Psychological therapies for people with intellectual disabilities: Comments on a Matrix of evidence for interventions in challenging behaviour

Journal of Intellectual Disability Research

Volumn 58, Issue 2, 2014, Pages 172-188

  Campbell, M ^a   Robertson, A ^b   Jahoda, A ^c  

^a UNIVERSITY OF ST ANDREWS   (United Kingdom)

^b Lynebank Hospital   (United Kingdom)

^c UNIVERSITY OF GLASGOW   (United Kingdom)

Author keywords

Evidence; Intellectual disabilities; Interventions; Psychological therapies

Indexed keywords

ARTICLE; BEHAVIOR THERAPY; CLINICAL EFFECTIVENESS; COGNITIVE THERAPY; EVIDENCE BASED MEDICINE; HUMAN; INTELLECTUAL IMPAIRMENT; MENTAL DEFICIENCY; PEER REVIEW; PSYCHOTHERAPY; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL (TOPIC); SYSTEMATIC REVIEW; TREATMENT OUTCOME;

EVIDENCE; INTELLECTUAL DISABILITIES; INTERVENTIONS; PSYCHOLOGICAL THERAPIES;

EVIDENCE-BASED PRACTICE; HUMANS; INTELLECTUAL DISABILITY; PSYCHOTHERAPY; TREATMENT OUTCOME;

EID: 84890570452     PISSN: 09642633     EISSN: 13652788     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2012.01646.x     Document Type: Article

References (105)

