메뉴 건너뛰기




Volumn 16, Issue 4, 2013, Pages 308-322

Patient issues in health research and quality of care: An inventory and data synthesis

Author keywords

Decision making; Patient criteria; Patient empowerment; Patient involvement; Patient rights

Indexed keywords

ATTITUDE TO HEALTH; COST BENEFIT ANALYSIS; DECISION MAKING; HEALTH CARE QUALITY; HEALTH SERVICES RESEARCH; HUMAN; PATIENT CRITERIA; PATIENT EMPOWERMENT; PATIENT PARTICIPATION; PATIENT PREFERENCE; PATIENT RIGHT; PERSONHOOD; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; REVIEW;

EID: 84887886059     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/j.1369-7625.2011.00718.x     Document Type: Article
Times cited : (21)

References (72)
  • 5
    • 29244432815 scopus 로고    scopus 로고
    • Patient participation in health research. Research with and for people with spinal cord injuries
    • Abma TA. Patient participation in health research. Research with and for people with spinal cord injuries. Qualitative Health Research, 2005; 15: 1-19.
    • (2005) Qualitative Health Research , vol.15 , pp. 1-19
    • Abma, T.A.1
  • 7
    • 61349169640 scopus 로고    scopus 로고
    • Patients as research partners in responsive research. Methodological notions for collaborations in research agenda setting
    • Abma TA, Nierse C, Widdershoven GAM. Patients as research partners in responsive research. Methodological notions for collaborations in research agenda setting. Qualitative Health Research, 2009; 19: 401-415.
    • (2009) Qualitative Health Research , vol.19 , pp. 401-415
    • Abma, T.A.1    Nierse, C.2    Widdershoven, G.A.M.3
  • 8
    • 77952215843 scopus 로고    scopus 로고
    • Patient participation as dialogue: setting research agendas
    • Abma TA, Broerse J. Patient participation as dialogue: setting research agendas. Health Expectations, 2010; 13: 160-173.
    • (2010) Health Expectations , vol.13 , pp. 160-173
    • Abma, T.A.1    Broerse, J.2
  • 9
    • 0023808128 scopus 로고
    • The rights of the patient in clinical research
    • Herxheimer A. The rights of the patient in clinical research. The Lancet, 1988; 8620: 1128-1130.
    • (1988) The Lancet , vol.8620 , pp. 1128-1130
    • Herxheimer, A.1
  • 11
    • 77249125959 scopus 로고    scopus 로고
    • Patient participation in collective healthcare decision making: the Dutch model
    • van de Bovenkamp HM, Trappenburg MJ, Grit KJ. Patient participation in collective healthcare decision making: the Dutch model. Health Expectations, 2010; 13: 73-85.
    • (2010) Health Expectations , vol.13 , pp. 73-85
    • van de Bovenkamp, H.M.1    Trappenburg, M.J.2    Grit, K.J.3
  • 12
    • 79952604770 scopus 로고    scopus 로고
    • Developing voice and empowerment: the first step towards a broad consultation in research agenda setting
    • 2011
    • Nierse C, Abma TA. Developing voice and empowerment: the first step towards a broad consultation in research agenda setting. 2011, Journal of Intellectual Disability Research, 2011; 55: 411-421.
    • (2011) Journal of Intellectual Disability Research , vol.55 , pp. 411-421
    • Nierse, C.1    Abma, T.A.2
  • 14
    • 2642546468 scopus 로고    scopus 로고
    • Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach
    • Oliver S, Clarke-Jones L, Rees R et al. Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. Health Technology Assessment, 2004; 8: 1-148.
    • (2004) Health Technology Assessment , vol.8 , pp. 1-148
    • Oliver, S.1    Clarke-Jones, L.2    Rees, R.3
  • 16
    • 33750130588 scopus 로고    scopus 로고
    • Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material
    • CD004563. DOI: 10.1002/14651858.CD004563.pub2.
    • Nilsen ES, Myrhaug HT, Johansen M, Oliver S, Oxman AD. Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database of Systematic Reviews, 2006; 3: CD004563. DOI: 10.1002/14651858.CD004563.pub2.
    • (2006) Cochrane Database of Systematic Reviews , vol.3
    • Nilsen, E.S.1    Myrhaug, H.T.2    Johansen, M.3    Oliver, S.4    Oxman, A.D.5
  • 17
    • 70249117194 scopus 로고    scopus 로고
    • Centre for Reviews and Dissemination., January 2009; University of York, ISBN 978-1-900640-47-3.
