메뉴 건너뛰기




Volumn 10, Issue 4, 2004, Pages 30-34

Disease-specific quality-of-life measurement tools for haemophilia patients

Author keywords

Adults; Assessment; Children; Haemophilia; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CULTURAL ANTHROPOLOGY; HEMOPHILIA; HUMAN; MEDICAL LITERATURE; PRIORITY JOURNAL; PSYCHOMETRY; PUBLICATION; QUALITY OF LIFE; QUESTIONNAIRE;

EID: 11044219929     PISSN: 13550691     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2004.01004.x     Document Type: Article
Times cited : (54)

References (28)
  • 1
    • 0025814586 scopus 로고
    • Quality of life-definition, conceptualization and implications a methodologist's view
    • Bullinger M. Quality of life-definition, conceptualization and implications a methodologist's view. Theor Surg 1991; 6: 143-9.
    • (1991) Theor. Surg. , vol.6 , pp. 143-149
    • Bullinger, M.1
  • 2
    • 0036588603 scopus 로고    scopus 로고
    • Evaluation of outcome of care in patients with haemophilia
    • Beeton K. Evaluation of outcome of care in patients with haemophilia. Haemophilia 2002; 8: 428-34.
    • (2002) Haemophilia , vol.8 , pp. 428-434
    • Beeton, K.1
  • 3
    • 0038779220 scopus 로고    scopus 로고
    • Health-related quality of life as outcome parameter in haemophilia treatment
    • Fischer K, van der Bom JG, van der Berg HM. Health-related quality of life as outcome parameter in haemophilia treatment. Haemophilia 2003; 9 (Suppl. 1): 75-82.
    • (2003) Haemophilia , vol.9 , Issue.SUPPL. 1 , pp. 75-82
    • Fischer, K.1    van der Bom, J.G.2    van der Berg, H.M.3
  • 4
    • 11044226768 scopus 로고    scopus 로고
    • Quality of life assessment in haemophilia
    • Bullinger M, von Mackensen S. Quality of life assessment in haemophilia. Haemophilia 2004; 10 (Suppl. 1): 9-16.
    • (2004) Haemophilia , vol.10 , Issue.SUPPL. 1 , pp. 9-16
    • Bullinger, M.1    von Mackensen, S.2
  • 5
    • 0025681520 scopus 로고
    • Modern haemophilia treatment. medical improvement and quality of life
    • Rosendaal FR, Smit C, Varekamp I et al. Modern haemophilia treatment. medical improvement and quality of life. J Intern Med 1990; 228: 633-40.
    • (1990) J. Intern. Med. , vol.228 , pp. 633-640
    • Rosendaal, F.R.1    Smit, C.2    Varekamp, I.3
  • 6
    • 0029794224 scopus 로고    scopus 로고
    • Socioeconomic impact of haemophilia care: Results of a pilot study
    • Szucs TD, Offner A, Schramm W. Socioeconomic impact of haemophilia care: results of a pilot study. Haemophilia 1996; 2 211-7.
    • (1996) Haemophilia , vol.2 , pp. 211-217
    • Szucs, T.D.1    Offner, A.2    Schramm, W.3
  • 8
    • 0033432718 scopus 로고    scopus 로고
    • Assessing health-related quality-of-life in individuals with haemophilia
    • Miners AH, Sabin CA, Tolley KH et al. Assessing health-related quality-of-life in individuals with haemophilia. Haemophilia 1999; 5: 378-85.
    • (1999) Haemophilia , vol.5 , pp. 378-385
    • Miners, A.H.1    Sabin, C.A.2    Tolley, K.H.3
  • 10
    • 0004466333 scopus 로고    scopus 로고
    • Recombinant VIIA (NovoSeven) treatment of six children with long-standing inhibitors improves quality of life
    • Brewin T, Ekert H, Davey P. Recombinant VIIA (NovoSeven) treatment of six children with long-standing inhibitors improves quality of life. Haemophilia 2000; 6: 414.
    • (2000) Haemophilia , vol.6 , pp. 414
    • Brewin, T.1    Ekert, H.2    Davey, P.3
  • 11
    • 11044224614 scopus 로고    scopus 로고
    • Quality of life in children with haemophilia
    • Khair K. Quality of life in children with haemophilia. Haemophilia 2000; 6: 419.
    • (2000) Haemophilia , vol.6 , pp. 419
    • Khair, K.1
  • 12
    • 11044225759 scopus 로고    scopus 로고
    • Health-related quality of life in people living with haemophilia or von Willebrand disease in a geographical population
    • Sek J, Saleh M, Furlong W, et al. Health-related quality of life in people living with haemophilia or von Willebrand disease in a geographical population. Haemophilia 2000; 6: 426-7.
