Pregnancy termination due to fetal anomaly: Women's reactions, satisfaction and experiences of care

Midwifery

Volumn 30, Issue 6, 2014, Pages 620-627

  Asplin, Nina ^a,b,c   Wessel, Hans ^a,d   Marions, Lena ^a,b   Georgsson Öhman, Susanne ^a,c  

^a KAROLINSKA INSTITUTE   (Sweden)

^b KAROLINSKA UNIVERSITY HOSPITAL   (Sweden)

^c SOPHIAHEMMET UNIVERSITY COLLEGE   (Sweden)

^d Ultragyn i Sverige AB   (Sweden)

Author keywords

Care; Fetal abnormality; Obstetrical ultrasound; Psychological outcome

Indexed keywords

ADULT; CONGENITAL ABNORMALITIES; ECHOGRAPHY; FEMALE; FETUS ECHOGRAPHY; HUMAN; INDUCED ABORTION; INTERVIEW; MIDWIFE; NURSE PATIENT RELATIONSHIP; NURSING; PATIENT SATISFACTION; PREGNANCY; PREGNANT WOMAN; PSYCHOLOGY; SWEDEN;

ABORTION, INDUCED; ADULT; CONGENITAL ABNORMALITIES; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MIDWIFERY; NURSE-PATIENT RELATIONS; PATIENT SATISFACTION; PREGNANCY; PREGNANT WOMEN; SWEDEN; ULTRASONOGRAPHY, PRENATAL;

EID: 84901265667     PISSN: 02666138     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.midw.2013.10.013     Document Type: Article

References (63)