    • Centre for Reviews and Dissemination. CRD's Guidance for Undertaking Reviews in Healthcare, January 2009; University of York, 2008: 217-242. ISBN 978-1-900640-47-3.
    • (2008) CRD's Guidance for Undertaking Reviews in Healthcare , pp. 217-242
  • 18
    • 84887897927 scopus 로고    scopus 로고
    • Derde partij: tussen droom en daad. Een verkennend onderzoek naar de patiëntenpartij en -criteria voor onderzoek, beleid en kwaliteit bij overheden en zorginstellingen. Tijdschrift voor Sociale gezondheidszorg, TSG 2010 nr 4
    • Teunissen GJ, Abma TA. Derde partij: tussen droom en daad. Een verkennend onderzoek naar de patiëntenpartij en -criteria voor onderzoek, beleid en kwaliteit bij overheden en zorginstellingen. Tijdschrift voor Sociale gezondheidszorg, TSG 2010 nr 4, 2010: 189-196.
    • (2010) , pp. 189-196
    • Teunissen, G.J.1    Abma, T.A.2
  • 19
    • 84944726773 scopus 로고    scopus 로고
    • Joanna Briggs Institute., Lockwood C (ed.). Australia: Royal Adelaide Hospital, ABN: 80 230 154 545.
    • Joanna Briggs Institute. Reviewers' Manual: 2008 Edition, Lockwood C (ed.). Australia: Royal Adelaide Hospital, 2008, ABN: 80 230 154 545.
    • (2008) Reviewers' Manual: 2008 Edition
  • 20
    • 84887941623 scopus 로고    scopus 로고
    • Lithuania. Law on the rights of patients and compensation of the damage to their health, amended 1998, Vilnius, English translation, Number I-1562
    • Lithuania. Law on the rights of patients and compensation of the damage to their health, amended 1998, Vilnius, English translation, Number I-1562, 1996.
    • (1996)
  • 21
    • 84887963090 scopus 로고    scopus 로고
    • WHO-e. ., Available at: status per, accessed 1 September 2009.
    • WHO-e. General Health Related Patient Support Groups. 2009, Available at: http://www.who.int/genomics/public/patientsupport/enprint.html, status per, accessed 1 September 2009.
    • (2009) General Health Related Patient Support Groups
  • 22
    • 0034728876 scopus 로고    scopus 로고
    • Database of patients' experiences (DIPEx): a multi-media approach to sharing experiences and information
    • Herxheimer A, McPherson A, Miller R, Shepperd S, Yaphe J, Ziebland S. Database of patients' experiences (DIPEx): a multi-media approach to sharing experiences and information. The Lancet, 2000; 355: 1540-1543.
    • (2000) The Lancet , vol.355 , pp. 1540-1543
    • Herxheimer, A.1    McPherson, A.2    Miller, R.3    Shepperd, S.4    Yaphe, J.5    Ziebland, S.6
  • 23
    • 84887936238 scopus 로고    scopus 로고
    • Publieksparticipatie bij pakketbeslissingen. Leren van buitenlandse ervaringen. In: Zicht op zinnige en duurzame zorg, RVZ, Zoetermeer
    • Bal R, van de Lindeloof A. Publieksparticipatie bij pakketbeslissingen. Leren van buitenlandse ervaringen. In: Zicht op zinnige en duurzame zorg, RVZ, Zoetermeer, 2005.
    • (2005)
    • Bal, R.1    van de Lindeloof, A.2
  • 29
    • 84887925627 scopus 로고    scopus 로고
    • WHO-a. Marcial Velasco Garrido, Finn Børlum Kristensen, Camilla Palmhøj Nielsen, Reinhard Busse Health Technology Assessment and Health Policy-making in Europe, Current Status, Challenges and Potential, EU Observatory study series nr. 14, Copenhagen, ISBN 978 92 890 4293 2
    • WHO-a. Marcial Velasco Garrido, Finn Børlum Kristensen, Camilla Palmhøj Nielsen, Reinhard Busse Health Technology Assessment and Health Policy-making in Europe, Current Status, Challenges and Potential, EU Observatory study series nr. 14, Copenhagen, ISBN 978 92 890 4293 2, 2008: 23-26.
