-
1
-
-
0035374389
-
An exploration of midwives' and obstetricians' knowledge of genetic screening in pregnancy and their perception of appropriate counseling'
-
Bramwell R, Carter D. 2001. An exploration of midwives' and obstetricians' knowledge of genetic screening in pregnancy and their perception of appropriate counseling'. Midwifery 17: 133-141.
-
(2001)
Midwifery
, vol.17
, pp. 133-141
-
-
Bramwell, R.1
Carter, D.2
-
2
-
-
33745018274
-
Flashbulb memories
-
Brown R, Kulik J. 1977. Flashbulb memories. Cognition 5: 73-99.
-
(1977)
Cognition
, vol.5
, pp. 73-99
-
-
Brown, R.1
Kulik, J.2
-
3
-
-
0032964496
-
Male partners' role in Latinas' amniocentesis decisions
-
Browner CH, Preloran MH. 1999. Male partners' role in Latinas' amniocentesis decisions. J Genet Couns 8: 85-108.
-
(1999)
J Genet Couns
, vol.8
, pp. 85-108
-
-
Browner, C.H.1
Preloran, M.H.2
-
4
-
-
21544463420
-
Experiences of prenatal diagnosis of spina bifida or hydrocephalus in parents who decide to continue with their pregnancy
-
Chaplin J, Schweitzer R, Perkoulidis S. 2005. Experiences of prenatal diagnosis of spina bifida or hydrocephalus in parents who decide to continue with their pregnancy. J Genet Couns 14: 151-162.
-
(2005)
J Genet Couns
, vol.14
, pp. 151-162
-
-
Chaplin, J.1
Schweitzer, R.2
Perkoulidis, S.3
-
6
-
-
0034092696
-
Attitudes toward genetic counseling and prenatal diagnosis among a group of individuals with physical disabilities
-
Chen EA, Schiffman JF. 2000. Attitudes toward genetic counseling and prenatal diagnosis among a group of individuals with physical disabilities. J Genet Couns 9: 137-152.
-
(2000)
J Genet Couns
, vol.9
, pp. 137-152
-
-
Chen, E.A.1
Schiffman, J.F.2
-
7
-
-
37249078625
-
Is Down syndrome a disappearing birth defect?
-
Collins VR, Muggli EE, Riley M, Palma S, Halliday JL. 2008. Is Down syndrome a disappearing birth defect? J Pediatr 152: 20-24.
-
(2008)
J Pediatr
, vol.152
, pp. 20-24
-
-
Collins, V.R.1
Muggli, E.E.2
Riley, M.3
Palma, S.4
Halliday, J.L.5
-
9
-
-
46749123591
-
Attitudes toward the acceptability of reasons for pregnancy termination due to fetal abnormalities among prenatal care providers and consumers in Israel
-
Dery AM, Carmi R, Vardi IS. 2008. Attitudes toward the acceptability of reasons for pregnancy termination due to fetal abnormalities among prenatal care providers and consumers in Israel. Prenat Diagn 28: 518-524.
-
(2008)
Prenat Diagn
, vol.28
, pp. 518-524
-
-
Dery, A.M.1
Carmi, R.2
Vardi, I.S.3
-
10
-
-
84856221969
-
The genome project. Origins and developments
-
Fischer P, Klose S, editors. Munich Germany: R. Piper GmbH & Co
-
Dulbecco R. 1995. The genome project. Origins and developments. In: Fischer P, Klose S, editors. The diagnostic challenge-The human genome. Vol. Munich Germany: R. Piper GmbH & Co.
-
(1995)
The diagnostic challenge-The human genome. Vol
-
-
Dulbecco, R.1
-
11
-
-
0023617827
-
Parental perceptions of the burden of genetic disease
-
Ekwo EE, Kim J, Gosselink CA. 1987. Parental perceptions of the burden of genetic disease. Am J Med Genet 28: 955-963.
-
(1987)
Am J Med Genet
, vol.28
, pp. 955-963
-
-
Ekwo, E.E.1
Kim, J.2
Gosselink, C.A.3
-
12
-
-
0037400995
-
Post-diagnostic abortion in Germany: Reproduction gone awry, again?
-
Erikson SL. 2003. Post-diagnostic abortion in Germany: Reproduction gone awry, again? Soc Sci Med 56: 1987-2001.
