The quantified self: Fundamental disruption in big data science and biological discovery

Big Data

Volumn 1, Issue 2, 2013, Pages 85-99

  Swan, Melanie ^a  

^a MS Futures Group   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84991768872     PISSN: 21676461     EISSN: 2167647X     Source Type: Journal    
DOI: 10.1089/big.2012.0002     Document Type: Review

References (74)

1. Augemberg K. 2012. Building that Perfect Quantified Self App: Notes to Developers, Part 1. Available online at www.measuredme.com/2012/10/building-That-perfectquantified-self-Ap (Last accessed on March 20, 2013
2. Neuringer A. Self-experimentation: a call for change. Behaviorism 1981; 9: 79-94.
3. Norris J. 2012. Self-Tracking May Become Key Element of Personalized Medicine. Available online at www.ucsf.edu/news/2012/10/12913/self-Tracking-may-become-keyelement-personalized-medicine (Last accessed on March 20, 2013
4. Fox S. Mobile Health 2012. Pew Research Center s Internet, and American Life Project 2012. Available online at www.pewinternet.org//media//Files/Reports/2012/.PIP-MobileHealth2012.pdf (Last accessed on March 20, 2013
5. Fox S. 2011. The social life of health information 2011. Pew Research Center s Internet, and American Life Project 2011. Available online at www.pewinternet.org/.Reports/2011/Social-Life-of-Health-Info.aspx (Last accessed on March 20, 2013
6. Fox S. 2012. Is there hope for SMS health alerts?. Pew Research Center s Internet, and American Life Project 2012. Available online at www.pewinternet.org/Commentary/.2012/December/Is-There-hope-for-SMS-health-Alerts.aspx (Last accessed on March 20, 2013
7. Laird S. 2012. How Smartphones Are Changing Health Care. Mashable 2012. Available online at http://mashable.com/2012/09/26/smartphones-health-care-infographic (Last accessed on March 20, 2013
8. Weintraub K. 2013. Quantified self: The tech-based route to a better life?. BBC 2013. Available online at www.bbc.com/future/story/20130102-self-Track-route-To-A-better-life (Last accessed on March 20, 2013
9. Nosta J. 2013: The Year of Digital Health. Forbes 2013. Available online at www.forbes.com/sites/johnnosta/2013/.01/02/2013-The-year-of-digital-health/.(Last accessed on March 20, 2013
10. Christensen L. 2013. Big-Brother Health or Mindful Living?. Quantified Self Organizer Steven Dean on the Difference Between Self-Tracking, and Surveillance. Vanity Fair Daily 2013. Available online at www.vanityfair.com/.online/daily/2013/01/quantified-self-organizer-stevendean-interview-surveillance (Last accessed on March 20, 2013
11. Clay K. CES 2013: The Year of The Quantified Self?. Forbes 2013, . Available online at www.forbes.com/sites/.kellyclay/2013/01/06/ces-2013-The-year-of-The-quantifiedself. (Last accessed on March 20, 2013
12. Freudenheim M. More Using Electronics to Track Their Health. New York Times 2013. Available online at www.nytimes.com/2013/01/28/health/electronic-health-Trackingincreasingly-common-researchers-say.html?-r=1& (Last accessed on March 20, 2013
13. Yau N. A year of food consumption visualized. FlowingData 2011. Available online at http://flowingdata.com/2011/06/29/a-year-of-food-consumption-visualized/.(Last accessed on March 20, 2013
14. McCormick T. 2012. Video of my Healthier Information talk. Available online at http://tjm.org/2012/04/17/videoof-my-healthier-information-Talk/.(Last accessed on March 20, 2013
15. University of California Davis. 2012. Mind Body Wellness Challenge 2012. http://wellnesschallenge.ucdavis.edu/.(Last accessed on March 20, 2013
16. Tasse D. Quantified Self 2012: some cool things. Tales n Ideas 2012. Available online at http://talesnideas.blogspot.com/2012-09-01-archive.html. (Last accessed on March 20, 2013
17. Wolf G. The Data-Driven Life. New York Times 2012. Available online at www.nytimes.com/2010/05/02/.magazine/02self-measurement-T.html (Last accessed on March 20, 2013
18. Chua S. Notes from the Quantified Self 2012 Conference (Palo Alto). Available online at http://sachachua.com/.blog/p/23723/.(Last accessed on March 20, 2013
19. Augemberg K. In Search of the Perfect Quantified-Self App. Part 2: The Apps That Track Them All. Measured Me 2012. Available online at www.measuredme.com/.2012/09/in-search-of-The-perfect-quantified-self-App-part-2-The-Apps-That-Track-Them-All.html (Last accessed on March 20, 2013
20. Swan M. Health 2050: The Realization of personalized medicine through crowdsourcing, the quantified self, and the participatory biocitizen. J Pers Med 2012; 2: 93-118.
