Race, risk, and recreation in personal genomics: The limits of play

Medical Anthropology Quarterly

Volumn 27, Issue 4, 2013, Pages 550-569

  Lee, Sandra Soo Jin ^a  

^a STANFORD UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Ancestry; Commercialization; Ethnicity; Genetic; Identity; Race

Indexed keywords

ANCESTOR; ANCESTRY GROUP; ARTICLE; COMMERCIALIZATION; COMPUTER PROGRAM; ETHNICITY; GENETIC; GENETIC SCREENING; GENETIC SERVICE; GENETICS; GENOMICS; HUMAN; IDENTITY; MEDICAL ANTHROPOLOGY; METHODOLOGY; PERSONALIZED MEDICINE; RACE;

ANCESTRY; COMMERCIALIZATION; ETHNICITY; GENETIC; IDENTITY; RACE;

ANTHROPOLOGY, MEDICAL; CONTINENTAL POPULATION GROUPS; GENETIC SERVICES; GENETIC TESTING; GENOMICS; HUMANS; INDIVIDUALIZED MEDICINE; SOFTWARE;

EID: 84894730881     PISSN: 07455194     EISSN: 15481387     Source Type: Journal    
DOI: 10.1111/maq.12059     Document Type: Article

References (41)

1. Bolnick, D. 2008 Individual Ancestry Inference and the Reification of Race as a Biological Phenomenon. In Revisiting Race in a Genomic Age. B. Koenig, S. Soo-Jin Lee, and S. Richardson, eds. Pp. 70-86. New Brunswick: Rutgers University Press.
2. Bolnick, D. A., D. Fullwiley, T. Duster, R. S. Cooper, J. H. Fujimura, J. Kahn, J. S. Kaufman et al. 2007 The Science and Business of Genetic Ancestry Testing. Science 318:399-400.
3. Bowker, G., and S. L. Starr 1999 Sorting Things Out: Classification and Its Consequences. Cambridge, MA: MIT Press.
4. Dubner, S. 2009 Genetics Entrepreneur Anne Wojcicki Answers Your Questions. http://www.freakonomics.com/2009/08/12/genetics-entrepreneur-anne-wojcicki-answers-your-questions/ (accessed August 12, 2009).
5. Dumit, J. 2003 Picturing Personhood: Brain Scans and Biomedical Identity. Princeton. Princeton University Press.
6. Dumit, J., and N. Greenslit 2006 Informated Health and Ethical Identity Management. Culture, Medicine and Psychiatry 30:127-134.
7. Duster, T. 2003 Backdoor to Eugenics. New York: Routledge Press.
8. El-Haj, N. A. 2007 The Genetic Reinscription of Race. Annual Review of Anthropology 36:283-300.
9. Epstein, S. 2008 Inclusion: The Politics of Difference in Medical Research. Chicago: University of Chicago Press.
10. Fausto-Sterling, A. 2004 Refashioning Race: DNA and the Politics of Health Care. Differences. Journal of Feminist Cultural Studies 15:1-37.
11. Fortun, M. 2008 Promising Genomics: Iceland and deCODE Genetics in a World of Speculation. Berkeley: University of California Press.
12. Fujimura J., and R. Rajagopalan 2011 Different Differences: The Use of "Genetic Ancestry" versus Race in Biomedical Human Genetic Research. Social Studies of Science 41:5-30.
13. Fullwiley, D. 2007 The Molecularization of Race: Institutionalizing Human Difference in Pharmacogenetics Practice. Science as Culture 16:1-30.
14. Fullwiley, D. 2008 The Biologistical Construction of Race: "Admixture" Technology and the New Genetic Medicine. Social Studies of Science 38:695-735.
15. Hamilton, A. 2008 Invention of the Year. Time Magazine, October, 69-70.
16. Hammonds, E., and R. Herzig 2009 The Nature of Difference: Sciences of Race in the United States from Jefferson to Genomics. Cambridge, MA: MIT Press.
17. Hartigan, J. 2009 Making Sense of Race: America. Stanford: Stanford University Press.
18. Hunt, L. M., and M. S. Megyesi 2007 The Ambiguous Meanings of the Racial/Ethnic Categories Routinely Used in Human Genetics Research. Social Science & Medicine 66:349-361.
