User involvement in in-patient mental health services: Operationalisation, empirical testing, and validation

Journal of Clinical Nursing

Volumn 19, Issue 13-14, 2010, Pages 1897-1907

  Storm, Marianne ^a   Hausken, Kjell ^a   Mikkelsen, Aslaug ^a  

^a UNIVERSITY OF STAVANGER   (Norway)

Author keywords

Factor analysis; Mental health services; Scale development; Service user involvement; User oriented practices

Indexed keywords

ADULT; AGED; ARTICLE; FACTORIAL ANALYSIS; FEMALE; HEALTH CARE SURVEY; HOSPITAL PATIENT; HUMAN; MALE; MENTAL HEALTH SERVICE; METHODOLOGY; MIDDLE AGED; NORWAY; PATIENT PARTICIPATION; QUESTIONNAIRE;

ADULT; AGED; FACTOR ANALYSIS, STATISTICAL; FEMALE; HEALTH CARE SURVEYS; HUMANS; INPATIENTS; MALE; MENTAL HEALTH SERVICES; MIDDLE AGED; NORWAY; PATIENT PARTICIPATION; QUESTIONNAIRES; YOUNG ADULT;

EID: 77955969300     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2009.03036.x     Document Type: Article

References (52)

1. Andreassen TA. Brukermedvirkning i helsetjenesten: arbeid med brukerutvalg og andre medvirkningsprosesser 2005, Gyldendal akademisk, Oslo
2. Anthony P, Crawford P. Service user involvement in care planning: the mental health nurse's perspective. Journal of Psychiatric and Mental Health Nursing 2000, 7:425-434.
3. Bee P, Playle J, Lovell K, Barnes P, Gray R, Keeley P. Service user views and expectations of UK-registered mental health nurses: a systematic review of empirical research. International Journal of Nursing Studies 2008, 45:442-457.
4. Beresford P. Developing the theoretical basis for service user/survivor-led research and equal involvement in research. Epidemiologia e Psichiatria Sociale 2005, 14:4-9.
5. Cahill J. Patient participation: a concept analysis. Journal of Advanced Nursing 1996, 24:561-571.
6. Chamberlin J. User/consumer involvement in mental health service delivery. Epidemiologia e Psichiatria Sociale 2005, 14:10-14.
7. Coffey M, Hewitt J. You don't talk about the voices': voice hearers and community mental health nurses talk about responding to voice hearing experiences. Journal of Clinical Nursing 2008, http://dx.doi.org/10.1111/j.1365-2702.2007.02185.x, doi:10.1111/j.1365-2702.2007.02185.x
8. Crawford MJ, Rutter D. Are the views of members of mental health user groups representative of those of 'ordinary' patients? A cross-sectional survey of service users and providers. Journal of Mental Health 2004, 13:561-568.
9. Crawford MJ, Aldridge T, Bhui K, Rutter D, Manley C, Weaver T, Tyrer P, Fulop N. User involvement in the planning and delivery of mental health services: a cross-sectional survey of service users and providers. Acta Psychiatrica Scandinavica 2003, 107:410-414.
10. DeVellis RF. Scale development. Theory and Application 2003, Sage Publications, Thousand Oaks
11. Diamond B, Parkin G, Morris K, Bettinis J, Bettesworth C. User involvement: substance or spin? Journal of Mental Health 2003, 12:613-626.
12. Eklund L. From Citizen Participation Towards Community Empowerment. An analysis on health promotion from citizen perspective 1999, Academic Dissertation, University of Tampere, Tampere
13. Elwyn G, Edwards A, Mowle S, Wensing M, Wilkinson C, Kinnersley P, Grol R. Measuring the involvement of patients in shared decision-making: a systematic review of instruments. Patient Education and Counseling 2001, 43:5-22.
14. Gibson C. A concept analysis of empowerment. Journal of Advanced Nursing 1991, 16:354-361.
15. Goodwin V, Happell B. Conflicting agendas between consumers and carers: the perspective of carers and nurses. International Journal of Mental Health Nursing 2006, 15:135-143.
16. Hansen T, Hatling T, Lindal E, Ruud T. Discrepancies between patients and professionals in the assessment of patient needs: a quantitative study of Norwegian mental health care. Journal of Advanced Nursing 2002, 39:554-562.
17. Hansen T, Hatling T, Lindal E, Ruud T. The user perspective: respected or rejected in mental health care? Journal of Psychiatric and Mental Health Nursing 2004, 11:292-297.
18. Happell B, Roper C. The myth of representation: the case for consumer leadership. Australian e-Journal for the Advancement of Mental Health (AeJAMH) 2006, 5:1-8.
19. Hickey G, Kipping C. Exploring the concept of user involvement in mental health through a participation continuum. Journal of Clinical Nursing 1998, 7:83-88.
20. Imle MA, Atwood JA. Retaining qualitative validity while gaining quantitative reliability and validity: development of the transition to parenthood concerns Scale. Advances in Nursing Science 1988, 11:61-75.
21. Kent H, Read J. Measuring consumer participation in mental health services: are attitudes related to professional orientation? International Journal of Social Psychiatry 1998, 44:295-310.
22. Kvale S. Det kvalitative forskningsintervju 1997, ad Notam Gyldendal, Oslo
23. Lakeman R. Family and carer participation in mental health care: perspectives of consumers and carers in hospital and home care settings. Journal of Psychiatric and Mental Health Nursing 2008, 15:203-211.
