Identifying factors significant to continuity in basic palliative hospital care-From the perspective of patients with advanced cancer

Journal of Psychosocial Oncology

Volumn 32, Issue 2, 2014, Pages 167-188

  Soelver, Lisbeth ^a,b   Rydahl Hansen, Susan ^b   Oestergaard, Birte ^a   Wagner, Lis ^a  

^a UNIVERSITY OF SOUTHERN DENMARK   (Denmark)

^b FREDERIKSBERG HOSPITAL   (Denmark)

Author keywords

advanced cancer patients; continuity; general hospital; palliative care

Indexed keywords

ADULT; ADVANCED CANCER; AGED; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CLINICAL ARTICLE; CONFLICT MANAGEMENT; DOCTOR PATIENT RELATION; EMOTIONAL STRESS; EXPECTATION; FEMALE; HABIT; HEALTH CARE NEED; HOSPITAL CARE; HOSPITALIZATION; HUMAN; LIFESTYLE; MALE; PATIENT ATTITUDE; PATIENT CARE; PHYSICAL STRESS; PROBLEM SOLVING; REVIEW; SELF EVALUATION; SEMI STRUCTURED INTERVIEW; SOCIAL LIFE; UNEMPLOYMENT; VERY ELDERLY;

AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; CONTINUITY OF PATIENT CARE; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HOSPITALS, GENERAL; HUMANS; MALE; MIDDLE AGED; NEOPLASM STAGING; NEOPLASMS; PALLIATIVE CARE; QUALITATIVE RESEARCH;

EID: 84899018391     PISSN: 07347332     EISSN: 15407586     Source Type: Journal    
DOI: 10.1080/07347332.2013.873999     Document Type: Review

References (49)

