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Volumn SS-14-01, Issue , 2014, Pages 51-58

Big desire to share big health data: A shift in consumer attitudes toward personal health information

Author keywords

[No Author keywords available]

Indexed keywords

CONSUMER ATTITUDES; HEALTH INFORMATIONS; HEALTH SYSTEMS; HEALTHCARE SERVICES; PERSONAL HEALTH INFORMATIONS; PERSONALIZED MEDICINES; RESEARCH PURPOSE; WILLINGNESS TO SHARE;

EID: 84904886661     PISSN: None     EISSN: None     Source Type: Conference Proceeding    
DOI: None     Document Type: Conference Paper
Times cited : (30)

References (43)
  • 2
    • 84936873526 scopus 로고    scopus 로고
    • The complexity of consumer willingness to disclose personal information: Unraveling health information privacy concerns
    • Agarwal, R.; Anderson, C. 2008. The complexity of consumer willingness to disclose personal information: Unraveling health information privacy concerns. eHealth Initiative's 5th Annual Conference; Washington, DC.
    • (2008) eHealth Initiative's 5th Annual Conference; Washington, DC
    • Agarwal, R.1    Anderson, C.2
  • 4
    • 33749386628 scopus 로고    scopus 로고
    • A privacy paradox: Social networking in the United States
    • Barnes, S. 2006. A privacy paradox: Social networking in the United States. First Monday. vol. 11, no. 9.
    • (2006) First Monday , vol.11 , Issue.9
    • Barnes, S.1
  • 5
    • 84904915636 scopus 로고    scopus 로고
    • Privacy Paradox: Americans Happy to Share Personal Data With Big Business
    • June 25, 2013
    • Brady, D. 2013. Privacy Paradox: Americans Happy to Share Personal Data With Big Business. Businessweek June 25, 2013.
    • (2013) Businessweek
    • Brady, D.1
  • 6
    • 84904862456 scopus 로고    scopus 로고
    • California Healthcare Foundation. 2010. Survey. http://www.chcf.org/~/ media/MEDIA%20LIBRARY%20Files/PDF/C/ PDF%20ConsumersHealthInfoTechnologyNationalSurvey. pdf
    • (2010) Survey
  • 7
    • 84904915739 scopus 로고    scopus 로고
    • Cancer Commons. 2014. http://www.cancercommons.org
    • (2014)
  • 9
    • 84904870257 scopus 로고    scopus 로고
    • CMS. 2014. EHR incentives. http://www.cms.gov/EHRIncentivePrograms
    • (2014) EHR Incentives
  • 10
    • 84904900411 scopus 로고    scopus 로고
    • eMerge Network
    • eMerge Network. 2014. http://www.genome.gov/27540473
    • (2014)
  • 12
    • 84904870256 scopus 로고    scopus 로고
    • Genome Standards Consortium. 2014. http://gensc.org
    • (2014)
  • 13
    • 84970750831 scopus 로고
    • Data Access, Ownership, and Control Toward Empirical Studies of Access Practices
    • Hilgartner, S.; Brandt-Rauf, S.I. 1994. Data Access, Ownership, and Control Toward Empirical Studies of Access Practices. Science Communication 15.4: 355-372.
    • (1994) Science Communication , vol.15 , Issue.4 , pp. 355-372
    • Hilgartner, S.1    Brandt-Rauf, S.I.2
  • 14
    • 84904870255 scopus 로고    scopus 로고
    • HL7 Standards Committee. 2014. Patient Generated Health Data. http://www.h17.org/implement/standards/product-brief.cfm?product-id=316
    • (2014) Patient Generated Health Data
  • 15
    • 84904900408 scopus 로고    scopus 로고
    • International Cancer Genome Consortium. 2014. http://icgc.org
    • (2014)
  • 16
    • 84872459720 scopus 로고    scopus 로고
    • Identifying Personal Genomes by Surname Inference
    • doi: 10.1126/science.1229566
    • Gymrek, M.; McGuire, A.L.; Golan, D.; Halperin, E.; Erlich, Y. 2013. Identifying Personal Genomes by Surname Inference. Science. vol. 339 no. 6117 pp. 321-324. doi: 10.1126/science.1229566
    • (2013) Science , vol.339 , Issue.6117 , pp. 321-324
    • Gymrek, M.1    McGuire, A.L.2    Golan, D.3    Halperin, E.4    Erlich, Y.5
  • 17
    • 84904900409 scopus 로고    scopus 로고
