Advance Care Planning in palliative care: A systematic literature review of the contextual factors influencing its uptake 2008-2012

Palliative Medicine

Volumn 28, Issue 8, 2014, Pages 1026-1035

  Lovell, Allison ^a,b   Yates, Patsy ^a  

^a QUEENSLAND UNIVERSITY OF TECHNOLOGY   (Australia)

^b ROYAL BRISBANE AND WOMEN'S HOSPITAL   (Australia)

Author keywords

Advance Care Planning; Advance Directives; Living Wills; Palliative care; Palliative therapy; Terminal care

Indexed keywords

AFRICAN AMERICAN; AGING; CANCER DIAGNOSIS; CULTURAL FACTOR; EDUCATIONAL STATUS; ETHNICITY; FUNCTIONAL DISEASE; HEALTH PRACTITIONER; HEALTH SERVICE; HEALTH STATUS; HUMAN; PALLIATIVE THERAPY; PATIENT ATTITUDE; PATIENT CARE; PATIENT PARTICIPATION; PATIENT PREFERENCE; PROGNOSIS; REVIEW; SEXUAL ORIENTATION; SOCIAL INTERACTION; SYSTEMATIC REVIEW; AGE; EDUCATION; ETHNIC GROUP; LEGISLATION AND JURISPRUDENCE; MEDICAL PROFESSION; NEOPLASM; PSYCHOLOGY; UNITED STATES; UTILIZATION;

ADVANCE CARE PLANNING; AGE FACTORS; EDUCATIONAL STATUS; ETHNIC GROUPS; HEALTH OCCUPATIONS; HUMANS; NEOPLASMS; PALLIATIVE CARE; PATIENT PREFERENCE; UNITED STATES;

EID: 84906997941     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216314531313     Document Type: Review

References (61)

