Insights from a conference on implementing comparative effectiveness research through shared decision-making

Journal of Comparative Effectiveness Research

Volumn 2, Issue 1, 2013, Pages 23-32

  Politi, Mary C ^a   Clayman, Marla L ^b   Fagerlin, Angela ^c   Studts, Jamie L ^d   Montori, Victor ^e  

^a WASHINGTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

^c UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

^d UNIVERSITY OF KENTUCKY   (United States)

^e Knowledge and Evaluation Research Unit   (United States)

Author keywords

comparative effectiveness research; shared decision making

Indexed keywords

CLINICAL DECISION MAKING; COMPARATIVE EFFECTIVENESS; CONFERENCE PAPER; DOCTOR PATIENT RELATION; HEALTH CARE DELIVERY; HEALTH CARE NEED; HEALTH CARE POLICY; HEALTH SERVICES RESEARCH; HUMAN; OUTCOMES RESEARCH; PATIENT CARE; PATIENT PARTICIPATION; PRIORITY JOURNAL; RURAL POPULATION; STRATEGIC PLANNING; TOTAL QUALITY MANAGEMENT; TREATMENT PLANNING;

EID: 84886944384     PISSN: 20426305     EISSN: 20426313     Source Type: Journal    
DOI: 10.2217/cer.12.67     Document Type: Conference Paper

References (63)

