Affirming Motherhood: Validation and Invalidation in Women's Perinatal Hospice Narratives

Birth

Volumn 38, Issue 3, 2011, Pages 256-265

  Lathrop, Anthony ^a   Vandevusse, Leona ^b  

^a Clarian Health in Indianapolis   (United States)

^b University in Milwaukee   (United States)

Author keywords

Bereavement; Birth defects; Narrative; Perinatal hospice; Pregnancy

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BEREAVEMENT; CONGENITAL DISORDER; FEMALE; HOSPICE CARE; HUMAN; HUMAN RELATION; MORTALITY; MOTHER; MOTHER CHILD RELATION; MOTHER FETUS RELATIONSHIP; PERINATAL CARE; PREGNANCY; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SELF CONCEPT; SELF REPORT; SOCIAL SUPPORT; STANDARD;

ADOLESCENT; ADULT; BEREAVEMENT; CONGENITAL ABNORMALITIES; FEMALE; HOSPICE CARE; HUMANS; MATERNAL-FETAL RELATIONS; MOTHER-CHILD RELATIONS; MOTHERS; PERINATAL CARE; PREGNANCY; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; SELF CONCEPT; SELF REPORT; SOCIAL SUPPORT; YOUNG ADULT;

EID: 80052412142     PISSN: 07307659     EISSN: 1523536X     Source Type: Journal    
DOI: 10.1111/j.1523-536X.2011.00478.x     Document Type: Article

References (38)

1. Black JA, Cunningham G, Ebeling J, et al. The Electronic Text Corpus of Sumerian Literature, 2006. Accessed August 21, 2010. Available at.
2. Toedter LJ, Lasker JN, Janssen HJ. International comparison of studies using the perinatal grief scale: A decade of research on pregnancy loss. Death Stud 2001;25:205-228.
3. Malacrida CA. Complicating mourning: The social economy of perinatal death. Qualitative Health Research 1999;9(4):504-519.
4. Stirtzinger RM, Robinson GE, Stewart DE, Ralevski E. Parameters of grieving in spontaneous abortion. Int J Psychiatry Med 1999;29(2):235-250.
5. Trulsson O, Radestad I. The silent child: Mothers' experiences before, during, and after stillbirth. Birth 2004;31(2):189-195.
6. Hunfeld JAM, Wladimiroff JW, Passchier J. The grief of late pregnancy loss. Patient Education and Counseling 1997;31:57-64.
7. McCoyd JL. Pregnancy interrupted: Loss of a desired pregnancy after diagnosis of fetal anomaly. J Psychosom Obstet Gynecol 2007;28(1):37-48.
8. Sandelowski M, Jones LC. 'Healing fictions:' Stories of choosing in the aftermath of the detection of fetal anomalies. Soc Sci Med 1996;42(3):353-361.
9. Centers for Disease Control. National Vital Statistics System. Atlanta, Georgia: Author. Accessed August 21, 2010. Available at.
10. Calhoun BC, Napolitano P, Terry M, et al. Perinatal hospice: Comprehensive care for the family of a fetus with a lethal condition. J Reprod Med 2003;48(5):343-348.
11. D'Almeida M, Hume RF, Lathrop A, et al. Perinatal hospice: Family-centered care of the fetus with a lethal condition. J Am Physicians Surg 2006;11(2):52-55.
12. Wheeler SR, Austin JK. The impact of early pregnancy loss on adolescents. MCN Am J Matern Child Nurs 2001;26(3):154-159.
13. Turton P, Hughes P, Evans CDH, Fainman D. Incidence, correlates, and predictors of post-traumatic stress disorder in the pregnancy after stillbirth. Br J Psychiatry 2001;178:556-560.
14. Swanson KM. Research-based practice with women who miscarry. Image J Nurs Scholarsh 1999;31:339-344.
15. Malacrida CA. Perinatal death: Helping parents find their way. J Fam Nurs 1997;3(2):130-148.
16. Swanson-Kauffman KM. Caring in the instance of unexpected early pregnancy loss. Top Clin Nurs 1986;8(2):37-46.
17. Chitty LS, Barnes CA, Berry C. For debate: Continuing with pregnancy after a diagnosis of lethal abnormality: Experience of five couples and recommended management. BMJ 1996;313:478-480.
18. Mercer RT. Becoming a mother versus maternal role attainment. J Nurs Scholarsh 2004;36(3):226-232.
19. Rubin R. Maternal Identity and the Maternal Experience. New York: Springer, 1984.
20. Muller ME. A critical review of prenatal attachment research. Sch Inq Nurs Pract 1992;6(1):5-21.
21. George C, Solomon J. Attachment and caregiving: The caregiving behavioral system. In: Cassidy J, Shaver PR, eds. Handbook of Attachment: Theory, Research, and Clinical Applications. New York: Guilford Press, 1999:649-667.
22. Limbo R, Pridham K. Mothers' understanding of their infants in the context of an internal working model of caregiving. Adv Nurs Sci 2007;30(2):139-150.
23. McGeary K. The influence of guarding on the developing mother-unborn child relationship. In: Field PA, Marck PB, eds. Uncertain Motherhood: Negotiating the Risks of the Childbearing Years. Thousand Oaks, California: Sage, 1994:139-162.
24. Hoeldtke NJ, Calhoun BC. Perinatal hospice. Am J Obstet Gynecol 2001;185(3):525-529.
25. Roush A, Sullivan P, Cooper R, McBride J. Perinatal hospice. Newborn Infant Nurs Rev 2007;7(4):216-221.
26. Limbo R, Toce S, Peck T. Resolve Through Sharing Position Paper on Perinatal Palliative Care. La Crosse, Wisconsin: Gundersen Lutheran Medical Foundation, Inc; 2008/2009. Accessed pril 25, 2011. Available at.
27. Leuthner SR, Jones EL. Fetal concerns program: A model for perinatal palliative care. MCN Am J Matern Child Nurs 2007;32(5):272-278.
28. Gilbert KR. Taking a narrative approach to grief research: Finding meaning in stories. Death Stud 2002;26:223-239.
29. Niemeyer RA. Reauthoring life narratives: Grief therapy as meaning reconstruction. Isr J Psychiatry Relat Sci 2001;38(3):171-183.
30. Klingberg-Allvin M, Binh N, Johansson A, Berggren V. One foot wet and one foot dry: Transition into motherhood among married adolescent women in rural Vietnam. J Transcult Nurs 2008;19(3):338-346.
31. QSR International. NVivo8, Version 8.0.330 SP4 [Computer Program]. Victoria, Australia: Doncaster, 2008.
32. Hall JM. Core issues for female child abuse survivors in recovery from substance misuse. Qual Health Res 2000;10(5):612-631.
33. Haglund K. Sexually abstinent African American adolescent females' descriptions of abstinence. J Nurs Scholarsh 2003;35(3):231-236.
34. Whittemore R, Chase SK, Mandle CL. Validity in qualitative research. Qual Health Res 2001;11(4):522-537.
35. Hughes P, Turton P, Evans CDH. Assessment of guidelines for good practice in psychosocial care of mothers after stillbirth: A cohort study. Lancet 2002;360:114-118.
36. Ayers T, Bonnano GA, Connor SR, et al. Report on bereavement and grief research. Death Stud 2004;28:491-575.
37. Tedeschi RG, Calhoun LG. Beyond the concept of recovery: Growth and the experience of loss. Death Stud 2008;32:27-39.
38. Kuebelbeck A, Davis DL. Perinatal Hospice: A Gift of Time. Accessed August 21, 2010. Available at.