1. Adler N. Abortion: a social psychological perspective. J. Soc. Issues 1979, 35:100-119.
2. Asplin N., Wessel H., Marions L., Georgsson-Öhman S. Women's decision of terminating pregnancy, and the impact of caregivers role and style when communicating unexpected findings of fetuses revealed at ultrasound examination. Sex. Reprod. Health Care 2013, 4:79-84.
3. Asplin N., Wessel H., Marions L., Georgsson-Öhman S. Pregnant women's experiences, needs, and preferences regarding information about malformations detected by ultrasound scan. Sex. Reprod. Health Care 2012, 3:73-78.
4. Asplin N., Dellgren A., Conner P. Education in obstetrical ultrasound - an important factor for increasing the prenatal detection of congenital heart disease. Acta Obstet. Gynecol. Scand. 2013, 92:804-808.
5. Avelin P., Rådestad I., Säflund K., Wredling R., Erlandsson K. Parental grief and relationships after the loss of a stillborn baby. Midwifery 2013, 29:668-673.
6. Boyle F.M., Vance J.C., Najman J.M., Thearle M.J. The mental health impact of stillbirth, neonatal death or SIDS: prevalence and patterns of distress among mothers. Soc. Sci. Med. 1996, 43:1273-1282.
7. Bracken M. A causal model of psychosomatic reactions to vacuum aspiration abortion. Soc. Psychiatry 1978, 13:135-145.
8. Calnan M., Rowe R. Researching trust relations in health care: conceptual and methodological challenges - an introduction. J. Health Organ. Manag. 2006, 20:349-358.
9. Davies A.R., Ware J.E. Involving consumers in quality of care assessment. Health Aff. 1988, 7:33-48.
10. Davies V., Gledhill J., McFadyen A., Whitlow B., Economides D. Psychological outcome in women undergoing termination of pregnancy for ultrasound-detected fetal anomaly in the first and second trimesters: a pilot study. Ultrasound Obstet. Gynecol. 2005, 25:389-392.
11. Deborah A., Driscoll M.D., Gross S. Prenatal screening for aneuploidy. N. Engl. J. Med. 2009, 360:2556-2562.
12. Demyttenaere K., Maes A., Nijs P., Odendael H., Van Assche F.A. Coping style and preterm labor. J. Psychosom. Obstet. Gynaecol. 1995, 16:109-115.
13. Donabedian A. The quality of care. How can it be assessed?. J. Am. Med. Assoc. 1988, 260:1743-1748.
14. Dyer K.A. Identifying, understanding, and working with grieving parents in the NICU, Part 1: identifying and understanding loss and the grief response. Neonatal Netw. 2005, 24:35-46.
15. Ekelin M., Crang-Svalenius E., Dykes A.-K. Developing the PEER-U scale to measure parent's expectations, experiences and reactions to a routine ultrasound examination during pregnancy. J. Reprod. Infant Psychol. 2008, 26:211-228.
16. Elder S.H., Laurence K.M. The impact of supportive intervention after second trimester termination of pregnancy for fetal abnormality. Prenat. Diagn. 1991, 11:47-54.
17. Erlandsson K., Warland J., Cacciatore J., Rådestad I. Seeing and holding a stillborn baby: mothers' feelings in relation to how their nannies were presented to them after birth-findings from an online questionnaire. Midwifery 2013, 29:246-250.
18. Felce D., Perry J. Quality of life: its definition and measurement. Res. Dev. Disabil. 1995, 16:51-74.
19. Fergusson D.M., Horwood L.J., Boden J.M. Reactions to abortion and subsequent mental health. Br. J. Psychiatry 2009, 195:420-426.
20. Fergusson D.M., Horwood L.J., Ridder E.M. Abortion in young women and subsequent mental health. J. Child Psychol. Psychiatry 2006, 47:16-24.
21. Forneris C.A., Gartlehner G., Brownley K.A. Interventions to Prevent Post-Traumatic Stress Disorder: A Systematic Review. Am J Prev Med 2013, 44:635-650.
22. Garcia E., Timmermans D.R., van Leeuwen E. The impact of ethical beliefs on decisions about prenatal screening tests: searching for justification. Soc. Sci. Med. 2008, 66:753-764.
23. Geerinck-Vercammen C.R., Kanhai H.H.H. Coping with termination of pregnancy for fetal abnormality in a supportive environment. Prenat. Diagn. 2003, 23:543-548.
24. Graneheim U.H., Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ. Today 2004, 24:105-112.
25. Goodwin P., Ogden J. Women's reflections upon their past abortions: an exploration of how and why emotional reactions change over time. Psychol. Health 2007, 22:231-248.
26. Guldvog B. Can patient satisfactions improve health among patients with angina pectoris?. Int. J. Qual. Health Care 1999, 11:233-240.
27. Haggerty J.L. Are measures of patient satisfaction hopelessly flawed?. Br. Med. J. 2010, 341:c4783.
28. Hess R.F. Dimensions of women's long-term post abortion experience. Am. J. Matern. Child Nurs. 2004, 29:193-198.
29. Hsieh H-F., Shannon S.E. Three approaches to qualitative content analysis. Qual. Health Res. 2005, 15:1277-1288.
30. Kero A., Högberg U., Jacobsson L., Lalos A. Legal abortion: a painful necessity. Soc. Sci. Med. 2001, 53:1481-1490.
31. Kero A., Högberg U., Lalos A. Wellbeing and mental growth - long-term effects of legal abortion. Soc. Sci. Med. 2004, 58:2559-2569.
32. Kersting A., Dorsch M., Kreulich C., et al. Trauma and grief 2-7 years after termination of pregnancy because of fetal anomalies - a pilot study. J. Psychosom. Obstet. Gynecol. 2005, 26:9-15.