21. Ruckenstein M. Quantifying life: Self-Tracking, and emerging everyday analytics. 2012. Submitted
22. Jarrold W, Javitz HS, Krasnow R, et al. Depression, and self-focused language in structured interviews with older adults. Psychological Reports 2011; 109: 686-700.
23. Kong A, Beresford SA, Alfano CM, et al. Self-monitoring, and eating-related behaviors are associated with 12-month weight loss in postmenopausal overweight-Toobese women. J Acad Nutr Diet 2012; 112: 1428-1435.
24. Silver E, Wallenstein S, Levy A. Inward, and outward: the role of patient self-monitoring, and patient communities in IBD. Inflammatory Bowel Diseases 2012; 18: S45-S46.
25. Beaudin JS, Intille SS, Morris ME. To track or not to track: user reactions to concepts in longitudinal health monitoring. J Med Internet Res 2006; 8: e29.
26. Hood L. Lee Hood. Nat Biotechnol 2011; 29: 191.
27. Swan M. Next-generation personal genomic studies: extending social intelligence genomics to cognitive performance genomics in quantified creativity, and thinking fast, and slow. Data Driven Wellness: From Self-Tracking to Behavior Change 2013: Papers from the 2013 AAAI Spring Symposia
28. Chen R, Mias GI, Li-Pook-Than J, et al. Personal omics profiling reveals dynamic molecular, and medical phenotypes. Cell 2012; 148: 1293-1307.
29. Kelleher NL. A cell-based approach to the human proteome project. J Am Soc Mass Spectrom 2012; 23: 1617-1624.
30. Bonislawski A. Biotech Start-Up Talking20 to Provide DTC Proteomic, and Metabolomic Testing. genomeweb 2012. Available online at www.genomeweb.com/.proteomics/biotech-start-Talking20-provide-dtc-proteomicand-metabolomic-Testing (Last accessed on March 20, 2013
31. Collins FS. Genetics loads the gun, and environment pulls the trigger. Pathway Genomics blog 2010. Available online at http://blog.pathway.com/genetics-loads-The-gunand-environment-pulls-The-Trigger-dr-francis-collins/.(Last accessed on March 20, 2013
32. Swan M. Multigenic condition risk assessment in direct-Toconsumer genomic services. Genet Med 2010; 12: 279-288.
33. Swan M, Hathaway K, Hogg C, et al. Citizen science genomics as a model for crowdsourced preventive medicine research. J Participat Med 2010; 2: e20. Participant statements available online at www.jopm.org/citizenscience-genomics-As-A-model-for-crowd-sourced-preventivemedicine-research-supplementary-material/ http://www.jopm.org/citizenscience-genomics-As-A-model-for-crowd-sourced-preventivemedicine-research-supplementary-material/
34. Duncan DE. Experimental Man: What One Man s Body Reveals about His Future, Your Health, and Our Toxic World. New York: Wiley & Sons, Inc. 2009.
35. Smarr L. Quantifying your body: a how-To guide from a systems biology perspective. Biotechnol J 2012; 7: 980-991.
36. Fowkes S. Thyroid Hormone Testing. Project Wellbeing 2012. Available online at www.projectwellbeing.com/wpcontent/.uploads/2010/02/ThyroidHormoneTesting21.pdf (Last accessed on March 20, 2013
37. Do CB, Tung JY, Dorfman E, et al. Web-based genomewide association study identifies two novel loci, and a substantial genetic component for Parkinson s disease. PLoS Genet 2011; 7: e1002141.