19. International HapMap Consortium 2003 The International HapMap Project. Nature 426:789-796.
20. Kahn, J. 2004 How a Drug Becomes "Ethnic": Law, Commerce, and the Production of Racial Categories in Medicine. Yale Journal of Health Policy Law Ethics 4:1-46.
21. Lee, S. S.-J. 2005 "Racializing Drug Design": Pharmacogenomics and Implications for Health Disparities. American Journal of Public Health 95:2133-2138.
22. Lee, S. S.-J. 2006 Biobanks of a "Racial Kind": Mining for Difference in the New Genetics. Patterns of Prejudice 40:443-460.
23. Lee, S. S.-J., D. B. Bolnick, T. Duster Troy, P. Ossorio, and K. Tallbear 2009 The Illusive Gold Standard in Genetic Ancestry Testing. Science 325:38-39.
24. Marcus, G., and J. Okely 2007 How Short Can Fieldwork Be? Social Anthropology/Anthropologie Sociale 15:353-367.
25. Montoya, M. 2011 Making the Mexican Diabetic: Race, Science, and the Genetics of Inequality. Berkeley: University of California Press.
26. Mountain, J., A. Hsu, M. Macpherson, and B. Naughton 2007 Estimating Genotype-Specific Incidence in the Context of Ethnic Variation. 23andMe White Paper 23-02.
27. Nash, C. 2004 Genetic Kinship. Cultural Studies 18:1-33.
28. Nelkin, D., and M. S. Lindee 1995 The DNA Mystique: The Gene as a Cultural Icon. New York: W.H. Freeman.
29. Nelson, A. 2008 Bio Science: Genetic Genealogy Testing and the Pursuit of African Ancestry. Social Studies of Science 38:759-778.
30. Omi, M., and H. Winant 1994 Racial Formation in the United States: From the 1960s to the 1990s, 2nd ed. New York: Routledge Press.
31. Reardon, J. 2005. Race to the Finish: Identity and Governance in an Age of Genomics. Princeton: Princeton University Press.
32. Reverby, S. 2010 "Normal Exposure" and Inoculation Syphilis: A PHS "Tuskegee" Doctor in Guatemala, 1946-1948. Journal of Policy History 23:6-28.
33. Risch, N., E. G. Burchard, E. Ziv, and H. Tang 2002 Categorization of Humans in Biomedical Research: Genes, Race and Disease. Genome Biology 3:1-12.
34. Royal, C., J. Novembre, S. M. Fullerton, D. B. Goldstein, J. C. Long, M. J. Bamshad, and A. G. Clark 2010 Inferring Genetic Ancestry: Opportunities, Challenges and Implications. American Journal of Human Genetics 86:661-673.
35. Sankar, P., M. K. Cho, and J. Mountain 2007 Race and Ethnicity in Genetic Research. American Journal of Medical Genetics 9:961-970.
36. Satake, W., Y. Nakabayashi, I. Mizuta, Y. Hirota, C. Ito, M. Kubo, T. Kawaguchi et al. 2009 Genome-wide Association Study Identifies Common Variants at Four Loci as Genetic Risk Factors for Parkinson's Disease. Nature Genetics 41:1303-1307.
37. Stoler, A. 1995 Race and the Education of Desire: Foucault's History of Sexuality and the Colonial Order of Things. Durham: Duke University Press.
38. Tian, C., P. Gregersen, and M. Seldin 2008 Accounting for Ancestry: Population Substructure and Genome Wide Association Studies. Human Molecular Genetics 17:R143-R150.
39. Werner, G., I. Mirza, G. C. Miyazawa, and J. Mountain 2007 Estimating Genotype-Specific Incidence in the Context of Ethnic Variation. White Paper 23-02.
40. Zhang, J., and Y. Kai 1998a 23andMe Core Values. https://www.23andme.com/about/values/ (accessed September 27, 2012).
41. Zhang, J., and Y. Kai 1998a 1998b 23andMe Prostate Cancer Research Report. https://www.23andme.com/health/Prostate-Cancer/techreport/ (accessed September 27, 2012).