Service user and family carer involvement in mental health care: Divergent views

Community Mental Health Journal

Volumn 49, Issue 6, 2013, Pages 675-685

  Tambuyzer, Else ^a   Van Audenhove, Chantal ^a  

^a KU Leuven University   (Belgium)

Author keywords

Family carer involvement; Service user involvement; Stakeholder perspectives

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; FEMALE; HUMAN; INTERVIEW; MALE; MENTAL DISEASE; MENTAL HEALTH SERVICE; MIDDLE AGED; ORGANIZATION AND MANAGEMENT; PATIENT PARTICIPATION; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; ATTITUDE TO HEALTH; CAREGIVERS; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MENTAL DISORDERS; MENTAL HEALTH SERVICES; MIDDLE AGED; PATIENT PARTICIPATION; QUESTIONNAIRES; YOUNG ADULT;

EID: 84890796579     PISSN: 00103853     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10597-012-9574-2     Document Type: Article

References (42)

1. Anthony, P.; & Crawford, P. (2000). Service user involvement in care planning: The mental health nurse's perspective. Journal of Psychiatric and Mental Health Nursing, 7, 425-434.
2. Beresford, P. (2007). User involvement, research and health inequalities: Developing new directions. Health and Social Care in the Community, 15, 306-312.
3. Bleyen, K.; Vertommen, H.; & Van Audenhove, C. (1998). A negotiation approach to systematic treatment selection: An evaluation of its impact on the initial phase of psychotherapy. European Journal of Psychological Assessment, 14, 14-25.
4. Cawston, P. G.; & Barbour, R. S. (2003). Clients or citizens? Some considerations for primary care organisations. British Journal of General Practice, 53, 716-722.
5. Cleary, M.; Freeman, A.; & Walter, G. (2006). Carer participation in mental health service delivery. International Journal of Mental Health Nursing, 15, 189-194.
6. Connor, H. (1999). Collaboration or chaos: A consumer perspective. Australian and New Zealand Journal of Mental Health Nursing, 8, 79-85.
7. De Groof, M.; Bianchi, J.; Moulin, D.; Taeymans, S.; Enejari, K.; Wirtgen, M.; et al. (2010). Ithaca: Een monitoring van de mensenrechten en algemene gezondheidszorg in België. Leuven: LUCAS.
8. de Haan, L.; van Raaij, B.; van den Berg, R.; Jager, M.; Houweling, P.; Stockmann, M.; et al. (2001). Preferences for treatment during a first psychotic episode. European Psychiatry, 16, 83-89.
9. de Haes, H. C. J. M. (2006). Dilemmas in patient centeredness and shared decision making: A case for vulnerability. Patient Education and Counseling, 62, 291-298.
10. Felton, A.; & Stickley, T. (2004). Pedagogy, power and service user involvement. Journal of Psychiatric and Mental Health Nursing, 11, 89.
11. Florin, J.; Ehrenberg, A.; & Ehnfors, M. (2006). Patient participation in clinical decision-making in nursing: A comparative study of nurses' and patients' perceptions. Journal of Clinical Nursing, 15, 1498-1508.
12. Frisby, R. (2001). User involvement in mental health branch education: Client review presentations. Nurse Education Today, 21, 663-669.
13. Glasby, J.; Lester, H.; Briscoe, J.; Clark, M.; Rose, S.; & England, L. (2003). User involvement. Cases for change. Leeds: National Institute for Mental Health in England.
14. Gordon, S. (2005). The role of the consumer in the leadership and management of mental health services. Australasian Psychiatry, 13, 362.
15. Hickey, G.; & Kipping, C. J. (1998). Exploring the concept of user involvement in mental health through a participation continuum. Journal of Clinical Nursing, 7, 83-88.
16. Huyghe, L. (2008). Nota CGV 2012/208. Rijksdienst voor Ziekte- en Invaliditeitsuitkering [National Institute for Health and Disability Insurance].
17. Huyghe, L. (2009). Nota CGV 2012/228. Rijksdienst voor Ziekte- en Invaliditeitsuitkering [National Institute for Health and Disability Insurance].
18. Kent, H.; & Read, J. (1998). Measuring consumer participation in mental health services: Are attitudes related to professional orientation? International Journal of Social Psychiatry, 44, 295.
19. Kiesler, D. J.; & Auerbach, S. M. (2006). Optimal matches of patient preferences for information, decision-making and interpersonal behavior: Evidence, models and interventions. Patient Education and Counseling, 61, 319-341.
20. Kwaliteitsinstituut voor de gezondheidszorg CBO, Provinciaal Patiënten/Consumenten Platform Utrecht, & Nederlandse Patiënten Consumenten Federatie (2006). Patiënten betrekken bij de zorg in het ziekenhuis. Een handboek [Involving patients in hospital care. A manual]. http://www.cbo.nl/Downloads/83/pp%20handboek%20-%20versie%201.pdf [On-line].