24. Lammers J, Happell B. Consumer participation in mental health services: looking from a consumer perspective. Journal of Psychiatric and Mental Health Nursing 2003, 10:385-392.
25. Lammers J, Happell B. Mental health reforms and their impact on consumer and carer participation: a perspective from Victoria, Australia. Issues in Mental Health Nursing 2004a, 25:261-276.
26. Lammers J, Happell B. Research involving mental health consumers and carers: a reference group approach. International Journal of Mental Health Nursing 2004b, 13:262-266.
27. Latvala E. Developing and testing methods for improving patient-oriented mental health care. Journal of Psychiatric and Mental Health Nursing 2002, 9:41-47.
28. Latvala E, Saranto K, Pekkala E. Developing and testing instruments for improving cooperation and patient's participation in mental health care. Journal of Psychiatric and Mental Health Nursing 2004, 11:614-619.
29. Leske JS. Internal psychometric properties of the Critical Care Family Needs Inventory. Heart and Lung 1991, 20:236-244.
30. Lynn MR. Determination and Quantification of Content Validity. Nursing Research 1985, 35:382-385.
31. Morgan DL. Focus Groups As Qualitative Research 1997, Sage Publications, Thousand Oaks
32. '...And it's going to get better'. National Strategy for Quality Improvement in Health and Social Services (2005-2015). For Leaders and Providers 2005, http://www.shdir.no, Norwegian Directorate of Health, Helsedirektoratet, Oslo, Available at:
33. 1999, http://www.lovdata.no, Norwegian Mental Health Act, Ministry of Health and Care Services, Oslo,
34. Openness and Wholeness: Mental Health Problems and Service Provision 1996, http://www.regjeringen.no, Norwegian Ministry of Health and Care Services, St meld 25 (1996-1997), Sosial-oghelsedepartementet, Oslo, Available at:
35. Om Opptrappingsplan for Psykisk Helse 1999-2006 1997, http://www.regjeringen.no, Norwegian Ministry of Health and Care Services, St prp nr 63 (1997-1998), Sosial-oghelsedepartementet, Oslo, Available at:
36. Values for the Norwegian Health Services 1999, http://www.regjeringen.no, Norwegian Ministry of Health and Care Services, St meld nr 26 (1999-2000), Sosial-oghelsedepartementet, Oslo, Available at:
37. 2001, http://www.lovdata.no, Norwegian Patient Rights Act, Ministry of Health and Care Services, Oslo,
38. O'Connell M, Tondora J, Croog G, Evans A, Davidson L. From rhetoric to routine: assessing perceptions of recovery-oriented practices in a state mental health and addiction system. Psychiatric Rehabilitation Journal 2005, 25:378-386.
39. Ocasio W. Towards an attention-based view of the firm. Strategic Management Journal 1997, 18:187-206.
40. Pett MA, Lackey NR, Sullivan JJ. Making Sense of Factor Analysis. The Use of Factor Analysis for Instrument Development in Health Care Research 2003, Sage Publications, London
41. Polit DE, Hungler BP. Nursing Research Principles and Methods 1999, Lippincott, Philadelphia
42. Repper J, Breeze J. User and carer involvement in the training and education of health professionals. A review of the literature. International Journal of Nursing Studies 2007, 44:511-519.
43. Rifkin SB. A framework linking community empowerment and health equity: it is a matter of CHOICE. Journal of Health, Population and Nutrition 2003, 21:168-180.
44. Roper C, Happell B. Reflections without shame - reflection without blame: towards a more collaborative understanding between mental health consumers and nurses. Journal of Psychiatric and Mental Health Nursing 2007, 14:85-91.
45. Smith E, Ross F, Donovan S, Manthorp J, Brearley S, Sitzia J, Beresford P. Service user involvement in nursing, midwifery and health visiting research: a review of evidence and practice. International Journal of Nursing Studies 2008, 45:298-315.
46. Soffe J, Read J, Frude N. A survey of clinical psychologists' views regarding service user involvement in mental health services. Journal of Mental Health 2004, 13:583-592.
47. Psychiatry for Adults, Institutions. Man-Years by Institutions 2005-2007 2007, http://statbank.ssb.no//statistikkbanken/default_fr.asp?PLanguage=1, Statistics Norway, http://statbank.ssb.no//statistikkbanken/default_fr.asp?PLanguage=1
48. Summers A. Involving users in the development of mental health services: a study of psychiatrists' views. Journal of Mental Health 2003, 12:161-174.
49. Telford R, Faulkner A. Learning about service user involvement in mental health research. Journal of Mental Health 2004, 13:549-559.
50. Walker E, Dewar BJ. How do we facilitate carers' involvement in decision-making? Journal of Advanced Nursing 2001, 34:329-337.
51. Mental Health: Facing the Challenges, Building Solutions. Report from the WHO European Ministerial Conference 2005, http://www.euro.who.int, WHO,
52. Yukl G. Leadership in Organizations 2006, Pearson Prentice Hall, New Jersey