메뉴 건너뛰기




Volumn 25, Issue 6, 2013, Pages 707-713

Psychosocial aspects of systemic sclerosis

Author keywords

Psychosocial; Scleroderma; Systemic sclerosis

Indexed keywords

ANXIETY DISORDER; BODY IMAGE; BREATHING; DEPRESSION; FATIGUE; HEALTH CARE NEED; HUMAN; MOOD DISORDER; OUTCOME ASSESSMENT; PAIN; PREVALENCE; PRIORITY JOURNAL; PROSPECTIVE STUDY; PRURITUS; PSYCHOPHYSIOLOGY; QUALITY OF LIFE; REVIEW; SEXUAL FUNCTION; SOCIAL PSYCHOLOGY; STRUCTURED INTERVIEW; SYSTEMIC SCLEROSIS; WORK DISABILITY; WORKPLACE;

EID: 84885207819     PISSN: 10408711     EISSN: 15316963     Source Type: Journal    
DOI: 10.1097/01.bor.0000434666.47397.c2     Document Type: Review
Times cited : (29)

References (65)
  • 1
    • 77955285939 scopus 로고    scopus 로고
    • Psychological health and well being in systemic sclerosis: State of the science and consensus research agenda
    • Thombs BD, van Lankveld W, Bassel M, et al. Psychological health and well being in systemic sclerosis: State of the science and consensus research agenda. Arthritis Care Res 2010; 62:1181-1189
    • (2010) Arthritis Care Res , vol.62 , pp. 1181-1189
    • Thombs, B.D.1    Van Lankveld, W.2    Bassel, M.3
  • 2
    • 34547730646 scopus 로고    scopus 로고
    • Depression in patients with systemic sclerosis: A systematic review of the evidence
    • Thombs BD, Taillefer SS, Hudson M, Baron M. Depression in patients with systemic sclerosis: A systematic review of the evidence. Arthritis Rheum 2007; 57:1089-1097
    • (2007) Arthritis Rheum , vol.57 , pp. 1089-1097
    • Thombs, B.D.1    Taillefer, S.S.2    Hudson, M.3    Baron, M.4
  • 3
  • 4
    • 84856703536 scopus 로고    scopus 로고
    • Depression among the Moroccan systemic sclerosis
    • Wafki F, Amine B, Ibn Yacoub Y, et al. Depression among the Moroccan systemic sclerosis. Clin Rheumatol 2012; 31:73-77
    • (2012) Clin Rheumatol , vol.31 , pp. 73-77
    • Wafki, F.1    Amine, B.2    Ibn Yacoub, Y.3
  • 5
    • 84856640227 scopus 로고    scopus 로고
    • Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem
    • Kwakkenbos L, van Lankveld WG, Vonk MC, et al. Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem. J Psychosomatic Res 2012; 72:199-204
    • (2012) J Psychosomatic Res , vol.72 , pp. 199-204
    • Kwakkenbos, L.1    Van Lankveld, W.G.2    Vonk, M.C.3
  • 6
    • 84856218917 scopus 로고    scopus 로고
    • Determinants of disability, quality of life and depression in dermatological patients with systemic scleroderma
    • .Müller H, Rehberger P, Günther C, Schmitt J. Determinants of disability, quality of life and depression in dermatological patients with systemic scleroderma. British J Derm 2012; 166:343-353
    • (2012) British J Derm , vol.166 , pp. 343-353
    • Müller, H.1    Rehberger, P.2    Günther, C.3    Schmitt, J.4
  • 7
    • 84875604008 scopus 로고    scopus 로고
    • Prevalence of current, 12-month and lifetime major depressive disorder among patients with systemic sclerosis
    • .Jewett LR, Razykov I, Hudson M, et al. Prevalence of current, 12-month and lifetime major depressive disorder among patients with systemic sclerosis. Rheumatol (Oxford) 2013; 52:669-675
    • (2013) Rheumatol (Oxford , vol.52 , pp. 669-675
    • Jewett, L.R.1    Razykov, I.2    Hudson, M.3
  • 8
    • 79551591516 scopus 로고    scopus 로고
    • Mood and anxiety disorders in systemic sclerosis patients
    • .Baubet T, Ranque B, Taieb O, et al. Mood and anxiety disorders in systemic sclerosis patients. Presse Med 2011; 40:e111-e119
    • (2011) Presse Med , vol.40
    • Baubet, T.1    Ranque, B.2    Taieb, O.3
  • 9
    • 78751680998 scopus 로고    scopus 로고
    • Association of gastrointestinal involvement and depressive symptoms in patients with systemic sclerosis
