Our children are not a diagnosis: The experience of parents who continue their pregnancy after a prenatal diagnosis of trisomy 13 or 18

American Journal of Medical Genetics, Part A

Volumn 164, Issue 2, 2014, Pages 308-318

  Guon, Jennifer ^a   Wilfond, Benjamin S ^b,c   Farlow, Barbara ^d   Brazg, Tracy ^b,c   Janvier, Annie ^e  

^a KAISER PERMANENTE   (United States)

^b SEATTLE CHILDREN S RESEARCH INSTITUTE   (United States)

^c UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^d Patients for Patients' Safety Canada   (Canada)

^e UNIVERSITY OF MONTREAL   (Canada)

Author keywords

End of life decision making; Ethics; Life sustaining interventions; Parental opinions; Quality of life; Trisomy 13; Trisomy 18

Indexed keywords

ADULT; ARTICLE; CHILD; CHILD HEALTH CARE; COMPARATIVE STUDY; CONTROLLED STUDY; DOCTOR PATIENT RELATION; EXPERIENCE; FAMILY; FEMALE; HEALTH BELIEF; HEALTH CARE PLANNING; HOPE; HUMAN; MAJOR CLINICAL STUDY; MATERNAL ATTITUDE; MORALITY; PARENT COUNSELING; PATIENT COUNSELING; PATIENT DECISION MAKING; PERSONAL AUTONOMY; POSTNATAL CARE; PREGNANCY TERMINATION; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; RELIGION; SURVIVAL; TRISOMY 13; TRISOMY 18;

END OF LIFE DECISION-MAKING; ETHICS; LIFE SUSTAINING INTERVENTIONS; PARENTAL OPINIONS; QUALITY OF LIFE; TRISOMY 13; TRISOMY 18;

ADULT; CHROMOSOME DISORDERS; CHROMOSOMES, HUMAN, PAIR 13; CHROMOSOMES, HUMAN, PAIR 18; DECISION MAKING; FEMALE; GENETIC COUNSELING; HUMANS; MALE; MIDDLE AGED; MORTALITY; PARENTS; PREGNANCY; PREGNANCY OUTCOME; PRENATAL DIAGNOSIS; QUESTIONNAIRES; SELF-HELP GROUPS; TRISOMY; YOUNG ADULT;

EID: 84892861683     PISSN: 15524825     EISSN: 15524833     Source Type: Journal    
DOI: 10.1002/ajmg.a.36298     Document Type: Article

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