-
(2003)
Soc Sci Med
, vol.56
, pp. 1987-2001
-
-
Erikson, S.L.1
-
13
-
-
0033452444
-
Never again joy without sorrow: The effect on parents of a child with ataxia-telangiectasia
-
Fanos JH, Mackintosh MA. 1999. Never again joy without sorrow: The effect on parents of a child with ataxia-telangiectasia. Am J Med Genet 87: 413-419.
-
(1999)
Am J Med Genet
, vol.87
, pp. 413-419
-
-
Fanos, J.H.1
Mackintosh, M.A.2
-
14
-
-
67650255310
-
Is the non-respect of ethical principles by health professionals during first-trimester sonographic Down syndrome screening damaging to patient autonomy?
-
Favre R, Guige V, Weingertner A-S, Vayssière C, Kohler K, Nisand I, Hervé C, Moutel G. 2009. Is the non-respect of ethical principles by health professionals during first-trimester sonographic Down syndrome screening damaging to patient autonomy? Ultrasound Obstet Gynecol 34: 25-32.
-
(2009)
Ultrasound Obstet Gynecol
, vol.34
, pp. 25-32
-
-
Favre, R.1
Guige, V.2
Weingertner, A.-S.3
Vayssière, C.4
Kohler, K.5
Nisand, I.6
Hervé, C.7
Moutel, G.8
-
15
-
-
84937378857
-
Exploring resilience from a parent's perspective: A qualitative study of six resilient mothers of children with an intellectual disability
-
Gardner J, Harmon T. 2002. Exploring resilience from a parent's perspective: A qualitative study of six resilient mothers of children with an intellectual disability. Aust Soc Work 55: 60-68.
-
(2002)
Aust Soc Work
, vol.55
, pp. 60-68
-
-
Gardner, J.1
Harmon, T.2
-
16
-
-
0036733293
-
Ethical decision-making in prenatal diagnosis and termination of pregnancy: A qualitative survey among physicians and midwives
-
Garel M, Gosme-Seguret S, Kaminski M, Cuttini M. 2002. Ethical decision-making in prenatal diagnosis and termination of pregnancy: A qualitative survey among physicians and midwives. Prenat Diagn 22: 811-817.
-
(2002)
Prenat Diagn
, vol.22
, pp. 811-817
-
-
Garel, M.1
Gosme-Seguret, S.2
Kaminski, M.3
Cuttini, M.4
-
18
-
-
0141457239
-
Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature
-
Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. 2003. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet Part A 122A: 100-107.
-
(2003)
Am J Med Genet Part A
, vol.122 A
, pp. 100-107
-
-
Hill, V.1
Sahhar, M.2
Aitken, M.3
Savarirayan, R.4
Metcalfe, S.5
-
19
-
-
21544458035
-
A practical account of autonomy: Why genetic counseling is especially well suited to the facilitation of informed autonomous decision making
-
Hodgson J, Spriggs M. 2005. A practical account of autonomy: Why genetic counseling is especially well suited to the facilitation of informed autonomous decision making. J Genet Couns 14: 89-97.
-
(2005)
J Genet Couns
, vol.14
, pp. 89-97
-
-
Hodgson, J.1
Spriggs, M.2
-
20
-
-
0034021601
-
To use or not to use: Male partners' perspectives on decision making about prenatal diagnosis
-
Kenen R, Smith ACM, Watkins C, Zuber-Pittore C. 2000. To use or not to use: Male partners' perspectives on decision making about prenatal diagnosis. J Genet Couns 9: 33-45.
-
(2000)
J Genet Couns
, vol.9
, pp. 33-45
-
-
Kenen, R.1
Smith, A.C.M.2
Watkins, C.3
Zuber-Pittore, C.4
-
23
-
-
0031666343
-
Determinants of parental decisions after the prenatal diagnosis of Down syndrome
-
Kramer RL, Jarve RK, Yaron Y, Johnson MP, Lampinen J, Kasperski SB, Evans MI. 1998. Determinants of parental decisions after the prenatal diagnosis of Down syndrome. Am J Med Genet 79: 172-174.
-
(1998)
Am J Med Genet
, vol.79
, pp. 172-174
-
-
Kramer, R.L.1
Jarve, R.K.2
Yaron, Y.3
Johnson, M.P.4
Lampinen, J.5
Kasperski, S.B.6
Evans, M.I.7
-
24
-
-
33646797395
-
Psychological effects of amniocentesis on women and their spouses: Importance of the testing period and genetic counseling
-
Kukulu K, Buldukoglu K, Keser I, Keser I, Şemsek M, Mendilcioglu I, Lüleci G. 2006. Psychological effects of amniocentesis on women and their spouses: Importance of the testing period and genetic counseling. J Psychosom Obstet Gynecol: 9-15.
