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Volumn 27, Issue 6, 2010, Pages 449-461

Hemophilia-specific quality of life index (Haemo-QoL and Haem-A-QoL Questionnaires) of children and adults: Result of a single center from Turkey

Author keywords

Hemophilia; Orthopedic joint scores; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; HEALTH STATUS; HEMOPHILIA A; HEMOPHILIA B; HUMAN; JOINT; MAJOR CLINICAL STUDY; MALE; PRESCHOOL CHILD; QUALITY OF LIFE INDEX; QUESTIONNAIRE; SCHOOL CHILD; TURKEY (REPUBLIC);

EID: 77956134232     PISSN: 08880018     EISSN: 15210669     Source Type: Journal    
DOI: 10.3109/08880018.2010.489933     Document Type: Article
Times cited : (35)

References (17)
  • 1
    • 0025814586 scopus 로고
    • Quality of life definition, conceptualization and implications a methodologist's view
    • Bullinger M. Quality of life definition, conceptualization and implications a methodologist's view. Theor Surg. 1991;6:143-149.
    • (1991) Theor Surg. , vol.6 , pp. 143-149
    • Bullinger, M.1
  • 2
    • 0025428228 scopus 로고
    • Measuring quality of life today: Metadological aspects
    • Cella DF, Tulsky DS. Measuring quality of life today: metadological aspects. Oncology. 1990;4:29-38.
    • (1990) Oncology. , vol.4 , pp. 29-38
    • Cella, D.F.1    Tulsky, D.S.2
  • 3
    • 11044219929 scopus 로고    scopus 로고
    • Disease-specific quality-of-life measurement tools for haemophilia patients
    • Remor E, Young NL, Mackensen SV, Lopatinas EG. Disease-specific quality-of-life measurement tools for haemophilia patients. Haemophilia. 2004;10:30-34.
    • (2004) Haemophilia. , vol.10 , pp. 30-34
    • Remor, E.1    Young, N.L.2    MacKensen, S.V.3    Lopatinas, E.G.4
  • 4
    • 19944417564 scopus 로고    scopus 로고
    • Health status and health-related quality of life of children with haemophilia from six West European countries
    • Gringeri A v., Mackensen S, Auerswald G, et al. Health status and health-related quality of life of children with haemophilia from six West European countries. Haemophilia. 2004;10(Suppl1):26-33.
    • (2004) Haemophilia. , vol.10 , Issue.SUPPL.1 , pp. 26-33
    • Gringeri, A.V.1    Mackensen, S.2    Auerswald, G.3
  • 6
    • 18344390038 scopus 로고    scopus 로고
    • Pilot testing of the"Haemo-Qol" quality of life questionnaire for haemophilic children in six European Countries
    • Bullinger M v., Mackensen S, Fischer K et al. Pilot testing of the "Haemo-Qol" quality of life questionnaire for haemophilic children in six European Countries. Haemophilia. 2002;8(Suppl 2):47-54.
    • (2002) Haemophilia. , vol.8 , Issue.SUPPL. 2 , pp. 47-54
    • Bullinger, M.V.1    MacKensen, S.2    Fischer, K.3
  • 7
    • 19944408601 scopus 로고    scopus 로고
    • Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-Qol)
    • The Haemo-QoL Group
    • Von Mackensen S, Bullinger M, the Haemo-QoL Group. Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-Qol). Haemophilia. 2004;10(Suppl 1):17-25.
    • (2004) Haemophilia. , vol.10 , Issue.SUPPL. 1 , pp. 17-25
    • Von MacKensen, S.1    Bullinger, M.2
  • 8
    • 0036207230 scopus 로고    scopus 로고
    • Quality-of-life differences between prophylactic and on-demand factor replacement therapy in European hemophilia patients
    • For the European Hemophilia Economic Study Group.
