A qualitative participatory study to identify experiences of coronary heart disease patients to support the development of online self-management services

International Journal of Medical Informatics

Volumn 82, Issue 12, 2013, Pages 1183-1194

  Vosbergen, Sandra ^a   Janzen, Jolien ^a   Stappers, Pieter Jan ^b   van Zwieten, Myra C B ^a   Lacroix, Joyca ^c   Idema, Karin ^d   van den Broek, Inge ^d   Kemps, Hareld M C ^a,e   Kraaijenhagen, Roderik A ^f   Peek, Niels ^a  

^a ACADEMIC MEDICAL CENTER   (Netherlands)

^b DELFT UNIVERSITY OF TECHNOLOGY   (Netherlands)

^c PHILIPS RESEARCH LABORATORIES   (Netherlands)

^d De Hart and Vaatgroep Dutch Patient Association for Cardiovascular Disease   (Netherlands)

^e MÁXIMA MEDICAL CENTER   (Netherlands)

^f NIPED   (Netherlands)

Author keywords

Coronary heart disease (CHD); Generative techniques; Internet; Patient experiences; Qualitative research; Self management

Indexed keywords

CORONARY HEART DISEASE; GENERATIVE TECHNIQUES; PATIENT EXPERIENCES; QUALITATIVE RESEARCH; SELF MANAGEMENT;

CARDIOLOGY; DISEASES; INTERNET; PRODUCT DESIGN; WEBSITES;

MANAGEMENT;

ANGIOTENSIN RECEPTOR; ANTIDIABETIC AGENT; ANTIHYPERTENSIVE AGENT; ANTILIPEMIC AGENT; ANTITHROMBOCYTIC AGENT; BETA ADRENERGIC RECEPTOR BLOCKING AGENT; DIPEPTIDYL CARBOXYPEPTIDASE INHIBITOR; DIURETIC AGENT; NITRIC ACID DERIVATIVE;

ADULT; AGED; ARTICLE; ATTITUDE TO LIFE; CARDIAC PATIENT; CLINICAL ARTICLE; DISEASE COURSE; FEAR; FEMALE; HEALTH CARE NEED; HEALTH CARE UTILIZATION; HEALTH PRACTITIONER; HUMAN; INFORMATION PROCESSING; INTERVIEW; INTROSPECTION; ISCHEMIC HEART DISEASE; MALE; MEDICAL DOCUMENTATION; MEDICAL INFORMATION SYSTEM; PARTICIPATORY RESEARCH; PATIENT PARTICIPATION; PATIENT PREFERENCE; PATIENT SATISFACTION; PERSONAL EXPERIENCE; PRIORITY JOURNAL; PROFESSIONAL PRACTICE; QUALITATIVE RESEARCH; SELF CARE; SELF EVALUATION; SOCIAL ENVIRONMENT;

CORONARY HEART DISEASE (CHD); GENERATIVE TECHNIQUES; INTERNET; PATIENT EXPERIENCES; QUALITATIVE RESEARCH; SELF-MANAGEMENT;

AGED; CORONARY DISEASE; DISEASE MANAGEMENT; FEMALE; FOCUS GROUPS; HUMANS; INTERNET; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT PARTICIPATION; QUALITATIVE RESEARCH; SELF CARE; SOCIAL SUPPORT;

EID: 84888199138     PISSN: 13865056     EISSN: 18728243     Source Type: Journal    
DOI: 10.1016/j.ijmedinf.2013.09.001     Document Type: Article

References (51)

