The views of patients with severe chronic obstructive pulmonary disease on advance care planning: A qualitative study

Palliative Medicine

Volumn 27, Issue 3, 2013, Pages 265-272

  Macpherson, Anna ^a   Walshe, Catherine ^b   Vyas, Aashish ^c   O’donnell, Valerie ^a  

^a North Western Deanery ^*

^b UNIVERSITY OF MANCHESTER   (United Kingdom)

^c ROYAL PRESTON HOSPITAL   (United Kingdom)

Author keywords

Advance care planning; chronic obstructive pulmonary disease; decision making; palliative care

Indexed keywords

AGED; ARTICLE; ATTITUDE TO DEATH; CHRONIC OBSTRUCTIVE LUNG DISEASE; DECISION MAKING; FEMALE; HUMAN; MALE; MIDDLE AGED; PATIENT CARE; PATIENT SATISFACTION; QUALITATIVE RESEARCH; QUESTIONNAIRE; VERY ELDERLY;

ADVANCE CARE PLANNING; AGED; AGED, 80 AND OVER; ATTITUDE TO DEATH; DECISION MAKING; FEMALE; HUMANS; MALE; MIDDLE AGED; PATIENT SATISFACTION; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITATIVE RESEARCH; QUESTIONNAIRES;

EID: 84883317640     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216312440606     Document Type: Article

References (30)

1. World Health Organization. World health statistics. 2008.
2. Pinnock H Kendall M Murray SA, et al. Living and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative study. Br Med J 2011; 342: d142.
3. White P White S Edmonds P, et al. Palliative care or end-of-life care in advanced chronic obstructive pulmonary disease: a prospective community survey. Br J Gen Pract 2011; 61: 399–400.
4. Knauft E Nielsen EL Engelburg RA, et al. Barriers and facilitators to end of life care communication for patients with COPD. Chest 2005; 127: 2188–2196.
5. Claessens MT Lynn J Zhong Z, et al. Dying with lung cancer or chronic obstructive pulmonary disease: insights from SUPPORT. Eur Respir J 2008; 32: 796–803.
6. Spathis A Booth S. End of life care in COPD: in search of a good death. Int J Chron Obstructive Pulm Dis 2008; 3: 11–29.
7. Curtis JR Engelburg RA Nielsen EL, et al. Patient-physician communication about end of life care for patients with severe COPD. Eur Respir J 2004; 24: 200–205.
8. Curtis JR Wenrich M Carline J, et al. Patients’ perspectives on physician skill in End of life care: differences between patients with COPD, cancer and AIDS. Chest 2002; 122: 356–362.
9. National End of Life Care Programme. Capacity, care planning and advance care planning in life limiting illness: a guide for health and social care staff. 17 May 2011; p.6.
10. Henry C Seymour J. Advance care planning: a guide for health and social care staff. National End of Life Care Programme, August 2008.
11. Detering KM Hancock AD Reade MC, et al. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. Br Med J 2010; 340: c1345.
12. Connors AF Dawson NV Desbiens NA, et al. A controlled trial to improve care for seriously ill hospitalised patients – the study to understand prognoses and preferences for outcomes and risks of treatments. J Am Med Assoc 1995; 274: 1591–1598.
13. Department of Health. End of life care strategy: promoting high quality care for all adults at the end of life. 16 July 2008.
14. American Thoracic Society/European Respiratory Society Task Force. Standards for the diagnosis and management of patients with COPD, Version 1. 2, New York: American Thoracic Society, www.thoracic.org/go/copd (2004, accessed 20th January 2012).
15. Gott M Gardiner C Small N, et al. Barriers to advance care planning in COPD. Palliat Med 2009; 23: 642–648.
16. The Gold Standards Framework. Prognostic Indicator Guidance. Revised version 5, September 2008, p.2.
17. Transana Version 2.4b. University of Wisconsin.
18. Singer PA Martin DK Lavery J, et al. Reconceptualizing advance care planning from the patient's perspective. Arch Intern Med 1998; 158: 879–884.
19. Barnes K Jones L Tookman A, et al. Acceptability of an advance care planning interview schedule: a focus group study. Palliat Med 2007; 21: 23–28.
20. Caress AL Luker KA Owens RG. A descriptive study of the meaning of illness in chronic renal disease. J Adv Nurs 2001; 33: 716–727.
21. Smolen DM Topp R. Coping methods of patients with inflammatory bowel disease and prediction of perceived health, functional status and well-being. Gastroenterol Nurs 1998; 21: 112–118.
22. Urizar GG Jr Sears SF Jr. Psychosocial and cultural influences on cardiovascular health and quality of life among Hispanic cardiac patients in South Florida. J Behav Med 2006; 29: 255–268.
23. Davison SN. Facilitating advance care planning for patients with end-stage renal disease: the patient perspective. Clin J Am Soc Nephrol 2006; 1: 1023–1026.
24. Sudore RL Schillinger D Knight SJ, et al. Uncertainty about advance care planning preferences among diverse older adults. J Health Commun 2010; 15: 159–171.
25. Greenhalgh T. Patient and public involvement in chronic illness: beyond the expert patient. Br Med J 2009; 338: b49.
26. Say RE Thomson R. The importance of patient preferences in treatment decisions – challenges for doctors. Br Med J 2003; 327: 542–545.
27. Curtis JR. Palliative and end-of-life care for patients with severe COPD. Eur Respir J 2008; 32: 796–803.
28. NHS End of Life Care Programme. The gold standards framework, www.goldstandardsframework.nhs.uk (2010, accessed 20th October 2011).
29. Higginson IJ Sen-Gupta GJA. Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. J Palliat Med 2000; 3: 287–300.
30. Thomas C Morris SM Clark D. Place of death: preferences among cancer patients and their carers. Soc Sci Med 2004; 58: 2431–2444.