    • Bodukam V, Hays RD, Maranian P, et al. Association of gastrointestinal involvement and depressive symptoms in patients with systemic sclerosis. Rheumatol (Oxford) 2011; 50:330-334
    • (2011) Rheumatol (Oxford , vol.50 , pp. 330-334
    • Bodukam, V.1    Hays, R.D.2    Maranian, P.3
  • 10
    • 79952502651 scopus 로고    scopus 로고
    • Association of gender with clinical expression, quality of life, disability, and depression and anxiety in patients with systemic sclerosis
    • Nguyen C, Bé rezné A, Baubet T, et al. Association of gender with clinical expression, quality of life, disability, and depression and anxiety in patients with systemic sclerosis. PLoS ONE 2011; 6:e17551
    • (2011) PLoS ONE , vol.6
    • Nguyen, C.1    Bérezné, A.2    Baubet, T.3
  • 11
    • 84872245215 scopus 로고    scopus 로고
    • Cross-language measurement equivalence of the Center for Epidemiologic Studies Depression (CES-D) Scale in systemic sclerosis: A comparison of Canadian and Dutch patients
    • doi:10.1371/journal.pone. 0053923
    • Kwakkenbos L, Arthurs E, van den Hoogen FH, et al. Cross-language measurement equivalence of the Center for Epidemiologic Studies Depression (CES-D) Scale in systemic sclerosis: A comparison of Canadian and Dutch patients. PLoS One 2013; 8:e53923]. doi:10.1371/journal.pone. 0053923
    • (2013) PLoS One , vol.8
    • Kwakkenbos, L.1    Arthurs, E.2    Van Den Hoogen, F.H.3
  • 12
    • 84871259145 scopus 로고    scopus 로고
    • Are scores on English and French versions of thePHQ-9comparable? Anassessment of differential itemfunctioning
    • doi:10.1371/journal.pone.0052028
    • Arthurs E, Steele RJ, Hudson M, et al. Are scores on English and French versions of thePHQ-9comparable?Anassessment of differential itemfunctioning. PLoS ONE 2012; 7:e52028. doi:10.1371/journal.pone.0052028
    • (2012) PLoS ONE , vol.7
    • Arthurs, E.1    Steele, R.J.2    Hudson, M.3
  • 13
    • 84864471704 scopus 로고    scopus 로고
    • Influence of somatic symptoms on Patient Health Questionnaire-9 depression scores among patients with systemic sclerosis compared to a healthy general population sample
    • .Leavens A, Patten SB, Hudson M, et al. Influence of somatic symptoms on Patient Health Questionnaire-9 depression scores among patients with systemic sclerosis compared to a healthy general population sample. Arthritis Care Res 2012; 64:1195-1201
    • (2012) Arthritis Care Res , vol.64 , pp. 1195-1201
    • Leavens, A.1    Patten, S.B.2    Hudson, M.3
  • 14
    • 84876732259 scopus 로고    scopus 로고
    • The utility of the PHQ-9 to assess suicide risk in patients with systemic sclerosis
    • .Razykov I, HudsonM, Baron M, et al. The utility of the PHQ-9 to assess suicide risk in patients with systemic sclerosis. Arthritis Care Res 2013; 65:753-758
    • (2013) Arthritis Care Res , vol.65 , pp. 753-758
    • Razykov, I.1    HudsonM Baron, M.2
  • 15
    • 84864695217 scopus 로고    scopus 로고
    • The experience of emotional distress among women with scleroderma
    • Newton EG, Thombs BD, Groleau D. The experience of emotional distress among women with scleroderma. Qualitative Health Res 2012; 22:1195-1206
    • (2012) Qualitative Health Res , vol.22 , pp. 1195-1206
    • Newton, E.G.1    Thombs, B.D.2    Groleau, D.3
  • 16
    • 79952786895 scopus 로고    scopus 로고
    • Frequency and impact of symptoms experienced by patients with systemic sclerosis: Results from a Canadian National Survey
    • .Bassel M, Hudson M, Taillefer SS, et al. Frequency and impact of symptoms experienced by patients with systemic sclerosis: Results from a Canadian National Survey. Rheumatology (Oxford) 2011; 50:762-767
    • (2011) Rheumatology (Oxford , vol.50 , pp. 762-767
