Needs assessment for cancer patients and their families

Health and Quality of Life Outcomes

Volumn 2, Issue , 2004, Pages

  Wen, Kuang Yi ^a   Gustafson, David H ^a  

^a UNIVERSITY OF WISCONSIN MADISON   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BIBLIOGRAPHIC DATABASE; CANCER PATIENT; CONTROLLED STUDY; CORRELATION ANALYSIS; EVALUATION; EXPERIENCE; FAMILY; HEALTH CARE NEED; HEALTH CARE QUALITY; HUMAN; MEASUREMENT; MEDICAL ASSESSMENT; MEDICAL INSTRUMENTATION; MEDICAL RESEARCH; MEDLINE; MODEL; PATIENT SATISFACTION; PSYCHOMETRY; QUALITY OF LIFE; RELIABILITY; REVIEW; TREATMENT OUTCOME; VALIDATION PROCESS; CAREGIVER; INSTRUMENTATION; NEEDS ASSESSMENT; NEOPLASM; PSYCHOLOGICAL ASPECT; REPRODUCIBILITY; SOCIAL SUPPORT;

CAREGIVERS; FAMILY; HUMANS; NEEDS ASSESSMENT; NEOPLASMS; PATIENT SATISFACTION; PSYCHOMETRICS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SOCIAL SUPPORT;

EID: 4243053676     PISSN: 14777525     EISSN: None     Source Type: Journal    
DOI: 10.1186/1477-7525-2-11     Document Type: Review

References (79)

