Birth control: To what extent do women report being informed and involved in decisions about pregnancy and birth procedures?

BMC Pregnancy and Childbirth

Volumn 14, Issue 1, 2014, Pages

  Thompson, Rachel ^a,b   Miller, Yvette D ^a,c  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b DARTMOUTH INSTITUTE FOR HEALTH POLICY AND CLINICAL PRACTICE   (United States)

^c QUEENSLAND UNIVERSITY OF TECHNOLOGY   (Australia)

Author keywords

Decision making; Maternity care; Paternalism; Patient participation; Patient reported outcomes

Indexed keywords

ADULT; ANESTHESIA, EPIDURAL; CESAREAN SECTION; DECISION MAKING; EPISIOTOMY; FEMALE; FETAL MONITORING; GYNECOLOGICAL EXAMINATION; HEALTH CARE SURVEYS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; PATERNALISM; PATIENT EDUCATION AS TOPIC; PATIENT PARTICIPATION; QUEENSLAND; RETROSPECTIVE STUDIES; RISK ASSESSMENT; YOUNG ADULT;

EID: 84893695063     PISSN: None     EISSN: 14712393     Source Type: Journal    
DOI: 10.1186/1471-2393-14-62     Document Type: Article

References (38)

1. Charles C, Whelan T, Gafni A. What do we mean by partnership in making decisions about treatment?. BMJ 1999, 319:780-782. 10.1136/bmj.319.7212.780, 1116606, 10488014.
2. Trevena L, Barratt A. Integrated decision making: definitions for a new discipline. Patient Educ Couns 2003, 50:265-268. 10.1016/S0738-3991(03)00047-8, 12900097.
3. Department of Health Changing Childbirth. Part I 1993, London, UK: HMSO, Report of the Expert Maternity Group, Department of Health.
4. Commonwealth of Australia National Maternity Services Plan 2011, Canberra, Australia: Department of Health and Ageing, Commonwealth of Australia.
5. Lawrence HC, Copel JA, O'Keeffe DF, Bradford WC, Scarrow PK, Kennedy HP, Grobman W, Johnson MC, Simpson KR, Lyndon A, Wade K, Peddicord K, Bingham D, Olden CR. Quality patient care in labor and delivery: a call to action. Am J Obstet Gynecol 2012, 207:147-148. 10.1016/j.ajog.2012.07.018, 22939715.
6. Brown S, Lumley J. Changing childbirth: lessons from an Australian survey of 1336 women. Br J Obstet Gynaecol 1998, 105:143-155. 10.1111/j.1471-0528.1998.tb10044.x, 9501778.
7. Hundley V, Ryan M, Graham W. Assessing women's preferences for intrapartum care. Birth 2001, 28:254-263. 10.1046/j.1523-536X.2001.00254.x, 11903214.
8. O'Cathain A, Thomas K, Walters SJ, Nicholl J, Kirkham M. Women's perceptions of informed choice in maternity care. Midwifery 2002, 18:136-144. 10.1054/midw.2002.0301, 12139911.
9. Graham WJ, Hundley V, McCheyne AL, Hall MH, Gurney E, Milne J. An investigation of women's involvement in the decision to deliver by caesarean section. BJOG 1999, 106:213-220.
10. Chalmers B, Dzakpasu S, Heaman M, Kaczorowski J. The Canadian maternity experiences survey: an overview of findings. J Obstet Gynaecol Canada 2008, 30:217-228.
11. Redshaw M, Heikkila K. Delivered with Care: A National Survey of Women's Experiences of Maternity Care 2010 2010, Oxford, UK: National Perinatal Epidemiology Unit, University of Oxford.
12. Bruinsma F, Brown S, Darcy M-A. Having a baby in Victoria 1989-2000: Women's views of public and private models of care. Aust N Z J Public Health 2003, 27:20-26. 10.1111/j.1467-842X.2003.tb00375.x, 14705263.
13. Redshaw M, Rowe R, Hockley C, Brocklehurst P. Recorded Delivery: A National Survey of Women's Experiences of Maternity Care 2006 2007, Oxford, UK: National Perinatal Epidemiology Unit, University of Oxford.
14. Miller YD, Thompson R, Porter J, Armanasco A, Prosser SJ. The Having a Baby in Queensland Survey, 2010 2010, Brisbane, Australia: The University of Queensland.
15. National Centre for Social Applications of Geographic Information Systems (GISCA) ARIA and accessibility. [http://www.adelaide.edu.au/apmrc/research/projects/category/aria.html], National Centre for Social Applications of Geographic Information Systems (GISCA).
16. Degner LF, Sloan JA, Venkatesh P. The control preferences scale. Can J Nurs Res 1997, 29:21-43.
17. Caress A-L, Beaver K, Luker K, Campbell M, Woodcock A. Involvement in treatment decisions: what do adults with asthma want and what do they get? Results of a cross sectional survey. Thorax 2005, 60:199-205. 10.1136/thx.2004.029041, 1747348, 15741435.
18. Degner LF, Kristjanson LJ, Bowman D, Sloan JA, Carriere KC, O'Neil J, Bilodeau B, Watson P, Mueller B. Information needs and decisional preferences in women with breast cancer. JAMA 1997, 277:1485-1492. 10.1001/jama.1997.03540420081039, 9145723.