    • Bassel, M.1    Hudson, M.2    Taillefer, S.S.3
  • 17
    • 84859754924 scopus 로고    scopus 로고
    • Assessment of fatigue and its relationship with disease-related parameters in patients with systemic sclerosis
    • Ibn Yacoub Y, Amine B, Bensabbah R, Hajjaj-Hassouni N. Assessment of fatigue and its relationship with disease-related parameters in patients with systemic sclerosis. Clin Rheumatol 2012; 31:655-660
    • (2012) Clin Rheumatol , vol.31 , pp. 655-660
    • Ibn Yacoub, Y.1    Amine, B.2    Bensabbah, R.3    Hajjaj-Hassouni, N.4
  • 18
    • 84865989652 scopus 로고    scopus 로고
    • Predictors of health-related quality of life and fatigue in systemic sclerosis: Evaluation of the EuroQol-5D and FACIT-F assessment tools
    • Strickland G, Pauling J, Cavill C, McHugh N. Predictors of health-related quality of life and fatigue in systemic sclerosis: Evaluation of the EuroQol-5D and FACIT-F assessment tools. Clin Rheumatol 2012; 31:1215-1222
    • (2012) Clin Rheumatol , vol.31 , pp. 1215-1222
    • Strickland, G.1    Pauling, J.2    Cavill, C.3    McHugh, N.4
  • 19
    • 84870337614 scopus 로고    scopus 로고
    • Measuring fatigue in SSc: A comparison of the Short Form-36 Vitality subscale and Functional Assessment of Chronic Illness Therapy-Fatigue scale
    • .Harel D, Thombs BD, Hudson M, et al. Measuring fatigue in SSc: A comparison of the Short Form-36 Vitality subscale and Functional Assessment of Chronic Illness Therapy-Fatigue scale. Rheumatology (Oxford) 2012; 51: 2177-2185
    • (2012) Rheumatology (Oxford , vol.51 , pp. 2177-2185
    • Harel, D.1    Thombs, B.D.2    Hudson, M.3
  • 20
    • 83455259330 scopus 로고    scopus 로고
    • The Swedish version of the Multidimensional Assessment of Fatigue (MAF) in systemic sclerosis: Reproducibility and correlations to other fatigue instruments
    • Sandqvist G, Archenholtz B, Scheja A, Hesselstrand R. The Swedish version of the Multidimensional Assessment of Fatigue (MAF) in systemic sclerosis: Reproducibility and correlations to other fatigue instruments. Scand J Rheumatol 2011; 40:493-494
    • (2011) Scand J Rheumatol , vol.40 , pp. 493-494
    • Sandqvist, G.1    Archenholtz, B.2    Scheja, A.3    Hesselstrand, R.4
  • 21
    • 80054690691 scopus 로고    scopus 로고
    • Predictors of fatigue severity in early systemic sclerosis: A prospective longitudinal study of the GENISOS cohort
    • .Assassi S, Leyva AL, Mayes MD, et al. Predictors of fatigue severity in early systemic sclerosis: A prospective longitudinal study of the GENISOS cohort. PLoS ONE 2011; 6:e26061
    • (2011) PLoS ONE , vol.6
    • Assassi, S.1    Leyva, A.L.2    Mayes, M.D.3
  • 22
    • 79959413255 scopus 로고    scopus 로고
    • Prevalence and correlates of sleep disturbance in systemic sclerosis: Results from the UCLA scleroderma quality of life study
    • .Frech T, Hays RD, Maranian P, et al. Prevalence and correlates of sleep disturbance in systemic sclerosis: Results from the UCLA scleroderma quality of life study. Rheumatology (Oxford) 2011; 50:1280-1287
    • (2011) Rheumatology (Oxford , vol.50 , pp. 1280-1287
    • Frech, T.1    Hays, R.D.2    Maranian, P.3
  • 23
    • 79955149544 scopus 로고    scopus 로고
    • Clinical correlates of sleep problems in systemic sclerosis: The prominent role of pain
    • Milette K, Razykov I, Pope J, et al. Clinical correlates of sleep problems in systemic sclerosis: The prominent role of pain. Rheumatology (Oxford) 2011; 50:921-925
    • (2011) Rheumatology (Oxford , vol.50 , pp. 921-925
    • Milette, K.1    Razykov, I.2    Pope, J.3
  • 24
    • 82755162890 scopus 로고    scopus 로고
    • Measuring pain in systemic sclerosis: Comparison of the short-form McGill Pain Questionnaire versus a single-item measure of pain