1. Berwick D: The total customer relationship in health care: broadening the bandwidth. The Joint Commission Journal On Quality Improvement 1997, 23:245-250.
2. Ross C, Steward C, Sinacore JM: The importance of patient preferences in the measurement of health care satisfaction. Medical Care 1993, 31:1138-1149.
3. Medicine of Institute: Approaching death: Improving care at the end of life. Edited by: Field M and Cassel C. Washington, D.C.; 1997.
4. Bretsher M, Rummons R, Sloan J, Kaur J,, Bartlett A, Borkenhagen L, Loprinzi C: Quality of life in hospice patients. Psychosomatics 1999, 40:309-313.
5. Silveira M, EiPiero A, Gerrity M, Geudtner C: Patients knowledge of options at the end of life. Journal of the American Medical Association 2000, 284:2483-2488.
6. Investigators SUPPORT: A controlled trial to improve care for seriously ill hospitalized patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). Journal of the American Medical Association 1995, 274:1591-1598.
7. Suchman AL, Markakis K, Beckman HB, Frankel R: A model of empathic communication in the medical interview. Journal of the American Medical Association 1997, 277:678-682.
8. Guadagnoli E, Ward P: Patient participation in decision-making. Social Science and Medicine 1998, 47:329-339.
9. Frosch DL, Kaplan RM: Shared decision making in clinical medicine: past research and future directions. American Journal of Preventive Medicine 1999, 17:285-294.
10. Charles C, Gafni A, Whelan T: Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Social Science and Medicine 1999, 49:651-661.
11. Maguire P: Improving communication with cancer patients. European Journal of Cancer 1999, 35:1415-1422.
12. Cull A, Stewart M, Altman D: Assessment of and intervention for psychosocial problems in routine oncology practice. British Journal of Cancer 1995, 72:229-235.
13. Osoba D: Rationale for the timing of health-related quality-of-life-assessments in oncological palliative therapy. Cancer Treat Rev 1996, 22 Suppl A:69-73.
14. Ford S, Fallowfield L, Lewis S: Doctor-patient interactions in oncology. Social Science and Medicine 1996, 42:1511-1519.
15. Marvel MK, Epstein RM, Flowers K, Beckman HB: Soliciting the patient's agenda: have we improved? Journal of the American Medical Association 1999, 281:283-287.
16. Holland JC, Almanza J: Giving bad news: is there a kinder, gentler way? Cancer 1999, 86:738-740.
17. Kim MK, Alvi A: Breaking the bad news of cancer: the patient's perspective. Laryngoscope 1999, 109:1064-1067.
18. Sabo D: Men, death anxiety and denial. Clinical Sociological Perspectives of Illness and Loss Edited by: Clark D, Fritz J and Rieder P. Philadelphia, Charles Press; 1990:71-84.
19. Schulz R, Beach S: Caregiving as a risk factor for mortality. Journal of the American Medical Association 1999, 282:2215-2219.
20. Cegala DJ: A study of doctors' and patients' communication during a primary care consultation: Implications for communication training. Journal of Health Communication 1997, 2:169-194.
21. Northouse L: Social support in patients and husbands adjustment to breast cancer. Nursing Research 1988, 37:91-95.
22. Northouse P, Northouse L: Communication and cancer: Issues confronting patients, health professionals and caregivers. Journal of Psychosocial Oncology 1987, 5:17-46.
23. Peters-Golden H: Varied perceptions of social support in the illness experience. Social Science Medicine 1982, 16:463-491.
24. Northouse L, Peters-Golden H: Cancer and the family: Strategies to assist spouses. Seminars in Oncology Nursing 1993, 9:74-82.
25. Vitaliano P: Psychological and physical concomitants of caregiving; introduction to special issue. Annals of behavioral medicine 1997, 19:75-77.
26. Northouse L: A longitudinal study of the adjustment of patients and husbands to breast cancer. Oncol Nurs Forum 1989, 16:511-516.
27. Ell K, Nishimoto R, Mantell J: Longitudinal analysis of psychological adaptation among family members of patients with cancer. Journal of psychosomatic research 1988, 32:429-438.
28. Wilson S, Morse JM: Living with a wife undergoing chemotherapy. Image J Nurs Sch 1991, 23:78-84.
29. Wilkerson S: Factors which influence how nurses communicate with cancer patients. Journal of Advance Nursing 1991, 16:677-688.
30. Grobe ME, Ahmann DL, Ilstrup DM: Needs assessment for advance cancer patients and their families. Oncol Nurs Forum 1982, 9:26-30.
31. Longman AJ, Atwood JR, Sherman JB, Benedict J, Shang TC: Care needs of home-based cancer patients and their caregivers. Cancer Nursing 1992, 15:182-190.
32. Bruera E, Kehn N, Miller MJ, Selmser P, Macmillan K: The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. Journal of Palliative Care 1991, 7:6-9.
33. Davis SW, Quinn S, Fox L, MacElwee N, Engstrom PF: Satisfaction among cancer outpatients. Progress in clinical and biological research 1988, 278:227-232.
34. Thomas S, Glynne JR, Chait I: Is it worth the wait? A survey of patients' satisfaction with an oncology outpatient clinic. European journal of cancer care 1997, 6:50-58.
35. Schag CC, Heinrich RL, Ganz PA: Cancer Inventory of Problem Situations: An instrument for assessing cancer patients' rehabilitation needs. Journal of Psychosocial Oncology 1983, 1:11-24.
36. Meyerowitz BE, Heinrich RL, Schag CC, Burish TG, Bradley L: Coping with chronic illness: research and applications. A competency-based approach to coping with cancer. New York, Academic Press; 1983:137-158.
37. Ganz PA, Rofessart J, Polinsky ML, Schag CC, Heinrich RL: A comprehensive approach to the assessment of cancer patients' rehabilitation needs: the Cancer Inventory of Problem Situations and a companion interview. Journal of psychosocial Oncology 1986, 4:27-42.
38. Ganz PA, Shag CC, Polinsky ML, Heinrich RL, Flack VF: Rehabilitation needs and breast cancer: the first month after primary therapy. Breast Cancer Research and Treatment 1987, 10:243-253.
39. Schag CC, Ganz PA, Heinrich RL: Cancer Rehabilitation Evaluation System-Short Form (CARES-SF). A cancer specific rehabilitation and quality of life instrument. Cancer 1991, 15:1406-1413.
40. Wingate AL, Lackey NR: A description of the needs of non-institutionalized cancer patients and their primary care givers. Cancer Nursing 1989, 12:216-225.
41. Gates MF, Lackey NR, White MR: Needs of Hospice and clinic patients with cancer. Cancer Practice 1995, 3:226-232.