    • Royal S, Schramm W, Berntorp E et al. For the European Hemophilia Economic Study Group. Quality-of-life differences between prophylactic and on-demand factor replacement therapy in European hemophilia patients. Hemophilia. 2002;8:44-50.
    • (2002) Hemophilia. , vol.8 , pp. 44-50
    • Royal, S.1    Schramm, W.2    Berntorp, E.3
  • 9
    • 0030939607 scopus 로고    scopus 로고
    • Prophylactic therapy for hemophilia in a developing country Turkey
    • Kavakli K, Nili G, Aydinok Y et al. Prophylactic therapy for hemophilia in a developing country, Turkey. Pediatr Hematol Oncol. 1997;14:151-159.
    • (1997) Pediatr Hematol Oncol. , vol.14 , pp. 151-159
    • Kavakli, K.1    Nili, G.2    Aydinok, Y.3
  • 10
    • 0028661141 scopus 로고
    • Is haemophilia prophylaxis achievable in the context of self-sufficiency?
    • Nilsson IM. Is haemophilia prophylaxis achievable in the context of self-sufficiency? Blood Coagul Fibrinol. 1994;5:71-75. ̈
    • (1994) Blood Coagul Fibrinol. , vol.5 , pp. 71-75
    • Nilsson, I.M.1
  • 11
    • 0029794224 scopus 로고    scopus 로고
    • Socio-economic impact of haemophilia care: Results of a pilot study
    • Szucs TD, Offner A, Schramm W. Socio-economic impact of haemophilia care: results of a pilot study. Haemophilia. 1996;2:211-217
    • (1996) Haemophilia , vol.2 , pp. 211-217
    • Szucs, T.D.1    Offner, A.2    Schramm, W.3
  • 12
    • 0031088357 scopus 로고    scopus 로고
    • Prophylactic therapy programs for hemophilia in developing countries
    • Willoughby MLN. Prophylactic therapy programs for hemophilia in developing countries. Pediatric Hematol Oncol. 1997;14:ix-xii.
    • (1997) Pediatric Hematol Oncol. , vol.14
    • Mln, W.1
  • 13
    • 34547757915 scopus 로고    scopus 로고
    • Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
    • Manco-Johnson MJ, Abshire TC, Shapiro AD, et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med. 2007;357:535-544.
    • (2007) N Engl J Med. , vol.357 , pp. 535-544
    • Manco-Johnson, M.J.1    Abshire, T.C.2    Shapiro, A.D.3
  • 15
    • 0028004222 scopus 로고
    • A longitudinal study of orthopedic outcomes for severe factor-VIII-deficient haemophiliacs
    • Aledort LM, Haschmeyer RH, Pettersson H. A longitudinal study of orthopedic outcomes for severe factor-VIII-deficient haemophiliacs. J Intern Med. 1994;236:391-399.
    • (1994) J Intern Med. , vol.236 , pp. 391-399
    • Aledort, L.M.1    Haschmeyer, R.H.2    Pettersson, H.3
  • 16
    • 69949085125 scopus 로고    scopus 로고
    • Factor VIII prophylaxis for adult patients with severe haemophilia A: Results of a US survey of attitudes and practices
    • Walsh CE, ValentIno LA. Factor VIII prophylaxis for adult patients with severe haemophilia A: results of a US survey of attitudes and practices. Haemophilia. 2009;15:1-8.
    • (2009) Haemophilia. , vol.15 , pp. 1-8
    • Walsh, C.E.1    Valentino, L.A.2
  • 17
    • 0033675732 scopus 로고    scopus 로고
    • Joint evaluation instruments for children and adults with hemophilia
    • Mancho-Jonson MJ, Nuss R, Funk S and Murphy J. Joint evaluation instruments for children and adults with hemophilia. Haemophilia. 2000;6:649-657.
    • (2000) Haemophilia. , vol.6 , pp. 649-657
    • Mancho-Jonson, M.J.1    Nuss, R.2    Funk, S.3    Murphy, J.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.