    • .El-Baalbaki G, Lober J, Hudson M, et al. Measuring pain in systemic sclerosis: Comparison of the short-form McGill Pain Questionnaire versus a single-item measure of pain. J Rheumatol 2011; 38:2581-2587
    • (2011) J Rheumatol , vol.38 , pp. 2581-2587
    • El-Baalbaki, G.1    Lober, J.2    Hudson, M.3
  • 26
    • 79952115819 scopus 로고    scopus 로고
    • Development and validation of the brief-Satisfaction with Appearance scale for systemic sclerosis
    • Jewett LR, Hudson M, Haythornthwaite JA, et al. Development and validation of the brief-Satisfaction with Appearance scale for systemic sclerosis. Arthritis Care Res 2010; 62:1779-1786
    • (2010) Arthritis Care Res , vol.62 , pp. 1779-1786
    • Jewett, L.R.1    Hudson, M.2    Haythornthwaite, J.A.3
  • 27
    • 84858759609 scopus 로고    scopus 로고
    • Sociodemographic and disease correlates of body image distress among patients with systemic sclerosis
    • doi:10.1371/journal.pone.0033281
    • .Jewett LR, Hudson M, Malcarne VL, et al. Sociodemographic and disease correlates of body image distress among patients with systemic sclerosis. PLoS One 2012; 7:e33281. doi:10.1371/journal.pone.0033281
    • (2012) PLoS One , vol.7
    • Jewett, L.R.1    Hudson, M.2    Malcarne, V.L.3
  • 28
    • 0031953965 scopus 로고    scopus 로고
    • Development and validation of the satisfaction with appearance scale: Assessing body image among burn-injury patients
    • Lawrence JW, Heinberg LJ, Roca R, et al. Development and validation of the satisfaction with appearance scale: Assessing body image among burn-injury patients. Psychol Assessment 1998; 10:64-70
    • (1998) Psychol Assessment , vol.10 , pp. 64-70
    • Lawrence, J.W.1    Heinberg, L.J.2    Roca, R.3
  • 29
    • 79957819604 scopus 로고    scopus 로고
    • The psychological impact of facial changes in scleroderma
    • .Amin K, Clarke A, Sivakumar B, et al. The psychological impact of facial changes in scleroderma. Psychol Health Med 2011; 16:304-312
    • (2011) Psychol Health Med , vol.16 , pp. 304-312
    • Amin, K.1    Clarke, A.2    Sivakumar, B.3
  • 30
    • 18744364921 scopus 로고    scopus 로고
    • The DAS24: A short form of the Derriford Appearance Scale DAS59 to measure individual responses to living with problems of appearance
    • Carr T, Moss T, Harris D. The DAS24: A short form of the Derriford Appearance Scale DAS59 to measure individual responses to living with problems of appearance. Br J Health Psychol 2005; 10:285-298
    • (2005) Br J Health Psychol , vol.10 , pp. 285-298
    • Carr, T.1    Moss, T.2    Harris, D.3
  • 31
    • 84871333112 scopus 로고    scopus 로고
    • Sexual activity and impairment in women with systemic sclerosis compared to women from a general population sample
    • doi:10.1371/journal.pone.0052129
    • .Levis B, Burri A, Hudson M, et al. Sexual activity and impairment in women with systemic sclerosis compared to women from a general population sample. PLoS ONE 2012; 7:e52129. doi:10.1371/journal.pone.0052129
    • (2012) PLoS ONE , vol.7
    • Levis, B.1    Burri, A.2    Hudson, M.3
  • 32
    • 84859828725 scopus 로고    scopus 로고
    • Rates and correlates of sexual activity and impairment among women with systemic sclerosis
    • .Levis B, Hudson M, Knafo R, et al. Rates and correlates of sexual activity and impairment among women with systemic sclerosis. Arthritis CareRes 2012; 64:340-350
    • (2012) Arthritis CareRes , vol.64 , pp. 340-350
    • Levis, B.1    Hudson, M.2    Knafo, R.3
  • 33
    • 84859807456 scopus 로고    scopus 로고
    • The association of body image dissatisfaction and pain with reduced sexual function in women with systemic sclerosis