    • (2008) , pp. 23-26
  • 30
    • 84887919292 scopus 로고    scopus 로고
    • AF., H.R.1210/S.984. Washington, DC: Arthritis Foundation, accessed 1 December 2009.
    • AF. Arthritis Foundation: Arthritis Prevention Control and Cure Act of 2009, H.R.1210/S.984. Washington, DC: Arthritis Foundation, http://www.arthritis.org, 2009, accessed 1 December 2009.
    • (2009) Arthritis Foundation: Arthritis Prevention Control and Cure Act of 2009
  • 31
    • 84887885957 scopus 로고    scopus 로고
    • EPF-a. Toolkit for patient Organisations on meaningful patient involvement. Patients adding value to policy, projects and services, European Patients' Forum, Brussels: EPF
    • EPF-a. Toolkit for patient Organisations on meaningful patient involvement. Patients adding value to policy, projects and services, European Patients' Forum, Brussels: EPF, 2009.
    • (2009)
  • 32
    • 84887869527 scopus 로고    scopus 로고
    • Patients Association. (1) A guide to using your patient power; (2) Access to your medical records, a patients guide. Harrow, Middlesex, UK, and.../326, accessed 1 December 2009.
    • Patients Association. (1) A guide to using your patient power; (2) Access to your medical records, a patients guide. Harrow, Middlesex, UK, http://www.patients-association.com/advice-publications/269 and.../326, 2009, accessed 1 December 2009.
    • (2009)
  • 33
    • 84887982679 scopus 로고    scopus 로고
    • Patient UK. . Leeds, UK,accessed 1 December 2009.
    • Patient UK. Most Requested Support Groups. Leeds, UK, http://www.patient.co.uk, 2009, accessed 1 December 2009.
    • (2009) Most Requested Support Groups
  • 35
    • 84887927897 scopus 로고    scopus 로고
    • WHO-c. The International Classification of Functioning, Disability and Health (ICF), Geneva, Dutch translation, WHO-FIC collaboration centre in the Netherlands, RIVM, 2002, Bilthoven, the Netherlands
    • WHO-c. The International Classification of Functioning, Disability and Health (ICF), Geneva, Dutch translation, WHO-FIC collaboration centre in the Netherlands, RIVM, 2002, Bilthoven, the Netherlands, 2001.
    • (2001)
  • 36
    • 79960307188 scopus 로고    scopus 로고
    • Ombudspersons and patients' rights in Hungary
    • In: Mackenny S, Fallberg L (eds), Oxon, UK: Radcliffe Medical Press, ISBN 1857758706. Chapter 4
    • Sandor J. Ombudspersons and patients' rights in Hungary. In: Mackenny S, Fallberg L (eds), Protecting Patients' Rights? A Comparative Study of the Ombudsman in Healthcare. Oxon, UK: Radcliffe Medical Press, ISBN 1857758706. Chapter 4, 2004: 55-76.
    • (2004) Protecting Patients' Rights? A Comparative Study of the Ombudsman in Healthcare , pp. 55-76
    • Sandor, J.1
  • 37
    • 84887893906 scopus 로고    scopus 로고
    • Wet betreffende de rechten van de patiënt, 22 augustus 2002, nr. 2002022737, Sociale zaken, volksgezondheid en leefmilieu./2004, Wet tot wijziging van de wet van 22 augustus 2002 betreffende de rechten van de patiënt - pijnbestrijding - palliatieve zorg, 24 November 2004, nr. 2005022587, Belgium, 2002/2004.
    • Wet betreffende de rechten van de patiënt, 22 augustus 2002, nr. 2002022737, Sociale zaken, volksgezondheid en leefmilieu./2004, Wet tot wijziging van de wet van 22 augustus 2002 betreffende de rechten van de patiënt - pijnbestrijding - palliatieve zorg, 24 November 2004, nr. 2005022587, Belgium, 2002/2004.
  • 39
    • 84887887753 scopus 로고    scopus 로고
    • Patientenrechte in Deutschland - Charta am 16.10.2002 vorgelegt, Pressemitteilung des Bundesjustizministeriums Nr. 54/02 vom 16. Oktober 2002, Deutschland, 2002.
    • Patientenrechte in Deutschland - Charta am 16.10.2002 vorgelegt, Pressemitteilung des Bundesjustizministeriums Nr. 54/02 vom 16. Oktober 2002, Deutschland, 2002.