1. Barlow J.H. How to use education as an intervention in osteoarthritis. Best Pract. Res. Clin. Rheumatol. 2001, 15(October (4)):545-558.
2. Platform Vitale Vaten Zorgstandaard Vasculair Risico management 2009, Platform Vitale Vaten, Den Haag.
3. Ward A.M., Heneghan C., Perera R., Lasserson D., Nunan D., Mant D., et al. What are the basic self-monitoring components for cardiovascular risk management. BMC Med Res Methodol 2010, 12(November (10)):105.
4. Wagner E.H., Austin B.T., Davis C., Hindmarsh M., Schaefer J., Bonomi A. Improving Chronic Illness Care: translating evidence into action. Health Affairs 2001, 20(November-December (6)):64-78.
5. Murray E., Burns J.S.S.T., Lai R., Nazareth I. Interactive Health Communication Applications for people with chronic disease. Cochrane Database Syst. Rev. 2005, 19:CD004274.
6. Rosser B.A., Vowles K.E., Keogh E., Eccleston C., Mountain G.A. Technologically-assisted behaviour change: a systematic review of studies of novel technologies for the management of chronic illness. J. Telemed. Telecare 2009, 15(7):327-338.
7. Nguyen H.Q., Carrieri-Kohlman V., Rankin S.H., Slaughter R., Stulbarg M.S. Internet-based patient education and support interventions: a review of evaluation studies and directions for future research. Comput. Biol. Med. 2004, 34(March (2)):95-112.
8. Beranova E., Sykes C. A systematic review of computer-based softwares for educating patients with coronary heart disease. Patient Educ. Couns. 2007, 66(April (1)):21-28.
9. Eysenbach G. The Law of attrition. J. Med. Internet Res. 2005, 7(March (1)):e11.
10. Rogers E. Diffusion of Innovations 2003, Free Press, New York. 5th ed.
11. Van't Riet A., Berg M., Hiddema F., Sol K. Meeting patients needs with patient information systems: potential benefits of qualitative research methods. Int. J. Med. Inf. 2001, 64(November (1)):1-14.
12. Sleeswijk Visser F., Stappers P.J., van der Lugt R., Sanders E.B.N. Contextmapping: experiences from practice. CoDesign 2005, 119-149.
13. Hanssen T.A., Nordrehaug J.E., Hanestad B.R. A qualitative study of the information needs of acute myocardial infarction patients, and their preferences for follow-up contact after discharge. Eur. J. Cardiovasc. Nurs. 2005, 4(March (1)):37-44.
14. Gulanick M., Bliley A., Perino B., Keough V. Recovery patterns and lifestyle changes after coronary angioplasty: the patient's perspective. Heart Lung 1998, 27(July-August (4)):253-262.
15. Jerant A.F., von Friederichs-Fitzwater M.M., Moore M. Patients' perceived barriers to active self-management of chronic conditions. Patient Educ. Couns. 2005, 57(June (3)):300-307.
16. Astin F., Closs S.J., McLenachan J., Hunter S., Priestley C. The information needs of patients treated with primary angioplasty for heart attack: an exploratory study. Patient Educ. Couns. 2008, 73(November (2)):325-332.
17. Decker C., Garavalia L., Chen C., Buchanan D.M., Nugent K., Shipman A., et al. Myocardial infarction patients' information needs over the course of treatment and recovery. J. Cardiovasc. Nurs. 2007, 22(November-December (6)):459-465.
18. Condon C., McCarthy G. Lifestyle changes following acute myocardial infarction: patients perspectives. Eur. J. Cardiovasc. Nurs. 2006, 5(March (1)):37-44.
19. Mead H., Andres E., Ramos C., Siegel B., Regenstein M. Barriers to effective self-management in cardiac patients: the patient's experience. Patient Educ. Couns. 2010, 79(April (1)):69-76.
20. Conroy R. Estimation of ten-year risk of fatal cardiovascular disease in Europe: the SCORE project. Eur. Heart J. 2003, 24(January (11)):987-1003.
21. Sanders E.B.N., Dandavate U. Design for experiencing: new tools. Proceedings of the First International Conference on Design and Emotion, 1999 November 3-5 1999, 415-418. TU Delft, Delft. C.J. Overbeek, P. Hekkert (Eds.).
22. Sanders E.B.N., Stappers P.J. Convivial Toolbox. Generative Research for the Front End of Design 2012, BIS Publishers, Amsterdam. 1st ed.
23. Kwaliteitsinstituut voor de Gezondheidszorg CBO en Nederlands Huisartsen Genootschap M84 NHG-Standard Cardiovascular Risk Management (Dutch Guideline for Cardiovascular Risk Management) 2006, Bohn Stafleu van Loghum, Utrecht.
24. Pruitt J., Adlin T. The Persona Lifecycle: Keeping People in Mind Throughout Product Design 2006, 135-138. Morgan Kaufmann, San Francisco.
25. Vosbergen S., Stappers P.J., van Engen-Verheul M.M., Hendriks M.S., Kraaijenhagen R.A., Peek N. Participatory research method to assess patients' needs for web-based self-management services: a pilot study. Proceedings of the 5th International Symposium on Human Factors Engineering in Health Informatics (Trondheim, August 26-27, 2011) 2011, 163-168. Tapir Academic Press, Trondheim. D. Svanæs, A. Faxvaag (Eds.).