1. Ahmed Z., Fraser W., Kerr M. P., Kiernan C., Emerson E., Robertson J. etal. (2000) Reducing antipsychotic medication in people with a learning disability. British Journal of Psychiatry 176, 42-46.
2. Allen D. (1999) Success and failure in community placements for people with learning disabilities and challenging behaviour: an analysis of key variables. Journal of Mental Health 8, 307-320.
3. Allen D., Lowe K., Jones E., James W., Doyle T., Andrew J. etal. (2006) Changing the face of challenging behaviour services: the Special Projects Team. British Journal of Learning Disabilities 34, 195-242.
4. Anderson G. & Kazantzis N. (2008) Social problem-solving skills training for adults with mild intellectual disability: a multiple case study. Behaviour Change 25, 97-108.
5. Antonacci D. J., Manuel C. & Davis E. (2008) Diagnosis and treatment of aggression in individuals with developmental disabilities. Psychiatry Quarterly 79, 225-247.
6. APA Presidential Task Force on Evidence-Based Practice (2006) Evidence-based practice in psychology. American Psychologist 61, 271-285.
7. Ball T. & Bush A. (1998) Clinical Practice Guidelines - Psychological Interventions for Severely Challenging Behaviours in People with Learning Disabilities. British Psychological Society, Leicester.
8. Beail N. (1998) Psychoanalytic psychotherapy with men with intellectual disabilities: a preliminary outcome study. British Journal of Medical Psychology 71, 1-11.
9. Beail N. & Warden S. (1996) Evaluation of a psychodynamic psychotherapy service for adults with intellectual disabilities: rationale, design and preliminary outcome data. Journal of Applied Research in Intellectual Disabilities 9, 223-228.
10. Bhaumik S., Gangadharan S., Hiremath A. & Russell P. S. S. (2011) Psychological treatments in intellectual disability: the challenges of building a good evidence base. The British Journal Of Psychiatry 198, 428-430.
11. Borthwick-Duffy S. A. (1994) Epidemiology and prevalence of psychopathology in people with mental retardation. Journal of Consulting and Clinical Psychology 62, 17-27.
12. Bower P. & Gilbody S. (2005) Stepped care in psychological therapies: access, effectiveness and efficiency. British Journal of Psychiatry 186, 11-17.
13. British Psychological Society (2004) Challenging Behaviours: Psychological Interventions for Severely Challenging Behaviours Shown by People with Learning Disabilities. British Psychological Society, Leicester.
14. Broadhurst S. & Mansell J. (2006) Organizational and individual factors associated with breakdown of residential placements for people with intellectual disabilities. Journal of Intellectual Disability Research 51, 293-301.
15. Brosnan J. & Healy O. (2011) A review of behavioral interventions for the treatment of aggression in individuals with developmental disabilities. Research in Developmental Disabilities 32, 437-446.
16. Brown M. & Marshall K. (2006) Cognitive behavioural therapy and people with learning disabilities: implications for developing nursing practice. Journal of Psychiatric and Mental Health Nursing 13, 234-241.
17. Brylewski J. & Duggan L. (1999) Antipsychotic medication for challenging behaviour in people with intellectual disability: a systematic review of randomised controlled trials. Journal of Intellectual Disability Research 43, 360-371.
18. Burton M. & Chapman M. J. (2004) Problems of evidence based practice in community based services. Journal of Intellectual Disabilities 8, 56-70.
19. Campbell M. (2007) Staff training and challenging behaviour. Who needs it? Journal of Intellectual Disabilities 11, 143-156.
20. Campbell M. (2010) Workforce development and challenging behaviour: training staff to treat, to manage or to cope? Journal of Intellectual Disabilities 14, 1-12.
21. Carr E. G. & Durand V. M. (1985) Reducing behaviour problem through functional communication training. Journal of Applied Behaviour Analysis 18, 111-126.
22. Carr E. G., Horner R. H., Turnbull A. P., Marquis J. G. & McLaughlin D. (1999) Positive Behavioural Support for People with Developmental Disabilities. A Research Synthesis. American Association on Mental Retardation, Washington.
23. Carr E. G., Dunlap G., Homer R. H., Koegel R. L., Turnbull A. P., Sailor W. etal. (2002) Positive behaviour support: evolution of an applied science. Journal of Positive Behaviour Interventions 4, 4-16.
24. Chadwick O., Kusel Y. & Cuddy M. (2008) Factors associated with the risk of behaviour problems in adolescents with severe intellectual disabilities. Journal of Intellectual Disability Research 52, 864-876.
25. Cooper S.-A. & van der Speck R. (2009) Epidemiology of mental health in adults with intellectual disabilities. Current Opinion in Psychiatry 22, 431-436.
26. Cooper S.-A., Smiley E., Morrison J., Williamson A. & Allan L. (2007) Mental ill-health in adults with intellectual disabilities: prevalence and associated factors. British Journal of Psychiatry 190, 27-35.
27. Cullen C. (2000) A Review of Some Important Issues in Research and Services for People with Learning Disabilities and Challenging Behaviour. Scottish Office, Edinburgh.
28. Department of Health (2007) Services for People with Learning Disabilities and Challenging Behaviour or Mental Health Needs: Report of a Project Group (Revised Edition). Chair: Professor J.L. Mansell. Department of Health, London.
