The development of the EORTC QLQ-C15-PAL: A shortened questionnaire for cancer patients in palliative care

European Journal of Cancer

Volumn 42, Issue 1, 2006, Pages 55-64

  Groenvold, Mogens ^a,b   Petersen, Morten Aa ^a   Aaronson, Neil K ^c   Arraras, Juan I ^d   Blazeby, Jane M ^e   Bottomley, Andrew ^f   Fayers, Peter M ^g,h   De Graeff, Alexander ⁱ   Hammerlid, Eva ^j   Kaasa, Stein ^h   Sprangers, Mirjam A G ^k   Bjorner, Jakob B ^l,m  

^a BISPEBJERG HOSPITAL   (Denmark)

^b UNIVERSITY OF COPENHAGEN   (Denmark)

^c NETHERLANDS CANCER INSTITUTE   (Netherlands)

^d Universidad Pública de Navarra   (Spain)

^e UNIVERSITY OF BRISTOL   (United Kingdom)

^f EORTC DATA CENTER   (Belgium)

^g UNIVERSITY OF ABERDEEN   (United Kingdom)

^h NORWEGIAN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Norway)

ⁱ UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

^j SAHLGRENSKA UNIVERSITY HOSPITAL   (Sweden)

^k UNIVERSITY OF AMSTERDAM   (Netherlands)

^l NATIONAL RESEARCH CENTRE FOR THE WORKING ENVIRONMENT   (Denmark)

^m QualityMetric Incorporated   (United States)

more..

Author keywords

EORTC; Health status; Palliative care; Quality of life; Questionnaires; Self assessment; Treatment outcome

Indexed keywords

ADULT; AGED; APPETITE; ARTICLE; CANCER PAIN; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CLINICAL ARTICLE; CONSTIPATION; CONTROLLED STUDY; DYSPNEA; EMOTION; FATIGUE; FEMALE; FITNESS; HEALTH CARE PERSONNEL; HEALTH STATUS; HUMAN; INTERVIEW; MALE; NAUSEA AND VOMITING; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; SLEEP; THEORETICAL STUDY;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; AGED, 80 AND OVER; COGNITION DISORDERS; CONSTIPATION; COST OF ILLNESS; DYSPNEA; EATING DISORDERS; EMOTIONS; FATIGUE; HEALTH STATUS; HUMANS; INTERPERSONAL RELATIONS; MIDDLE AGED; NAUSEA; NEOPLASMS; PAIN; PALLIATIVE CARE; QUALITY OF LIFE; QUESTIONNAIRES; VOMITING;

EID: 29244487109     PISSN: 09598049     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ejca.2005.06.022     Document Type: Article

References (32)