  • 40
    • 84887931240 scopus 로고    scopus 로고
    • Wiederholt M (eds), Bendixen C, Dybjaer L, Storgaard Bonfils I. Danish disability policy, equal opportunities through dialogue, The Danish Disability Council. Kobenhavn, Denmark: Det Centrale Handicaprad, ISBN 87-90985-14-1, accessed 1 December 2009
    • Wiederholt M (eds), Bendixen C, Dybjaer L, Storgaard Bonfils I. Danish disability policy, equal opportunities through dialogue, The Danish Disability Council. Kobenhavn, Denmark: Det Centrale Handicaprad, ISBN 87-90985-14-1, 2002, accessed 1 December 2009
    • (2002)
  • 41
    • 84887986559 scopus 로고    scopus 로고
    • Heart and Stroke Foundation. accessed 1 December 2009.
    • Heart and Stroke Foundation. http://www.heartandstroke.com, 2009, accessed 1 December 2009.
    • (2009)
  • 42
    • 84887915002 scopus 로고    scopus 로고
    • Al-Anon. Al-Anon/Alateen World Service Office,
    • Al-Anon. Al-Anon/Alateen World Service Office, http://www.al-anon.alateen.org, 2009.
    • (2009)
  • 43
    • 84887907003 scopus 로고    scopus 로고
    • Canadian Diabetes Association. , accessed 1 December 2009.
    • Canadian Diabetes Association. http://www.diabetes.ca, 2009, accessed 1 December 2009.
    • (2009)
  • 44
    • 84887920268 scopus 로고    scopus 로고
    • Catsad. Canadian Association for Tay-Sachs and Allied Diseases, , accessed 1 December 2009.
    • Catsad. Canadian Association for Tay-Sachs and Allied Diseases, http://www.Catsad.ca, 2009, accessed 1 December 2009.
    • (2009)
  • 45
    • 84887876076 scopus 로고    scopus 로고
    • ALA. . Washington, DC: ALA, , accessed 1 December 2009.
    • ALA. American Lung Association: Cultural Diversity Policy. Washington, DC: ALA, http://www.lungusa.org, 2004, accessed 1 December 2009.
    • (2004) American Lung Association: Cultural Diversity Policy
  • 52
    • 84887972780 scopus 로고    scopus 로고
    • EIWH. . Dublin, Ireland: EIWH, accessed 1 December 2009.
    • EIWH. European Institute of Women's Health - Brochure. Dublin, Ireland: EIWH, http://www.eurohealth.ie, 2006, accessed 1 December 2009.
    • (2006) European Institute of Women's Health - Brochure
  • 53
    • 84887954101 scopus 로고    scopus 로고
    • Picker Institute. Principles, accessed 1 December 2009.
    • Picker Institute. Principles, http://www.pickerinstitute.org, 2009, accessed 1 December 2009.
    • (2009)
  • 54
    • 84887892440 scopus 로고    scopus 로고
    • Planetree Inc. Principles, accessed 1 December 2009.
    • Planetree Inc. Principles, http://www.planetree.com, 2009, accessed 1 December 2009.
    • (2009)
  • 56
    • 84887872776 scopus 로고    scopus 로고
    • Cochrane Collaboration. . USA, accessed 1 December 2009.
    • Cochrane Collaboration. Stages of Consumer Input - Protocol and Review Stages. USA, http://www.cochrane.org, 2009, accessed 1 December 2009.
    • (2009) Stages of Consumer Input - Protocol and Review Stages
  • 57
    • 84887924489 scopus 로고    scopus 로고
    • WHO-d. The WHO's role and responsibilities in health research. Draft strategy on the research for health. 18 December 2008, The Executive board, 124th session, 19, Article 56.
    • WHO-d. The WHO's role and responsibilities in health research. Draft strategy on the research for health. 18 December 2008, The Executive board, 124th session, 2008b. 19, Article 56.
    • (2008)
  • 59
    • 84887857423 scopus 로고    scopus 로고
    • IAPO. Adressing global patient safety issues, an advocacy toolkit for patients' organizations, IAPO, International alliance of patient organisations. Educational grant by F. Hoffmann-La Roche
    • IAPO. Adressing global patient safety issues, an advocacy toolkit for patients' organizations, IAPO, International alliance of patient organisations. Educational grant by F. Hoffmann-La Roche, 2008.