    • .Knafo R, Haythornthwaite JA, Heinberg L, et al. The association of body image dissatisfaction and pain with reduced sexual function in women with systemic sclerosis. Rheumatology (Oxford) 2011; 50:1125-1130
    • (2011) Rheumatology (Oxford , vol.50 , pp. 1125-1130
    • Knafo, R.1    Haythornthwaite, J.A.2    Heinberg, L.3
  • 34
    • 67349190426 scopus 로고    scopus 로고
    • Erectile dysfunction in systemic sclerosis
    • Walker UA, Tyndall A, Ruszat R. Erectile dysfunction in systemic sclerosis. Ann Rheum Dis 2009; 68:1083-1085
    • (2009) Ann Rheum Dis , vol.68 , pp. 1083-1085
    • Walker, U.A.1    Tyndall, A.2    Ruszat, R.3
  • 35
    • 84857129610 scopus 로고    scopus 로고
    • Erectile dysfunction is frequent in systemic sclerosis and associated with severe disease: A study of the EULAR Scleroderma Trial and Research group
    • .Foocharoen C, Tyndall A, Hachulla E, et al. Erectile dysfunction is frequent in systemic sclerosis and associated with severe disease: A study of the EULAR Scleroderma Trial and Research group. Arthritis Res Ther 2012; 14:R37
    • (2012) Arthritis Res Ther , vol.14
    • Foocharoen, C.1    Tyndall, A.2    Hachulla, E.3
  • 36
    • 84863838335 scopus 로고    scopus 로고
    • Work status and its determinants among patients with systemic sclerosis: A systematic review
    • .Schouffoer AA, Schoones JW, Terwee CB, Vlieland TPV. Work status and its determinants among patients with systemic sclerosis: A systematic review. Rheumatology (Oxford) 2012; 51:1304-1314
    • (2012) Rheumatology (Oxford , vol.51 , pp. 1304-1314
    • Schouffoer, A.A.1    Schoones, J.W.2    Terwee, C.B.3    Vlieland, T.P.V.4
  • 37
    • 80051470239 scopus 로고    scopus 로고
    • Determinants of work disability in patients with systemic sclerosis: A longitudinal study of the GENISOS Cohort
    • .Sharif R, Mayes MD, Nicassio PM, et al. Determinants of work disability in patients with systemic sclerosis: A longitudinal study of the GENISOS Cohort. Seminars Arthtiris Rheum 2011; 41:38-47
    • (2011) Seminars Arthtiris Rheum , vol.41 , pp. 38-47
    • Sharif, R.1    Mayes, M.D.2    Nicassio, P.M.3
  • 38
    • 84858067788 scopus 로고    scopus 로고
    • Work productivity in scleroderma analysis from the University of California Los Angeles scleroderma quality of life study
    • .Singh MK, Clements PJ, Furst DE, et al. Work productivity in scleroderma: Analysis from the University of California, Los Angeles scleroderma quality of life study. Arthritis Care Res 2012; 64:176-183
    • (2012) Arthritis Care Res , vol.64 , pp. 176-183
    • Singh, M.K.1    Clements, P.J.2    Furst, D.E.3
  • 39
    • 79551564936 scopus 로고    scopus 로고
    • Impact of systemic sclerosis on occupational and professional activity with attention to patients with digital ulcers
    • Bé rezné A, Seror R, Morell-Dubois S, et al. Impact of systemic sclerosis on occupational and professional activity with attention to patients with digital ulcers. Arthritis Care Res 2011; 63:277-285
    • (2011) Arthritis Care Res , vol.63 , pp. 277-285
    • Bérezné, A.1    Seror, R.2    Morell-Dubois, S.3
  • 40
    • 84856089151 scopus 로고    scopus 로고
    • Work participation and work transition in patients with systemic sclerosis: A cross-sectional study
    • .Decuman S, Smith V, Verhaeghe S, et al. Work participation and work transition in patients with systemic sclerosis: A cross-sectional study. Rheumatology (Oxford) 2012; 51:297-304
    • (2012) Rheumatology (Oxford , vol.51 , pp. 297-304
    • Decuman, S.1    Smith, V.2    Verhaeghe, S.3
  • 42
    • 79951985629 scopus 로고    scopus 로고
    • Perceived parenting ability and systemic sclerosis
    • .Poole JL, Willer K, Mendelson C, et al. Perceived parenting ability and systemic sclerosis. Musculoskeletal care 2011; 9:32-40