29. Department of Health, Social Services and Public Safety (DHSSPS) (2010) A Strategy for the Development of Psychological Therapy Services. DHSSPS, Belfast.
30. Desai A., Ranceva N. & Sermin N. (2009) An audit on assessment, interventions and training provision in the management of patients with challenging behaviour & learning disability. The British Journal of Developmental Disabilities 55, 49-60.
31. Didden R., Duker P. C. & Korzilius H. (1997) Meta-analytic study on treatment effectiveness for problem behaviors with individuals who have mental retardation. American Journal of Mental Retardation 101, 387-399.
32. Didden R., Korzilius H., van Oorsouw W. & Sturmey P. (2006) Behavioral treatment of challenging behaviors in individuals with mild mental retardation: meta-analysis of single-subject research. American Journal on Mental Retardation 111, 290-298.
33. Durand V. M. (1999) Functional communication training using assistive devices: recruiting natural communities of reinforcement. Journal of Applied Behaviour Analysis 32, 247-267.
34. Durand V. M. & Carr E. G. (1991) Functional communication training to reduce challenging behavior: maintenance and application in new settings. Journal of Applied Behavior Analysis 24, 251-264.
35. Emerson E. (2006) The need for credible evidence: comments on 'on some recent claims for the efficacy of cognitive therapy for people with intellectual disabilities'. Journal of Applied Research in Intellectual Disabilities 19, 121-123.
36. Emerson E. & Enfield S. L. (2011) Challenging Behaviour, 3rd edn. Cambridge University Press, Cambridge.
37. Emerson E., Robertson J., Gregory N., Hatton C., Kessissoglou S., Hallam A. etal. (2000) Treatment and management of challenging behaviours in residential settings. Journal of Applied Research in Intellectual Disabilities 13, 175-213.
38. Feldman M. A., Atkinson L., Foti-Gervais L. & Condillac R. (2004) Formal versus informal interventions for challenging behaviour in persons with intellectual disabilities. Journal of Intellectual Disability Research 48, 60-68.
39. Fisher W. W., Adelinis J. D., Thompson R. H., Wordsell A. S. & Zarcone J. R. (1998) Functional analysis and treatment of destructive behaviour maintained by termination of 'don't' (and symmetrical 'do') requests. Journal of Applied Behaviour Analysis 31, 339-356.
40. Grey I. M. & McLean B. (2007) Service user outcomes of staff training in positive behaviour support using person-focused training: a control group study. Journal of Applied Research in Intellectual Disabilities 20, 6-15.
41. Hagiliassis N., Gulbenkoglu H., Di Marco M., Young S. & Hudson A. (2005) The Anger Management Project: a group intervention for anger in people with physical and multiple disabilities. Journal of Intellectual and Developmental Disability 30, 86-96.
42. Harvey S. T., Boer D., Meyer L. H. & Evans I. M. (2009) Updating a meta-analysis of intervention research with challenging behaviour: treatment validity and standards of practice. Journal of Intellectual and Developmental Disability 34, 67-80.
43. Hassiotis A. & Hall I. (2008) Behavioural and cognitive behavioural interventions for outwardly-directed aggressive behaviour in people with learning disabilities. Cochrane Database Systematic Review (3), CD003406.
44. Hassiotis A. & Sturmey P. (2010) Randomised controlled trials in intellectual disabilities and challenging behaviours - current practice and future challenges. European Psychiatric Review 3, 39-42.
45. Hassiotis A., Robotham D., Canagasabey R. R., Langridge D., Blizard R., Murad S. etal. (2009) Randomized, single-blind, controlled trial of a specialist behavior therapy team for challenging behavior in adults with intellectual disabilities. American Journal of Psychiatry 166, 1278-1285.
46. Hassiotis A., Canagasabey A., Robotham D., Marston L., Romeo R. & King M. (2011) Applied behaviour analysis and standard treatment in intellectual disability: 2-year outcomes. British Journal of Psychiatry 198, 490-491.
47. Health Evidence Bulletins Wales (2001) Leaning Disabilities (Intellectual Disability). National Assembly for Wales, Cardiff.
48. Healthcare Commission (2007a) Investigation into the Service for People with Learning Disabilities Provided by Sutton and Merton Primary Care Trust. Care Quality Commission, Newcastle.
49. Healthcare Commission (2007b) A Life like No Other. A National Audit of Specialist Inpatient Healthcare Services for People with Learning Difficulties in England. Care Quality Commission, Newcastle.
50. Hudson A. M., Mathews J. M., Gavidia-Payne S. T., Cameron C. A., Mildon R. L., Radler G. A. etal. (2003) Evaluation of an intervention system for parents of children with intellectual disability and challenging behaviour. Journal of Intellectual Disability Research 47, 238-249.
51. Irvine M., McCusker C., Coulter H., Corbett H., O'Loan N. & Dempster M. (2011) Belfast HSCT. Queens Univ. Belfast, Public Health Agency, Belfast.
52. Janssen C. G. C., Schuengel C. & Stolk J. (2002) Understanding challenging behaviour in people with severe and profound intellectual disability: a stress-attachment model. Journal of Intellectual Disability Research 46, 445-453.