-
(2006)
J Psychosom Obstet Gynecol
, pp. 9-15
-
-
Kukulu, K.1
Buldukoglu, K.2
Keser, I.3
Keser, I.4
Şemsek, M.5
Mendilcioglu, I.6
Lüleci, G.7
-
25
-
-
3543050191
-
Genetic counselors' experiences with paternal involvement in prenatal genetic counseling sessions: An exploratory investigation
-
Lafans RS, McCarthy Veach P, LeRoy BS. 2003. Genetic counselors' experiences with paternal involvement in prenatal genetic counseling sessions: An exploratory investigation. J Genet Couns 12: 219-241.
-
(2003)
J Genet Couns
, vol.12
, pp. 219-241
-
-
Lafans, R.S.1
McCarthy Veach, P.2
LeRoy, B.S.3
-
26
-
-
58749087879
-
Recasting hope: A process of adaptation following fetal anomaly diagnosis
-
Lalor JG, Begley CM, Galavan E. 2009. Recasting hope: A process of adaptation following fetal anomaly diagnosis. Soc Sci Med 68: 462-472.
-
(2009)
Soc Sci Med
, vol.68
, pp. 462-472
-
-
Lalor, J.G.1
Begley, C.M.2
Galavan, E.3
-
27
-
-
33847077233
-
Unexpected diagnosis of fetal abnormality: Women's encounters with caregivers
-
Lalor JG, Devane D, Begley CM. 2007. Unexpected diagnosis of fetal abnormality: Women's encounters with caregivers. Birth 34: 80-88.
-
(2007)
Birth
, vol.34
, pp. 80-88
-
-
Lalor, J.G.1
Devane, D.2
Begley, C.M.3
-
28
-
-
0037217078
-
Perceptions of deservedness of social aid as a function of prenatal diagnostic testing
-
Lawson KL. 2003. Perceptions of deservedness of social aid as a function of prenatal diagnostic testing. J Appl Psychol 33: 76-90.
-
(2003)
J Appl Psychol
, vol.33
, pp. 76-90
-
-
Lawson, K.L.1
-
29
-
-
28044464003
-
The parents' journey: Continuing a pregnancy after a diagnosis of Patau's syndrome
-
Locock L, Crawford J. 2005. The parents' journey: Continuing a pregnancy after a diagnosis of Patau's syndrome. Br Med J 331: 1186-1189.
-
(2005)
Br Med J
, vol.331
, pp. 1186-1189
-
-
Locock, L.1
Crawford, J.2
-
30
-
-
32044459959
-
'Just a bystander'? Men's place in the process of fetal screening and diagnosis
-
Locock L, Alexander J. 2006. 'Just a bystander'? Men's place in the process of fetal screening and diagnosis. Soc Sci Med 62: 1349-1359.
-
(2006)
Soc Sci Med
, vol.62
, pp. 1349-1359
-
-
Locock, L.1
Alexander, J.2
-
31
-
-
0032883373
-
Termination rates after prenatal diagnosis of Down syndrome, spina bifida, anencephaly, and Turner and Klinefelter syndromes: A systematic literature review
-
Mansfield C, Hopfer S, Marteau TM. 1999. Termination rates after prenatal diagnosis of Down syndrome, spina bifida, anencephaly, and Turner and Klinefelter syndromes: A systematic literature review. Prenat Diagn 19: 808-812.
-
(1999)
Prenat Diagn
, vol.19
, pp. 808-812
-
-
Mansfield, C.1
Hopfer, S.2
Marteau, T.M.3
-
32
-
-
0027988079
-
Counseling following diagnosis of fetal abnormality: The differing approaches of obstetricians, clinical geneticists, and genetic nurses
-
Marteau TM, Drake H, Bobrow M. 1994. Counseling following diagnosis of fetal abnormality: The differing approaches of obstetricians, clinical geneticists, and genetic nurses. J Med Genet 31: 864-867.
-
(1994)
J Med Genet
, vol.31
, pp. 864-867
-
-
Marteau, T.M.1
Drake, H.2
Bobrow, M.3
-
33
-
-
0028899903
-
Attributions for disability: The influence of genetic screening
-
Marteau TM, Drake H. 1995. Attributions for disability: The influence of genetic screening. Soc Sci Med 40: 1127-1132.