    • (2011) Musculoskeletal care , vol.9 , pp. 32-40
    • Poole, J.L.1    Willer, K.2    Mendelson, C.3
  • 43
    • 79959618447 scopus 로고    scopus 로고
    • Needs and preferences regarding healthcare delivery as perceived by patients with systemic sclerosis
    • .Schouffoer AA, Zirkzee EJ, Henquet SM, et al. Needs and preferences regarding healthcare delivery as perceived by patients with systemic sclerosis. Clin Rheumatol 2011; 30:815-824
    • (2011) Clin Rheumatol , vol.30 , pp. 815-824
    • Schouffoer, A.A.1    Zirkzee, E.J.2    Henquet, S.M.3
  • 44
    • 79955795750 scopus 로고    scopus 로고
    • Concepts of functioning and health important to people with systemic sclerosis: A qualitative study in four European countries
    • .Stamm TA, Mattsson M, Mihai C, et al. Concepts of functioning and health important to people with systemic sclerosis: A qualitative study in four European countries. Ann Rheum Dis 2011; 70:1074-1079
    • (2011) Ann Rheum Dis , vol.70 , pp. 1074-1079
    • Stamm, T.A.1    Mattsson, M.2    Mihai, C.3
  • 45
    • 84872175098 scopus 로고    scopus 로고
    • Living with scleroderma: Patients' perspectives, a phenomenological study
    • Cinar FI, Unver V, Yilmaz S, et al. Living with scleroderma: Patients' perspectives, a phenomenological study. Rheumatol Int 2012; 32:3573-3579
    • (2012) Rheumatol Int , vol.32 , pp. 3573-3579
    • Cinar, F.I.1    Unver, V.2    Yilmaz, S.3
  • 46
    • 79952040870 scopus 로고    scopus 로고
    • The needs of patients with systemic sclerosis-what are the difficulties encountered?
    • Godard D The needs of patients with systemic sclerosis-what are the difficulties encountered? Autoimmun Rev 2011; 10:291-294
    • (2011) Autoimmun Rev , vol.10 , pp. 291-294
    • Godard, D.1
  • 47
    • 84870659131 scopus 로고    scopus 로고
    • Treatment satisfaction and health status in patients with systemic sclerosis
    • .Rehberger P, Müller H, Günther C, Schmitt J. Treatment satisfaction and health status in patients with systemic sclerosis. J Dtsch Dermatol Ges 2012; 10:905-911
    • (2012) J Dtsch Dermatol Ges , vol.10 , pp. 905-911
    • Rehberger, P.1    Müller, H.2    Günther, C.3    Schmitt, J.4
  • 48
    • 79958861676 scopus 로고    scopus 로고
    • Randomized comparison of a multidisciplinary team care program with usual care in patients with systemic sclerosis
    • .Schouffoer AA, Ninaber MK, Beaart-van de Voorde LJ, et al. Randomized comparison of a multidisciplinary team care program with usual care in patients with systemic sclerosis. Arthritis Care Res 2011; 63:909-917
    • (2011) Arthritis Care Res , vol.63 , pp. 909-917
    • Schouffoer, A.A.1    Ninaber, M.K.2    Beaart-Van De Voorde, L.J.3
  • 49
    • 84875746213 scopus 로고    scopus 로고
    • Needs for online information and support of patients with systemic sclerosis
    • van der Vaart R, Repping-Wuts H, Drossaert CH, et al. Needs for online information and support of patients with systemic sclerosis. Arthritis Care Res 2013; 65:594-600
    • (2013) Arthritis Care Res , vol.65 , pp. 594-600
    • Van Der Vaart, R.1    Repping-Wuts, H.2    Drossaert, C.H.3
  • 50
    • 84861906453 scopus 로고    scopus 로고
    • Computer use problems and accommodation strategies at work and home for people with systemic sclerosis: A needs assessment
    • Baker NA, Aufman EL, Poole JL. Computer use problems and accommodation strategies at work and home for people with systemic sclerosis: A needs assessment. Am J Occup Ther 2012; 66:368-375
    • (2012) Am J Occup Ther , vol.66 , pp. 368-375
    • Baker, N.A.1    Aufman, E.L.2    Poole, J.L.3
  • 51
    • 84856023309 scopus 로고    scopus 로고
    • Feasibility and construct validity of PROMIS and Legacy Instruments in an academic scleroderma clinic-Analysis from the UCLA Scleroderma Quality of Life Study
