-
1
-
-
0025814586
-
Quality of life-definition, conceptualization and implications a methodologist's view
-
Bullinger M. Quality of life-definition, conceptualization and implications a methodologist's view. Theor Surg 1991; 6: 143-9.
-
(1991)
Theor. Surg.
, vol.6
, pp. 143-149
-
-
Bullinger, M.1
-
2
-
-
0036588603
-
Evaluation of outcome of care in patients with haemophilia
-
Beeton K. Evaluation of outcome of care in patients with haemophilia. Haemophilia 2002; 8: 428-34.
-
(2002)
Haemophilia
, vol.8
, pp. 428-434
-
-
Beeton, K.1
-
3
-
-
0038779220
-
Health-related quality of life as outcome parameter in haemophilia treatment
-
Fischer K, van der Bom JG, van der Berg HM. Health-related quality of life as outcome parameter in haemophilia treatment. Haemophilia 2003; 9 (Suppl. 1): 75-82.
-
(2003)
Haemophilia
, vol.9
, Issue.SUPPL. 1
, pp. 75-82
-
-
Fischer, K.1
van der Bom, J.G.2
van der Berg, H.M.3
-
4
-
-
11044226768
-
Quality of life assessment in haemophilia
-
Bullinger M, von Mackensen S. Quality of life assessment in haemophilia. Haemophilia 2004; 10 (Suppl. 1): 9-16.
-
(2004)
Haemophilia
, vol.10
, Issue.SUPPL. 1
, pp. 9-16
-
-
Bullinger, M.1
von Mackensen, S.2
-
5
-
-
0025681520
-
Modern haemophilia treatment. medical improvement and quality of life
-
Rosendaal FR, Smit C, Varekamp I et al. Modern haemophilia treatment. medical improvement and quality of life. J Intern Med 1990; 228: 633-40.
-
(1990)
J. Intern. Med.
, vol.228
, pp. 633-640
-
-
Rosendaal, F.R.1
Smit, C.2
Varekamp, I.3
-
6
-
-
0029794224
-
Socioeconomic impact of haemophilia care: Results of a pilot study
-
Szucs TD, Offner A, Schramm W. Socioeconomic impact of haemophilia care: results of a pilot study. Haemophilia 1996; 2 211-7.
-
(1996)
Haemophilia
, vol.2
, pp. 211-217
-
-
Szucs, T.D.1
Offner, A.2
Schramm, W.3
-
7
-
-
0033009337
-
Assessing health-related quality-of-life in patients with severe haemophilia A and B
-
Miners AH, Sabin CA, Tolley KH, Jenkinson C, Ebrahim S, Lee CA. Assessing health-related quality-of-life in patients with severe haemophilia A and B. Psych Health Med 1999; 4: 5-15.
-
(1999)
Psych. Health Med.
, vol.4
, pp. 5-15
-
-
Miners, A.H.1
Sabin, C.A.2
Tolley, K.H.3
Jenkinson, C.4
Ebrahim, S.5
Lee, C.A.6
-
8
-
-
0033432718
-
Assessing health-related quality-of-life in individuals with haemophilia
-
Miners AH, Sabin CA, Tolley KH et al. Assessing health-related quality-of-life in individuals with haemophilia. Haemophilia 1999; 5: 378-85.
-
(1999)
Haemophilia
, vol.5
, pp. 378-385
-
-
Miners, A.H.1
Sabin, C.A.2
Tolley, K.H.3
-
9
-
-
0034102853
-
The orthopaedic status of severe haemophiliacs in Spain
-
Aznar JA, Magallón M, Querol F, Gorina E, Tusell JM. The orthopaedic status of severe haemophiliacs in Spain. Haemophilia 2000; 6: 170-6.
-
(2000)
Haemophilia
, vol.6
, pp. 170-176
-
-
Aznar, J.A.1
Magallón, M.2
Querol, F.3
Gorina, E.4
Tusell, J.M.5
-
10
-
-
0004466333
-
Recombinant VIIA (NovoSeven) treatment of six children with long-standing inhibitors improves quality of life
-
Brewin T, Ekert H, Davey P. Recombinant VIIA (NovoSeven) treatment of six children with long-standing inhibitors improves quality of life. Haemophilia 2000; 6: 414.
-
(2000)
Haemophilia
, vol.6
, pp. 414
-
-
Brewin, T.1
Ekert, H.2
Davey, P.3
-
11
-
-
11044224614
-
Quality of life in children with haemophilia
-
Khair K. Quality of life in children with haemophilia. Haemophilia 2000; 6: 419.
