Seeing it from both sides: Do approaches to involving patients in improving their safety risk damaging the trust between patients and healthcare professionals? An interview study

PLoS ONE

Volumn 8, Issue 11, 2013, Pages

  Hrisos, Susan ^a   Thomson, Richard ^a  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL ARTICLE; DOCTOR PATIENT RELATION; FEMALE; GROUNDED THEORY; HEALTH PERSONNEL ATTITUDE; HUMAN; MALE; PATIENT CARE; PATIENT PARTICIPATION; PATIENT SAFETY; PATIENT WORRY; PURPOSIVE SAMPLE; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; TRUST;

FEMALE; HEALTH PERSONNEL; HUMANS; MALE; MIDDLE AGED; PATIENT SAFETY; PROFESSIONAL-PATIENT RELATIONS; SAFETY MANAGEMENT; TRUST;

EID: 84892399425     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0080759     Document Type: Article

References (72)

1. Leape L, Berwick D, Clancy C, Conway J, Gluck P et al. (2009) Transforming healthcare: a safety imperative. Qual Saf Health Care 18: 424-428. doi:10.1136/qshc.2009.036954. PubMed: 19955451.
2. Donabedian A (1992) The Lichfield Lecture. Quality assurance in health care: consumers' role. Qual Health Care 1: 247-251. doi:10.1136/qshc.1.4.247. PubMed: 10136873.
3. Donaldson LJ (2008) Put the patient in the room, always. Qual Saf Health Care 17: 82-83. doi:10.1136/qshc.2007.025262. PubMed: 18385398.
4. Vincent CA, Coulter A (2002) Patient safety: what about the patient? Qual Saf Health Care 11: 76-80. doi:10.1136/qhc.11.1.76. PubMed: 12078376.
5. Coulter AE (2006) Patient safety: what role can patients play? Health Expect 9: 205-206. doi:10.1111/j.1369-7625.2006.00405.x. PubMed: 16911134.
6. Johnstone M-J, Kanitsaki O (2009) Engaging patients as safety partners: some considerations for ensuring a culturally and linguistically appropriate approach. Health Policy 90: 1-7. doi:10.1016/j.healthpol.2008.08.007. PubMed: 18829130.
7. Schwappach DLB (2010) Review: Engaging Patients as Vigilant Partners in Safety A Systematic Review. Med Care Res Rev 67: 119-148. doi:10.1177/ 1077558709342254. PubMed: 19671916.
8. Longtin Y, Sax H, Leape LL, Sheridan SE, Donaldson L et al. (2010) Patient participation: current knowledge and applicability to patient safety. Mayo Clinic Proceedings. Mayo Foundation. p 53. PubMed: 20042562
9. Pronovost PJ, Goeschel CA, Marsteller JA, Sexton JB, Pham JC et al. (2009) Framework for patient safety research and improvement. Circulation 119: 330-337. doi:10.1161/CIRCULATIONAHA.107.729848. PubMed: 19153284.
10. Guijarro PM, Andres JMA, Mira JJ, Perdiguero E, Aibar C (2010) Adverse events in hospitals: the patient's point of view. Qual Saf Health Care 19: 144-147. doi:10.1136/qshc.2007.025585. PubMed: 20351163.
11. Davis R (2008) Patient Involvement in Safety - the patient as part of the safety solution. How can patients be involved? NHS Evidence - Patient and Public Involvement, NHS Evidence - Health Information Resources (formerly National Library for Health).
12. Davis RE, Jacklin R, Sevdalis N, Vincent CA (2007) Patient involvement in patient safety: what factors influence patient participation and engagement? Health Expect 10: 259-267. doi:10.1111/j.1369-7625.2007.00450.x. PubMed: 17678514.
13. Davis RE, Koutantji M, Vincent CA (2008) How willing are patients to question healthcare staff on issues related to the quality and safety of their healthcare? An exploratory study. Qual Saf Health Care 17: 90-96. doi:10.1097/01.QMH.0000308641.89602.f8. PubMed: 18385400.
14. the Joint Commission Speak Up Initiatives [cited 2013 23/03/2013]. Available: http://www.jointcommission.org/speakup.aspx.