19. Gong HS, Huh JK, Lee JH, Kim MB, Chung MS, Baek GH. Patients' preferred and retrospectively perceived levels of involvement during decision-making regarding carpal tunnel release. J Bone Jt Surgery Am Vol 2011, 93:1527-1533.
20. Kremer H, Ironson G, Schneiderman N, Hautzinger M. " It's my body": Does patient involvement in decision making reduce decisional conflict?. Med Decis Mak 2007, 27:522-532.
21. Entwistle VA, Skea ZC, O'Donnell MT. Decisions about treatment: Interpretations of two measures of control by women having a hysterectomy. Soc Sci Med 2001, 53:721-732. 10.1016/S0277-9536(00)00382-8, 11511048.
22. Fullwood C, Kennedy A, Rogers A, Eden M, Gardner C, Protheroe J, Reeves D. Patients' experiences of shared decision making in primary care practices in the United Kingdom. Med Decis Mak 2013, 33:26-36.
23. Queensland Health Perinatal Statistics Queensland 2010 2012, Brisbane, Australia: Queensland Health, Queensland Health.
24. Zikmund-Fisher BJ, Couper MP, Singer E, Ubel PA, Ziniel S, Fowler FJ, Levin CA, Fagerlin A. Deficits and variations in patients' experience with making 9 common medical decisions: the DECISIONS survey. Med Decis Mak 2010, 30(5 Suppl):85S-95S.
25. Vlemmix F, Warendorf JK, Rosman AN, Kok M, Mol BWJ, Morris JM, Nassar N. Decision aids to improve informed decision-making in pregnancy care: a systematic review. BJOG 2013, 120:257-266. 10.1111/1471-0528.12060, 23145991.
26. Coulter A. Shared decision-making: the debate continues [editorial]. Heal Expect 2005, 8:95-96.
27. Pass M, Belkora J, Moore D, Volz S, Sepucha K. Patient and observer ratings of physician shared decision making behaviors in breast cancer consultations. Patient Educ Couns 2012, 88:93-99. 10.1016/j.pec.2012.01.008, 22322069.
28. Wunderlich T, Cooper G, Divine G, Flocke S, Oja-Tebbe N, Stange K, Elston Lafata J. Inconsistencies in patient perceptions and observer ratings of shared decision making: the case of colorectal cancer screening. Patient Educ Couns 2010, 80:358-363. 10.1016/j.pec.2010.06.034, 2971658, 20667678.
29. Kasper J, Heesen C, Köpke S, Fulcher G, Geiger F. Patients' and observers' perceptions of involvement differ. Validation study on inter-relating measures for shared decision making. PLoS One 2011, 6:e26255. 10.1371/journal.pone.0026255, 3197148, 22043310.
30. Laslett AM, Brown S, Lumley J. Women's views of different models of antenatal care in Victoria, Australia. Birth 1997, 24:81-89. 10.1111/j.1523-536X.1997.00081.pp.x, 9271973.
31. Brown SJ, Davey M-A, Bruinsma FJ. Women's views and experiences of postnatal hospital care in the Victorian Survey of Recent Mothers 2000. Midwifery 2005, 21:109-126. 10.1016/j.midw.2004.09.006, 15878426.
32. Van Teijlingen ER, Hundley V, Rennie A-M, Graham W, Fitzmaurice A. Maternity satisfaction studies and their limitations: " what is, must still be best". Birth 2003, 30:75-82. 10.1046/j.1523-536X.2003.00224.x, 12752163.
33. Kaplan SH, Gandek B, Greenfield S, Rogers W, Ware JE. Patient and visit characteristics related to physicians' participatory decision-making style: results from the medical outcomes study. Med Care 1995, 33:1176-1187. 10.1097/00005650-199512000-00002, 7500658.
34. Frongillo M, Feibelmann S, Belkora J, Lee C, Sepucha K. Is there shared decision making when the provider makes a recommendation?. Patient Educ Couns 2013, 90:69-73. 10.1016/j.pec.2012.08.016, 22999786.
35. Gartland D, Lansakara N, Flood M, Brown SJ. Assessing obstetric risk factors for maternal morbidity: congruity between medical records and mothers' reports of obstetric exposures. Am J Obstet Gynecol 2012, 206:152.e1-10.
36. Rice F, Lewis A, Harold G, van den Bree M, Boivin J, Hay DF, Owen MJ, Thapar A. Agreement between maternal report and antenatal records for a range of pre and peri-natal factors: the influence of maternal and child characteristics. Early Hum Dev 2007, 83:497-504. 10.1016/j.earlhumdev.2006.09.015, 17071023.
37. Yawn BP, Suman VJ, Jacobsen SJ. Maternal recall of distant pregnancy events. J Clin Epidemiol 1998, 51:399-405. 10.1016/S0895-4356(97)00304-1, 9619967.
38. Flynn D, Knoedler MA, Hess EP, Murad MH, Erwin PJ, Montori VM, Thomson RG. Engaging patients in health care decisions in the emergency department through shared decision-making: a systematic review. Acad Emerg Med 2012, 19:959-967. 10.1111/j.1553-2712.2012.01414.x, 22853804.