-
(2000)
Haemophilia
, vol.6
, pp. 419
-
-
Khair, K.1
-
12
-
-
11044225759
-
Health-related quality of life in people living with haemophilia or von Willebrand disease in a geographical population
-
Sek J, Saleh M, Furlong W, et al. Health-related quality of life in people living with haemophilia or von Willebrand disease in a geographical population. Haemophilia 2000; 6: 426-7.
-
(2000)
Haemophilia
, vol.6
, pp. 426-427
-
-
Sek, J.1
Saleh, M.2
Furlong, W.3
-
13
-
-
0034003628
-
Epidemiological survey of the orthopedic status of severe haemophilia A and B patients in France
-
Molho P, Rolland N, Lebrun T et al. Epidemiological survey of the orthopedic status of severe haemophilia A and B patients in France. Haemophilia 2000; 6: 23-32.
-
(2000)
Haemophilia
, vol.6
, pp. 23-32
-
-
Molho, P.1
Rolland, N.2
Lebrun, T.3
-
14
-
-
0033375490
-
Haemophilic arthropathy: Assessment of quality of life after total knee arthroplasty
-
Schick M, Stucki G, Rodriguez M et al. Haemophilic arthropathy: assessment of quality of life after total knee arthroplasty. Clin Rheumatol 1999; 18: 468-72.
-
(1999)
Clin. Rheumatol.
, vol.18
, pp. 468-472
-
-
Schick, M.1
Stucki, G.2
Rodriguez, M.3
-
15
-
-
0035111234
-
Clinical severity of disease, functional disability and health-related quality of life. Three-year follow-up study of 150 Finnish patients with coagulation disorders
-
Solovieva S. Clinical severity of disease, functional disability and health-related quality of life. Three-year follow-up study of 150 Finnish patients with coagulation disorders. Haemophilia 2001; 7: 53-63.
-
(2001)
Haemophilia
, vol.7
, pp. 53-63
-
-
Solovieva, S.1
-
16
-
-
0034998671
-
Cost-utility analysis of recombinant factor VIIa (NovoSeven) in six children with long-standing inhibitors to factor VIII or IX
-
Ekert H, Brewin T, Boey W, Davey P, Tilden D. Cost-utility analysis of recombinant factor VIIa (NovoSeven) in six children with long-standing inhibitors to factor VIII or IX. Haemophilia 2001; 7: 279-85.
-
(2001)
Haemophilia
, vol.7
, pp. 279-285
-
-
Ekert, H.1
Brewin, T.2
Boey, W.3
Davey, P.4
Tilden, D.5
-
17
-
-
0034921327
-
Multivariate analysis of factors influencing quality-of-life and utility in patients with haemophilia
-
Trippoli S, Vaiani M, Linari S, Longo G, Morfini M, Messori A. Multivariate analysis of factors influencing quality-of-life and utility in patients with haemophilia. Haematologica 2001; 86: 722-8.
-
(2001)
Haematologica
, vol.86
, pp. 722-728
-
-
Trippoli, S.1
Vaiani, M.2
Linari, S.3
Longo, G.4
Morfini, M.5
Messori, A.6
-
18
-
-
0035018008
-
Motor performance and disability in Dutch children with haemophilia: A comparison with their healthy peers
-
Schoenmakers MA, Gulmans VA, Helders PJ, van den Berg HM. Motor performance and disability in Dutch children with haemophilia: a comparison with their healthy peers. Haemophilia 2001; 7: 293-8.
-
(2001)
Haemophilia
, vol.7
, pp. 293-298
-
-
Schoenmakers, M.A.1
Gulmans, V.A.2
Helders, P.J.3
van den Berg, H.M.4
-
19
-
-
0036207230
-
Quality-of-life differences between prophylactic end on-demand factor replacement therapy in European haemophilia patients
-
for the European Haemophilia Economics Study Group
-
Royal S, Schramm W, Berntorp E et al., for the European Haemophilia Economics Study Group. Quality-of-life differences between prophylactic end on-demand factor replacement therapy in European haemophilia patients. Haemophilia 2002; 8: 44-50.
-
(2002)
Haemophilia
, vol.8
, pp. 44-50
-
-
Royal, S.1
Schramm, W.2
Berntorp, E.3
-
20
-
-
0141482007
-
Cost of care and quality of life for patients with hemophilia complicated by inhibitors: The COCIS Study Group
-
for the COCIS Study Group
-
Gringeri A, Mantovani L, Scalone L, Mannuchi P for the COCIS Study Group. Cost of care and quality of life for patients with hemophilia complicated by inhibitors: the COCIS Study Group. Blood 2003; 102: 2358-63.