53. Kiernan C. (1993) Research Into Practice? Implications of Research on the Challenging Behaviour People with Learning Disabilities. British Institute on Learning Disabilities, Kidderminster.
54. Lerman D. C. & Iwata B. A. (1996) Developing a technology for the use of operant extinction in clinical settings: an examination of basic and applied research. Journal of Applied Behaviour Analysis 29, 345-382.
55. Lindsay W. R., Baty F. J., Michie A. M. & Richardson I. (1989) A comparison of anxiety treatments with adults who have moderate and severe mental retardation. Research on Developmental Disabilities 10, 129-140.
56. Lindsay W. R., Michie A. M., Marshall I., Deborah Pitcaithly D., Broxholme S. & Hornsby N. (1996) The effects of behavioural relaxation training on adults with profound multiple disabilities: a preliminary study on treatment effectiveness. British Journal of Learning Disabilities 24, 119-123.
57. Lopata C. (2003) Progressive muscle relaxation and aggression among elementary students with emotional or behavioral disorders. Behavioral Disorders 28, 162-172.
58. Loumidis K. & Hill A. (1997) Training social problem solving skills to reduce maladaptive behaviours in intellectual disability groups: the influence of individual difference factors. Journal of Applied Research in Intellectual Disabilities 10, 217-237.
59. Lowe K., Felce D. & Blackman D. (1996) Challenging behaviour: the effectiveness of specialist support teams. Journal of Intellectual Disability Research 40, 336-347.
60. McCarthy P. & Rose P. (2011) Values-Based Health & Social Care: Beyond Evidence-Based Practice. Sage, London.
61. Mace F. C., Blum N. J., Sierp B. J., Delaney B. A. & Mauk J. E. (2001) Differential response of operant self-injury to pharmacologic versus behavioral treatment. Journal of Developmental Behaviour in Pediatrics 22, 85-91.
62. Macleod F. J., Morrison F., Swanston M. & Lindsay W. (2002) Effects of relocation on the communication and challenging behaviours of four people with severe learning disabilities. British Journal of Learning Disabilities 30, 32-37.
63. Mansell J., McGill P. & Emerson E. (2001) Development and evaluation of innovative residential services for people with severe intellectual disability and serious challenging behaviour. In: International Review of Research in Mental Retardation (ed. L. M. Glidden ), pp. 245-298. Academic Press, San Diego, CA.
64. Michael J. (2008) Healthcare for All: Report of the Independent Inquiry into Access to Healthcare for People with Learning Disabilities. Dept. of Health, London.
65. Moss S. (2000) Psychiatric symptoms in adults with learning disability and challenging behaviour. The British Journal of Psychiatry 177, 452-456.
66. Moss S., Bouras N. & Holt G. (2000) Mental health services for people with intellectual disability: a conceptual framework. Journal of Intellectual Disability Research 44, 97-107.
67. National Institute for Health and Clinical Excellence (NICE) (2011) Psychological Interventions for Common Mental Health Disorders. Available at: http://www.nice.org.uk/guidance/CG123 (retrieved 21 May 2012).
68. NHS Education for Scotland (2011) The Matrix: A Guide to Delivering Evidence-Based Psychological Therapies in Scotland. The Scottish Government, Edinburgh. Available at: http://www.nes.scot.nhs.uk/media/425354/psychology_matrix_2011s.pdf (retrieved 24 May 2012).
69. NHS Executive (1996) Promoting Clinical Effectiveness. A Framework for Action through the NHS. NHS Executive, Leeds.
70. NHS QIS (2004) Outcome of the Scoping of a HTA in Psychotropic Medications and Psychosocial Interventions for People with Challenging Behaviour. National Health Service Quality Improvement Scotland, Edinburgh.
71. O'Reilly M., Edrisinha C., Sigafoos J., Lancioni G. & Andrews A. (2006) Isolating the evocative and abative effects of an establishing operation on challenging behaviour. Behavioral Interventions 21, 195-204.
72. Oliver P. C., Piachaud J., Done J., Regan A., Cooray S. & Tyrer P. (2002) Difficulties in conducting a randomised controlled trial of health service interventions in intellectual disability: implications for evidence-based practice. Journal of Intellectual Disability Research 46, 340-355.
73. Prout H. T. & Nowak-Drabik K. M. (2003) Psychotherapy with persons who have mental retardation: an evaluation of effectiveness. American Journal on Mental Retardation 108, 82-93.
74. Pykett J. (2009) Personalization and de-schooling: uncommon trajectories in contemporary education policy. Critical Social Policy 29, 374-397.
75. Rhodes P., Whatson L., Mora L., Hansson A., Brearley K. & Dikjan J. (2011) Systemic hypothesising for challenging behaviour in intellectual disabilities: a reflecting team approach. Australian and New Zealand Journal of Family Therapy 32, 70-82.
76. Royal College of Psychiatrists (2004) Psychotherapy and Learning Disability. Council Report CR116. Royal College of Psychiatrists, London.
77. Royal College of Psychiatrists/Royal College of General Practitioners (2008) Psychological Therapies in Psychiatry and Primary Care. College Report CR151. Royal College of Psychiatrists, London.
78. Royal College of Psychiatrists/Mencap/Univ. of Birmingham (2006) Guide to Using Psychotropic Medication to Manage Behaviour Problems among Adults with Intellectual Disability. Technical Document. University of Birmingham, Division of Neuroscience, Department of Psychiatry, Birmingham.