1. C. Sepulveda, A. Marlin, T. Yoshida, and A. Ullrich Palliative Care: the World Health Organization's global perspective J Pain Symptom Manage 24 2002 91 96
2. S. Kaasa, and J.H. Loge Quality of life in palliative care: principles and practice Palliat Med 17 2003 11 20
3. B.R. Ferrell Assessing health-related quality of life at the end of life J. Lipscomb C.C. Gotay C. Snyder Outcomes assessment in cancer 2005 Cambridge University Press Cambridge 264 285
4. N.K. Aaronson, S. Ahmedzai, B. Bergman, M. Bullinger, and A. Cull The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology J Natl Cancer Inst 85 1993 365 376
5. D.F. Cella, D.S. Tulsky, G. Gray, B. Sarafian, and E. Linn The functional assessment of cancer therapy scale: development and validation of the general measure J Clin Oncol 11 1993 570 579
6. A.S. Stromgren, D. Goldschmidt, M. Groenvold, M.A. Petersen, P.T. Jensen, and L. Pedersen Self-assessment in cancer patients referred to palliative care: a study of feasibility and symptom epidemiology Cancer 94 2002 512 520
7. M.S. Jordhoy, P. Fayers, J.H. Loge, M. Ahlner-Elmqvist, and S. Kaasa Quality of life in palliative cancer care: results from a cluster randomized trial J Clin Oncol 19 2001 3884 3894
8. S. Kaasa, and J.H. Loge Quality-of-life assessment in palliative care Lancet Oncol 3 2002 175 182
9. A. Garratt, L. Schmidt, A. Mackintosh, and R. Fitzpatrick Quality of life measurement: bibliographic study of patient assessed health outcome measures Br Med J 324 2002 1417
10. G.I. Ringdal, and K. Ringdal Testing the EORTC Quality of Life Questionnaire on cancer patients with heterogeneous diagnoses Qual Life Res 2 1993 129 140
11. S.A. McLachlan, G.M. Devins, and P.J. Goodwin Validation of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (QLQ-C30) as a measure of psychosocial function in breast cancer patients Eur J Cancer 34 1998 510 517
12. M. Groenvold, J.B. Bjorner, M.C. Klee, and S. Kreiner Test for item bias in a quality of life questionnaire J Clin Epidemiol 48 1995 805 816
13. M. Groenvold, M.C. Klee, M.A.G. Sprangers, and N.K. Aaronson Validation of the EORTC QLQ-C30 quality of life questionnaire through combined qualitative and quantitative assessment of patient-observer agreement J Clin Epidemiol 50 1997 441 450
14. G. Apolone, A. Filiberti, S. Cifani, R. Ruggiata, and P. Mosconi Evaluation of the EORTC QLQ-C30 questionnaire: a comparison with SF-36 Health Survey in a cohort of Italian long-survival cancer patients Ann Oncol 9 1998 549 557
15. D. Osoba, B. Zee, J. Pater, L. Warr, L. Kaizer, and J. Latreille Psychometric properties and responsiveness of the EORTC Quality of Life Questionnaire (QLQ-C30) in patients with breast, ovarian and lung cancer Qual Life Res 3 1994 353 364
16. P. Fayers, S. Weeden, and D. Curran EORTC QLQ-C30 reference values 1998 EORTC Brussels
17. P.M. Fayers, N. Aaronson, K. Bjordal, M. Groenvold, and D. Curran The EORTC QLQ-C30 scoring manual 3rd ed. 2001 European Organization for Research and Treatment of Cancer Brussels
18. A. Cull, M. Sprangers, K. Bjordal, N. Aaronson, K. West, and A. Bottomley EORTC Quality of Life Group translation procedure 2nd ed. 2002 EORTC Quality of Life Group Brussels
19. M.Aa. Petersen, M. Groenvold, J.B. Bjorner, N.K. Aaronson, and T. Conroy Use of differential item functioning analysis to assess the equivalence of translations of a questionnaire Qual Life Res 12 2003 373 385
20. M.T. King The interpretation of scores from the EORTC quality of life questionnaire QLQ-C30 Qual Life Res 5 1996 555 567
21. D. Osoba, G. Rodrigues, J. Myles, B. Zee, and J. Pater Interpreting the significance of changes in health-related quality-of-life scores J Clin Oncol 16 1998 139 144
22. J.B. Bjorner, M.A. Petersen, M. Groenvold, N. Aaronson, and M. Ahlner-Elmqvist Use of item response theory to develop a shortened version of the EORTC QLQ-C30 emotional functioning scale Qual Life Res 13 2004 1683 1697
23. M.A.a. Petersen, M. Groenvold, N.K. Aaronson, J.M. Blazeby, Y. Brandberg, and A. De Graeff Item response theory was used to shorten EORTC QLQ-C30 scales for use in palliative care J Clin Epidemiol 58 2005 902 908
24. J. Blazeby, M. Sprangers, A. Cull, M. Groenvold, and A. Bottomley EORTC Quality of Life Group guidelines for developing questionnaire modules 3rd ed. 2002 EORTC Brussels
25. M.A.G. Sprangers, A. Cull, K. Bjordal, M. Groenvold, N.K. Aaronson for the EORTC Quality of Life Study Group The European Organization for Research and Treatment of Cancer approach to quality of life assessment: guidelines for developing questionnaire modules Qual Life Res 2 1993 287 295
26. F. Efficace, A. Bottomley, V. Vanvoorden, and J.M. Blazeby Methodological issues in assessing health-related quality of life of colorectal cancer patients in randomised controlled trials Eur J Cancer 40 2004 187 197
27. A. Bottomley, F. Efficace, R. Thomas, V. Vanvoorden, and S.H. Ahmedzai Health-related quality of life in non-small-cell lung cancer: methodologic issues in randomized controlled trials J Clin Oncol 21 2003 2982 2992
28. A.S. Stromgren, M. Groenvold, L. Pedersen, A.K. Olsen, and P. Sjogren Symptomatology of cancer patients in palliative care: content validation of self-assessment questionnaires against medical records Eur J Cancer 38 2002 788 794
29. S.R. Cohen, B.M. Mount, M.G. Strobel, and F. Bui The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability Palliat Med 9 1995 207 219
30. J. Hearn, and I.J. Higginson Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group Qual Health Care 8 1999 219 227
31. I.R. Byock, and M.P. Merriman Measuring quality of life for patients with terminal illness: the Missoula-VITAS quality of life index Palliat Med 12 1998 231 244
32. K.E. Steinhauser, H.B. Bosworth, E.C. Clipp, M. McNeilly, and N.A. Christakis Initial assessment of a new instrument to measure quality of life at the end of life J Palliat Med 5 2002 829 841