-
(1995)
Soc Sci Med
, vol.40
, pp. 1127-1132
-
-
Marteau, T.M.1
Drake, H.2
-
34
-
-
34247502273
-
Pregnancy interrupted: Loss of a desired pregnancy after diagnosis of fetal anomaly
-
McCoyd JLM. 2007. Pregnancy interrupted: Loss of a desired pregnancy after diagnosis of fetal anomaly. J Psychosom Obstet Gynecol 28: 37-48.
-
(2007)
J Psychosom Obstet Gynecol
, vol.28
, pp. 37-48
-
-
McCoyd, J.L.M.1
-
35
-
-
0032231301
-
Attitudes of deaf adults toward genetic testing for hereditary deafness
-
Middleton A, Hewison J, Mueller RF. 1998. Attitudes of deaf adults toward genetic testing for hereditary deafness. Am J Hum Genet 63: 1175-1180.
-
(1998)
Am J Hum Genet
, vol.63
, pp. 1175-1180
-
-
Middleton, A.1
Hewison, J.2
Mueller, R.F.3
-
36
-
-
0033123317
-
Decisions about prenatal testing for chromosomal disorders: Perceptions of a diverse group of pregnant women
-
Moyer A, Brown B, Gates E, Daniels M, Brown HD, Kuppermann M. 1999. Decisions about prenatal testing for chromosomal disorders: Perceptions of a diverse group of pregnant women. J Women's Health Gender-Based Med 8: 521-531.
-
(1999)
J Women's Health Gender-Based Med
, vol.8
, pp. 521-531
-
-
Moyer, A.1
Brown, B.2
Gates, E.3
Daniels, M.4
Brown, H.D.5
Kuppermann, M.6
-
37
-
-
48449101861
-
A qualitative description of receiving a diagnosis of clefting in the prenatal or postnatal period
-
Nusbaum R, Grub RE, Losee JE, Weidman C, Ford MD, Marazita ML. 2008. A qualitative description of receiving a diagnosis of clefting in the prenatal or postnatal period. J Genet Couns 17: 336-350.
-
(2008)
J Genet Couns
, vol.17
, pp. 336-350
-
-
Nusbaum, R.1
Grub, R.E.2
Losee, J.E.3
Weidman, C.4
Ford, M.D.5
Marazita, M.L.6
-
38
-
-
0037222951
-
Disability rights critique of prenatal genetic testing: Reflections and recommendations
-
Parens E, Asch A. 2003. Disability rights critique of prenatal genetic testing: Reflections and recommendations. Ment Retard Dev Disabil Res Rev 9: 40-47.
-
(2003)
Ment Retard Dev Disabil Res Rev
, vol.9
, pp. 40-47
-
-
Parens, E.1
Asch, A.2
-
39
-
-
0031740409
-
Continuation of pregnancy following the diagnosis of a fetal sex chromosome abnormality: A study of parents' counseling needs and experiences
-
Petrucelli N, Walker M, Schorry E. 1998. Continuation of pregnancy following the diagnosis of a fetal sex chromosome abnormality: A study of parents' counseling needs and experiences. J Genet Couns 7: 401-415.
-
(1998)
J Genet Couns
, vol.7
, pp. 401-415
-
-
Petrucelli, N.1
Walker, M.2
Schorry, E.3
-
41
-
-
33947390489
-
Parental decisions to abort or continue a pregnancy following prenatal diagnosis of chromosomal abnormalities in a setting where termination of pregnancy is not legally available
-
Quadrelli R, Quadrelli A, Mechoso B, Laufer M, Jaumandreu C, Vaglio A. 2007. Parental decisions to abort or continue a pregnancy following prenatal diagnosis of chromosomal abnormalities in a setting where termination of pregnancy is not legally available. Prenat Diagn 27: 228-232.
-
(2007)
Prenat Diagn
, vol.27
, pp. 228-232
-
-
Quadrelli, R.1
Quadrelli, A.2
Mechoso, B.3
Laufer, M.4
Jaumandreu, C.5
Vaglio, A.6
-
42
-
-
0027932424
-
First diagnosis of severe mental and physical disability: A study of doctor-parent communication
-
Quine L, Rutter DR. 1994. First diagnosis of severe mental and physical disability: A study of doctor-parent communication. J Child Psychol Psychiatry 35: 1273-1287.