    • Cisco Says 74 Percent of Consumers Open to Telehealth Sessions
    • Horowitz, B.T. 2013. Cisco Says 74 Percent of Consumers Open to Telehealth Sessions. eWeek. http://www.eweek.com/networking/cisco-says-74- percent-of-consumers-open-to-telehealth-sessions/
    • (2013) eWeek
    • Horowitz, B.T.1
  • 18
    • 84904886813 scopus 로고    scopus 로고
    • InfoSys. 2013. Digital Consumer Study. http://www.infosys.com/digital- consumer-study
    • (2013) Digital Consumer Study
  • 19
    • 84862747248 scopus 로고    scopus 로고
    • After the revolution? Ethical and social challenges in 'personalized genomic medicine'
    • Jun 1
    • Juengst, E.T.; Settersten, R.A. Jr; Fishman, J.R.; McGowan, M.L. 2012. After the revolution? Ethical and social challenges in 'personalized genomic medicine'. Per Med. Jun 1;9(4):429-439.
    • (2012) Per Med , vol.9 , Issue.4 , pp. 429-439
    • Juengst, E.T.1    Settersten Jr., R.A.2    Fishman, J.R.3    McGowan, M.L.4
  • 22
    • 84904900410 scopus 로고    scopus 로고
    • The Potential Power of Personal Genomics in Reducing Social Stereotypes: Attitudinal Study and Computer Animation of Results for 4,000 Japanese Respondents
    • Accepted
    • Kido, T.; Swan, M. 2013. The Potential Power of Personal Genomics in Reducing Social Stereotypes: Attitudinal Study and Computer Animation of Results for 4,000 Japanese Respondents. American Society of Human Genetics. Accepted.
    • (2013) American Society of Human Genetics
    • Kido, T.1    Swan, M.2
  • 23
    • 27744466589 scopus 로고    scopus 로고
    • Health-information altruists - A potentially critical resource
    • DOI 10.1056/NEJMsb051220
    • Kohane, I.S.; Altman, R.B. 2005. Health-information altruists-a potentially critical resource. New England Journal of Medicine. 353(19):2074-7. doi: 10.1056/NEJMsb051220 (Pubitemid 41609103)
    • (2005) New England Journal of Medicine , vol.353 , Issue.19 , pp. 2074-2077
    • Kohane, I.S.1    Altman, R.B.2
  • 24
    • 56649104920 scopus 로고    scopus 로고
    • The taste for privacy: An analysis of college student privacy settings in an online social network
    • Lewis, K.; Kaufman, J.; and Christakis, N. 2008. The taste for privacy: An analysis of college student privacy settings in an online social network. Journal of Computer-Mediated Communication, 14(1), 79-100.
    • (2008) Journal of Computer-Mediated Communication , vol.14 , Issue.1 , pp. 79-100
    • Lewis, K.1    Kaufman, J.2    Christakis, N.3
  • 25
    • 77956943445 scopus 로고    scopus 로고
    • Personal genomics and individual identities: Motivations and moral imperatives of early users
    • Sep 1
    • McGowan, M.L.; Fishman, J.R.; Lambrix, M.A. 2010. Personal genomics and individual identities: motivations and moral imperatives of early users. New Genet Soc. Sep 1;29(3):261-290.
    • (2010) New Genet Soc , vol.29 , Issue.3 , pp. 261-290
    • McGowan, M.L.1    Fishman, J.R.2    Lambrix, M.A.3
  • 26
    • 70449719034 scopus 로고    scopus 로고
    • Social networkers' attitudes toward direct-to-consumer personal genome testing
    • doi: 10.1080/15265160902928209
    • McGuire, A.L.; Diaz, C.M.; Wang, T.; Hilsenbeck, S.G. 2009 Social networkers' attitudes toward direct-to-consumer personal genome testing. Am J Bioeth. 9(6-7):3-10. doi: 10.1080/15265160902928209.
    • (2009) Am J Bioeth , vol.9 , Issue.6-7 , pp. 3-10
    • McGuire, A.L.1    Diaz, C.M.2    Wang, T.3    Hilsenbeck, S.G.4
  • 27
    • 84904915635 scopus 로고    scopus 로고
    • HHS to develop data-sharing plan for outcomes research
    • McKinney, M. 2013. HHS to develop data-sharing plan for outcomes research. ModernHealthcare.
    • (2013) ModernHealthcare
    • McKinney, M.1
  • 28
    • 84904884922 scopus 로고    scopus 로고
    • Data-sharing initiative reduces deaths
    • March 19, 2013