1. O'Connor AM, Bennett CL, Stacey D et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst. Rev. (3), CD001431 (2009).
2. Lipkus IM. Numeric, verbal, and visual formats of conveying health risks: suggested best practices and future recommendations. Med. Decis. Making 27, 696-713 (2007). (Pubitemid 47547606)
3. Meltzer DO. Accounting for future costs is medical cost-effectiveness analysis. J. Health Econ. 25, 402-423 (1994).
4. Stinnet A A. Net health benefits: a new framework for the analysis of uncertainty in cost effectiveness analysis. Med. Decis. Making 18, S68-S80 (1998).
5. Fenwick E, Claxton K, Sculpher M. Representing uncertainty: the role of cost-effectiveness acceptability curves. Health Econ. 10, 779-787 (2001). (Pubitemid 34041389)
6. Fischhoff B, Bostrom A, Quadrel MJ. Risk perception and communication. Ann. Rev. Public Health 14, 183-203 (1993). (Pubitemid 23161717)
7. Frosch D, Kaplan RM. Shared decision making in clinical medicine: past research and future directions. Am. J. Prev. Med. 17, 285-294 (1999). (Pubitemid 29505475)
8. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: What does it mean? (or it takes at least two to tango) Soc. Sci. Med. 44, 681-692 (1997). (Pubitemid 27067502)
9. Ubel PA, Caplan AL. Geographic favoritism in liver transplantation- unfortunate or unfair? N. Engl. J. Med. 339, 1322-1325 (1998). (Pubitemid 28496201)
10. O'Connor AM, Llewellyn-Thomas HA, Flood AB. Modifying unwarranted variations in health care: shared decision making using patient decision aids. Health Aff. (Millwood) Suppl. Variation, VAR63-VAR72 (2004).
11. Wennberg J. Perspective: practice variations and health care reform: connecting the dots. Health Aff. (Millwood) Suppl. Variation, VAR140-VAR144 (2004).
12. O'Connor AM, Drake ER, Fiset V et al. The Ottawa patient decision aids. Eff. Clin. Pract. 2, 163-170 (1999).
13. Elwyn G, Frosch D, Volandes AE et al. Investing in deliberation: a definition and classification of decision support interventions for people facing difficult health decisions. Med. Decis. Making 30, 701-711 (2010).
14. Sox HC, Greenfield S. Comparative effectiveness research: a report from the institute of medicine. Ann. Intern. Med. 151, 203-205 (2009).
15. Naik AD, Petersen LA. The neglected purpose of comparative-effectiveness research. N. Engl. J. Med. 360, 1929-1931 (2009).
16. Legare F, Ratte S, Gravel K et al. Barriers and facilitators to implementing shared decision-making in clinical practice: update of a systematic review of health professionals' perceptions. Patient Educ. Couns. 73, 526-535 (2008).
17. Shepherd HL, Tattersall MHN, Butow P. Physician-identified factors affecting patient participation in reaching treatment decisions. J. Clin. Oncol. 26, 1724-1731 (2008).
18. Say RE, Thompson R. The importance of patient preferences in treatment decisions-challenges for doctors. BMJ 327, 542-545 (2003). (Pubitemid 37088502)
19. Djulbegovic B, Paul A. From efficacy to effectiveness in the face of uncertainty. JAMA 305, 2005-2006 (2011).
20. Politi MC, Han PKJ, Col NF. Communicating the uncertainty of harms and benefits of medical interventions. Med. Decis. Making 27, 681-695 (2007). (Pubitemid 47547605)
21. Elwyn G, Frosch D, Rollnick S. Dual equipoise shared decision making: definitions for decision and behaviour support interventions. Implement. Sci. 4, 75 (2009).
22. Woolf SH. The meaning of translational research and why it matters. JAMA 299, 211-213 (2008).
23. Dougherty D, Conway PH. The '3T's' road map to transform US health care: the 'how' of high-quality care. JAMA 299, 2319-2321 (2008). (Pubitemid 351724400)
24. Avorn J. Debate about funding comparative-effectiveness research. N. Engl. J. Med. 360, 1927-1929 (2009).
25. Stacey D, Bennett CL, Barry MJ et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst. Rev. 10, CD001431 (2011).
26. Elwyn G, Frosch D, Thomson R et al. Shared decision making: a model for clinical practice. J. Gen. Intern. Med. 27(10), 1361-1367 (2012).
27. Rothman SM. Health advocacy organizations and evidence-based medicine. JAMA 305, 2569-2570 (2011).
28. Merenstein D. A piece of my mind. Winners and losers. JAMA 291, 15-16 (2004).
29. King JS, Moulton B. Re-thinking informed consent: the case for shared decision making. Am. J. Law Med. 32, 429-501 (2006). (Pubitemid 46113172)
30. Barry MJ, Wescott PH, Reifler EJ et al. Reactions of potential jurors to a hypothetical malpractice suit alleging failure to perform a prostate-specific antigen test. J. Law Med. Ethics 36, 396-402 (2008).
31. Gigerenzer G, Gaissmaier W, Kurz-Milcke E et al. Helping doctors and patients make sense of health statistics. Psychol. Sci. Public Interest 8(2), 53-96 (2008).
32. Fagerlin A, Zikmund-Fisher BJ, Ubel PA. Helping patients decide: ten steps to better risk communication. J. Natl Cancer Inst. 103, 1436-1443 (2011).
33. Col N, Bozzuto L, Kirkegaard P et al. Interprofessional education about shared decision making for patients in primary care settings. J. Interprof. Care 25, 409-415 (2011).
34. Belkora J, Edlow B, Aviv C. Training community resource center and clinic personnel to prompt patients in listing questions for doctors: follow-up interviews about barriers and facilitators to the implementation of consultation planning. Implement. Sci. 3, 6 (2008).