21. Lammers, J.; & Happell, B. (2003). Consumer participation in mental health services: Looking from a consumer perspective. Journal of Psychiatric and Mental Health Nursing, 10, 385.
22. Linhorst, D. M.; Eckert, A.; & Hamilton, G. (2005). Promoting participation in organization decision making by clients with severe mental illness. Social Work, 50, 21-30.
23. Lloyd, C.; & King, R. (2003). Consumer and carer participation in mental health services. Australasian Psychiatry, 11, 180-184.
24. McCann, T. V.; Baird, J.; Clark, E.; & Lu, S. (2008). Mental health professionals' attitudes towards consumer participation in inpatient units. Journal of Psychiatric and Mental Health Nursing, 15, 10-16.
25. Nilsen, E. S.; Myrhaug, H. T.; Johansen, M.; Oliver, S.; & Oxman, A. D. (2006). Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database of Systematic Reviews: Protocols.
26. Pagett, J. (1994). Listening to user views: An out patient user panel in Llanelli and Dinefwr NHS trust. CCUFLINK: The bulletin of the Community Consultation and User Feedback Unit, 4, 9.
27. Pilgrim, D.; & Waldron, L. (1998). User involvement in mental health service development: How far can it go? Journal of Mental Health, 7, 95.
28. Rose, D.; Fleischmann, P.; & Wykes, T. (2008). What are mental health service users' priorities for research in the UK? Journal of Mental Health, 17, 520-530.
29. Round, A.; Bray, C.; Polak, S.; & Graham, L. (1995). Divergent views - Patient, carer and staff perceptions of diagnosis and reasons for psychiatric admission to a district general hospital. International Journal of Social Psychiatry, 41, 210-216.
30. Shepherd, G.; Murray, A.; & Muijen, M. (1994). Relative values: The differing views of users, family carers and professionals on services for people with schizophrenia in the community. London: The Sainsbury Centre for Mental Health.
31. Simpson, E. L.; & House, A. (2003). User and carer involvement in mental health services: From rhetoric to science. British Journal of Psychiatry, 183, 89-91.
32. Storm, M.; & Davidson, L. (2010). Inpatients' and providers' experiences with user involvement in inpatient care. Psychiatric Quarterly, 81, 111-125.
33. Storm, M.; Hausken, K.; & Mikkelsen, A. (2010). User involvement in in-patient mental health services: Operationalisation, empirical testing, and validation. Journal of Clinical Nursing, 19, 1897-1907.
34. Stringer, B.; Van Meijel, B.; De Vree, W.; & Van der Bijl, J. (2008). User involvement in mental health care: The role of nurses. A literature review. Journal of Psychiatric and Mental Health Nursing, 15, 678-683.
35. Tambuyzer, E. (2012). Eén verhaal, drie visies. Patiënten, familieleden en hulpverleners over participatie in de geestelijke gezondheidszorg [One story, three visions. Service users, family members and service providers about involvement in mental health care]. Unpublished doctoral dissertation, KU Leuven, Belgium.
36. Tambuyzer, E.; Pieters, G.; & Van Audenhove, Ch. (2011). Patient involvement in mental health care: One size does not fit all. Health Expectations. doi: 10.1111/j.1369-7625.2011.00743-x.
37. Van Audenhove, C.; Van Humbeeck, G.; Spruytte, N.; Storms, G.; De Hert, M.; Heyrman, J.; et al. (2001). The Care Perception Questionnaire. An instrument for the assessment of the perspective of patients, family members, and professionals on psychiatric rehabilitation. European Journal of Psychological Assessment, 17, 120-129.
38. Van Audenhove, C.; & Vertommen, H. (2000). A negotiation approach to intake and treatment choice. Journal of Psychotherapy Integration, 10, 287-299.
39. van de Bovenkamp, H. M.; & Trappenburg, M. J. (2009). Reconsidering patient participation in guideline development. Health Care Analysis, 17, 198-216.
40. Van Weeghel, J.; Van Audenhove, C.; Colucci, M.; Garanis-Papadatos, T.; Liégois, A.; McCulloch, A.; et al. (2005). The components of good community care for people with severe mental illnesses: Views of stakeholders in five European countries. Psychiatric Rehabilitation Journal, 28, 274-281.
41. Ward, P. R.; Barber, R.; Armitage, C. J.; Boote, J. D.; Cooper, C. L.; & Jones, G. (2010). Critical perspectives on 'consumer involvement' in health research: Epistemological dissonance and the know-do gap. Journal of Sociology, 46, 63-82.
42. Warne, T.; & McAndrew, S. (2007). Passive patient or engaged expert? Using a Ptolemaic approach to enhance mental health nurse education and practice. International Journal of Mental Health Nursing, 16, 224-229.