    • (2000) Haemophilia , vol.6 , pp. 426-427
    • Sek, J.1    Saleh, M.2    Furlong, W.3
  • 13
    • 0034003628 scopus 로고    scopus 로고
    • Epidemiological survey of the orthopedic status of severe haemophilia A and B patients in France
    • Molho P, Rolland N, Lebrun T et al. Epidemiological survey of the orthopedic status of severe haemophilia A and B patients in France. Haemophilia 2000; 6: 23-32.
    • (2000) Haemophilia , vol.6 , pp. 23-32
    • Molho, P.1    Rolland, N.2    Lebrun, T.3
  • 14
    • 0033375490 scopus 로고    scopus 로고
    • Haemophilic arthropathy: Assessment of quality of life after total knee arthroplasty
    • Schick M, Stucki G, Rodriguez M et al. Haemophilic arthropathy: assessment of quality of life after total knee arthroplasty. Clin Rheumatol 1999; 18: 468-72.
    • (1999) Clin. Rheumatol. , vol.18 , pp. 468-472
    • Schick, M.1    Stucki, G.2    Rodriguez, M.3
  • 15
    • 0035111234 scopus 로고    scopus 로고
    • Clinical severity of disease, functional disability and health-related quality of life. Three-year follow-up study of 150 Finnish patients with coagulation disorders
    • Solovieva S. Clinical severity of disease, functional disability and health-related quality of life. Three-year follow-up study of 150 Finnish patients with coagulation disorders. Haemophilia 2001; 7: 53-63.
    • (2001) Haemophilia , vol.7 , pp. 53-63
    • Solovieva, S.1
  • 16
    • 0034998671 scopus 로고    scopus 로고
    • Cost-utility analysis of recombinant factor VIIa (NovoSeven) in six children with long-standing inhibitors to factor VIII or IX
    • Ekert H, Brewin T, Boey W, Davey P, Tilden D. Cost-utility analysis of recombinant factor VIIa (NovoSeven) in six children with long-standing inhibitors to factor VIII or IX. Haemophilia 2001; 7: 279-85.
    • (2001) Haemophilia , vol.7 , pp. 279-285
    • Ekert, H.1    Brewin, T.2    Boey, W.3    Davey, P.4    Tilden, D.5
  • 17
    • 0034921327 scopus 로고    scopus 로고
    • Multivariate analysis of factors influencing quality-of-life and utility in patients with haemophilia
    • Trippoli S, Vaiani M, Linari S, Longo G, Morfini M, Messori A. Multivariate analysis of factors influencing quality-of-life and utility in patients with haemophilia. Haematologica 2001; 86: 722-8.
    • (2001) Haematologica , vol.86 , pp. 722-728
    • Trippoli, S.1    Vaiani, M.2    Linari, S.3    Longo, G.4    Morfini, M.5    Messori, A.6
  • 18
    • 0035018008 scopus 로고    scopus 로고
    • Motor performance and disability in Dutch children with haemophilia: A comparison with their healthy peers
    • Schoenmakers MA, Gulmans VA, Helders PJ, van den Berg HM. Motor performance and disability in Dutch children with haemophilia: a comparison with their healthy peers. Haemophilia 2001; 7: 293-8.
    • (2001) Haemophilia , vol.7 , pp. 293-298
    • Schoenmakers, M.A.1    Gulmans, V.A.2    Helders, P.J.3    van den Berg, H.M.4
  • 19
    • 0036207230 scopus 로고    scopus 로고
    • Quality-of-life differences between prophylactic end on-demand factor replacement therapy in European haemophilia patients
    • for the European Haemophilia Economics Study Group
    • Royal S, Schramm W, Berntorp E et al., for the European Haemophilia Economics Study Group. Quality-of-life differences between prophylactic end on-demand factor replacement therapy in European haemophilia patients. Haemophilia 2002; 8: 44-50.
    • (2002) Haemophilia , vol.8 , pp. 44-50
    • Royal, S.1    Schramm, W.2    Berntorp, E.3
  • 20
    • 0141482007 scopus 로고    scopus 로고
    • Cost of care and quality of life for patients with hemophilia complicated by inhibitors: The COCIS Study Group
    • for the COCIS Study Group
    • Gringeri A, Mantovani L, Scalone L, Mannuchi P for the COCIS Study Group. Cost of care and quality of life for patients with hemophilia complicated by inhibitors: the COCIS Study Group. Blood 2003; 102: 2358-63.
