Knowing who to trust: Exploring the role of 'ethical metadata' in mediating risk of harm in collaborative genomics research in Africa

BMC Medical Ethics

Volumn 15, Issue 1, 2014, Pages

  De Vries, Jantina ^a   Williams, Thomas N ^b   Bojang, Kalifa ^c   Kwiatkowski, Dominic P ^d,e   Fitzpatrick, Raymond ^f   Parker, Michael ^f  

^a UNIVERSITY OF CAPE TOWN   (South Africa)

^b KENYA MEDICAL RESEARCH INSTITUTE   (Kenya)

^c MEDICAL RESEARCH COUNCIL LABORATORIES   (Gambia)

^d UNIVERSITY OF OXFORD   (United Kingdom)

^e WELLCOME TRUST SANGER INSTITUTE   (United Kingdom)

^f UNIVERSITY OF OXFORD   (United Kingdom)

Author keywords

Africa; Data sharing; Ethics; Ethnic groups; Ethnic stigmatisation; Genomics; MalariaGEN; Secondary use

Indexed keywords

BLACK PERSON; COOPERATION; ETHICS; ETHNIC GROUP; GAMBIA; GENETICS; GENOMICS; HUMAN; INFORMATION DISSEMINATION; INFORMED CONSENT; KENYA; MALARIA; MORALITY; PERSONNEL; QUALITATIVE RESEARCH; RESEARCH ETHICS; RISK; TRUST; UNITED KINGDOM;

AFRICAN CONTINENTAL ANCESTRY GROUP; COOPERATIVE BEHAVIOR; ETHICS, RESEARCH; ETHNIC GROUPS; GAMBIA; GENETIC RESEARCH; GENOMICS; HUMANS; INFORMATION DISSEMINATION; INFORMED CONSENT; KENYA; MALARIA; MORAL OBLIGATIONS; QUALITATIVE RESEARCH; RESEARCH PERSONNEL; RISK; TRUST; UNITED KINGDOM;

EID: 84906924430     PISSN: None     EISSN: 14726939     Source Type: Journal    
DOI: 10.1186/1472-6939-15-62     Document Type: Article

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