Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-QoL)

Haemophilia, Supplement

Volumn 10, Issue 1, 2004, Pages 17-25

  Von Mackensen, Sylvia ^a   Bullinger, M ^a   Arranz, Pilar ^b   Auerswald, Günther ^c   Aznar, José ^d   van den Berg, Marijke ^e   Borel Derlon, Annie ^f   Chambost, Hervé ^g   Fressinaud, Edith ^h   Garrido, R Perez ⁱ   Gorina, Eduard ^j   Gringeri, Alessandro ^k   Guerois, Claude ^l   Khair, Kate ^m   Kurnik, Karin ⁿ   von Haunerische, A ⁿ   Lenk, Harald ^o   Longo, Giovanni ^p   Lucia, Felix ^q   Perugini, Laura ^r   Peters, Marijolein ^s   Remor, Eduardo ^b   Rothschild, Chantal ^t   Trossaert, Marc ^h   Vicariot, Monique ^u   Villar, Anna ^b   Wermes, Cornelia ^v   more..

^a UNIVERSITY MEDICAL CENTER HAMBURG EPPENDORF   (Germany)

^b HOSPITAL UNIVERSITARIO LA PAZ   (Spain)

^c Zentralkrankenhaus   (Germany)

^d HOSPITAL UNIVERSITARIO LA FE   (Spain)

^e UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

^f Centre de l'Hémophilie   (France)

^g Centre de l'Hémophilie   (France)

^h Centre Régional de Traitement de l'Hémophilie   (France)

ⁱ HOSPITAL UNIVERSITARIO VIRGEN DEL ROCÍO   (Spain)

^j BAYER CORPORATION   (United States)

^k UNIVERSITY OF MILAN   (Italy)

^l Centre de l'H acemophilie   (France)

^m GREAT ORMOND STREET HOSPITAL   (United Kingdom)

ⁿ Kinderklinik   (Germany)

^o UNIVERSITY OF LEIPZIG   (Germany)

^p Centro Emofilia   (Italy)

^q Servicio de Haematologia   (Spain)

^r REGINA MARGHERITA CHILDREN S HOSPITAL   (Italy)

^s ACADEMIC MEDICAL CENTER   (Netherlands)

^t HÔPITAL NECKER ENFANTS MALADES   (France)

^u BREST UNIVERSITY HOSPITAL   (France)

^v HANNOVER MEDICAL SCHOOL   (Germany)

more..

Author keywords

Children; Haemophilia; Quality of life; Questionnaire validation

Indexed keywords

BLOOD CLOTTING FACTOR 8; BLOOD CLOTTING FACTOR 8 CONCENTRATE; BLOOD CLOTTING FACTOR 9; BLOOD CLOTTING FACTOR 9 CONCENTRATE;

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILD BEHAVIOR; CHILD HEALTH CARE; CHRONIC PAIN; CLINICAL RESEARCH; CONTROLLED STUDY; COPING BEHAVIOR; CULTURAL FACTOR; EDUCATION; EUROPE; FAMILY LIFE; FEMALE; FRANCE; GERMANY; HEALTH STATUS; HEMARTHROSIS; HEMOPHILIA A; HEMOPHILIA B; HUMAN; HUMAN RELATION; INTERNET; ITALY; MAJOR CLINICAL STUDY; MALE; MEDICAL ASSESSMENT; NETHERLANDS; ORTHOPEDIC SURGERY; PARENTAL BEHAVIOR; PATIENT ATTITUDE; PREVALENCE; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; RELIABILITY; SELF REPORT; SPAIN; SPORT; UNITED KINGDOM; VALIDATION PROCESS; AGE; CLINICAL TRIAL; CROSS-SECTIONAL STUDY; EDUCATIONAL STATUS; INFANT; MARRIAGE; MULTICENTER STUDY; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; STANDARD; VALIDATION STUDY;

ADOLESCENT; AGE FACTORS; CHILD; CHILD, PRESCHOOL; CROSS-CULTURAL COMPARISON; CROSS-SECTIONAL STUDIES; EDUCATIONAL STATUS; FEMALE; HEALTH STATUS; HEMOPHILIA A; HUMANS; INFANT; MALE; MARITAL STATUS; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 19944408601     PISSN: 13550691     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

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