Advanced cancer patients' self-assessed physical and emotional problems on admission and discharge from hospital general wards - a questionnaire study

European Journal of Cancer Care

Volumn 21, Issue 5, 2012, Pages 667-676

  Soelver, L ^a   Oestergaard, B ^b   Rydahl Hansen, S ^c   Wagner, L ^b  

^a BISPEBJERG HOSPITAL   (Denmark)

^b UNIVERSITY OF SOUTHERN DENMARK   (Denmark)

^c FREDERIKSBERG HOSPITAL   (Denmark)

Author keywords

Advanced cancer; EORTC QLQ C15 PAL; Hospital; Palliative care; Patients reported problems

Indexed keywords

AGED; ANALGESIA; ARTICLE; DENMARK; DIARRHEA; FEMALE; GENERAL HOSPITAL; HOSPITAL DISCHARGE; HOSPITALIZATION; HUMAN; MALE; MENTAL STRESS; MIDDLE AGED; NEOPLASM; PAIN; PALLIATIVE THERAPY; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; STANDARD; STATISTICS; TERMINALLY ILL PATIENT;

AGED; AGED, 80 AND OVER; DENMARK; DIARRHEA; FEMALE; HOSPITALIZATION; HOSPITALS, GENERAL; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PAIN; PAIN MANAGEMENT; PALLIATIVE CARE; PATIENT DISCHARGE; PROSPECTIVE STUDIES; QUESTIONNAIRES; STRESS, PSYCHOLOGICAL; TERMINALLY ILL;

EID: 84865186529     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/j.1365-2354.2012.01342.x     Document Type: Article

References (43)