    • Monegain, B. 2013. Data-sharing initiative reduces deaths. Healthcare IT News. March 19, 2013.
    • (2013) Healthcare IT News
    • Monegain, B.1
  • 29
    • 84904915634 scopus 로고    scopus 로고
    • Phenx.org
    • Phenx.org. 2014. https://phenx.org/
    • (2014)
  • 31
    • 84904870254 scopus 로고    scopus 로고
    • Sanford Research. 2014. http://www.sanfordresearch.org/cords/
    • (2014)
  • 32
    • 84862001575 scopus 로고    scopus 로고
    • Crowdsourced Research Studies
    • Swan, M. 2012. Crowdsourced Research Studies. J Med Internet Res. vol. 14, iss. 2, e46.
    • (2012) J Med Internet Res , vol.14 , Issue.2
    • Swan, M.1
  • 33
    • 85014583355 scopus 로고    scopus 로고
    • Health 2050: The Realization of Personalized Medicine through Crowdsourcing, the Quantified Self, and the Participatory Biocitizen
    • doi:10.3390/jpm2030093
    • Swan, M. 2012a. Health 2050: The Realization of Personalized Medicine through Crowdsourcing, the Quantified Self, and the Participatory Biocitizen. J. Pers. Med. 2(3), 93-118; doi:10.3390/jpm2030093
    • (2012) J. Pers. Med. , vol.2 , Issue.3 , pp. 93-118
    • Swan, M.1
  • 34
    • 84991768872 scopus 로고    scopus 로고
    • The Quantified Self: Fundamental Disruption in Big Data Science and Biological Discovery
    • Swan, M. 2013. The Quantified Self: Fundamental Disruption in Big Data Science and Biological Discovery. Big Data. 1(2): 85-99.
    • (2013) Big Data , vol.1 , Issue.2 , pp. 85-99
    • Swan, M.1
  • 35
    • 84904884920 scopus 로고    scopus 로고
    • TranSMART Foundation. 2014. http://www.transmartfoundation.org/
    • (2014)
  • 38
    • 84904903118 scopus 로고    scopus 로고
    • U.S. Census Bureau. 2012. Educational Attainment. http://www.census.gov/ hhes/socdemo/education/data/cps/2012/tables.html
    • (2012) Educational Attainment
  • 40
    • 77955689232 scopus 로고    scopus 로고
    • The privacy paradox on social network sites revisited: The role of individual characteristics and group norms
    • Utz, S.; Kramer, N. 2009. The privacy paradox on social network sites revisited: The role of individual characteristics and group norms. Cyberpsychology: Journal of Psychosocial Research on Cyberspace, 3(2), article 1.
    • (2009) Cyberpsychology: Journal of Psychosocial Research on Cyberspace , vol.3 , Issue.2 , pp. 1
    • Utz, S.1    Kramer, N.2
  • 41
    • 85044895553 scopus 로고    scopus 로고
    • Situating privacy online: Complex perceptions and everyday practices
    • Viseu, A.; Clement, A.; and Aspinall, J. 2004. Situating privacy online: Complex perceptions and everyday practices. Information, Communication & Society, 7(1), 92-114.
    • (2004) Information, Communication & Society , vol.7 , Issue.1 , pp. 92-114
    • Viseu, A.1    Clement, A.2    Aspinall, J.3
  • 42
    • 77953842860 scopus 로고    scopus 로고
    • Sharing medical data for health research: The early personal health record experience
    • Weitzman, E.R.; Kaci, L.; Mandl, K.D. 2010. Sharing medical data for health research: the early personal health record experience. Journal of Medical Internet Research 12(2):e14.
    • (2010) Journal of Medical Internet Research , vol.12 , Issue.2
    • Weitzman, E.R.1    Kaci, L.2    Mandl, K.D.3
  • 43
    • 84861217023 scopus 로고    scopus 로고
    • Willingness to share personal health record data for care improvement and public health: A survey of experienced personal health record users
    • May 22
    • Weitzman, E.R.; Kelemen, S.; Kaci, L.; Mandl K.D. 2012. Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users. BMC Med Inform Decis Mak. May 22;12(1):39.
    • (2012) BMC Med Inform Decis Mak , vol.12 , Issue.1 , pp. 39
    • Weitzman, E.R.1    Kelemen, S.2    Kaci, L.3    Mandl, K.D.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.