1. Glick HR. The right-to-die: state policymaking and the elderly. J Aging Stud 1991; 5: 283-307.
2. Kutner L. Due process of euthanasia: the living will, a proposal. Indiana Law J 1969; 44: 539-554.
3. Respecting patient choices. Advanced Care Planning in Australia, http://advancecareplanning.org.au/advance-careplanning/for-professionals/ a-brief-history-of-advance-careplanning (accessed 12 February 2013).
4. Robinson L, Dickinson C, Bamford C, et al. A qualitative study: professionals' experiences of advance care planning in dementia and palliative care, 'a good idea in theory but...'. Palliat Med. Epub ahead of print 21 November 2012. DOI: 10.1177/0269216312465651.
5. Prendergast TJ. Advance care planning: pitfalls, progress, promise. Crit Care Med 2001; 29: N34-N39.
6. Hardin SB and Yusufaly YA. Difficult end-of-life treatment decisions: do other factors trump advance directives? Arch Intern Med 2004; 164: 1531-1533. (Pubitemid 38970473)
7. Fagerlin A and Schneider CE. Enough. The failure of the living will. Hastings Cent Rep 2004; 34: 30-42.
8. Street AF and Ottmann G. State of the science review of advance care planning models. Bundoora, VIC, Australia: La Trobe University, 2006, 70 pp.
9. Schickedanz AD, Schillinger D, Landefeld CS, et al. A clinical framework for improving the advance care planning process: start with patients' self-identified barriers. J Am Geriatr Soc 2009; 57: 31-39.
10. Rhee JJ, Zwar NA and Kemp LA. Uptake and implementation of Advance Care Planning in Australia: findings of key informant interviews. Aust Health Rev 2012; 36: 98-104.
11. Blackford J and Street A. Is an advance care planning model feasible in community palliative care? A multi-site action research approach. J Adv Nurs 2012; 68: 2021-2033.
12. Cheng MJ, King LM, Alesi ER, et al. Doing palliative care in the oncology office. J Oncol Pract 2013; 9: 84-88.
13. Meeussen K, Van den Block L, Echteld M, et al. Advance care planning in Belgium and The Netherlands: a nationwide retrospective study via sentinel networks of general practitioners. J Pain Symptom Manage 2011; 42: 565-577.
14. Gramling R, Norton SA, Ladwig S, et al. Direct observation of prognosis communication in palliative care: a descriptive study. J Pain Symptom Manage 2013; 45: 202-212.
15. Hussain J, Adams D and Campbell C. End-of-life care in neurodegenerative conditions: outcomes of a specialist palliative neurology service. Int J Palliat Nurs 2013; 19: 162-169.
16. Silvester W, Fullam RS, Parslow RA, et al. Quality of advance care planning policy and practice in residential aged care facilities in Australia. BMJ Support Palliat Care. Epub ahead of print 14 November 2012. DOI: 10.1136/bmjspcare-2012-000262.
17. Australian Government National Health and Hospitals Reform Commission. A healthier future for all Australians - final report. Publications no. P3-5499, June 2009. Canberra, ACT, Australia: Blue Star Print Group.
18. 4th International Society of Advance Care Planning and End of Life Care Conference, http://acpelsociety.com.au/conference/ (2012, accessed 12 February 2013).
19. Kaleem J. End of life tech companies grow with changes in death traditions. Huffington Post Religion, http://www.huffingtonpost.com/2013/06/13/ end-of-life-death-techfuneral-n-3431174.html (2013, accessed 15 June 2013).
20. Sanders C, Seymour J, Clarke A, et al. Development of a peer education programme for advance end-of-life care planning. Int J Palliat Nurs 2006; 12: 214, 216-223.
21. Pautex S, Herrmann FR and Zulian GB. Role of advance directives in palliative care units: a prospective study. Palliat Med 2008; 22: 835-841.
22. Lynn J, Arkes HR, Stevens M, et al. Rethinking fundamental assumptions: SUPPORT's implications for future reform. Study to Understand Prognoses and Preferences and Risks of Treatment. J Am Geriatr Soc 2000; 48: S214-S221. (Pubitemid 30266017)
23. Ali NS. GM management. Promotion of advance care planning in the nonhospitalized elderly. Geriatr Nurs 1999; 20: 260-262.
24. Morrison RS, Morrison EW and Glickman DF. Physician reluctance to discuss advance directives. An empiric investigation of potential barriers. Arch Intern Med 1994; 154: 2311-2318. (Pubitemid 24327850)
25. Gates MF, Schins I and Smith AS. Applying advanced directives regulations in home care agencies. Home Healthc Nurse 1996; 14: 127-133.
26. Kelner M, Bourgeault IL, Hebert PC, et al. Advance directives: the views of health care professionals. CMAJ 1993; 148: 1331-1338.
27. Badzek LA, Leslie NS and Corbo-Richert B. An ethical perspective. End-of-life decisions: are they honored? J Nurs Law 1998; 5: 51-63.
28. Bowater SE, Speakman JK and Thorne SA. End-of-life care in adults with congenital heart disease: now is the time to act. Curr Opin Support Palliat Care 2013; 7: 8-13.
29. Moher D, Liberati A, Tetzlaff J, et al. The PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med 2009; 6(6): e1000097.
30. Reynolds KS, Hanson LC, Henderson M, et al. End-of-life care in nursing home settings: Do race or age matter? Palliat and Support Care 2008. 6(1): 21-27.
31. Dow LA, Matsuyama RK, Ramakrishnan V, et al. Paradoxes in advance care planning: the complex relationship of oncology patients, their physicians, and advance medical directives. J Clin Oncol 2010; 28: 299-304.