79. Royal College of Psychiatrists (RCP), British Psychological Society (BPS) & Royal College of Speech and Language Therapists (RCSLT) (2007) Challenging Behaviour: A Unified Approach. Clinical and Service Guidelines for Supporting People with Learning Disabilities Who Are at Risk of Receiving Abusive or Restrictive Practices. BPS, Leicester.
80. Schilling D. & Poppen R. (1983) Behavioural relaxation training and assessment. Journal of Behaviour Therapy and Experimental Psychiatry 14, 99-107.
81. Scotti J. R., Evans I. M., Meyer L. H. & Walker P. (1991) A meta-analysis of intervention research with problem behaviour: treatment validity and standards of practice. American Journal of Mental Retardation 96, 233-256.
82. Scottish Executive (2001) The Same as You? Scottish Executive, Edinburgh.
83. Scottish Executive (2006a) Changing Lives. Scottish Executive, Edinburgh.
84. Scottish Executive (2006b) Delivering for Mental Health. Scottish Executive, Edinburgh.
85. Scottish Government (2008) Mental Health in Scotland. A Guide to Delivering Evidence Based Psychological Therapies in Scotland 'The Matrix'. Scottish Government/NHS Scotland, Edinburgh.
86. Scottish Government (2011) Scotland Performs: NHSScotland. Available at: http://www.scotland.gov.uk/About/scotPerforms/partnerstories/NHSScotlandperformance (retrieved 23 April 2012).
87. Shogren K. A., Faggella-Luby M. N., Bae S. J. & Wehmeyer M. L. (2004) The effect of choice-making as an intervention for problem behavior: a meta-analysis. Journal of Positive Behavior Interventions 6, 228-237.
88. Sigafoos J. & Kerr M. (1994) Provision of leisure activities for the reduction of challenging behavior. Behavioral Interventions 9, 43-53.
89. Simpson N. J. (1995) Bridging primary and secondary care for people with learning disabilities. Advances in Psychiatric Treatment - Journal of Continuing Professional Development 1, 207-213.
90. Smith R. G., Russo L. & Le D. D. (1999) Distinguishing between extinction and punishment effects of response blocking: a replication. Journal of Applied Behaviour Analysis 32, 367-370.
91. Stalker K. & Hunter S. (1999) Resettlement of People with Learning Disabilities from Scottish Hospitals. Review of Services for People with a Learning Disability. Scottish Executive, Edinburgh.
92. Taylor J., Novaco R., Gillmer B. & Thorne I. (2002) Cognitive-behavioural treatment of anger intensity among offenders with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 15, 151-165.
93. Taylor J., Novaco R., Gillmer B., Robertson A. & Thorne I. (2005) Individual cognitive-behavioural anger treatment for people with mild-borderline intellectual disabilities and histories of aggression: a controlled trial. British Journal of Clinical Psychology 44, 367-382.
94. Taylor J., Lindsay W. R. & Willner P. (2008) CBT for people with intellectual disabilities: emerging evidence, cognitive ability and IQ effects. Behavioural and Cognitive Psychotherapy 36, 723-733.
95. Thompson C. L. & Reid A. (2002) Behavioural symptoms among people with severe and profound intellectual disabilities: a 26-year follow-up study. British Journal of Psychiatry 181, 67-71.
96. Totsika V. & Hastings R. P. (2009) Persistent challenging behaviour in people with an intellectual disability. Current Opinion in Psychiatry 22, 437-441.
97. Totsika V., Toogood S., Hastings R. P. & Lewis S. (2008) Persistence of challenging behaviours in adults with intellectual disability over a period of 11 years. Journal of Intellectual Disability Research 52, 446-457.
98. Totsika V., Toogood S., Hastings R. P. & McCarthy J. (2010) The effect of active support interactive training on the daily lives of adults with an intellectual disability. Journal of Applied Research in Intellectual Disabilities 23, 112-121.
99. Verhoeven W. M. A. & Tuinier S. (1999) The psychopharmacology of challenging behaviours in developmental disabilities. In: Psychiatric and Behavioural Disorders in Developmental Disabilities and Mental Retardation (ed. N. Bouras ), pp. 295-316. Cambridge University Press, Cambridge.
100. Victora C., Habicht J. & Bryce J. (2004) Evidence-based public health: moving beyond randomized trials. American Journal of Public Health 94, 400-405.
101. Vollmer T. R., Progar P. R., Lalli J. S., Van Camp C. M., Sierp B. J., Wright C. S. etal. (1998) Fixed time schedules attenuate extinction induced phenomena in the treatment of severe abhorrent behaviour. Journal of Applied Behaviour Analysis 31, 529-542.
102. Willner P. (2005) The effectiveness of psychotherapeutic interventions for people with learning disabilities: a critical overview. Journal of Intellectual Disability Research 49, 73-85.
103. Willner P., Jones J., Tamsy R. & Green G. (2002) A randomized controlled trial of the efficacy of a cognitive-behavioural anger management group for clients with learning disabilities. Journal of Applied Research in Intellectual Disabilities 15, 224-235.
104. Wilson D. B. & Lipsey M. W. (2001) The role of method in treatment effectiveness research: evidence from meta-analysis. Psychological Methods 6, 413-429.
105. Xeniditis K., Russell A. & Murphy D. (2001) Management of people with challenging behaviour. Advances in Psychiatric Treatment 7, 109-116.