15. National Patient Safety Agency. Please Ask 2010. Available: http://www.npsa.nhs.uk/pleaseask/.
16. Safer Healthcare Now! Stop Infections Now! [cited 2013 23/03/2013]. Available: http://www.saferhealthcarenow.ca/EN/shnNewsletter/Pages/%E2%80%9CYou- can-ask-me-to-clean-my-hands%E2%80%9D-buttons- help-to-reduce-healthcare- infections.aspx.
17. National Patient Safety Agency Clean your hands campaign [cited 2013 23/03/2013]. Available: http://www.npsa.nhs.uk/cleanyourhands/.
18. Luszczynska A, Gunson KSE (2007) Predictors of asking medical personnel about handwashing: The moderating role of patients' age and MRSA infection status. Patient Educ Couns 68: 79-85. doi:10.1016/j.pec.2007.05.008. PubMed: 17582725.
19. McGuckin M, Waterman R, Shubin A (2006) Consumer attitudes about health care-acquired infections and hand hygiene. Am J Med Qual 21: 342-346. doi:10.1177/1062860606291328. PubMed: 16973951.
20. Blendon RJ, DesRoches CM, Brodie M, Benson JM, Rosen AB et al. (2002) Views of practicing physicians and the public on medical errors. N Engl J Med 347: 1933-1940. doi:10.1056/NEJMsa022151. PubMed: 12477944.
21. Entwistle VA, Quick O (2006) Trust in the context of patient safety problems. J Health Organ Manag 20: 397-416. doi:10.1108/14777260610701786. PubMed: 17087402.
22. Entwistle VA (2007) Differing perspectives on patient involvement in patient safety. Qual Saf Health Care 16: 82-83. doi:10.1136/qshc.2006.020362. PubMed: 17403749.
23. Entwistle VA, Mello MM, Brennan TA (2005) Advising patients about patient safety: current initiatives risk shifting responsibility. Joint Comm J Qual Patient Saf 31: 483-494. PubMed: 16255326.
24. Lyons M (2007) Should patients have a role in patient safety? A safety engineering view. Qual Saf Health Care 16: 140-142. doi:10.1136/qshc.2006. 018861. PubMed: 17403763.
25. Runciman B, Merry A, Walton M (2007) Safety and ethics in healthcare: a guide to getting it right. Ashgate Publishing Company.
26. Hibbard JH, Peters E, Slovic P, Tusler M (2005) Can patients be part of the solution? Views on their role in preventing medical errors. Med Care Res Rev 62: 601-616. doi:10.1177/1077558705279313. PubMed: 16177460.
27. Rainey H, Ehrich K, Mackintosh N, Sandall J (2013) The role of patients and their relatives in 'speaking up'about their own safety - a qualitative study of acute illness. Health Expectations.
28. Waterman AD, Gallagher TH, Garbutt J, Waterman BM, Fraser V et al. (2006) Brief report: Hospitalized patients' attitudes about and participation in error prevention. J Gen Intern Med 21: 367-370. doi: 10.1111/j.1525-1497.2005.00385. x. PubMed: 16686815.
29. Davis RE, Sevdalis N, Vincent CA (2011) Patient involvement in patient safety: How willing are patients to participate? BMJ Quality Saf 20: 108-114. doi:10.1136/bmjqs.2010.041871. PubMed: 21228083.
30. Davis R, Anderson O, Vincent C, Miles K, Sevdalis N (2011) Predictors of hospitalized patients' intentions to prevent healthcare harm: A cross sectional survey. Int J Nurs Stud.
31. Schwappach DLB, Wernli M (2010) Medication errors in chemotherapy: incidence, types and involvement of patients in prevention. A review of the literature. Eur J Cancer Care 19: 285-292. doi:10.1111/j.1365-2354.2009.01127.x.
32. Entwistle VA, McCaughan D, Watt IS, Birks Y, Hall J et al. (2010) Speaking up about safety concerns: multi-setting qualitative study of patients' views and experiences. Qual Saf Health Care 19: 1-7. doi: 10.1136/qshc.2007. 026229. PubMed: 21127092.