38. Dufau S, Duñabeitia JA, Moret-Tatay C. Smart phone, smart science: how the use of smartphones can revolutionize research in cognitive science. PLoS One 2011; 6: e24974.
39. Swan, M. Sensor Mania! The Internet of Things, Wearable Computing, Objective Metrics, and the Quantified Self 2.0. J Sens Actuator Netw 2012; 1: 217-253.
40. Anonymous. Mashups: turning your data into something useable, and useful. Sen.se blog 2012. Available online at http://blog.sen.se/post/19174708614/mashups-Turningyour-data-into-something-useable-And (Last accessed on March 20, 2013
41. Poh MZ, Swenson NC, Picard RW. A Wearable Sensor for Unobtrusive, Long-Term Assessment of Electrodermal Activity. IEEE Transactions on Biomedical Engineering 2010; 57: 1243-1252.
42. Halevy A, Norvig P, Pereira F. The unreasonable effectiveness of data. IEEE Intell Syst 2009; 24: 8-12.
43. Le QV, Ranzato MA, Monga R, et al. Building high-level features using large scale unsupervised learning. The 29th International Conference on Machine Learning (ICML 2012), Edinburgh, Scotland, June 26-July 1, 2012. Available online at http://arxiv.org/abs/1112.6209
44. Michel JB, Shen YK, Aiden AP, et al. Quantitative analysis of culture using millions of digitized books. Science 2011; 331: 176-182.
45. Heianza Y, Arase Y, Fujihara K, et al. High normal HbA(1c) levels were associated with impaired insulin secretion without escalating insulin resistance in Japanese individuals: the Toranomon Hospital Health Management Center Study 8 (TOPICS 8). Diabet Med 2012; 29: 1285-1290.
46. Collins FS. The case for a US prospective cohort study of genes, and environment. Nature 2004; 429: 475-477.
47. Hogg C. Value of a QS Data Commons (and Data Standards) for Personal Health Data. 100plus 2012. Available online at http://100plus.com/2012/09/qs-datacommons/.(Last accessed on March 20, 2013
48. Swan M. Neural Data Privacy Rights: An Invitation For Progress In The Guise Of An Approaching Worry. The Edge Annual Question 2013. Available online at http://.edge.org/responses/q2013 (Last accessed on March 20, 2013
49. Kelly K. The Quantified Century. Quantified Self Conference, Stanford University, Palo Alto, CA, September 15-16, 2012. Available online at http://quantifiedself.com/conference/Palo-Alto-2012 (Last accessed on March 20, 2013
50. Swan M. Scaling crowdsourced health studies: the emergence of a new form of contract research organization. Pers Med 2012; 9: 223-234.
51. Rubinstein J. 23andMe Database Surpasses 100, 000 Users. 23andMe Press Release 2011. Available online at www.23andme.com/about/press/23andme-database-100000k-users/.(Last accessed on March 20, 2013
52. Swan M. Crowdsourced health research studies: An important emerging complement to clinical trials in the public health research ecosystem. J Med Internet Res 2012; 14: e46.
53. Darrow B. Greenplum, and Kaggle launch big data matchmaking service. Gigaom 2012. Available online at http://gigaom.com/2012/10/23/greenplum-kaggle-playbig-data-matchmakers (Last accessed on March 20, 2013
54. Raven K. 23andMe s face in the crowdsourced health research industry gets bigger. Nature Medicine 2012. Available online at http://blogs.nature.com/spoonful/.2012/07/23andmes-face-in-The-crowdsourced-healthresearch-industry-gets-bigger.html (Last accessed onMarch 20, 2013
55. Connor S. Glaxo chief: Our drugs do not work on most patients. The Independent 2003. Available online at www.independent.co.uk/news/science/glaxo-chief-ourdrugs-do-not-work-on-most-patients-575942.html (Last accessed on March 20, 2013
56. Ramirez E. Toolmaker Talk: Jonathan Cohen (Expereal). Quantified Self 2012. Available online at http://.quantifiedself.com/2012/10/toolmaker-Talk-jonathan-cohenexpereal/.(Last accessed on March 20, 2013
57. Kahneman D. Thinking, Fast, and Slow. New York: Farrar, Straus, and Giroux. 2011.
58. Harvard Medical School. Putting the placebo effect to work. Harvard Health Publications 2012. Available online at www.health.harvard.edu/newsletters/Harvard-Health-Letter/2012/April/putting-The-placebo-effect-To-work (Last accessed on March 20, 2013).