1. Aaronson N.K., Ahmedzai S., Bergman B., Bullinger M., Cull A., Duez N.J., Filiberti A., Flechtner H., Fleishman S.B., de Haes J.C.J.M., Kaasa S., Klee M., Osoba D., Razavi D., Rofe P.B., Schraub S., Sneeuw K., Sullivan M. & Takeda F. (1993) The European Organization for Research and Treatment of Cancer QLO-C30: a quality-of-life instrument for use in international clinical trials in oncology. Journal of the National Cancer Institute 85, 365-376.
2. Addington-Hall J.M., Bruera E., Higginson I.J. & Payne S., eds (2007) Research Methods in Palliative Care. Oxford University Press, New York, USA.
3. Ahmedzai S.H., Costa A., Blengini C., Bosch A., Sanz-Ortiz J., Ventafridda V., Verhagen S.C. & International working group conveened by the European School of Oncology (2004) A new international framework for palliative care. European Journal of Cancer 40, 2192-2200.
4. Anderson F.G., Downing M., Hill J., Casorso L. & Lerch N. (1996) Palliative Performance Scale (PPS): a new tool. Journal of Palliative Care 12, 5-11.
5. Becker G., Hatami I., Xander C., Dwarschak-Flach B., Olschewski M., Momm F., Dreibert P., Higginson I.J. & Blum H.E. (2011) Palliative cancer care: an epidemiologic study. Journal of Clinical Oncology 29, 646-650.
6. Centeno C., Clark D., Lynch T., Rocafort J., Praill D., Lima L.D., Greenwood A., Flores L.A., Brasch S. & Giordan A. (2007) Facts and indicators on palliative care development in 52 countries of the WHO European region: results of an EAPC Task Force. Palliative Medicine 21, 463-471.
7. Doorenbos A.Z., Given C.W., Given B. & Verbitsky N. (2006) Symptom experience in the last year of life among individuals with cancer. Journal of Pain and Symptom Management 32, 403-412.
8. Droney J., Ross J., Gretton S., Welsh K., Sato H. & Riley J. (2008) Constipation in cancer patients on morphine. Supportive Care in Cancer 16, 453-459.
9. European Organisation for Research and Treatment of Cancer (EORTC) Translation. Available at: http://groups.eortc.be/qol/translations.htm[accessed 28 April 2011].
10. Fielding S., Fayers P.M., Loge J.H., Jordhøy M.S. & Kaasa S. (2006) Methods for handling missing data in palliative care research. Palliative Medicine 20, 791-798.
11. Groenvold M. & Petersen M.A. (2006) Addendum to the EORTC QLQ-C30 Scoring Manual: Scoring of the EORTC QLQ-C15-PAL. EORTC Quality of Life Group.
12. Groenvold M., Klee M.C., Sprangers M.A.G. & Aaronson N.K. (1997) Validation of the EORTC QLQ-C30. Quality of life questionnaire through combined qualitative and quantitative assessment of patient-observer agreement. Journal of Clinical Epidemiology 50, 441-450.
13. Groenvold M., Petersen M.A., Aaronson N.K., Arraras J.I., Blazeby J.M., Bottomley A., Fayers P.M., de Graeff A., Hammerlid E., Kaasa S., Sprangers M.A.G. & Bjorner J.B. (2006a) EORTC QLQ-C15-PAL: the new standard in the assessment of health-related quality of life in advanced cancer? Palliative Medicine 20, 59-61.
14. Groenvold M., Petersen M.A., Aaronson N.K., Arraras J.I., Blazeby J.M., Bottomley A., Fayers P.M., de Graeff A., Hammerlid E., Kaasa S., Sprangers M.A.G. & Bjorner J.B. (2006b) The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care. European Journal of Cancer 42, 55-64.
15. Haggerty J.L., Reid R.J., Freeman G.K., Starfield B.H., Adair C.E. & McKendry R. (2003) Continuity of care: a multidisciplinary review. British Medical Journal (Clinical Research Ed.) 327, 1219-1221.
16. Hjermstad M.J., Fossa S.D., Bjordal K. & Kaasa S. (1995) Test/retest study of the European Organisation for Research and Treatment of Cancer Core Quality-of-Life Questionnaire. Journal of Clinical Oncology 13, 1249-1254.
17. Horton R. (2002) Differences in assessment of symptoms and quality of life between patients with advanced cancer and their specialist palliative care nurses in a home care setting. Palliative Medicine 16, 488-494.
18. Johnsen A.T. (2008) Palliative needs in Danish patients with advanced cancer. PhD. Thesis. The Research Unit, Department of Palliative Medicine, Bispebjerg Hospital, Copenhagen, Denmark.
19. Johnsen A.T., Petersen M.A., Pedersen L. & Groenvold M. (2009) Symptoms and problems in a nationally representative sample of advanced cancer patients. Palliative Medicine 23, 491-501.
20. Kaasa S., Bjordal K., Aaronson N., Moun T., Wist E., Hagen S. & Kvikstad A. (1995) The EORTC Core Quality of Life Questionnaire (QLQ-C30): validity and reliability when analysed with patients treated with palliative radiotherapy. European Journal of Cancer 31A, 2260-2263.