33. Nau DP, Erickson SR (2005) Medication safety: patients' experiences, beliefs, and behaviors. J of the American Pharmacists Association 45: 452-457. doi:10.1331/1544345054475441. PubMed: 16128500.
34. Thompson AG (2007) The meaning of patient involvement and participation in health care consultations: a taxonomy. Soc Sci Med, 64: 1297-310
35. (1982) 64: 1297. PubMed: 17174016
36. Hovey RB, Morck A, Nettleton S, Robin S, Bullis D et al. (2010) Partners in our care: patient safety from a patient perspective. Qual Saf Health Care 19: 1-4. doi:10.1136/qshc.2007.026229. PubMed: 21127101.
37. Hovey RB, Dvorak ML, Burton T, Worsham S, Padilla J et al. (2011) Patient safety: A consumer's perspective. Qual Health Res 21: 662-672. doi:10.1177/1049732311399779. PubMed: 21343433.
38. Rathert C, Brandt J, Williams ES (2011) Putting the 'patient'in patient safety: a qualitative study of consumer experiences. Health Expect.
39. Rathert C, Huddleston N, Pak Y (2011) Acute care patients discuss the patient role in patient safety. Health Care Manag Rev 36: 134-144. doi:10.1097/HMR.0b013e318208cd31. PubMed: 21317659.
40. Delbanco T, Bell SK (2007) Guilty, afraid, and alone-struggling with medical error. N Engl J Med 357: 1682-1683. doi:10.1056/NEJMp078104. PubMed: 17960011.
41. Schwappach DLB, Frank O, Davis RE (2012) A vignette study to examine health care professionals' attitudes towards patient involvement in error prevention. J Eval Clin Practice.
42. Schwappach DLB, Frank O, Koppenberg J, Müller B, Wasserfallen J-B (2011) Patients' and healthcare workers' perceptions of a patient safety advisory. Int J Qual Health Care 23: 713-720. doi:10.1093/intqhc/mzr062. PubMed: 21937585.
43. Schwappach DLB, Hochreutener M-A, Wernli M (2010) Oncology nurses' perceptions about involving patients in the prevention of chemotherapy administration errors. Oncology nursing Forum Onc Nurs Society. pp. 84-91. PubMed: 20189914.
44. Davis RE, Sevdalis N, Vincent CA (2012) Patient Involvement in Patient Safety: The Health-Care Professional's Perspective. Journal of Patient Safety. PubMed: 23007240
45. Davis R, Vincent C, Sud A, Noel S, Moss R et al. (2012) Consent to transfusion: patients' and healthcare professionals' attitudes towards the provision of blood transfusion information. Transfus Med, 22: 167-72. PubMed: 22520031.
46. Davis RE, Pinto A, Sevdalis N, Vincent C, Massey R et al. (2011) Patients' and health care professionals' attitudes towards the PINK patient safety video. J Eval Clin Practice, 18: 848-53. PubMed: 21672090.
47. Charmaz K (2006) Constructing Grounded Theory. A practical guide through qualitative analysis. London: Sage Publication Ltd.
48. NVIVO qualitative data analysis software (2012) SR International Pty Ltd. Version 10.
49. Richards L (2005) Handling Qualitative Data: A Practical Guide. London: Sage Publications.
50. Silverman D (2006) Interpreting Qualitative Data. London: Sage Publications Ltd.
51. Schwappach DLB, Wernli M (2010) Chemotherapy patients' perceptions of drug administration safety. J Clin Oncol 28: 2896-2901. doi:10.1200/JCO.2009.27. 6626. PubMed: 20458055.
52. Schwappach DLB, Wernli M (2011) Barriers and facilitators to chemotherapy patients' engagement in medical error prevention. Ann Oncol 22: 424-430. doi:10.1093/annonc/mdq346. PubMed: 20616197.
53. Weingart SN, Simchowitz B, Kahlert E, Morway L, Spencer J et al. (2009) The You CAN campaign: teamwork training for patients and families in ambulatory oncology. Joint Comm J Qual Patient Saf 35: 63-71.
