The Rare Diseases Clinical Research Network Contact Registry update: Features and functionality

Contemporary Clinical Trials

Volumn 33, Issue 4, 2012, Pages 647-656

  Richesson, Rachel L ^a   Sutphen, Rebecca ^a   Shereff, Denise ^a   Krischer, Jeffrey P ^a  

^a UNIVERSITY OF SOUTH FLORIDA   (United States)

Author keywords

Multiple disease registry; Observational research; Patient reported; Rare disease; Registry; Study recruitment

Indexed keywords

ARTICLE; CLINICAL RESEARCH; CLINICAL TRIAL (TOPIC); CONTACT REGISTRY; DISEASE REGISTRY; GENETIC DISORDER; HUMAN; INFORMATION PROCESSING; MULTIPLE DISEASE REGISTRY; PATIENT INFORMATION; POLICY; RARE DISEASE; RARE DISEASES CLINICAL RESEARCH NETWORK; SELF REPORT;

ACCESS TO INFORMATION; HUMANS; PATIENT EDUCATION AS TOPIC; PATIENT SELECTION; PROGRAM DEVELOPMENT; PROGRAM EVALUATION; RARE DISEASES; REGISTRIES; SELF REPORT;

EID: 84861532036     PISSN: 15517144     EISSN: 15592030     Source Type: Journal    
DOI: 10.1016/j.cct.2012.02.012     Document Type: Article

References (9)

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