42. Foot G, Sanson-Fisher R: Measuring the unmet needs of people living with cancer. Cancer Forum 1995, 19:131-135.
43. Girgis A, Boyes A, Sanson-Fisher RW, Burrows S: Perceived needs of women diagnosed with breast cancer: rural versus urban location. Australian and New Zealand journal of Public Health 2000, 24:166-173.
44. Bonevski B,, Sanson-Fisher R,, Girgis A,, Burton L,, Cook P,, Boyes A: Evaluation of an instrument to assess the needs of patients with cancer. Cancer 2000, 88:217-225.
45. McCusker J: Development of scales to measure satisfaction and preferences regarding long-term and terminal care. Medical Care 1984, 22:476-493.
46. Tamburini M, Gangeri L, Brunelli C, Beltrami P, Boeri C, C. Borreanim, Fusco Karmann M, Greco G, Miccinesi L, Trimigno Murru & P.: Assessment of hospitalized cancer patients' needs by the Needs Evaluation Questionnaire. Annals of Oncology 2000, 11:31-37.
47. Coyle N, Goldstein L, Passik S, Fishman B, Portenoy R: Development and validation of a patient needs assessment tool (PNAT) for oncology clinicians. Cancer Nursing 1996, 19:81-92.
48. Derdiarian AK: Informational needs of recently diagnosed cancer patients. Nurs Res 1986, 35:276-28
49. Mesters I, Borne van den B, Boer MD, Pruyn J: Measuring information needs among cancer patients. Patient Education and Counseling 2001, 43:253-262.
50. Boberg EW, Gustafson DH, Hawkins RP, Offord KP, Koch C, Wen K, Kreutz K, Salner A: Assessing the unmet information, support and care delivery needs of men with prostate cancer. Patient Education and Counseling 2003, 49:233-242.
51. Thomas C, Morris SM, McIllmurray MB, Soothill K, Francis B, Harman JC: The psychosocial needs of cancer patients and their main carers. Lancaster University, Institute for Health Research; 2001.
52. Galloway S, Graydon J, Harrison D, Evans-Boyden B, Palmer-Wickham S, Burlein-Hall S, Rich-van der Bij L, West P, Blair A: Informational needs of women with a recent diagnosis of breast cancer: development and initial testing of a tool. Journal of Advanced Nursing 1997, 25:1175-1183.
53. Templeton H, Dphil CM: Adaptation of an instrument to measure the informational needs of men with prostate cancer. Journal of Advance Nursing 2001, 35:357-364.
54. Denger LF, Davison BJ, Sloan JA, Mueller B: Development of a scale to measure information needs in cancer care. Journal of Nursing Measurement 1998, 6:137-153.
55. McCarthy M, Higginson I: Clinical audit by a palliative care team. Palliative Medicine 1991, 5:215-221.
56. Higginson IL, Wade A, McCarthy M: A comparison of four outcome measures of terminal care. A safer death Edited by: Gilmore A and Gilmore S. London, Plenum Press; 1988:205-211.
57. Higginson IJ, McCarthy M: Validity of the support team assessment schedule: do staffs' ratings reflect those made by patients or their families? Palliat Med 1993, 8:219-228.
58. Higginson IJ, Wade AM, McCarthy M: Effectiveness of two palliative support teams. Journal of Public Health Medicine 1992, 14:50-56.
59. Ellershaw JE, Peat SJ, Boys LC: Assessing the effectiveness of a hospital palliative care team. Palliative Medicine 1995, 9:145-152.
60. Emanuel LL, Alpert HR, Baldwin DC, Emanuel EJ: What terminally ill patients care about: toward a validated construct of patients' perspectives. Journal of Palliative Medicine 2000, 3:419-431.
61. Emanuel EJ, Emanuel LL: The promise of a good death. Lancet 1998, 351 Suppl 2:S21-S29.
62. Kristjanson LJ, Atwood J, L.F. Denger: Validity and Reliability of the Family Inventory of Needs (FIN): Measuring the Care Needs of Families of Advanced Cancer Patients. Journal of Nursing Measurement 1995, 3:109-126.
63. Kilpatrick MG, Kristjanson LJ, Tataryn D: Measuring the information needs of husbands of women with breast cancer: validity and reliability of the Family of Inventory of Needs - Husbands. Oncol Nurs Forum 1998, 25:1347-1351.
64. Kilpatrick MG, Kristjanson LJ, Tataryn DJ, Fraser VH: Information needs of husbands of women with breast cancer. Oncology Nursing Forum 1998, 25:1565-1601.
65. Kristjanson LJ: Validity and reliability testing of the FAMCARE scale: Measure Family Satisfaction with Advance Cancer Care. Social Science Medicine 1993, 36:693-701.
66. Wingate AL, Lackey NR: A description of the needs of noninstitutionalized cancer patients and their primary caregivers. Cancer Nursing 1989, 12:216-225.
67. Hileman JW, Lackey NR: Self-identified needs of patients with cancer at home and their home caregivers: a descriptive study. Oncology Nursing Forum 1990, 17:907-913.
68. Hileman JW, Lackey NR, Hassanein RS: Identifying the needs of home caregivers of patients with cancer. Oncol Nurs Forum 1992, 19:771-777.
69. Harrington V, Lackey NR, Gates MF: Needs of caregivers of clinic and hospice cancer patients. Cancer Nursing 1996, 19:118-125.
70. Dawson NJ: Need satisfaction in terminal care setting. Social Science Medicine 1991, 32:83-87.
71. Chalmers K, Thomson K: Coming to terms with the risk of breast cancer: perceptions of women with primary relatives with breast cancer. Qualitative Health Research 1996, 6:256-282.
72. Chalmers KI, Luker KA, Leinster SJ, Elis I, Booth K: Information and support needs of women with primary relatives with breast cancer: development of the Information and Support Needs Questionnaire. Journal of Advance Nursing 2001, 35:497-507.
73. Cronbach LJ: Coefficient alpha and the internal structure of tests. Psychometrika 1951, 16:297-333.
74. Evan NJ: Needs assessment methodology: a comparison of results. Journal of College Student Personnel 1985, 26:107-114.
75. Title CR, Hill RJ: Attitude measurement and prediction of behavioral: An evaluation of conditions and measurement techniques. Sociometry 1967, 30:199-213.
76. Harris LE, Weinberger M, Tierney WM: Assessing inner-city patients' hospital experiences: a controlled trial of telephone interviews versus mailed surveys. Medical Care 1997, 35:70-76.
77. McHorney CA, Kosinski M, Ware JE Jr: Comparison of the costs and quality of norms for the SF-36 health survey collected by mail versus telephone interview: results from a national survey. Medical Care 1994, 32:551-567.
78. Degner LF, Davison BJ, Sloan JA, Mueller B: Development of a scale to measure information needs in cancer care. Journal of Nursing Measurement 1998, 6:137-153.
79. Newell S, Sanson-Fisher RW, Stewart J: Are touchscreen computer surveys acceptable to medical oncology patients? Journal of Psychosocial Oncology 1997, 15:37-46.