Understanding advance care planning as a process of health behavior change

Journal of the American Geriatrics Society

Volumn 57, Issue 9, 2009, Pages 1547-1555

  Fried, Terri R ^a,b   Bullock, Karen ^c,d   Iannone, Lynne ^b   O'Leary, John R ^b  

^a VA CONNECTICUT HEALTHCARE SYSTEM   (United States)

^b YALE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c University of Connecticut School of Social Work   (United States)

^d INSTITUTE OF LIVING   (United States)

Author keywords

Advance care planning; Behavior change; Health behavior

Indexed keywords

ADULT; AGED; ARTICLE; BEHAVIOR CHANGE; CAREGIVER; FEMALE; HEALTH BEHAVIOR; HUMAN; LIVING WILL; MAJOR CLINICAL STUDY; MALE; PATIENT ATTITUDE; PATIENT DECISION MAKING; PLANNING; QUALITATIVE RESEARCH; TERMINAL CARE;

ADVANCE CARE PLANNING; ADVANCE DIRECTIVES; AGED; AGED, 80 AND OVER; AGING; CAREGIVERS; CROSS-SECTIONAL STUDIES; DECISION MAKING; FEMALE; FOCUS GROUPS; GERIATRIC ASSESSMENT; GOALS; HEALTH BEHAVIOR; HUMANS; MALE; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; QUALITY OF LIFE; SELF EFFICACY;

EID: 69549086485     PISSN: 00028614     EISSN: 15325415     Source Type: Journal    
DOI: 10.1111/j.1532-5415.2009.02396.x     Document Type: Article

References (43)

