Mutual powerlessness in client participation practices in mental health care

Health Expectations

Volumn 17, Issue 2, 2014, Pages 208-219

  Broer, Tineke ^a   Nieboer, Anna P ^a   Bal, Roland ^a  

^a ERASMUS UNIVERSITY ROTTERDAM   (Netherlands)

Author keywords

Mental health; Psychiatry; Quality improvement collaborative; Service user involvement

Indexed keywords

BEHAVIOR; COOPERATION; CULTURAL ANTHROPOLOGY; HUMAN; MENTAL DISORDERS; MENTAL HEALTH SERVICE; NETHERLANDS; ORGANIZATION AND MANAGEMENT; PATIENT PARTICIPATION; PSYCHOLOGY; TOTAL QUALITY MANAGEMENT;

ANTHROPOLOGY, CULTURAL; COOPERATIVE BEHAVIOR; HUMANS; MENTAL DISORDERS; MENTAL HEALTH SERVICES; NETHERLANDS; PATIENT PARTICIPATION; POWER (PSYCHOLOGY); QUALITY IMPROVEMENT;

EID: 84896317785     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/j.1369-7625.2011.00748.x     Document Type: Article

References (47)

1. Van de Bovenkamp H The Limits of Patient Power: Examining Active Citizenship in Dutch Health Care Rotterdam : Erasmus University Rotterdam, 2010 .
2. Anthony P, Crawford P Service user involvement in care planning: the mental health nurse's perspective Journal of Psychiatric and Mental Health Nursing, 2001 ; 7 : 425 - 434 .
3. Pilgrim D, Waldron L User involvement in mental health service development: how far can it go?Journal of Mental Health, 1998 ; 7 : 95 - 104 .
4. Rutter D, Manley C, Weaver T, Crawford MJ, Fulop N Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London Social Science & Medicine, 2004 ; 58 : 1973 - 1984 .
5. Stickley T Should service user involvement be consigned to history? A critical realist perspective Journal of Psychiatric and Mental Health Nursing, 2006 ; 13 : 570 - 577 .
6. Rush B Mental health service user involvement in England: lessons from history Journal of Psychiatric and Mental Health Nursing, 2004 ; 11 : 313 - 318 .
7. Crawford MJ, Rutter D, Manley C et al. Systematic review of involving patients in the planning and development of health care British Medical Journal, 2002 ; 325 : 1263 - 1267 .
8. Robert G, Hardacre J, Locock L, Bate P, Glasby J Redesigning mental health services: lessons on user involvement from the Mental Health Collaborative Health Expectations, 2003 ; 6 : 60 - 71 .
9. Zuiderent-Jerak T, Strating M, Nieboer A, Bal R Sociological refigurations of patient safety; ontologies of improvement and 'acting with' quality collaboratives in healthcare Social Science & Medicine, 2009 ; 69 : 1713 - 1721 .
10. Van de Bovenkamp H, Trappenburg MJ, Grit KJ Patient participation in collective healthcare decision making: the Dutch model Health Expectations, 2009 ; 1369 : 6513 - 6526 .
11. Arnstein SR A ladder of citizen participation Journal of the American Planning Association, 1969 ; 35 : 216 - 224 .
12. Hodge S Participation, discourse and power: a case study in service user involvement Critical Social Policy, 2005 ; 25 : 164 - 179 .
13. Fudge N, Wolfe CDA, McKevitt C Assessing the promise of user involvement in health service development: ethnographic study British Medical Journal, 2008 ; 336 : 313 - 317 .
14. Milewa T, Dowswell G, Harrison S Partnerships, power and the "new" politics of community participation in British health care Social Policy & Administration, 2003 ; 36 : 796 - 809 .
15. Harrison S, Mort M Which champions, which people? Public and user involvement in health care as a technology of legitimation Social Policy & Administration, 2003 ; 32 : 60 - 70 .
16. Carr S Participation, power, conflict and change: theorizing dynamics of service user participation in the social care system of England and Wales Critical Social Policy, 2007 ; 27 : 266 - 276 .
17. Borg M, Karlsson B, Kim HS User involvement in community mental health services - principles and practices Journal of Psychiatric and Mental Health Nursing, 2009 ; 16 : 285 - 292 .
18. Roberts M Service user involvement and the restrictive sense of psychiatric categories: the challenge facing mental health nurses Journal of Psychiatric and Mental Health Nursing, 2010 ; 17 : 289 - 294 .
19. Martin GP "Ordinary people only": knowledge, representativeness and the publics of public participation in healthcare Sociology of Health and Illness, 2008 ; 30 : 35 - 54 .
20. Tritter JQ, McCallum A The snakes and ladders of user involvement: moving beyond Arnstein Health Policy, 2006 ; 76 : 156 - 168 .
21. Schipaanboord A, Delnoij D, Bal R Patient empowerment in the Netherlands de Leeuw E, Lofgren H ( eds ) Democratising Health. Consumer Groups in the Policy Process London : Edward Elgar, 2011 : 111 - 126 .