35. Politi MC, Street RL. The importance of communication in collaborative decision making: facilitating shared mind and the management of uncertainty. J. Eval. Clin. Pract. 17, 579-584 (2011).
36. Epstein RM, Street RL. Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering. National Cancer Institute, Bethesda, MD, USA, NIH Publication No. 07-6225 (2007).
37. Legare F, Elwyn G, Fishbein M et al. Translating shared decision-making into health care clinical practices: proof of concepts. Implement. Sci. 3, 2 (2008).
38. Legare F, Politi MC, Drolet R et al. Training health professionals in shared decision making: an international environmental scan. Patient Educ. Couns. 88(2), 159-169 (2012).
39. Jennett PA, Affleck Hall L, Hailey D et al. The socio-economic impact of telehealth: a systematic review. J. Telemed. Telecare 9, 311-320 (2003). (Pubitemid 39663067)
40. Schneider A, Korner T, Mehring M et al. Impact of age, health locus of control and psychological co-morbidity on patients' preferences for shared decision making in general practice. Patient Educ. Couns. 61, 292-298 (2006).
41. Say R, Murtagh M, Thomson R. Patients' preference for involvement in medical decision making: A narrative review. Patient Educ. Couns. 60, 102-114 (2006). (Pubitemid 43143304)
42. Bartlett C, Doyal L, Ebrahim S et al. The causes and effects of socio-demographic exclusions from clinical trials. Health Technol. Assess. 9(38), iii-iv, ix-x, 1-152 (2005).
43. Murthy VH, Krumholz HM, Gross CP. Participation in cancer clinical trials: race-, sex-, and age-based disparities. JAMA 291, 2720-2726 (2004). (Pubitemid 38725421)
44. Seeman T, Chen X. Risk and protective factors for physical functioning in older adults with and without chronic conditions: MacArthur studies of successful aging. J. Gerontol. B. Psychol. Sci. Soc. Sci. 57, S135-S144 (2002). (Pubitemid 34465253)
45. Nordehn G, Meredith A, Bye L. A preliminary investigation of barriers to achieving patient-centered communication with patients who have stroke-related communication disorders. Top Stroke Rehabil. 13, 68-77 (2006).
46. Murphy J. Perceptions of communication between individuals with communication disability and general practice staff. Health Expect. 9, 49-59 (2006).
47. Hoffman JM, Yorkston KM, Shumway-Cook A et al. Effect of communication disability on satisfaction with health care: a survey of medicare beneficiaries. Am. J. Speech Language Pathol. 14, 221-228 (2005). (Pubitemid 41626128)
48. Leblanc A, Ruud KL, Branda ME et al. The impact of decision aids to enhance shared decision making for diabetes (the DAD study): protocol of a cluster randomized trial. BMC Health Services Res. 12, 130 (2012).
49. Pierce MA, Hess EP, Kline JA et al. The chest pain choice trial: a pilot randomized trial of a decision aid for patients with chest pain in the emergency department. Trials 11, 57 (2010).
50. Pencille LJ, Campbell ME, Van Houten HK et al. Protocol for the osteoporosis choice trial. A pilot randomized trial of a decision aid in primary care practice. Trials 10, 113 (2009).
51. Montori VM, Breslin M, Maleska M et al. Creating a conversation: insights from the development of a decision aid. PLoS Med. 4, e233 (2007).
52. Breslin M, Mullan RJ, Montori VM. The design of a decision aid about diabetes medications for use during the consultation with patients with type 2 diabetes. Patient Educ. Counsel. 73, 465-472 (2008).
53. Montori VM, Gafni A, Charles C. A shared treatment decision-making approach between patients with chronic conditions and their clinicians: the case of diabetes. Health Expect. 9, 25-36 (2006).
54. Hess EP, Knoedler MA, Shah ND et al. The chest pain choice decision aid: a randomized trial. Circ. Cardiovasc. Qual. Outcomes 5, 251-259 (2012).
55. Montori VM, Shah ND, Pencille LJ et al. Use of a decision aid to improve treatment decisions in osteoporosis: the osteoporosis choice randomized trial. Am. J. Med. 124, 549-556 (2011).
56. Mann DM, Ponieman D, Montori VM et al. The Statin Choice decision aid in primary care: a randomized trial. Patient Educ. Counsel. 80, 138-140 (2010).
57. Nannenga MR, Montori VM, Weymiller AJ et al. A treatment decision aid may increase patient trust in the diabetes specialist. The Statin Choice randomized trial. Health Expect. 12, 38-44 (2009).
58. Mullan RJ, Montori VM, Shah ND et al. The diabetes mellitus medication choice decision aid: a randomized trial. Arch. Intern. Med. 169, 1560-1568 (2009).
59. Jones LA, Weymiller AJ, Shah N et al. Should clinicians deliver decision aids? Further exploration of the statin choice randomized trial results. Med. Decis. Making 29, 468-474 (2009).
60. Weymiller AJ, Montori VM, Jones LA et al. Helping patients with type 2 diabetes mellitus make treatment decisions: statin choice randomized trial. Arch. Intern. Med. 167, 1076-1082 (2007). (Pubitemid 46835796)
61. Shah ND, Mullan RJ, Breslin M et al. Translating comparative effectiveness into practice: the case of diabetes medications. Med. Care 48, S153-S158 (2010).
62. Politi MC, Pieterse AH, Truant T et al. Interprofessional education about patient decision support in specialty care. J. Interprofessional Care 25, 416-422 (2011).
63. Haidet P, Fecile ML, West HF et al. Reconsidering the team concept: Educational implications for patient-centered cancer care. Patient Educ. Counsel. 77, 450-455 (2009).