    • (2003) Blood , vol.102 , pp. 2358-2363
    • Gringeri, A.1    Mantovani, L.2    Scalone, L.3    Mannuchi, P.4
  • 21
    • 18344390038 scopus 로고    scopus 로고
    • Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries
    • Bullinger M, von Mackensen S, Fisher K et al. Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries. Haemophilia 2002; 8 (Suppl. 2): 47-54.
    • (2002) Haemophilia , vol.8 , Issue.SUPPL. 2 , pp. 47-54
    • Bullinger, M.1    von Mackensen, S.2    Fisher, K.3
  • 22
    • 19944408601 scopus 로고    scopus 로고
    • Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-QoL)
    • and the Haemo-QoL Group
    • von Mackensen S, Bullinger M and the Haemo-QoL Group. Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-QoL). Haemophilia 2004; 10 (Suppl. 1): 17-25.
    • (2004) Haemophilia , vol.10 , Issue.SUPPL. 1 , pp. 17-25
    • von Mackensen, S.1    Bullinger, M.2
  • 23
    • 4143055976 scopus 로고    scopus 로고
    • Development of a new disease-specific quality-of-life questionnaire to adults living with haemophilia
    • Arranz P, Remor E, Quintana M et al. Development of a new disease-specific quality-of-life questionnaire to adults living with haemophilia. Haemophilia 2004; 10: 1-7.
    • (2004) Haemophilia , vol.10 , pp. 1-7
    • Arranz, P.1    Remor, E.2    Quintana, M.3
  • 24
    • 11044222266 scopus 로고    scopus 로고
    • Development of a health related quality of life measure for boys with haemophilia: The Canadian Hemophilia Outcomes - Kids Life Assessment Tool (CHO-KLAT)
    • Young NL, Bradley CS, Blanchette V, et al. Development of a health related quality of life measure for boys with haemophilia: the Canadian Hemophilia Outcomes - Kids Life Assessment Tool (CHO-KLAT). Haemophilia 2004; 10 (Suppl. 1): 34-43.
    • (2004) Haemophilia , vol.10 , Issue.SUPPL. 1 , pp. 34-43
    • Young, N.L.1    Bradley, C.S.2    Blanchette, V.3
  • 25
    • 44249090578 scopus 로고    scopus 로고
    • Hemolatin-QoL: Desarrollo de una medida específica para la evaluación de la calidad de vida en pacientes adultos con hemofilia en America-Latina
    • and the Hemolatin-QoL Group. in press
    • Remor E. and the Hemolatin-QoL Group. Hemolatin-QoL: Desarrollo de una medida específica para la evaluación de la calidad de vida en pacientes adultos con hemofilia en America-Latina. Terapia Psicología 2004; 22: in press.
    • (2004) Terapia Psicología , vol.22
    • Remor, E.1
  • 26
    • 0344736745 scopus 로고    scopus 로고
    • Quality of life in children and families with bleeding disorders
    • the Haemo-QoL Group
    • Bullinger MV, Mackensen S, the Haemo-QoL Group. Quality of life in children and families with bleeding disorders. J Pediatric Haematol Oncol 2003; 25: 64-7.
    • (2003) J. Pediatric Haematol. Oncol. , vol.25 , pp. 64-67
    • Bullinger, M.V.1    Mackensen, S.2
  • 27
    • 19944417564 scopus 로고    scopus 로고
    • Health status and health-related quality of life of children with haemophilia from six west European countries
    • for the Haemo-QoL Study
    • Gringeri Av, Mackensen S, Auerswald G, et al., for the Haemo-QoL Study. Health status and health-related quality of life of children with haemophilia from six west European countries. Haemophilia 2004; 10 (Suppl. 1): 26-33.
    • (2004) Haemophilia , vol.10 , Issue.SUPPL. 1 , pp. 26-33
    • Gringeri, Av.1    Mackensen, S.2    Auerswald, G.3
  • 28
    • 0037230053 scopus 로고    scopus 로고
    • Development of disease-specific health-related quality-of-life instruments for children with immune thrombocytopenic purpura and their parents
    • Barnard D, Woloski M, Feeny D, et al. Development of disease-specific health-related quality-of-life instruments for children with immune thrombocytopenic purpura and their parents. J Pediatric Hematol Oncol 2003; 25: 56-62.
    • (2003) J. Pediatric Hematol. Oncol. , vol.25 , pp. 56-62
    • Barnard, D.1    Woloski, M.2    Feeny, D.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.