-
(1994)
J Child Psychol Psychiatry
, vol.35
, pp. 1273-1287
-
-
Quine, L.1
Rutter, D.R.2
-
43
-
-
33644699330
-
The quest for the perfect baby: Why do Israeli women seek prenatal genetic testing?
-
Remennick L. 2006. The quest for the perfect baby: Why do Israeli women seek prenatal genetic testing? Sociol Health Illness 28: 21-53.
-
(2006)
Sociol Health Illness
, vol.28
, pp. 21-53
-
-
Remennick, L.1
-
45
-
-
0030056911
-
Healing fictions": Stories of choosing in the aftermath of the detection of fetal anomalies
-
Sandelowski M, Corson Jones L. 1996. "Healing fictions": Stories of choosing in the aftermath of the detection of fetal anomalies. Soc Sci Med 42: 353-361.
-
(1996)
Soc Sci Med
, vol.42
, pp. 353-361
-
-
Sandelowski, M.1
Corson Jones, L.2
-
46
-
-
84856226329
-
Arguing about genetics and disability
-
Shakespeare T. 2000. Arguing about genetics and disability. Interaction 13: 11-14.
-
(2000)
Interaction
, vol.13
, pp. 11-14
-
-
Shakespeare, T.1
-
47
-
-
4544238927
-
Prenatal diagnosis, pregnancy terminations and prevalence of Down syndrome in Atlantla
-
Siffel C, Correa A, Cragan J, Alverson CJ. 2004. Prenatal diagnosis, pregnancy terminations and prevalence of Down syndrome in Atlantla. Birth Defects Res (Part A) 70: 565-571.
-
(2004)
Birth Defects Res (Part A)
, vol.70
, pp. 565-571
-
-
Siffel, C.1
Correa, A.2
Cragan, J.3
Alverson, C.J.4
-
48
-
-
14644444221
-
Prenatally diagnosed Down syndrome: Mothers who continued their pregnancies evaluate their health care providers
-
Skotko BG. 2005. Prenatally diagnosed Down syndrome: Mothers who continued their pregnancies evaluate their health care providers. Am J Obstet Gynecol 192: 670-677.
-
(2005)
Am J Obstet Gynecol
, vol.192
, pp. 670-677
-
-
Skotko, B.G.1
-
49
-
-
36248973566
-
Choose your method: A comparison of phenomenology, discourse analysis, and grounded theory
-
Starks H, Brown Trinidad S. 2007. Choose your method: A comparison of phenomenology, discourse analysis, and grounded theory. Qual Health Res 17: 1372-1380.
-
(2007)
Qual Health Res
, vol.17
, pp. 1372-1380
-
-
Starks, H.1
Brown Trinidad, S.2
-
50
-
-
0036085178
-
Attitudes of deaf and hard of hearing subjects towards genetic testing and prenatal diagnosis of hearing loss
-
Stern SJ, Arnos KS, Murrelle L, Welch KO, Nance WE, Pandya A. 2002. Attitudes of deaf and hard of hearing subjects towards genetic testing and prenatal diagnosis of hearing loss. J Med Genet 39: 449-453.
-
(2002)
J Med Genet
, vol.39
, pp. 449-453
-
-
Stern, S.J.1
Arnos, K.S.2
Murrelle, L.3
Welch, K.O.4
Nance, W.E.5
Pandya, A.6
-
52
-
-
0004098272
-
-
2nd edition. New York: The Guilford Press.
-
Walsh F. 2006. Strengthening family resilience, 2nd edition. New York: The Guilford Press. p 4-8.
-
(2006)
Strengthening family resilience
, pp. 4-8
-
-
Walsh, F.1
-
54
-
-
56049126818
-
Making teams work in conducting grounded theory
-
Bryant A, Charmaz K, editors. Los Angeles: Sage.
-
Wiener C. 2007. Making teams work in conducting grounded theory. In: Bryant A, Charmaz K, editors. The Sage handbook of grounded theory. Los Angeles: Sage. pp 293-310.
-
(2007)
The Sage handbook of grounded theory
, pp. 293-310
-
-
Wiener, C.1
-
55
-
-
80051990294
-
Prenatal and postnatal diagnosis of infant disability: Breaking the news to mothers
-
Wright JA. 2008. Prenatal and postnatal diagnosis of infant disability: Breaking the news to mothers. J Perinat Educ 17: 27-32.
-
(2008)
J Perinat Educ
, vol.17
, pp. 27-32
-
-
Wright, J.A.1
|