33. Kersting A., Ohrmann P., Pedersen A., et al. Neural activation underlying acute grief in women after the loss of an unborn child. Am. J. Psychiatry 2009, 166:1402-1410.
34. Korenromp M.J., Christiaens G.C., van den Bout J., et al. Long-term psychological consequences of pregnancy termination for fetal abnormality: a cross-sectional study. Prenat. Diagn. 2005, 25:253-260.
35. Larsson A.-K., Crang-Svalenius, Lundqvist A., Dykes A.-K. Parent's experiences of an abnormal ultrasound examination - vacillating between emotional confusion and sense of reality. J. Reprod. Health 2010, 7:1-10.
36. Lazarus R.S., Folkman S. Stress, Appraisal, and Coping 1984, Springer Publishing Company, New York, NY.
37. Leithner K., Maar A., Fischer-Kern M., Hilger E., Löffler-Stastka H., Ponocny-Seliger E. Affective state of women following a prenatal diagnosis: predictors of a negative psychological outcome. Ultrasound Obstet. Gynecol. 2004, 23:240-246.
38. Leuzinger-Bohleber M., Teising M. Without being in psychoanalysis I would never have dared to become pregnant: psychoanalytical observations in a multidisciplinary study concerning a woman undergoing prenatal diagnostics. Int. J. Psychoanal. 2012, 93:293-315.
39. Levi S. Routine ultrasound screening of congenital abnormalities. An overview of the European experience. Ann. N. Y. Acad. Sci. 1998, 847:86-98.
40. Lilford R.J., Stratton P., Godsil S., Prasad A. A randomized trial of routine versus selective counseling in perinatal bereavement from congenital disease. Br. J. Obstet. Gynaecol. 1994, 101:291-296.
41. Lloyd J., Laurence K.M. Sequelae and support after termination of pregnancy for fetal malformation. Br. Med. J. 1985, 290:907-909.
42. Makenzius M., Tydén T., Darj E., Larsson M. Women and men's satisfaction with care related to induced abortion. Eur. J. Contracept. Reprod. Health Care 2012, 17:260-269.
43. Marquis M.S., Davies A.R., Ware J.E. Patient satisfaction and change in medical care provider: a longitudinal study. Med. Care 1983, 21:821-829.
44. Mashiach R., Anter D., Melamed N., Ben-Ezra M., Meizner I., Hamama-Raz Y. Psychological response to multifetal reduction and pregnancy termination due to fetal abnormality. J. Matern.-Fetal Neonatal Med. 2013, 26:32-35.
45. McCoyd Judith L.M. What do women want? Experiences and reflections of women after prenatal diagnosis and termination for anomaly. Health Care Women Int. 2009, 30:507-535.
46. Morse J., Field P. Qualitative Research Methods for Health Professionals 1995, Sage Publications, Thousand Oaks, CA. 2nd edn.
47. National Board of Health and Welfare, 2012. Statistics - Health and Medical Care, Birth Defects in 2011. The National Board of Health and Welfare, Stockholm.
48. Neidhardt A. Why me? Second trimester abortion. Am. J. Nurs. 1986, 86:1133-1135.
49. Pascoe G.C. Patient satisfaction in primary health care: a literature review and analysis. Eval. Program Plan. 1983, 6:185-210.
50. Patton M.Q. Qualitative Research and Evaluation Methods 2002, Sage Publications, Thousand Oaks, CA.
51. Sandelowski M., Barroso J. The travesty of choosing after positive prenatal diagnosis. J. Obstet. Gynecol. Neonatal Nurs. 2005, 34:307-318.
52. Salvesen K.A., Oyen L., Schmidt N., Malt U.F., Eik-Nes S.H. Comparison of long-term psychological responses of women after pregnancy termination due to fetal anomalies and after perinatal loss. Ultrasound Obstet. Gynecol. 1997, 9:80-85.
53. Statham, H., Solomou, W., Green, J.M., 2001. When the Baby has an Abnormality: A Study of Parents' Experiences. Centre for Family Research, University of Cambridge.
54. Stroebe W., Schut H., Stroebe M.S. Grief work, disclosure and counseling: do they help the bereaved?. Clin. Psychol. Rev. 2005, 25:395-414.
55. Stålhandske M.L., Ekstrand M., Tydén T. Women's existential experiences within Swedish abortion care. J. Psychosom. Obstet. Gynecol. 2011, 32:35-41.
56. Söderberg H., Janzon L., Sjöberg N.O. Emotional distress following induced abortion. A study of its incidence and determinants among abortees in Malmö, Sweden. Eur. J. Obstet. Gynecol. Reprod. Biol. 1998, 79:173-178.
57. Trybulski J. Women and abortion: the past reaches into the present. J. Adv. Nurs. 2006, 54:683-690.
58. Van Teijlingen E., Hundley V., Rennie A.-M., Graham W., Fitzmaurice A. Maternity satisfaction studies and their limitations: 'What is, must still be best'. Birth 2003, 30:75-82.
59. Vuori H. Introducing quality assurance: an exercise in audacity. Int. J. Health Care Qual. Assur. 2007, 20:10-15.
60. Wen K.-Y., Gustafson D. Needs assessment for cancer patients and their families. Health Qual. Life Outcomes 2004, 2:11-22.
61. White-Van Mourik M.C.A., Connor J.M., Ferguson-Smith M.A. The psychosocial sequelae of a second-trimester termination of pregnancy for fetal abnormality. Prenat. Diagn. 1992, 12:189-204.
62. Zeanah C., Dailey J.V., Rosenblatt M.J., Saller D.N. Do women grieve after terminating pregnancies because of fetal anomalies? A controlled investigation. Obstet. Gynecol. 1993, 82:270-275.
63. Ziemkiewicz C., Ottley A., Crouser R.J., et al. How visualization layout relates to locus of control and other personality factors. IEEE Trans. Vis. Comput. Graph. 2013, 19:1109-1121.