The rare diseases clinical research network's organization and approach to observational research and health outcomes research

Journal of General Internal Medicine

Volumn 29, Issue SUPPL. 3, 2014, Pages

  Krischer, Jeffrey P ^a   Gopal Srivastava, Rashmi ^b   Groft, Stephen C ^b   Eckstein, David J ^b  

^a UNIVERSITY OF SOUTH FLORIDA   (United States)

^b NATIONAL INSTITUTES OF HEALTH   (United States)

Author keywords

multi institutional clinical research; outcomes; patient advocacy groups; rare diseases network

Indexed keywords

COOPERATION; HUMAN; INFORMATION PROCESSING; METHODOLOGY; ORGANIZATION AND MANAGEMENT; OUTCOME ASSESSMENT; RARE DISEASE; REGISTER; UNITED STATES;

COOPERATIVE BEHAVIOR; DATASETS AS TOPIC; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); RARE DISEASES; REGISTRIES; RESEARCH DESIGN; UNITED STATES;

EID: 84905923468     PISSN: 08848734     EISSN: 15251497     Source Type: Journal    
DOI: 10.1007/s11606-014-2894-x     Document Type: Article

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