., Booker S., Johnson A. What do people with type 1 diabetes find helpful in health professionals? Results from a focus group study. Practical Diabetes International 2006, 23:249-252.
20. Robinson C.A., Thorne S.E. Strengthening family 'interference'. Journal of Advanced Nursing 1984, 9:597-602.
21. Sandelowski M. Whatever happened to qualitative description?. Research in Nursing & Health 2000, 23:334-340.
22. Scal P., Ireland M. Addressing transition to adult health care for adolescents with special health care needs. Pediatrics 2005, 115:1607-1612.
23. Sullivan-Bolyai S., Deatrick J., Gruppuso P., Tamborlane W., Grey M. Constant vigilance: Mothers' work parenting young children with type 1 diabetes. Journal of Pediatric Nursing 2003, 18:21-29.
24. Sullivan-Bolyai S., Knafl K., Deatrick J., Grey M. Maternal management behaviors for young children with type 1 diabetes. American Journal of Maternal Child Nursing 2003, 28:160-166.
25. Sullivan-Bolyai S., Knafl K., Sadler L., Gillis C.L. Great expectations: A position description for parents as caregivers: Part II. Pediatric Nursing 2004, 30:52-56.
26. Thorne S.E. Patient-provider communication in chronic illness, a health promotion window of opportunity. Family Community Health 2006, 29:4S-11S.
27. Thorne S.E., Harris S.R., Mahoney K., Con A., McGuinness L. The context of health care communication in chronic illness. Patient Education and Counseling 2004, 54:299-306.
28. Thorne S.E., Kuo M., Armstrong E.A., McPherson G., Harris S.R., Hislop G. 'Being known': Patients' perspectives of the dynamics of human connection in cancer care. Psycho-Oncology 2005, 14:887-898.
29. Thorne S., Paterson B., Russell C. The structure of everyday self-care decision making in chronic illness. Qualitative Health Research 2003, 13:1337-1352.
30. Thorne S.E., Robinson C.A. Guarded alliance: health care relationships in chronic illness. IMAGE: Journal of Nursing Scholarship 1989, 21:153-157.
31. Thorne S.E., Robinson C.A. Health care relationships: the chronic illness perspective. Research in Nursing and Health 1988, 11:293-300.
32. Zaffani S., Cuzzolin L., Meneghelli G., Gangemi M., Murgia V., Chaimenti G., et al. An analysis of the factors influencing the paediatrician-parents relationship: the importance of the socio-demographic characteristics of the mothers. Child: Care, Health & Development 2005, 31:575-580.