Teaming up: Feasibility of an online treatment environment for adolescents with type 1 diabetes

Pediatric Diabetes

Volumn 15, Issue 5, 2014, Pages 394-402

  Boogerd, Emiel A ^a,b   Noordam, Cees ^a,b   Kremer, Jan Am ^a   Prins, Judith B ^a   Verhaak, Chris M ^a  

^a RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^b Children's Diabetes Centre   (Netherlands)

Author keywords

Adolescents; Diabetes mellitus type 1; Feasibility studies; Internet; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CONTROLLED STUDY; FEMALE; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; INTERNET; MAJOR CLINICAL STUDY; MALE; PEER GROUP; PRIORITY JOURNAL; SOCIAL MEDIA; CHILD; CLINICAL TRIAL; DIABETES MELLITUS, TYPE 1; FEASIBILITY STUDY; INTERPERSONAL COMMUNICATION; PATIENT CARE; QUALITY OF LIFE; SELF CARE;

ADOLESCENT; CHILD; COMMUNICATION; DIABETES MELLITUS, TYPE 1; FEASIBILITY STUDIES; HUMANS; INTERNET; PATIENT CARE TEAM; PEER GROUP; QUALITY OF LIFE; SELF CARE;

EID: 84904468220     PISSN: 1399543X     EISSN: 13995448     Source Type: Journal    
DOI: 10.1111/pedi.12103     Document Type: Article

References (39)