1. Fagerlin A, Schneider CE. Enough. The failure of the living will. Hastings Cent Rep 2004 34 : 30 42.
2. Perkins HS. Controlling death: The false promise of advance directives. Ann Intern Med 2007 147 : 51 57.
3. Gillick MR. Advance care planning. N Engl J Med 2004 350 : 7 8.
4. Singer PA, Martin DK, Lavery JV et al. Reconceptualizing advance care planning from the patient's perspective. Arch Intern Med 1998 158 : 879 884.
5. Briggs L. Shifting the focus of advance care planning: Using an in-depth interview to build and strengthen relationships. J Palliat Med 2004 7 : 341 349.
6. Gillick MR. A broader role for advance medical planning. Ann Intern Med 1995 123 : 621 624.
7. Kolarik RC, Arnold RM, Fischer GS et al. Objectives for advance care planning. J Palliat Med 2002 5 : 697 704.
8. Ramsaroop SD, Reid MC, Adelman RD. Completing an advance directive in the primary care setting: What do we need for success? J Am Geriatr Soc 2007 55 : 277 283.
9. Pearlman RA, Cole WG, Patrick DL et al. Advance care planning: Eliciting patient preferences for life-sustaining treatment. Patient Educ Couns 1995 26 : 353 361.
10. Champion V, Maraj M, Hui S et al. Comparison of tailored interventions to increase mammography screening in nonadherent older women. Prev Med 2003 36 : 150 158.
11. Skinner CS, Strecher VJ, Hospers H. Physicians' recommendations for mammography: Do tailored messages make a difference? Am J Public Health 1994 84 : 43 49.
12. Prochaska JO, Velicer WF, Fava JL et al. Evaluating a population-based recruitment approach and a stage-based expert system intervention for smoking cessation. Addict Behav 2001 26 : 583 602.
13. Johnson SS, Driskell MM, Johnson JL et al. Transtheoretical model intervention for adherence to lipid-lowering drugs. Disease Manage 2006 9 : 102 114.
14. Janz NK, Champion VL, Strecher VJ. The Health Belief Model. In : Glanz K, Rimer BK, Marcus Lewis F, eds. Health Behavior and Health Education: Theory, Research, and Practice, 3rd Ed. San Francisco : Jossey-Bass, 2002, pp 45 66.
15. Ajzen I, Fishbein M. Understanding Attitudes and Predicting Social Behavior. Englewood Cliffs, NJ : Prentice-Hall, 1980.
16. Bandura A. Social Foundations of Thought and Action: A Social Cognitive Theory. Englewood Cliffs, NJ : Prentice-Hall, 1986.
17. Prochaska JO, Redding CA, Evers KE. The Transtheoretical Model and stages of change. In : Janz NK, Champion VL, Strecher VJ, editors. Health Behavior and Health Education: Theory, Research, and Practice, 3rd Ed. San Francisco : Jossey-Bass, 2002, pp 99 120.
18. Redding CA, Rossi JS, Rossi SR et al. Health behavior models. Int Electronic J Health Educ 2000 3 (Special Issue) : 180 193.
19. Prochaska JO, Velicer WF, DiClemente CC et al. Measuring processes of change: Applications to the cessation of smoking. J Consult Clin Psychol 1988 56 : 520 528.
20. Foti ME, Hanrahan-Boshes M. REAP: Readiness to Engage in Advance Care Planning [on-line]. Available at Accessed February 25, 2009.
21. Westley C, Briggs LA. Using the stages of change model to improve communication about advance care planning. Nurs Forum (Auckland) 2004 39 : 5 12.
22. Sudore RL, Schickedanz AD, Landefeld CS et al. Engagement in multiple steps of the advance care planning process: A descriptive study of diverse older adults. J Am Geriatr Soc 2008 56 : 1006 1013.
23. Pearlman RA, Starks H, Cain KC et al. Improvements in advance care planning in the Veterans Affairs System: Results of a multifaceted intervention. Arch Intern Med 2005 165 : 667 674.
24. AHRQ News and Numbers. Most American Adults Have at Least One Chronic Medical Condition. Agency for Healthcare Research and Quality, 2008 [on-line]. Available at Accessed November 11, 2008.
25. Brodaty H, Low LF, Gibson L et al. What is the best dementia screening instrument for general practitioners to use? Am J Geriatr Psychiatry 2006 14 : 391 400.
26. Kitzinger J. Qualitative research: Introducing focus groups. BMJ 1995 311 : 299 302.
27. Sim J. Collecting and analysing qualitative data: Issues raised by the focus group. J Adv Nurs 1998 28 : 345 352.
28. Fried TR, Bradley EH, Towle VR. Assessment of patient preferences: Integrating treatments and outcomes. J Gerontol B Psychol Sci Soc Sci 2002 57B : S348 S354.
29. Glaser BG, Strauss AL. The Discovery of Grounded Theory: Strategies for Qualitative Research. Chicago : Aldine Publishing Company, 1967.
30. Strauss AL, Corbin J. Basics of Qualitative Research. Techniques and Procedures for Developing Grounded Theory. Thousand Oaks : Sage Publications, 1998.
31. Carrese JA, Mullaney JL, Faden RR et al. Planning for death but not serious future illness: Qualitative study of housebound elderly patients. BMJ 2002 325 : 125.
32. Teno JM, Stevens M, Spernak S et al. Role of written advance directives in decision making: Insights from qualitative and quantitative data. J Gen Intern Med 1998 13 : 439 446.
33. Seymour J, Gott M, Bellamy G et al. Planning for the end of life: The views of older people about advance care statements. Soc Sci Med 2004 59 : 57 68. (Pubitemid 38490346)
34. Perkins HS, Geppert CMA, Gonzales A et al. Cross-cultural similarities and differences in attitudes about advance care planning. J Gen Intern Med 2002 17 : 48 57.
35. Bullock K. Promoting advance directives among African Americans: A faith-based model. J Palliat Med 2006 9 : 183 195.
36. Johnson KS, Elbert-Avila KI et al. The influence of spiritual beliefs and practices on the treatment preferences of African Americans: A review of the literature. J Am Geriatr Soc 2005 53 : 711 719.
37. Morrison RS, Zayas LH, Mulvihill M et al. Barriers to completion of health care proxies: An examination of ethnic differences. Arch Intern Med 1998 158 : 2493 2497. (Pubitemid 28555509)
38. Curtis JR, Patrick DL, Caldwell ES et al. Why don't patients and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians. Arch Intern Med 2000 160 : 1690 1696.
39. Schickedanz AD, Schillinger D, Landefeld CS et al. A clinical framework for improving the advance care planning process: Start with patients' self-identified barriers. J Am Geriatr Soc 2009 57 : 31 39.
40. Carr D, Khodyakov D. End-of-life health care planning among young-old adults: An assessment of psychosocial influences. J Gerontol B Psychol Sci Soc Sci 2007 62 : S135 S141.
41. Kagawa-Singer M, Blackhall LJ. Negotiating cross-cultural issues at the end of life: "You got to go where he lives." JAMA 2001 286 : 2993 3001.
42. Blackhall LJ, Murphy ST, Frank G et al. Ethnicity and attitudes toward patient autonomy. JAMA 1995 274 : 820 825.
43. Prochaska JO, Velicer WF. The transtheoretical model of health behavior change. Am J Health Promot 1997 12 : 38 48.