54. Independent Inquiry into care provided by Mid Staffordshire NHS Foundation Trust January 2005-2009 (2010)
55. Doherty C, Stavropoulou C (2012) Patients' willingness and ability to participate actively in the reduction of clinical errors: A systematic literature review. Soc Sci Med 75: 257-263. doi:10.1016/j.socscimed.2012.02.056. PubMed: 22541799.
56. Frosch DL, May SG, Rendle KAS, Tietbohl C, Elwyn G (2012) Authoritarian Physicians And Patients' Fear Of Being Labeled 'Difficult'Among Key Obstacles To Shared Decision Making. Health Aff 31: 1030-1038. doi:10.1377/hlthaff.2011. 0576.
57. Rathert C, May DR, Williams ES (2011) Beyond service quality: The mediating role of patient safety perceptions in the patient experience- satisfaction relationship. Health Care Manag Rev 36: 359-368. doi:10.1097/HMR.0b013e318219cda1. PubMed: 21691210.
58. Fiscella K, Meldrum S, Franks P, Shields CG, Duberstein P et al. (2004) Patient trust: is it related to patient-centered behavior of primary care physicians? Med Care 42: 1049-1055. doi:10.1097/00005650-200411000-00003. PubMed: 15586831.
59. Thom DH, Campbell B (1997) Patient-physician trust: an exploratory study. J Fam Practice 44: 169-176. PubMed: 9040520.
60. Chaitin E, Stiller R, Jacobs S, Hershl J, Grogen T et al. (2003) Physician-patient relationship in the intensive care unit: Erosion of the sacred trust? Crit Care Med 31: S367-S372. doi:10.1097/01.CCM.0000048629.32625.5D. PubMed: 12771585.
61. Kraetschmer N, Sharpe N, Urowitz S, Deber RB (2004) How does trust affect patient preferences for participation in decision-making? Health Expect 7: 317-326. doi:10.1111/j.1369-7625.2004.00296.x. PubMed: 15544684.
62. Thiede M (2005) Information and access to health care: is there a role for trust? Soc Sci Med 61: 1452-1462. doi:10.1016/j.socscimed.2004.11.076. PubMed: 16005780.
63. Salkeld G, Solomon M, Short L, Butow PN (2004) A matter of trust-patient's views on decision-making in colorectal cancer. Health Expect 7: 104-114. doi:10.1111/j.1369-7625.2004.00257.x. PubMed: 15117385.
64. Seetharamu N, Iqbal U, Weiner JS (2007) Determinants of trust in the patient-oncologist relationship. Palliat Support Care 5: 405-409. PubMed: 18044418.
65. Lee Y-Y, Lin JL (2009) The effects of trust in physician on self-efficacy, adherence and diabetes outcomes. Soc Sci Med 68: 1060-1068. doi:10.1016/j.socscimed.2008.12.033. PubMed: 19162386.
66. Ovretveit J (2009) The contribution of new social science research to patient safety. Soc Sci Med 69: 1780-1783. doi:10.1016/j.socscimed.2009.09.053. PubMed: 19853338.
67. Hor S-y, Godbold N, Collier A, Iedema R (2013) Finding the patient in patient safety. Health, 17: 567-83. PubMed: 23349385.
68. Doyle C, Lennox L, Bell D (2013) A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open 3.
69. Entwistle V, Firnigl MR, Francis J, Kinghorn P (2011) Which experiences of health care delivery matter to service users and why? A critical interpretive synthesis and conceptual map. J Health Serv Res Policy.
70. Report of the Mid-Staffordshire NHS Foundation Trust Public Inquiry (2013) olume 1: Analysis of evidence and lessons learned (part 1).
71. Patients First and Foremost (2013). The Initial Government Response to the Report of The Mid Staffordshire NHS Foundation Trust Public Inquiry. DOH Publications.
72. Thornton S (2013) [cited 2013 Accessed 08.04.2013]. Available: http://www.health.org.uk/blog/government-s-response-to-francis-engaged-patients- still-not-in-the-mainstream/.