1. Delamater A. Psychological care of children and adolescents with diabetes. Pediatr Diabetes 2009: 10 (Suppl. 12): 175-184.
2. De Wit M, Delemarre-van de Waal HA, Bokma JA et al. Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being. A randomized controlled trial. Diabetes Care 2008: 31: 1521-1526.
3. Pihoker C, Forsander G, Wolfsdorf J, Wadwa P, Klingensmith GJ. Structures, processes and outcomes of ambulatory diabetes care. In: Hanas R, Donaghue K, Klingensmith G, Swift P, Colagiuri S, eds. Global IDF/ISPAD Guideline for Diabetes in Childhood and Adolescence. Brussels: International Diabetes Federation, 2011: 42-49.
4. Danne T, Mortensen HB, Hougaard P et al., Hvidøre Study Group on Childhood Diabetes. Persistent differences among centers over 3years in glycemic control and hypoglycemia in a study of 3, 805 children and adolescents with type 1 diabetes from the Hvidøre Study Group. Diabetes Care 2001: 24: 1342-1347.
5. Swift P. Diabetes education in children and adolescents. Pediatr Diabetes 2009: 10 (Suppl. 12): 51-57.
6. Hood KK, Rohan JM, Peterson CM, Drotar D. Interventions with adherence-promoting components in pediatric type 1 diabetes: meta-analysis of their impact on glycemic control. Diabetes Care 2010: 33: 1658-1664.
7. Grey M, Boland EA, Davidson M, Tamborlane WV. Coping skills training for youth with diabetes mellitus has long-lasting effects on metabolic control and quality of life. J Pediatr 2000: 137: 107-113.
8. Nicholas DB, Fellner KD, Frank M et al. Evaluation of an online education and support intervention for adolescents with diabetes. Soc Work Health Care 2012: 51: 815-827.
9. Grey M, Whittemore R, Jeon S et al. For the TeenCope Study Group. Internet Psycho-Education Programs Improve Outcomes in for Youth With Type 1 Diabetes. Diabetes Care 2013: 36: 2475-2482.
10. Fiks AG, Mayne S, Localio AR, Alessandrini EA, Guevara JP. Shared decision-making and health care expenditures among children with special health care needs. BMC Pediatr 2012: 129: 99-107.
11. Miller VA, Harris D. Measuring children's decision-making involvement regarding chronic illness management. J Pediatr Psychol 2012: 37: 292-306.
12. Tates K, Meeuwesen L. Doctor-parent-child communication. A (re)view of the literature. Soc Sci Med 2001: 52: 839-851.
13. Beresford BA, Sloper P. Chronically ill adolescents' experiences of communicating with doctors: a qualitative study. J Adolesc Health 2003: 33: 172-179.
14. Kaufman FR, Halvorson M, Carpenter S. Association between diabetes control and visits to a multidisciplinary pediatric diabetes clinic. Pediatrics 1999: 103: 948-951.
15. Zoffmann V, Harder I, Kirkevold M. A person-centered communication and reflection model: sharing decision-making in chronic care. Qual Health Res 2008: 18: 670-685.
16. Heisler M. Overview of peer support models to improve diabetes self-management and clinical outcomes. Diabetes Spectr 2007: 20: 214-221.
17. Kyngäs H. Support network of adolescents with chronic disease: adolescents' perspective. Nurs Health Sci 2004: 6: 287-293.
18. Lehmkuhl HD, Merlo LJ, Devine K et al. Perceptions of type 1 diabetes among affected youth and their peers. J Clin Psychol Med Settings 2009: 16: 209-215.
19. Storch EA, Ledley DR. Peer victimization and psychosocial adjustment in children: current knowledge and future directions. Clin Pediatr 2005: 44: 29-38.
20. Palladino DK, Helgeson VS. Friends or foes? A review of peer influence on self-care and glycemic control in adolescents with type 1 diabetes. J Pediatr Psychol 2012: 37: 591-603.
21. Cameron FJ, de Beaufort C, Aanstoot H-J et al. The Hvidoere International Study Group.Lessons from the Hvidoere International Study Group on childhood diabetes: be dogmatic about outcome and flexible in approach. Pediatr Diabetes 2013: 14: 473-480.
22. Harris MA, Hood KK, Mulvaney SA. Pumpers, skypers, surfers and texters: technology to improve the management of diabetes in teenagers. Diabetes Obes Metab 2012: 14: 967-972.
23. Iafusco D, Galderisi A, Nocerino I et al. Chat line for adolescents with type 1 diabetes: a useful tool to improve coping with diabetes. A 2-year follow-up study. Diabetes Technol Ther 2011: 13: 551-555.
24. Nordqvist C, Hanberger L, Timpka T, Nordfeldt S. Health professionals' attitudes towards using a Web 2.0 Portal for child and adolescent diabetes care: qualitative study. J Med Internet Res 2009: 11: 12.
25. Izquierdo R, Morin PC, Bratt K et al. School-centered telemedicine for children with type 1 diabetes mellitus. J Pediatr 2009: 155: 374-379.
26. Lowe P, Hearnshaw H, Griffiths F. Attitudes of young people with diabetes to an Internet-based virtual clinic. J Telemed Telecare 2005: 11 (Suppl. 1): 59-60.
27. Sawyer SM, Aroin RA. Self-management in adolescents with chronic illness. What does it mean and how can it be achieved? Med J Aust 2005: 183: 405-409.
28. Eng DS, Lee JM. The promise and peril of mobile health applications for diabetes and endocrinology. Pediatr Diabetes 2013: 14: 231-238.
29. Donkin L, Christensen H, Naismith SL, Neal B, Hickie IB, Glozier N. A systematic review of the impact of adherence on the effectiveness of e-therapies. J Med Internet Res 2011: 13: e52.
30. Kazak AE, Simms S, Alderfer MA et al. Feasibility and Preliminary outcomes from a pilot study of a brief psychological intervention for families of children newly diagnosed with cancer. J Pediatr Psychol 2005: 30: 644-655.
31. Den Breejen EME, Nelen WLDM, Knijnenburg JML, Burgers JS, Hermens RPMG, Kremer JAM. Feasibility of a Wiki as a participatory tool for patients in clinical guideline development. J Med Internet Res 2012: 14: e138.
32. Bowen JD, Kreuter M, Spring B et al. How we design feasibility studies. Am J Prev Med. 2009: 36: 452-457.
33. American Diabetes Association. Standards of medical care in diabetes. Diabetes Care 2012: 32: s11-s63.
34. Tuil WS, ten Hoopen AJ, Braat DD, de Vries Robbe PF, Kremer JA. Patient-centred care: using online personal medical records in IVF practice. Hum Reprod 2006: 21: 2955-2959.
35. Van der Ven NCW, Adèr H, Weinger K et al. The confidence in diabetes self-care scale: psychometric properties of a new measure of diabetes-specific self-efficacy in Dutch and U.S. patients with type 1 diabetes. Diabetes Care 2003: 26: 713-718.
36. Fitzgerald JT, Funnell MM, Hess GE et al. The reliability and validity of a brief diabetes knowledge test. Diabetes Care 1998: 21: 706-710.
37. Varni JW, Burwinkle TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL. The PedsQL in type 1 and type 2 diabetes reliability and validity of the pediatric quality of life inventory generic core scales and type 1 diabetes module. Diabetes Care 2003: 26: 631-637.
38. Pouwer F, Snoek FJ. Patients' Evaluation of the Quality of Diabetes Care instrument (PEQD): development and validation of a new instrument. Qual. Saf. Health Care 2002: 11: 131-136.
39. Boutron I, Moher D, Altman DG, Schulz KF, Ravaud P. Extending the CONSORT statement to randomized trials of nonpharmacologic treatment: explanation and elaboration. Ann Intern Med 2008: 148: 295-309.