32. Wagner GJ, Riopelle D, Steckart J, et al.; Provider communication and patient understanding of life-limiting illness and their relationship to patient communication of treatment preferences. J Pain Symptom Manage 2010; 39: 527-534.
33. Lau KS, Tse DMW, Tsan Chen TW, et al. Comparing non-cancer and cancer deaths in Hong Kong: a retrospective review. J Pain Symptom Manage 2010; 40: 704-714.
34. De Gendt C, Bilsen J, Stichele RV, et al. Advance care planning and dying in nursing homes in Flanders, Belgium: a nationwide survey. J Pain Symptom Manage. Epub ahead of print 20 August 2012. DOI: 10.1016/j.jpainsymman.2012.02. 011.
35. Froggatt K, Vaughan S, Bernard C, et al. Advance care planning in care homes for older people: an English perspective. Palliat Med 2009; 23: 332-338.
36. Stewart F, Goddard C, Schiff R, et al. Advanced care planning in care homes for older people: a qualitative study of the views of care staff and families. Age Ageing 2011; 40: 330-335.
37. MacPherson A, Walshe C, O'Donnell V, et al. The views of patients with severe chronic obstructive pulmonary disease on advance care planning: a qualitative study. Palliat Med. Epub ahead of print 26 March 2012. DOI: 10.1177/0269216312440606.
38. Gott M, Gardiner C, Small N, et al. Barriers to advance care planning in chronic obstructive pulmonary disease. Palliat Med 2009; 23: 642-648.
39. Guo Y, Palmer JL, Bianty J, et al. Advance directives and do-not-resuscitate orders in patients with cancer with metastatic spinal cord compression: advanced care planning implications. J Palliat Med 2010; 13: 513-517.
40. Hirschman KB, Corcoran AM, Straton JB, et al. Advance care planning and hospice enrollment: who really makes the decision to enroll? J Palliat Med 2010; 13(5): 519-523
41. Clarke A and Seymour J. 'At the foot of a very long ladder': discussing the end of life with older people and informal caregivers. J Pain Symptom Manage 2010; 40: 857-869.
42. Fried TR, Bullock K, Iannone L, et al. Understanding advance care planning as a process of health behavior change. J Am Geriatr Soc 2009; 57: 1547-1555.
43. Piers RD, Van Eechoud IJ, Van Camp S, et al. Advance Care Planning in terminally ill and frail older persons. Patient Educ Couns. Epub ahead of print 2 August 2011. DOI: 10.1016/j.pec.2011.07.008.
44. Nilsson ME, Maciejewski PK, Zhang B, et al. Mental health, treatment preferences, advance care planning, location, and quality of death in advanced cancer patients with dependent children. Cancer 2009; 115: 399-409.
45. Seymour J, Almack K and Kennedy S. Implementing advance care planning: a qualitative study of community nurses' views and experiences. BMC Palliat Care 2010; 9: 4.
46. Zhou G, Stoltzfus JC, Houldin AD, et al. Knowledge, attitudes, and practice behaviors of oncology advanced practice nurses regarding advanced care planning for patients with cancer. Oncol Nurs Forum 2010; 37: E400-E410.
47. Cartwright C, Hughes M and Lienert T. End-of-life care for gay, lesbian, bisexual and transgender people. Cult Health Sex 2012; 14: 537-548.
48. Rhee JJ, Zwar NA and Kemp LA. How is advance care planning conceptualised in Australia? Findings from key informant interviews. Aust Health Rev 2011; 35: 197-203.
49. Hu WY, Huang CH, Chiu TY, et al. Factors that influence the participation of healthcare professionals in advance care planning for patients with terminal cancer: a nationwide survey in Taiwan. Soc Sci Med 2010; 70: 1701-1704.
50. Minto F and Strickland K. Anticipating emotion: a qualitative study of advance care planning in the community setting. Int J Palliat Nurs 2011; 17: 278-284.
51. Wu P, Lorenz KA and Chodosh J. Advance care planning among the oldest old. J Palliat Med 2008; 11: 152-157. (Pubitemid 351374203)
52. Corke C, Milnes S, Orford N, et al. The influence of medical enduring power of attorney and advance directives on decision-making by Australian intensive care doctors. Crit Care Resusc 2009; 11: 122-128.
53. Murray SA, Kendall M, Boyd K, et al. Illness trajectories and palliative care. BMJ 2005; 330: 1007-1011. (Pubitemid 40604286)
54. Boyd K and Murray SA. Recognising and managing key transitions in end of life care. BMJ 2010; 341: c4863.
55. Glare PA. Early implementation of palliative care can improve patient outcomes. J Natl Compr Canc Netw 2013; 11(Suppl. 1): S3-S9.
56. Briggs LA, Kirchhoff KT, Hammes BJ, et al. Patient-centered advance care planning in special patient populations: a pilot study. J Prof Nurs 2004; 20: 47-58. (Pubitemid 38425829)
57. Gillick MR. A broader role for advance medical planning. Ann Intern Med 1995; 123: 621-624.
58. Timmermans S and Mauck A. The promises and pitfalls of evidence-based medicine. Health Aff 2005; 24: 18-28. (Pubitemid 40169771)
59. Sackett DL, Rosenberg WM, Gray JA, et al. Evidence based medicine: what it is and what it isn't. BMJ 1996; 312: 71-72.
60. Isaacs D and Fitzgerald D. Seven alternatives to evidence based medicine. BMJ 1999; 319: 1618. (Pubitemid 30000349)
61. Cabana MD, Rand CS, Powe NR, et al. Why don't physicians follow clinical practice guidelines? A framework for improvement. JAMA 1999; 282: 1458-1465. (Pubitemid 29493800)