26. MAXQDA Software for Qualitative Data Analysis, 1989-2012 1989-2012, VERBI Software - Consult - Sozialforschung GmbH, Berlin.
27. Boeije H.R. Analysis in Qualitative Research 2010, Sage Publications, London. 1st ed.
28. Swendeman D., Ingram B.L., Rotheram-Borus M.J. Common elements in self-management of HIV and other chronic illnesses: an integrative framework. AIDS Care 2009, 21(October (10)):1321-1334.
29. Peterson J.C., Allegrante J.P., Pirraglia P.A., Robbins L., Lane K.P., Boschert K.A., et al. Living with heart disease after angioplasty: a qualitative study of patients who have been successful or unsuccessful in multiple behavior change. Heart Lung 2010, 39(March-April (2)):105-115.
30. Lorig K.R., Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann. Behav. Med. 2003, 26(August (1)):1-7.
31. Sullivan K.A., White K.M., Young R.M., Scott C., Mulgrew K. Developing a stroke intervention program: what do people at risk of stroke want?. Patient Educ. Couns. 2008, 70(January (1)):126-134.
32. Bodenheimer T., Lorig K., Holman H., Grumbach K. Patient self-management of chronic disease in primary care. JAMA 2002, 288(November (19)):2469-2475.
33. Schulman-Green D., Jaser S., Martin F., Alonzo A., Grey M., McCorkle R., Redeker N.S., Reynolds N., Whittemore R. Processes of self-management in chronic illness. J. Nurs. Scholarsh. 2012, 44(June (2)):136-144.
34. Ma C., Warren J., Phillips P., Stanek J. Empowering patients with essential information and communication support in the context of diabetes. Int. J. Med. Inf. 2006, 75(August (8)):577-596.
35. Samoocha D., Bruinvels D.J., Elbers N.A., Anema J.R., Van der Beek A.J. Effectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis. J. Med. Internet Res. 2010, 12(June (2)):e23.
36. Kuijpers W., Groen W.G., Aaronson N.K., Van Harten W.H. A systematic review of web-based interventions for patient empowerment and physical activity in chronic diseases: relevance for cancer survivors. J. Med. Internet Res. 2013, 15(February (2)):e37.
37. Feder G., Griffiths C., Eldridge S., Gantley M. Patient empowerment and coronary heart disease. Lancet 2000, 356(October (9237)):1278.
38. Wilber J.A., Barrow J.G. Hypertension-a community problem. Am. J. Med. 1972, 52(May (5)):653-663.
39. Lorig K.R., Ritter P.L., Dost A., Plant K., Laurent D.D., McNeil I. The Expert Patients Programme online, a 1-year study of an Internet-based self-management programme for people with long-term conditions. Chronic Illn. 2008, 4(December (4)):247-256.
40. Kerr C., Murray E., Noble L., Morris R., Bottomley C., Stevenson F., Patterson D., Peacock R., Turner I., Jackson K., Nazareth I. The potential of web-based interventions for heart disease self-management: a mixed methods investigation. J. Med. Internet Res. 2010, 12(December (4)):e56.
41. Barlow J., Wright C., Sheasby J., Turner A., Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ. Couns. 2002, 48(October-November (2)):177-187.
42. Johnson J., Morse J. Regaining control: the process of adjustment after myocardial infarction. Heart Lung 1990, 19(March (2)):126-135.
43. Fleury J., Moore S. Family centred care after acute myocardial infarction. J. Cardiovasc. Nurs. 1999, 13(April (3)):73-82.
44. Kehler D., Christensen B., Lauritzen T., Christensen M.B., Edwards A., Bech Risør M. Cardiovascular-risk patients' experienced benefits and unfulfilled expectations from preventive consultations: a qualitative study in primary care. Qual. Prim. Care 2008, 16(5):315-325.
45. Jimison H.B., Fagan L.M., Schacter R.D., Shortliffe E.H. Patient specific explanation in models of chronic disease. Artif. Intell. Med. 1992, 4:192-205.
46. Eyles H.C., Mhurchu C.N. Does tailoring make a difference? A systematic review of long-term effectiveness of tailored nutrition education for adults. Nutr. Rev. 2009, 67(August (8)):464-480.
47. Noar S.M., Benac C.N., Harris M.S. Does tailoring matter? Meta-analytic review of tailored print health behaviour change interventions. Psychol. Bull. 2007, 133(July (4)):673-693.
48. Krebs P., Prochaska J.O., Rossi J.S. A meta-analysis of computer tailored interventions for health behaviour change. Prev. Med. 2010, 51(September-October (3-4)):214-221.
49. Kiesler Dj Auerbach S.M. Optimal matches of patient preferences for information, decision-making and interpersonal behaviour: evidence, models and interventions. Patient Educ. Couns. 2006, 61(June (3)):319-341.
50. Charmaz K. Discovering chronic illness using grounded theory. Soc. Sci. Med. 1990, 30(11):1161-1172.
51. Strauss A.L. Qualitative Analysis for Social Scientists 1987, Cambridge University Press, Cambridge. 1st ed.