1. Addington-Hall, J. M., Bruera, E., Higginson, I. J., & Payne, S. (Eds.). (2007). Researchmethods in palliative care. New York, NY: Oxford University Press.
2. Ahmedzai, S. H., Costa, A., Blengini, C., Bosch, A., Sanz-Ortiz, J., Ventafridda, V.,... Verhagen, S. C (2004). A new international framework for palliative care. European Journal of Cancer, 40(15), 2192-2200.
3. Blumer, H. (1969). The methodological position of symbolic interactionism. In H. Blumer (Ed.), Symbolic interactionism (pp. 1-60). Berkeley, CA: University ofCalifornia Press.
4. Brant, J. M. (2010). Palliative care for adults across the cancer trajectory: Fromdiagnosis to end of life. Seminars in Oncology Nursing, 26(4), 222-230.
5. Brink, P. J. (1991). Issues of reliability and validity. In J. M. Morse (Ed.), Qualitativenursing research. A contemporary dialogue (pp. 164-185). Newbury Park, CA:Sage.
6. Centeno, C., Clark, D., Lynch, T., Rocafort, J., Praill, D., De Lima, L.,Giordano, A.(2007). Facts and indicators on palliative care development in 52 countries ofthe WHO European region: Results of an EAPC task force. Palliative Medicine,21(6), 463-471.
7. Dahlborg-Lyckhage, E., & Lid́en, E. (2010). Competing discourses in palliative care. Supportive Care in Cancer, 18(5), 573-582.
8. Dumont, I., & Dumont, S. (2005). Continuity of care for advanced cancer patients. Review. Journal of Palliative Care, 21(1), 49-56.
9. Ellefsen, B. (2012). Living as dying. A study of older patients with terminal illnesses. Nordisk Sygeplejeforskning, 2(2), 133-144.
10. Folstein, M. F., Fetting, J. H., Lobo, A., Niaz, U., & Capozzoli, K. D. (1984). Cognitiveassessment of cancer patients. Cancer, 53(10 Suppl), 2250-2257.
11. Gill, F., & Duffy, A. (2010). Caring for cancer patients on non-specialist wards. BritishJournal of Nursing, 19(12), 761-767.
12. Groenvold, M., Petersen, M. A., Aaronson, N. K., Arraras, J. I., Blazeby, J. M., Bottomley,A.,... Bjorner, J. B. (2006). The development of the EORTC QLQ-C15-PAL:A shortened questionnaire for cancer patients in palliative care. European Journalof Cancer, 42(1), 55-64.
13. Groenvold, M., Pedersen, L., & Jensen, R. (2006). Cancer patient's world: A studyof what the Danish cancer patients need-Findings, evaluation and proposals. Copenhagen, Denmark: Bispebjerg Hospital, Research Unit of PalliativeMedicine.
14. Haggerty, J. L., Reid, R. J., Freeman, G. K., Starfield, B. H., Adair, C. E., & McKendry,R. (2003). Continuity of care: A multidisciplinary review. British Medical Journal(Clinical Research Ed.), 327(7425), 1219-1221.
15. Hoefler, J. M., & Vejlgaard, T. B. (2011). Something's ironic in Denmark: An otherwiseprogressive welfare state lags well behind in care of patients at the end of life. Health Policy, 103(2/3), 297-304.
16. Honneth, A. (2003). Invisibility. In The struggle for recognition [Danish: Behovet foranerkendelse] (pp. 98-117). Copenhagen, Denmark: Hans Reitzels.
17. Johnsen, A. T., Petersen, M. A., Pedersen, L., & Groenvold, M. (2009). Symptomsand problems in a nationally representative sample of advanced cancer patients. Palliative Medicine, 23(6), 491-501.
18. Kamal, A., Bull, J., Kavalieratos, D., Taylor, D. J., Downey, W., & Abernethy, A.(2011). Palliative care needs of patients with cancer living in the community. Journal of Oncological Practice, 7(6), 382-388.
19. King, M., Jones, L., Richardson, A., Murad, S., Irving, A., Aslett, H.,... Nazareth, I.(2008). The relationship between patients' experiences of continuity of cancercare and health outcomes: A mixed methods study. British Journal of Cancer,98(3), 529-536.
20. Kirkevold, M., & Bergland, Å. (2007). The quality of qualitative data: Issues toconsider when interviewing participants who have difficulties providing detailedaccounts of their experiences. International Journal of Qualitative Studies onHealth and Well-Being, 2, 68-75.
21. Kv° ale, K., & Bondevik, M. (2010). Patients' perceptions of the importance of nurses'knowledge about cancer and its treatment for quality nursing care. OncologyNursing Forum, 37(4), 436-442.
22. Kvale, S., & Brinkmann, S. (2008). Interviews: Learning the craft of qualitative interviewing(2nd ed.). Thousand Oaks, CA: Sage.
23. Laugsand, E. A., Sprangers, M. A. G., Bjordal, K., Skorpen, F., Kaasa, S., & Klepstad,P. (2010). Health care providers underestimate symptom intensities of cancerpatients: A multicenter European study. Health and Quality of Life Outcomes,8, 104.
24. L̈ockenhoff, C. E., & Carstensen, L. L. (2004). Socioemotional selectivity theory,aging and health: The increasingly delicate balance between regulatingemotions and making tough choices. Journal of Personality, 72(6), 1395-1424.
25. Meleis, A. I., Sawyer, L. M., Eun-Ok, I., Hilfinger, M. D. K., & Schumacher, K.(2000). Experiencing transitions: An emerging middle-range theory. Advancesin Nursing Science, 23(1), 12-28.
