Internalizing motivation to self-care: A multifaceted challenge for young liver transplant recipients

Qualitative Health Research

Volumn 24, Issue 3, 2014, Pages 357-365

  Aujoulat, Isabelle ^a   Janssen, Magda ^a   Libion, France ^a   Charles, Anne Sophie ^a   Struyf, Catherine ^a   Smets, Françoise ^a   Stephenne, Xavier ^a   De Magnée, Catherine ^a   Sokal, Etienne ^a   Lerut, Jan ^a   Ciccarelli, Olga ^a   Reding, Raymond ^a  

^a UNIVERSITÉ CATHOLIQUE DE LOUVAIN   (Belgium)

Author keywords

adherence compliance; adolescents youth; constant comparison; education, patient; illness and disease, chronic; motivation; self care; transplantation

Indexed keywords

ADOLESCENT; FEMALE; GRAFT RECIPIENT; HUMAN; INTERVIEW; LIVER TRANSPLANTATION; MALE; MOTIVATION; PSYCHOLOGY; QUALITATIVE RESEARCH; SELF CARE;

ADOLESCENT; FEMALE; HUMANS; INTERVIEWS AS TOPIC; LIVER TRANSPLANTATION; MALE; MOTIVATION; QUALITATIVE RESEARCH; SELF CARE; TRANSPLANT RECIPIENTS;

EID: 84896799654     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732314523505     Document Type: Article

References (34)

