Continuity of care for children with complex chronic health conditions: Parents' perspectives

BMC Health Services Research

Volumn 9, Issue , 2009, Pages

  Miller, Anton R ^a   Condin, Christopher J ^a   McKellin, William H ^a   Shaw, Nicola ^b   Klassen, Anne F ^c   Sheps, Sam ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^b UNIVERSITY OF ALBERTA   (Canada)

^c MCMASTER UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO HEALTH; CANADA; CAREGIVER; CHILD; CHILD HEALTH CARE; CHRONIC DISEASE; COMMUNITY CARE; FEMALE; HUMAN; HUMAN RELATION; INTERVIEW; LITERATURE; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PARENT; PATIENT CARE; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; STANDARD; UTILIZATION REVIEW;

ADULT; ANECDOTES AS TOPIC; CANADA; CAREGIVERS; CHILD; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; CHRONIC DISEASE; COMMUNITY NETWORKS; CONTINUITY OF PATIENT CARE; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PARENTS; PROFESSIONAL-FAMILY RELATIONS;

EID: 75649128011     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/1472-6963-9-242     Document Type: Article

References (39)

1. The Innovative Care for Chronic Conditions framework (ICCC). World Health Organization, http://www.who.int/diabetesactiononline/about/ICCC/en/
2. Institute of Medicine, Crossing the Quality Chasm: A New Health System for the 21st Century Washington, DC: National Academies Press 2001
3. What is 'continuity of care'? M Gulliford S Naithani M Morgan, Journal of Health Services Research Policy 2006 11 248 250 17018200
4. Reconstructing continuity of care in mental health services: a multilevel conceptual framework. A Wierdsma C Mulder S de Vries S Sytema, J Health Serv Res Policy 2009 14 52 57 19103917
5. Indices for Continuity of Care: A Systematic Review of the Literature. SH Jee MD Cabana, Med Care Res Rev 2006 63 158 188 16595410
6. Continuity of care: an essential element of modern general practice? GK Freeman F Olesen P Hjortdahl, Fam Pract 2003 20 623 627 14701883
7. Continuity of care: a multidisciplinary review. JL Haggerty RJ Reid GK Freeman BH Starfield CE Adair R McKendry, BMJ 2003 327 1219 1221 14630762
8. R Reid J Haggerty R McKendry, Defusing the Confusion: Concepts and Measures of Continuity of Healthcare Ottawa, ON: Canadian Health Services Research Foundation (CHSRF) 2002
9. Experience of continuity of care of patients with multiple long-term conditions in England. L Cowie M Morgan P White M Gulliford, J Health Serv Res Policy 2009 14 82 87 19299261
10. Integrated literature review of continuity of care: Part 1, Conceptual issues. KJ Sparbel MA Anderson, J Nurs Scholarsh 2000 32 17 24 10819734
11. Seeing the Same Doctor: Determinants of Satisfaction with Specialty Care for Disabled Children. N Breslau EA Mortimer Jr, Med Care 1981 19 741 758 6455572
12. Continuity Reexamined: Differential Impact on Satisfaction with Medical Care for Disabled and Normal Children. N Breslau, Med Care 1982 20 347 360 6210811
13. Functional disability and school activity limitations in 41,300 school-age children: relationship to medical impairments. ME Msall RC Avery MR Tremont JC Lima ML Rogers DP Hogan, Pediatrics 2003 111 548 553 12612235
14. Conceptualizing childhood health problems using survey data: a comparison of key indicators. DE Kohen JC Brehaut RE Garner AR Miller LM Lach AF Klassen, et al. BMC Pediatr 2007 7 40 52 18053253
15. A Family-Centered, Community-Based System of Services for Children and Youth With Special Health Care Needs. JM Perrin D Romm SR Bloom CJ Homer KA Kuhlthau C Cooley, et al. Arch Pediatr Adolesc Med 2007 161 933 936 17909135
16. Challenges in long-term health care for children. RE Stein, Ambul Pediatr 2001 1 280 288 11888416
17. Parenting and childhood chronicity: making visible the invisible work. LD Ray, J Pediatr Nurs 2002 17 424 438 12518283