21. Laugsand E.A., Jakobsen G., Kaasa S. & Klepsta P. (2011) Inadequate symptom control in advanced cancer patients across Europe. Supportive Care in Cancer 19, 2005-2014.
22. Murray S.A., Kendall M., Boyd K. & Sheikh A. (2005) Illness trajectories and palliative care. British Medical Journal 330, 1007-1011.
23. Nekolaichuk C.L., Bruera E., Spachynski K., MscEachern T., Hanson J. & Maquire T.O. (1999) A comparison of patient and proxy symptom assessments in advanced cancer patients. Palliative Medicine 13, 311-323.
24. Osoba D. (2007) Translating the science of patient-reported outcomes assessment into clinical practice. Journal of the National Cancer Institute. Monographs 37, 5-11.
25. Osoba D., Zee B., Pater J., Warr D., Kaizer L. & Latreille J. (1994) Psychometric properties and responsiveness of the EORTC Quality of Life Questionnaire (QLQ-C30) in patients with breast, ovarian and lung cancer. Quality of Life Research 3, 353-364.
26. Penrod J. (2007) Living with uncertainty: concept advancement. Journal of Advanced Nursing 57, 658-667.
27. Petersen M.A., Groenvold M., Aaronson N., Blazeby J., Brandberg Y., de Graeff A., Fayers P., Hammerlid E., Sprangers M., Velikova G. & Bjorner J.B. (2006) Item response was used to shorten EORTC QLQ-C30 scales for use in palliative care. Journal of Clinical Epidemiology 59, 36-44.
28. Potter J., Hami F., Bryan T. & Quigley C. (2003) Symptoms in 400 patients referred to palliative care service: prevalence and patterns. Palliative Medicine 17, 310-314.
29. Radbruch L., Payne S. & EAPC Board of Directors (2010) White Paper on Standards and norms for hospice and palliative care in Europe: part 2. European Journal of Palliative Care 17, 22-33.
30. Rydahl-Hansen S. (2005) Hospitalized patients experienced suffering in life with incurable cancer. Scandinavian Journal of Caring Sciences 19, 213-222.
31. Rydahl-Hansen S. (2009) Suffering - as expressed in nursing diagnosis within palliative care [Danish]. Nordic Journal of Nursing Research and Clinical Studies/Vård i Norden 29, 4-8.
32. Schneider N. & Walter U. (2007) Where do prevention and palliative care meet? A systematic literature study on the interfaces of two different health care sectors. The American Journal of Hospice and Palliative Care 24, 114-118.
33. Schneider N., Dreier M., Amelung V.E. & Buser K. (2007) Hospital stay frequency and duration of patients with advanced cancer diseases - differences between the most frequent tumour diagnosis: a secondary data analysis. European Journal of Cancer Care 16, 172-177.
34. Stiel S., Joppich R., Korb K., Hahnen M., Elsner F., Rossaint R. & Radbruch L. (2009) Problems and deficits in the transition from inpatient and outpatient care of cancer patients. A qualitative analysis. Schmerz (Berlin, Germany) 23, 510-517.
35. Streiner L.D. & Norman G.R. (2003) Health Measurement Scales - A Practical Guide to Their Development and Use. Oxford University Press, New York, USA.
36. Stromgren A.S., Groenvold M., Pedersen L., Olsen A.K., Spile M. & Sjogren P. (2001a) Does the medical record cover the symptoms experienced by cancer patients receiving palliative care? A comparison of the record and patient self-rating. Journal of Pain and Symptom Management 21, 189-196.
37. Stromgren A.S., Groenvold M., Sorensen A. & Andersen L. (2001b) Symptom recognition in advanced cancer. A comparison of nursing records against patient self-rating. Acta Anaesthesiologica Scandinavica 45, 1080-1085.
38. Suárez-del-Real Y., Allende-Pérez S., Alférez-Mancera A., Rodríguez R.B., Jiménez-Toxtle S., Mohar A. & Onate-Ocana L.F. (2011) Validation of the Mexican-Spanish version of the EORTC QLQ-C15-PAL questionnaire for the evaluation of health-related quality of life in patients on palliative care. Psycho-oncology 20, 889-896.
39. Sundhedsstyrelsen (2009) Genindlæggelser af ældre i Danmark 2008. Nye tal fra Sundhedsstyrelsen. [Readmission of older people in Denmark 2008. The national Board of Health].
40. Weaver C., Schiech L., Held-Warmkessel J., Kedziera P., Haney E., DiLullo G., Babb J.S., Ruth K., Dell D. & Barsevick A. (2006) Risk for unplanned hospital readmission of patients with cancer: results of a retrospective medical record review. Oncology Nursing Forum 33, 44-52.
41. WHO (2002) National Cancer Programmes. Policies and Manageria Guidelines, 2nd edn. World Health Organization, Geneva, Switzerland.
42. WHO (2004) The Solid Facts. Palliative Care. World Health Organization, Copenhagen Ø, Denmark.
43. World Medical Association (1964) Declaration of Helsinki. Ethical Principles for Medical Research Involving Human Subjects. WMA General Assembly, Helsinki, Finland.