26. Meyers, F. J., & Linder, J. (2003). Simultaneous care: Disease treatment and palliativecare throughout illness. Journal of Clinical Oncology, 21(7), 1412-1415.
27. Mohan, S., Wilkes, L. M., Ogunsiji, O., & Walker, A. (2005). Caring for patientswith cancer in non-specialist wards: The nurse experience. European Journalof Cancer Care, 14(3), 256-263.
28. Murray, S. A., Kendall, M., Boyd, K., & Sheikh, A. (2005). Illness trajectories andpalliative care. British Medical Journal, 330(7498), 1007-1011.
29. Murray, S. A., Kendall, M., Carduff, E., Worth, A., Harris, F. M., Lloyd, A.,... Sheikh,(2009). Use of serial qualitative interviews to understand patients' evolvingexperiences and needs. British Medical Journal, 339:3702, 958-960.
30. I., Jones, L., Irving, A., Aslett, H., Ramsay, A., Richardson, A., King, M.(2008). Perceived concepts of continuity of care in people with colorectal andbreast cancer-A qualitative case study analysis. European Journal of CancerCare, 17(6), 569-577.
31. Parry, R. H., Land, V., & Seymour, J. (2012). Communicating with patients about theirfeelings and preferences for the future in palliative care: A systematic review ofevidence from social science and linguistics. Palliative Medicine, 26(4), Abstractnumber: P194-EAPC kongress 2012.
32. Penrod, J. (2007). Living with uncertainty: Concept advancement. Journal of AdvancedNursing, 57(6), 658-667.
33. Pereira, J., Hanson, J., & Bruera, E. (1997). The frequency and clinical course ofcognitive impairment in patients with terminal cancer. Cancer, 79(4), 835-842.
34. Preston, C., Cheater, F., Baker, R., & Hearnshaw, H. (1999). Left in limbo: Patients'views on care across the primary/secondary interface. Quality in Health Care:QHC, 8(1), 16-21.
35. Radbruch, L., & Payne, S. and EAPC Board of Directors. (2010). White paper onstandards and norms for hospice and palliative care in Europe: Part 2. EuropeanJournal of Palliative Care, 17(1), 22-33.
36. Rydahl-Hansen, S. (2005). Hospitalized patients experienced suffering in life withincurable cancer. Scandinavian Journal of Caring Sciences, 19(3), 213-222.
37. Schneider, N., Dreier, M., Amelung, V. E., & Buser, K. (2007). Hospital stay frequencyand duration of patients with advanced cancer diseases-Differences betweenthe most frequent tumour diagnosis: A secondary data analysis. European Journalof Cancer Care, 16(2), 172-177.
38. Seidman, I. (2006). Technique isn't everything, but it is a lot. In I. Seidman (Ed.),Interviewing as qualitative research: A guide for researchers in education andthe social services (3rd ed., pp. 78-94). New York, NY: Teachers College Press.
39. Sitzia, J., & Wood, N. (1997). Patient satisfaction: A review of issues and concepts. Social Science & Medicine, 45(12), 1829-1843.
40. Soelver, L., Oestergaard, B., Rydahl-Hansen, S., & Wagner, L. (2012). Advancedcancer patients' self-assessed physical and emotional problems on admissionand discharge from hospital general wards-a questionnaire study. EuropeanJournal of Cancer Care, 21(5), 667-676.
41. Stajduhar, K. I., Thorne, S. E., McGuinness, L., & Kim-Sing, C. (2010). Patients perceptionsof helpful communication in the context of advanced cancer. Journalof Clinical Nursing, 19, 2039-2047.
42. Stiel, S., Pestinger, M., Moser, A., Widdershoven, G., L̈uke, U., Meyer, G.,Radbruch,L. (2010). The use of grounded theory in palliative care: Methodologicalchallenges and strategies. Journal of Palliative Medicine, 13(8), 997-1003.
43. Strauss, A., & Corbin, J. (1998). Basics of qualitative research (2nd ed.). London, UK:Sage.
44. Thomsen, T. G., Hansen, S. R., & Wagner, L. (2011). How to be a patient in a palliativelife experience? A qualitative study to enhance knowledge about coping abilitiesin advanced cancer patients. Journal of Psychosocial Oncology, 29(3), 254-273.
45. Thomsen, T. G., Rydahl-Hansen, S., & Wagner, L. (2012). Prioritising, downplayingand self-preservation: Processes significant to coping in advanced cancerpatients. Open Journal of Nursing, 2, 48-57.
46. Weaver, C., Schiech, L., Held-Warmkessel, J., Kedziera, P., Haney, E., DiLullo, G.,... Barsevick, A. (2006). Risk for unplanned hospital readmission of patients withcancer: Results of a retrospective medical record review. Oncology NursingForum, 33(3), 44-52.
47. Williams, A. M. (1998). The delivery of qualitative nursing care: A grounded theorystudy of the nurse's perspective. Journal of Advanced Nursing, 27, 808-816.
48. World Health Organization. (2002). National cancer programmes, policies and managerialguidelines. (2nd ed.). Geneva, Switzerland: Author.
49. World Medical Association Declaration of Helsinki. (2008). Ethical principles formedical research involving human subjects. Amended by 59th WMA GeneralAssembly, Seoul, Republic of Korea. Retrieved From http://www.wma.net