22. Gordon C Governmental rationality: an introduction Burchell G, Gordon C, Miller P ( eds ) The Foucault Effect: Studies in Governmentality Chicago : Chicago University Press, 1991 : 1 - 53 .
23. Foucault M The ethic of care for the self as a practice of freedom. An interview with Michel Foucault on January 20, 1984 Bernauer J, Rasmussen D ( eds ) The Final Foucault Cambridge, MA : The MIT Press, 1988 : 1 - 20 .
24. Foucault M Afterword: the subject and power Dreyfus H, Rabinow P ( eds ) Michel Foucault: Beyond Structuralism and Hermeneutics Chicago, IL : University of Chicago Press, 1983 : 208 - 226 .
25. Foucault M An Introduction, the History of Sexuality 1 New York : Vintage Books, 1978 .
26. Hui A, Stickley T Mental health policy and mental health service user perspectives on involvement: a discourse analysis Journal of Advanced Nursing, 2007 ; 59 : 416 - 426 .
27. Moser I On becoming disabled and articulating alternatives Cultural Studies, 2005 ; 19 : 667 - 700 .
28. Contandriopoulos D A sociological perspective on public participation in health care Social Science & Medicine, 2004 ; 58 : 321 - 330 .
29. Latour B Science in Action: How to Follow Scientists and Engineers Through Society Cambridge, MA : Harvard University Press, 1987 .
30. Moser I Sociotechnical practices and difference: on the interferences between disability, gender, and class Science, Technology & Human Values, 2006 ; 31 : 537 - 564 .
31. Kilo CM A framework for collaborative improvement: lessons from the Institute for Healthcare Improvement's Breakthrough Series Quality Management in Healthcare, 1998 ; 6 : 1 - 13 .
32. Wilson T, Berwick DM, Cleary MPPPD What do collaborative improvement projects do? Experience from seven countries Joint Commission Journal on Quality and Safety, 2003 ; 29 : 85 - 93 .
33. Schouten LMT, Hulscher MEJL, Everdingen JJE, Huijsman R, Grol RPTM Evidence for the impact of quality improvement collaboratives: systematic review British Medical Journal, 2008 ; 336 : 1491 - 1494 .
34. Dückers MLA, Spreeuwenberg P, Wagner C, Groenewegen PP Exploring the black box of quality improvement collaboratives: modelling relations between conditions, applied changes and outcomes Implementation Science, 2009 ; 4 : 74 .
35. Bate P, Robert G Experience-based design: from redesigning the system around the patient to co-designing services with the patient British Medical Journal, 2006 ; 15 : 307 - 310 .
36. Strating MMH, Zuiderent-Jerak T, Nieboer AP, Bal RA Evaluating the Care for Better Collaborative: Results of the First Year of Evaluation Rotterdam : Department of Health Policy and Management, 2008 .
37. Anthony WA Recovery from mental illness: the guiding vision of the mental health service system in the 1990s Psychosocial Rehabilitation Journal, 1993 ; 16 : 11 - 23 .
38. Deegan PE Recovery: the lived experience of rehabilitation Psychosocial Rehabilitation Journal, 1988 ; 11 : 11 - 19 .
39. Institute for Healthcare Improvement The Breakthrough Series: IHI's Collaborative Model for Achieving Breakthrough Improvement Cambridge : Institute for Healthcare Improvement, 2003 .
40. Arribas-Ayllon M, Walkerdine V Foucauldian discourse analysis Willig C, Stainton Rogers W ( eds ) The SAGE Handbook of Qualitative Research in Psychology Los Angeles, CA : SAGE, 2008 : 91 - 108 .
41. Blommaert J, Bulcaen C Critical discourse analysis Annual Review of Anthropology, 2000 ; 29 : 447 - 466 .
42. McLaughlin H What's in a Name: 'Client', 'Patient', 'Customer', 'Consumer', 'Expert by Experience', 'Service User'- What's Next?British Journal of Social Work, 2009 ; 39 : 1101 - 1117 .
43. Moser I Against normalisation: subverting norms of ability and disability Science as Culture, 2000 ; 9 : 201 - 240 .
44. Foucault M Discipline and Punish: The Birth of the Prison London : Penguin Books, 1977 .
45. Simon B The return of panopticism: supervision, subjection and the new surveillance Surveillance & Society, 2005 ; 3 : 1 - 20 .
46. Broer T, Nieboer AP, Bal R Quest for client autonomy in improving (long term) mental health care International Journal of Mental Health Nursing, 2010 ; 19 : 385 - 393 .
47. Broer T, Nieboer AP, Strating MMH, Michon HWC, Bal R Constructing the social: an evaluation study of the outcomes and processes of a 'social participation' improvement project Journal of Psychiatric and Mental Health Nursing, 2011 ; 18 : 323 - 332 .