Health-related quality of life in children and adolescents with hemophilia in Basra, Southern Iraq

Journal of Pediatric Hematology/Oncology

Volumn 36, Issue 3, 2014, Pages 179-184

  Taha, Murtadha Y ^a   Hassan, Meàad K ^a  

^a UNIVERSITY OF BASRAH   (Iraq)

Author keywords

children and adolescents; Hemophilia; quality of life

Indexed keywords

BLOOD CLOTTING FACTOR;

ADOLESCENT; ARTICLE; CHILD; CLINICAL ARTICLE; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DISEASE SEVERITY; FAMILY; HEALTH STATUS; HEMOPHILIA A; HEMOPHILIA B; HEMOPHILIA QUALITY OF LIFE QUESTIONNAIRE; HUMAN; IRAQ; LIFE THREAT; PRIORITY JOURNAL; QUALITY OF LIFE; SPORT; SUBSTITUTION THERAPY;

ADOLESCENT; ADOLESCENT MEDICINE; CHILD; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; FEMALE; FOLLOW-UP STUDIES; HEALTH STATUS; HEMOPHILIA A; HUMANS; IRAQ; MALE; PROGNOSIS; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 84897538271     PISSN: 10774114     EISSN: 15363678     Source Type: Journal    
DOI: 10.1097/MPH.0000000000000117     Document Type: Article

References (18)

1. Remor E, Young NL, von Mackensen S, et al. Disease-specific quality-of-life measurement tools for haemophilia patients. Haemophilia. 2004;10(suppl.4):30-34
2. Bullinger M, von Mackensen S. Psycho-social determinants of quality of life in children and adolescents with hemophilia-A crosscultural approach. Clini Psychol Psychother. 2008;15:164-172
3. Bullinger M, von Mackensen S, and the Haemo-QoL Group. Quality of life in children and families with bleeding disorders. J Pediatric Hematol Oncol. 2003;25:S64-S67
4. Heijnen L, Dirat G, Chen L, et al. The role of the physiatrist in the hemophilia comprehensive care team in different parts of the world. Haemophilia. 2008;14(suppl.3):153-161
5. Trzepacz AM, Vannatta K, Davies WH, et al. Social, emotional, and behavioral functioning of children with hemophilia. J Dev Behav Pediatr. 2003;24:225-232
6. Shapiro AD, Donfield SM, Lynn HS, et al. Defining the Impact of Hemophilia: The academic achievement in children with hemophilia study. Pediatrics. 2001;108:2-6
7. Coppola A, Cerbone AM, Mancuso G, et al. Confronting the psychological burden of haemophilia. Haemophilia. 2011;17:21-27
8. Von Mackensen S, Bullinger M, the Haemo-QoL Group. Development and testing of an instrument to assess the Quality of Life of Children with Hemophilia in Europe (Haemo-QoL). Haemophilia. 2004;10(suppl.1):17-25
9. Gringeri A, von Mackensen S, Auerswald G, et al. Health status and health-related quality of life of children with hemophilia from six West European countries. Haemophilia. 2004;10(suppl 1):26-33
10. Konijnenberg AY, De Graeff-Meeder ER, Kimpen JL, et al. Children with unexplained chronic pain: Do pediatricians agree regarding the diagnostic approach and presumed primary cause Pediatrics. 2004;114:1220-1225
11. Hemophilia QoL scoring. Available at: Http://www.haemoqol. de. Accessed January 29, 2011
12. Pollak E, Muhlan H, Von Mackensen S, et al. The Haemo-QoL Index: Developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia. Haemophilia. 2006;12:384-392
13. Gringeri A, von Mackensen S. Quality of life in haemophilia. Haemophilia. 2008;14:19-25
14. Scalone L, Mantovani LG, Mannucci PM, et al. Quality of life is associated to the orthopedic status in haemophilic patients with inhibitors. Haemophilia. 2006;12:154-162
15. Miners AH, Sabin CA, Tolley KH, et al. Assessing healthrelated quality-of-life in individuals with haemophilia. Haemophilia. 1999;5:378-385
16. Tantawy AA, Von Mackensen S, El-Laboudy MA, et al. Health-related quality of life in Egyptian children and adolescents with hemophilia A. Pediatr Hematol Oncol. 2011; 28:222-229
17. Mercan A, Sarper N, Inanir M, et al. Hemophiliaspecific quality of life index (Haemo-QoL and Haem-A-QoL questionnaires) of children and adults: Result of a single center from Turkey. Pediatr Hematol Oncol. 2010;27: 449-461
18. Hegeman AK, Van Genderen FR, Meijer S, et al. Perceived competence in children and adolescents with haemophilia: An explorative study. Haemophilia. 2011;17:81-89