-
(2003)
Blood
, vol.102
, pp. 2358-2363
-
-
Gringeri, A.1
Mantovani, L.2
Scalone, L.3
Mannuchi, P.4
-
21
-
-
18344390038
-
Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries
-
Bullinger M, von Mackensen S, Fisher K et al. Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries. Haemophilia 2002; 8 (Suppl. 2): 47-54.
-
(2002)
Haemophilia
, vol.8
, Issue.SUPPL. 2
, pp. 47-54
-
-
Bullinger, M.1
von Mackensen, S.2
Fisher, K.3
-
22
-
-
19944408601
-
Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-QoL)
-
and the Haemo-QoL Group
-
von Mackensen S, Bullinger M and the Haemo-QoL Group. Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-QoL). Haemophilia 2004; 10 (Suppl. 1): 17-25.
-
(2004)
Haemophilia
, vol.10
, Issue.SUPPL. 1
, pp. 17-25
-
-
von Mackensen, S.1
Bullinger, M.2
-
23
-
-
4143055976
-
Development of a new disease-specific quality-of-life questionnaire to adults living with haemophilia
-
Arranz P, Remor E, Quintana M et al. Development of a new disease-specific quality-of-life questionnaire to adults living with haemophilia. Haemophilia 2004; 10: 1-7.
-
(2004)
Haemophilia
, vol.10
, pp. 1-7
-
-
Arranz, P.1
Remor, E.2
Quintana, M.3
-
24
-
-
11044222266
-
Development of a health related quality of life measure for boys with haemophilia: The Canadian Hemophilia Outcomes - Kids Life Assessment Tool (CHO-KLAT)
-
Young NL, Bradley CS, Blanchette V, et al. Development of a health related quality of life measure for boys with haemophilia: the Canadian Hemophilia Outcomes - Kids Life Assessment Tool (CHO-KLAT). Haemophilia 2004; 10 (Suppl. 1): 34-43.
-
(2004)
Haemophilia
, vol.10
, Issue.SUPPL. 1
, pp. 34-43
-
-
Young, N.L.1
Bradley, C.S.2
Blanchette, V.3
-
25
-
-
44249090578
-
Hemolatin-QoL: Desarrollo de una medida específica para la evaluación de la calidad de vida en pacientes adultos con hemofilia en America-Latina
-
and the Hemolatin-QoL Group. in press
-
Remor E. and the Hemolatin-QoL Group. Hemolatin-QoL: Desarrollo de una medida específica para la evaluación de la calidad de vida en pacientes adultos con hemofilia en America-Latina. Terapia Psicología 2004; 22: in press.
-
(2004)
Terapia Psicología
, vol.22
-
-
Remor, E.1
-
26
-
-
0344736745
-
Quality of life in children and families with bleeding disorders
-
the Haemo-QoL Group
-
Bullinger MV, Mackensen S, the Haemo-QoL Group. Quality of life in children and families with bleeding disorders. J Pediatric Haematol Oncol 2003; 25: 64-7.
-
(2003)
J. Pediatric Haematol. Oncol.
, vol.25
, pp. 64-67
-
-
Bullinger, M.V.1
Mackensen, S.2
-
27
-
-
19944417564
-
Health status and health-related quality of life of children with haemophilia from six west European countries
-
for the Haemo-QoL Study
-
Gringeri Av, Mackensen S, Auerswald G, et al., for the Haemo-QoL Study. Health status and health-related quality of life of children with haemophilia from six west European countries. Haemophilia 2004; 10 (Suppl. 1): 26-33.
-
(2004)
Haemophilia
, vol.10
, Issue.SUPPL. 1
, pp. 26-33
-
-
Gringeri, Av.1
Mackensen, S.2
Auerswald, G.3
-
28
-
-
0037230053
-
Development of disease-specific health-related quality-of-life instruments for children with immune thrombocytopenic purpura and their parents
-
Barnard D, Woloski M, Feeny D, et al. Development of disease-specific health-related quality-of-life instruments for children with immune thrombocytopenic purpura and their parents. J Pediatric Hematol Oncol 2003; 25: 56-62.
-
(2003)
J. Pediatric Hematol. Oncol.
, vol.25
, pp. 56-62
-
-
Barnard, D.1
Woloski, M.2
Feeny, D.3
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