18. KL Spalding VE Hayes AP Williams P McKeever, Analysis of interface along the continuum of care. Technical report 5: Services for children with special needs and their families. Report to Health Canada, Home Care and Pharmaceuticals Division, Health Policy and Communications Branch Victoria, BC: Hollander Analytical Services Ltd 2002
19. Responding to the needs of children with chronic health conditions in an era of health services reform. AR Miller MA Recsky RW Armstrong, CMAJ 2004 171 1366 1367 15557591
20. Child health services research. Challenges and opportunities. CB Forrest L Simpson C Clancy, JAMA 1997 277 1787 1793 9178792
21. Operationalizing a conceptually based noncategorical definition: a first look at US children with chronic conditions. RE Stein EJ Silver, Arch Pediatr Adolesc Med 1999 153 68 74 9895002
22. K Charmaz, Constructing grounded theory: A practical guide through qualitative analysis London, UK: SAGE Publications Ltd 2006
23. C Pope N Mays, Qualitative Research in Health Care Malden, Mass.: Blackwell Publishing 2006
24. J Ritchie J Lewis, Qualitative Research Practice: A Guide for Social Science Students and Researchers London: Sage Publications Inc 2003
25. Psychopathology in children and adolescents with intellectual disability: measurement, prevalence, course, and risk. JL Wallander MC Dekker HM Koot LM Glidden, International Review of Research in Mental Retardation San Diego, Calif.: Academic Press 2003 26 93 134
26. Organisational silos: affecting the discharge of elderly patients. JM Scott P Hawkins, J Health Organ Manag 2008 22 309 318 18700587
27. Navigating poorly charted territory: patient dilemmas in health care "nonsystems". S Sofaer, Medical Care Research & Review 2009 66 75S 93S
28. RC Antonelli JW McAllister J Popp, Making Care Coordination a Critical Component of the Pediatric Health System: A Multidisciplinary Framework The Commonwealth Fund 2009
29. Continuity of medical care: conceptualization and measurement. SM Shortell, Med Care 1976 14 377 391 1271879
30. From silos to bridges: meeting the general health care needs of adults with severe mental illnesses. M Horvitz-Lennon AM Kilbourne HA Pincus, Health Aff (Millwood) 2006 25 659 669 16684729
31. S Ginsburg, Colocating Health Services: A Way to Improve Coordination of Children's Health Care? New York, NY: The Commonwealth Fund 2008
32. Interprofessional Health Care Education: Recommendations of the National Academies of Practice Expert Panel on Health Care in the 21st Century. VL Brashers CE Curry DC Harper SH McDaniel G Pawlson JW Ball, Issues in Interdisciplinary Care 2001 3 21 31
33. Health Canada, Interprofessional Education for Collaborative Patient-Centred Practice Ottawa, ON 2007
34. National Research Council and Institute of Medicine, Children's Health, the Nation's Wealth: Assessing and Improving Child Health Washington, DC The National Academies Press 2004
35. Care coordination in the medical home: integrating health and related systems of care for children with special health care needs. American Academy of Pediatrics Council on Children with Disabilities, Pediatrics 2005 116 1238 1244 16264016
36. Key worker services for disabled children: what characteristics of services lead to better outcomes for children and families? P Sloper V Greco J Beecham R Webb, Child Care Health Dev 2006 32 147 157 16441849
37. Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers. JS Rahi I Manaras H Tuomainen GL Hundt, Pediatrics 2004 114 477 e482 15466074
38. What 'Patient-Centered' Should Mean: Confessions Of An Extremist. DM Berwick, Health Aff (Millwood) 2009 28 555 w565 19454528
39. Challenges and approaches to newcomer health research. LD Ogilvie E Burgess-Pinto C Caufield, Journal of Transcultural Nursing 2008 19 64 73 18165428