1. Adams S., Pill R., Jones A.. Medication, chronic illness and identity: The perspective of people with asthma. Social Science andamp; Medicine. 1997 ; 45: 189-201
2. Annunziato R. A., Emre S., Shneider B., Barton C., Dugan C. A., Shemesh E.. Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services. Pediatric Transplantation. 2007 ; 11: 608-614
3. Aujoulat I., d'Hoore W., Deccache A.. Patient empowerment in theory and practice: Polysemy or cacophony?. Patient Education and Counseling. 2007 ; 66: 13-20
4. Aujoulat I., Deccache A., Charles A. S., Janssen M., Struyf C., Pelicand J.,... Reding R.. Non-adherence in adolescent transplant recipients: The role of uncertainty in health care providers. PediatricTtransplantation. 2011 ; 15: 148-156
5. Aujoulat I., Marcolongo R., Bonadiman L., Deccache A.. Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control. Social Science andamp; Medicine. 2008 ; 66: 1228-1239
6. Aujoulat I., Young B., Salmon P.. The psychological processes involved in patient empowerment. [Meeting abtsract: 6th European Conference on Rare Diseases and Orphan Products]. Orphanet Journal of Rare Diseases. 2012 ; 7: A31
7. Bell L. E., Bartosh S. M., Davis C. L., Dobbels F., Al-Uzri A., Lotstein D.,... Dharnidharka V. R.. Adolescent transition to adult care in solid organ transplantation: A consensus conference report. American Journal of Transplantation. 2008 ; 8: 2230-2242
8. Bourdeaux C., Darwish A., Jamart J., Tri T. T., Janssen M., Lerut J.,... Reding R.. Living-related versus deceased donor pediatric liver transplantation: A multivariate analysis of technical and immunological complications in 235 recipients. American Journal of Transplantation. 2007 ; 7: 440-447
9. Charmaz K.. "Discovering" chronic illness: Using grounded theory. Social Science andamp; Medicine. 1990 ; 30: 1161-1172
10. De Bleser L., Matteson M., Dobbels F., Russell C., De Geest S.. Interventions to improve medication-adherence after transplantation: A systematic review. Transplant International. 2009 ; 22: 780-797
11. Dobbels F., Berben L., De Geest S., Drent G., Lennerling A., Whittaker C., Kugler C.. The psychometric properties and practicability of self-report instruments to identify medication non-adherence in adult transplant patients: A systematic review. Transplantation. 2010 ; 90: 205-219
12. Dobbels F., Van Damme-Lombaert R., Vanhaecke J., De Geest S.. Growing pains: Non-adherence with the immunosuppressive regimen in adolescent transplant recipients. Pediatric Transplantation. 2005 ; 9: 381-390
13. Fine R. N., Becker Y., De Geest S., Eisen H., Ettenger R., Evans R.,... Dobbels F.. Non-adherence consensus conference summary report. American Journal of Transplantation. 2009 ; 9: 35-41
14. Hartley J. L., Davenport M., Kelly D. A.. Biliary atresia. Lancet. 2009 ; 374: 1704-1713
15. Helgeson V. S., Novak S. A.. Illness centrality and well-being among male and female early adolescents with diabetes. Journal of Pediatric Psychology. 2007 ; 32: 260-272
16. KieckheferG. M.TrahmsC. M. (2000). Supporting development of children with chronic conditions: From compliance toward shared management. Pediatric Nursing, 26, 354-363. Retrieved from www.pediatricnursing.net/
17. Lorig K., Stewart A., Ritter P., Gonzalez V., Laurent D., Lynch J. Outcome measures for health education and other health care interventions. Thousand Oaks, CA: Sage ; 1996 :
18. Luyckx K., Goossens L., Soenens B.. A developmental contextual perspective on identity construction in emerging adulthood: Change dynamics in commitment formation and commitment evaluation. Developmental Psychology. 2006 ; 42: 366-380
19. Maes S., Karoly P.. Self-regulation assessment and intervention in physical health and illness: A review. Applied Psychology. 2005 ; 54: 267-299
20. Michaud P. A., Suris J. C., Viner R. The adolescent with a chronic condition. Epidemiology, developmental issues and health care provision. Geneva: World Health Organization ; 2007 :
21. Pai A. L., Ingerski L. M., Perazzo L., Ramey C., Bonner M., Goebel J.. Preparing for transition? The allocation of oral medication regimen tasks in adolescents with renal transplants. Pediatric Transplantation. 2011 ; 15: 9-16
22. Peandlic J., Fournier C., Le Rhun A., Aujoulat I.. Self-care support in paediatric patients with type 1 diabetes: Bridging the gap between patient education and health promotion? A review. Health Expectations. 2013 ;:
23. Piana N., Maldonato A., Bloise D., Carboni L., Careddu G., Fraticelli E.,... Romani G.. The narrative-autobiographical approach in the group education of adolescents with diabetes: A qualitative research on its effects. Patient Education and Counseling. 2010 ; 80: 56-63
24. Pope C., Ziebland S., Mays N.. Qualitative research in health care. Analysing qualitative data. BMJ. 2000 ; 320: 114-116
25. Rankin D., Heller S., Lawton J.. Understanding information and education gaps among people with type 1 diabetes: A qualitative investigation. Patient Education and Counseling. 2011 ; 83: 87-91
26. Shaanddie;fer-Keller P., Steiger J., Bock A., Denhaerynck K., De Geest S.. Diagnostic accuracy of measurement methods to assess non-adherence to ummunosuppressive drugs in kidney transplant recipients. American Journal of Transplantation. 2008 ; 8: 616-626
27. Sheper-Hughes N.. The tyranny of the gift: Sacrificial violence in living donor transplants. American Journal of Transplantation. 2007 ; 7: 507-511
28. Stilley C. S., Lawrence K., Bender A., Olshansky E., Webber S. A., Dew M. A.. Maturity and adherence in adolescent and young adult heart recipients. Pediatric Transplantation. 2006 ; 10: 323-330
29. Strauss A. Qualitative analysis for scientists. New York: Cambridge University Press ; 1987 :
30. Tilden B., Charman D., Sharples J., Fosbury J.. Identity and adherence in a diabetes patient: Transformations in psychotherapy. Qualitative Health Research. 2005 ; 15: 312-324
31. WagnerE. H.AustinB. T.Von KorffM. (1996). Organizing care for patients with chronic illness. Milbank Quarterly, 74, 511-544. Retrieved from www.jstor.org/stable/3350391
32. Watson A. R.. Non-compliance and transfer from paediatric to adult transplant unit. Pediatric Nephrology. 2000 ; 14: 469-472
33. Weinger K., O'Donnell K. A., Ritholz M. D.. Adolescent views of diabetes-related parent conflict and support: A focus group analysis. Journal of Adolescent Health. 2001 ; 29: 330-336
34. Williams G. C., Rodin G. C., Ryan R. M., Grolnick W. S., Deci E. L.. Autonomous regulation and long-term medication adherence in adult outpatients. Health Psychology. 1998 ; 17: 269-276