59. Petersen JE, Shunturov V, Janda K, et al. Dormitory residents reduce electricity consumption when exposed to real-Time visual feedback, and incentives. Int J Sustain High Educ 2007; 8: 16-33. Available online at www.emeraldinsight.com/journals.htm?articleid=1585597& show=abstract (Last accessed on March 20, 2013
60. Gale R. Using Behavioral-Based Design to Encourage Healthy Behavior. Society for Human Resource Management 2011. Available online atwww.shrm.org/hrdisciplines/.benefits/articles/pages/behavioral-baseddesign.aspx (Last accessed on March 20, 2013
61. Swan M. Emerging patient-driven health care models: an examination of health social networks, consumer personalized medicine, and quantified self-Tracking. Int J Environ Res Public Health 2009; 2: 492-525.
62. Petersen MK, Stahlhut C, Stopczynski A, et al. Smartphones Get Emotional: Mind Reading Images, and Reconstructing the Neural Sources. In Proceedings of Affective Computing, and Intelligent Interaction Conference, Memphis, TN, October 9-12, 2011. Available online www2.imm.dtu.dk/pubdb/views/edoc-download.php/6124/pdf/imm6124.pdf (Last accessed on March 20, 2013
63. Taleb NN. The Black Swan: The Impact of the Highly Improbable. New York: Random House, 2007.
64. Havens J. How Big Data Can Make Us Happier, and Healthier. Mashable 2012. Available online at http://.mashable.com/2012/10/08/the-power-of-quantified-self/.(Last accessed on March 20, 2013
65. Belk RW. Cultural, and Historical Differences in Concepts of Self, and Their Effects on Attitudes Toward Having, and Giving. Advances in Consumer Research 1984; 11: 754-763. Available online at www.acrwebsite.org/search/viewconference-proceedings.aspx?Id=6345 (Last accessed on March 20, 2013
66. Anonymous. Mobile phone penetration now at 85%worldwide. AME Info 2012. Available online at www.ameinfo.com/291448.html (Last accessed on March 20, 2013
67. Ramanathan VM. Worldwide Smartphone Users Cross 1 Billion Mark: Report. International Business Times 2012. Available online at www.ibtimes.com/worldwide-smartphone-users-cross-1-billion-mark-report-847769 (Last accessed on March 20, 2013
68. Reisinger D. Android, iOS growing 10 times faster than PCs did in the 1980s. cnet 2012. Available online at http://news.cnet.com/8301-1035-3-57500961-94/androidios-growing-10-Times-faster-Than-pcs-did-in-The-1980s/.(Last accessed on March 20, 2013
69. Degusta M. Are Smart Phones Spreading Faster than Any Technology in Human History?. MIT Technology Review 2012. Available online at www.technologyreview.com/.news/427787/are-smart-phones-spreading-faster-Than-Any/.(Last accessed on March 20, 2013
70. Wolf G. The Social Memex -Mark Carranza s Memory Experiment. Quantified Self 2009. Available online at http://quantifiedself.com/2009/09/the-social-memex (Last accessed on March 20, 2013
71. Bush V. As We May Think. The Atlantic 1945. Available online at www.theatlantic.com/magazine/archive/1945/.07/as-we-may-Think/303881 (Last accessed on March 20, 2013
72. Viseu A, Suchman L. Wearable augmentations: Imaginaries of the informed body, pp. 161-184. In Technologized Images, Technologized Bodies, Edwards J, Harvey P, Wade P (eds.). New York: Bergham Books, 2010.
73. Swan M. Towards a fourth person perspective. Broader Perspective Blog 2012. Available online at http://future memes.blogspot.com.br/2012/06/towards-fourth-personperspective. html (Last accessed on March 20, 2013
74. Swan M. Biotechnicity 2.0: Computation-enabled Philosophical Advance in the Epistemology of Human Biology, and the Ontology of Bioidentity. 2012. Submitted