Understanding information and education gaps among people with type 1 diabetes: A qualitative investigation

Patient Education and Counseling

Volumn 83, Issue 1, 2011, Pages 87-91

  Rankin, David ^a   Heller, Simon ^b   Lawton, Julia ^a  

^a UNIVERSITY OF EDINBURGH   (United Kingdom)

^b UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Qualitative research; Structured education programme; Type 1 diabetes

Indexed keywords

ADULT; ARTICLE; CLINICAL ARTICLE; DECISION MAKING; DIABETES EDUCATION; EDUCATION PROGRAM; FEMALE; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; MALE; PATIENT CARE; PATIENT EDUCATION; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SELF CARE; SEMI STRUCTURED INTERVIEW; UNITED KINGDOM;

ADOLESCENT; ADULT; CHRONIC DISEASE; COMPREHENSION; DIABETES MELLITUS, TYPE 1; EDUCATIONAL STATUS; FEMALE; GREAT BRITAIN; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTHCARE DISPARITIES; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PARENTS; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT EDUCATION AS TOPIC; QUALITATIVE RESEARCH; SELF CARE; YOUNG ADULT;

EID: 79952037890     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2010.04.026     Document Type: Article

References (31)

1. Beeney L.J., Bakry A.A., Dunn S.M. Patient psychological and information needs when diagnosis is diabetes. Patient Educ Couns 1996, 29:109-116.
2. Rickheim P.L., Weaver T.W., Flader J.L., Kendall D.M. Assessment of group versus individual diabetes education. Diab Care 2002, 25:269-274.
3. McIntyre H.D. DAFNE (Dose Adjustment for Normal Eating) - Structured education in insulin replacement therapy for type 1 diabetics. Med J Aust 2006, 164:317-318.
4. National Institute for Clinical Excellence Guidance on the use of patient-education models for diabetes: Technology Appraisal 60 2003, National Institute for Clinical Excellence, London.
5. Department of Health National Service Framework for Diabetes: Standards 2003, HMSO, London.
6. Scottish Executive Scottish Diabetes Framework Action Plan 2006, Scottish Executive, Edinburgh.
7. DAFNE Study Group Training in flexible, intensive insulin management to enable dietary freedom in people with type 1 diabetes: dose adjustment for normal eating (DAFNE) randomised controlled trial. Br Med J 2002, 325:746-751.
8. Davies M.J., Heller S., Skinner T.C., Campbell M.J., Carey M.E., Cradock S., Dallosso H.D., Daly H., Doherty Y., Eaton S., Fox C., Oliver L., Rantell K., Rayman G., Khunto K. Effectiveness of the diabetes education and self-management for ongoing and newly diagnoses (DESMOND) programme for people with newly diagnosed type 2 diabetes: cluster randomised controlled trial. Br Med J 2008, 336:491-495.
9. Mulhauser I., Bruckner I., Berger M., Cheta D., Jorgens V., Ionescu-Tirgoviste C., Scholz V., Mincu I. Evaluation of an intensified insulin treatment and teaching programme as routine management of type I (insulin-dependent) diabetes: the Bucharest-Dusseldorf study. Diabetologia 1987, 30:681-690.
10. Trento M., Passera P., Bajardi M., Tomalino M., Grassi G., Borgo E., Donnola C., Cavallo F., Bondonio P., Porta M. Lifestyle intervention by group care prevents deterioration of Type II diabetes: a 4-year randomized controlled clinical trial. Diabetologia 2002, 45:2131-2139.
11. Clement S. Diabetes self-management education. Diab Care 1995, 18:1204-1214.
12. Heisler M., Piette J.D., Spencer M., Kieffer E., Vijan S. The relationship between knowledge of recent HbA1c values and diabetes care understanding and self-management. Diabetes Care 2005, 28:816-822.
13. Moran A., Hessett C., Pooley J., Boulton A.J.M. An assessment of patients' knowledge of diabetes, its management and complications. Pract Diab Int 1989, 6:265-267.
14. Speight J., Bradley C. The ADKnowl: identifying knowledge deficits in diabetes care. Diab Med 2001, 18:626-633.
15. Sumner J., Baber C., Williams V. What do patients with Type 1 diabetes know about hypoglycaemia?. Pract Diab Int 2000, 17:187-190.
16. Fitzgerald J.T., Funnell M.M., Hess G.E., Barr P.A., Anderson R.M., Hiss R.G., Davis W.K. The reliability and validity of a brief diabetes knowledge test. Diab Care 1998, 21:706-710.
17. Hess G.E., Davis W.K. The validation of a diabetes patient knowledge test. Diab Care 1983, 6:591-596.
18. O'Neill K.J., Jonnalagadda S.S., Hopkins B.L., Kicklighter J.R. Quality of life and diabetes knowledge of young persons with type 1 diabetes: influence of treatment modalities and demographics. J Am Diet Assoc 2005, 105:85-91.
19. Coates V.E., Boore J.R.P. Knowledge and diabetes self-management. Patient Educ Couns 1996, 29:99-108.
20. Buckloh L.M., Lochrie A.S., Antal H., Milkes A., Canas A., Hutchinson S., Wysocki T. Diabetes complications in youth: qualitative analysis of parents' perspectives of family learning and knowledge. Diab Care 2008, 31:1516-1520.
21. Olsen Roper S., Call A., Leishman J., Ratcliff G.C., Mandleco T.T., Marshall D., Marshall E.S. Type 1 diabetes: children and adolescents' knowledge and questions. J Adv Nurs 2009, 65:1705-1714.
22. Visentin K., Koch T., Kralik D. Adolescents with type 1 diabetes: transition between diabetes services. J Clin Nurs 2006, 15:761-769.
23. Funnell M.M., Brown T.L., Childs B.P., Hass L.B., Hosey G.M., Jensen B., Maryniuk M., Peyrot M., Piette J.D., Reader D., Siminerio L.M., Weinger K., Weiss M.A. National standards for diabetes self-management education. Diab Care 2009, 31:S97-S104.
24. Strauss A., Corbin J. Basics of qualitative research. grounded theory procedures and technique 1990, Sage, Newbury Park, California.
25. Bryman A., Burgess R.G. Developments in qualitative analysis: An introduction. Analyzing qualitative data 1994, 1-17. Routledge, London. A. Bryman, R.G. Burgess (Eds.).
26. Boyatzis R.E. Transforming qualitative information: thematic analysis and code development 1998, Sage, Thousand Oaks, California.
27. Lawton J., Rankin D., Peel E., Douglas M. Patients' perceptions and experiences of transitions in diabetes care: A longitudinal qualitative study. Health Expect 2009, 12:138-148.
28. Lawton J. Colonising the future: temporal perceptions and health-related behaviours across the adult lifecourse. Sociol Health Illn 2002, 24:714-733.
29. Backett K.C., Davison C. Lifecourse and lifestyle: the social and cultural location of health behaviours. Soc Sci Med 1995, 40:629-638.
30. Radley A. Making Sense of Illness 1994, Sage, London.
31. National Institute for Clinical Excellence Diagnosis and management of type 1 diabetes in children, young people and adults 2004, National Institute for Clinical Excellence, London.