    • (2008)
  • 60
    • 84887918749 scopus 로고    scopus 로고
    • Involve. P1: Getting involved in research grant applications, Guidelines for members of the public, NHS - National Institute for Health Research, and P2: peer reviewing research proposals, Guidelines for members of the public. DH Department of Health, accessed 1 December 2009.
    • Involve. P1: Getting involved in research grant applications, Guidelines for members of the public, NHS - National Institute for Health Research, and P2: peer reviewing research proposals, Guidelines for members of the public. DH Department of Health, http://www.invo.org.uk, 2009, accessed 1 December 2009.
    • (2009)
  • 61
    • 84887974882 scopus 로고    scopus 로고
    • JLA. How the James Lind Alliance Works. UK: JLA, accessed 1 December 2009.
    • JLA. How the James Lind Alliance Works. UK: JLA, http://www.lindalliance.org, 2009, accessed 1 December 2009.
    • (2009)
  • 62
    • 84887876841 scopus 로고    scopus 로고
    • Vilans. Kwaliteit van leven. Available at:(internet 1 July 2009)
    • Vilans. Kwaliteit van leven. Available at: http://www.Vilans.nl (internet 1 July 2009), 2009.
    • (2009)
  • 63
    • 84887858835 scopus 로고    scopus 로고
    • London Health Sciences Centre. . London, ON: London Health Sciences Centre, , accessed 1 December 2009.
    • London Health Sciences Centre. Canadian Directory of Genetic Support Groups, Introduction to the Directory. London, ON: London Health Sciences Centre, http://www.LHSC.on.ca, 2009, accessed 1 December 2009.
    • (2009) Canadian Directory of Genetic Support Groups, Introduction to the Directory
  • 64
  • 66
    • 84887961921 scopus 로고    scopus 로고
    • Voice4Patients, 2010, accessed 1 December 2009.
    • Voice4Patients, http://www.Voice4Patients.com, 2010, accessed 1 December 2009.
  • 67
    • 84887973255 scopus 로고    scopus 로고
    • Kwaliteit en gezondheid. Integrale agenda voor neuromusculair onderzoek, Eindrapportage, ZonMw/UM/VSN/ISNO
    • Nierse C, Abma TA, Horemans A, van Engelen B. Kwaliteit en gezondheid. Integrale agenda voor neuromusculair onderzoek, Eindrapportage, ZonMw/UM/VSN/ISNO, 2007.
    • (2007)
    • Nierse, C.1    Abma, T.A.2    Horemans, A.3    van Engelen, B.4
  • 68
    • 67649697696 scopus 로고    scopus 로고
    • Lifeworld-led care is more than patient-led care: an existential view of well-being
    • DOI: 10.1007/s11019-008-9174-7.
    • Dahlberg K, Todres L, Galvin K. Lifeworld-led care is more than patient-led care: an existential view of well-being. Medicine, Health Care and Philosophy, 2009; 12: 265-271. DOI: 10.1007/s11019-008-9174-7.
    • (2009) Medicine, Health Care and Philosophy , vol.12 , pp. 265-271
    • Dahlberg, K.1    Todres, L.2    Galvin, K.3
  • 71
    • 77954822956 scopus 로고    scopus 로고
    • Dealing with distrust and power dynamics. Assymetric relations among stakeholders in responsive evaluation
    • Baur VE, Elteren AHG, van Nierse CJ, Abma TA. Dealing with distrust and power dynamics. Assymetric relations among stakeholders in responsive evaluation. Evaluation, 2010; 3: 233-248.
    • (2010) Evaluation , vol.3 , pp. 233-248
    • Baur, V.E.1    Elteren, A.H.G.2    van Nierse, C.J.3    Abma, T.A.4
  • 72
    • 80051560596 scopus 로고    scopus 로고
    • Patient-expert partnerships in research: how to stimulate inclusion of patient perspectives
    • DOI: 10.1111/j.1369-7625.2010.00647.x
    • Elberse JE, Caron-Flinterman JF, Broerse EW. Patient-expert partnerships in research: how to stimulate inclusion of patient perspectives. Health Expectations, 2010; 14: DOI: 10.1111/j.1369-7625.2010.00647.x.
    • (2010) Health Expectations , vol.14
    • Elberse, J.E.1    Caron-Flinterman, J.F.2    Broerse, E.W.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.