    • .Khanna D, Maranian P, Rothrock N, et al. Feasibility and construct validity of PROMIS and Legacy Instruments in an academic scleroderma clinic-Analysis from the UCLA Scleroderma Quality of Life Study. Value Health 2012; 15:128-134
    • (2012) Value Health , vol.15 , pp. 128-134
    • Khanna, D.1    Maranian, P.2    Rothrock, N.3
  • 52
    • 34247385541 scopus 로고    scopus 로고
    • Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the Patient-Reported Outcomes Measurement Information System (PROMIS
    • Reeve BB, Hays RD, Bjorner JB, et al. Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the Patient-Reported Outcomes Measurement Information System (PROMIS). Med Care 2007; 45:S22-S31
    • (2007) Med Care , vol.45
    • Reeve, B.B.1    Hays, R.D.2    Bjorner, J.B.3
  • 53
    • 77956946593 scopus 로고    scopus 로고
    • The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008
    • Cella D, Riley W, Stone A, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008. J Clin Epidemiol 2010; 63:1179-1194
    • (2010) J Clin Epidemiol , vol.63 , pp. 1179-1194
    • Cella, D.1    Riley, W.2    Stone, A.3
  • 54
    • 79959577834 scopus 로고    scopus 로고
    • Brief, valid measures of dyspnea and related functional limitations in chronic obstructive pulmonary disease (COPD
    • Yount SE, Choi SW, Victorson D, et al. Brief, valid measures of dyspnea and related functional limitations in chronic obstructive pulmonary disease (COPD). Value Health 2011; 14:307-315
    • (2011) Value Health , vol.14 , pp. 307-315
    • Yount, S.E.1    Choi, S.W.2    Victorson, D.3
  • 55
    • 80055097170 scopus 로고    scopus 로고
    • Validity of two new patient reported outcome measures in systemic sclerosis: The PROMIS-29 Profile and the FACIT-Dyspnea
    • Hinchcliff M, Beaumont JL, Thavarajah K, et al. Validity of two new patient reported outcome measures in systemic sclerosis: The PROMIS-29 Profile and the FACIT-Dyspnea. Arthritis Care Res 2011; 63:1620-1628
    • (2011) Arthritis Care Res , vol.63 , pp. 1620-1628
    • Hinchcliff, M.1    Beaumont, J.L.2    Thavarajah, K.3
  • 56
    • 79961100069 scopus 로고    scopus 로고
    • Overview of the patient perspective at OMERACT 10-Conceptualizing methods for developing patient-reported outcomes
    • Kirwan JR, Tugwell PS. Overview of the patient perspective at OMERACT 10-Conceptualizing methods for developing patient-reported outcomes. J Rheumatol 2011; 38:1699-1701
    • (2011) J Rheumatol , vol.38 , pp. 1699-1701
    • Kirwan, J.R.1    Tugwell, P.S.2
  • 57
    • 84875730393 scopus 로고    scopus 로고
    • Measuring illness behavior in patients with systemic sclerosis
    • .Merz EL, Malcarne VL, Roesch SC, et al. Measuring illness behavior in patients with systemic sclerosis. Arthritis Care Res 2013; 65:585-593
    • (2013) Arthritis Care Res , vol.65 , pp. 585-593
    • Merz, E.L.1    Malcarne, V.L.2    Roesch, S.C.3
  • 58
    • 69749083926 scopus 로고    scopus 로고
    • Reliability and validity of the university of california los angeles scleroderma clinical trial consortium gastrointestinal tract instrument
    • Khanna D, Hays RD, Maranian P, et al. Reliability and validity of the University of California, Los Angeles Scleroderma Clinical Trial Consortium Gastrointestinal Tract Instrument. Arthritis Rheum 2009; 61:1257-1263
    • (2009) Arthritis Rheum , vol.61 , pp. 1257-1263
    • Khanna, D.1    Hays, R.D.2    Maranian, P.3
  • 59
    • 80052333075 scopus 로고    scopus 로고
    • Minimally important differences of the UCLA Scleroderma Clinical Trial Consortium Gastrointestinal Tract Instrument
    • .Khanna D, Furst DR, Maranian P, et al. Minimally important differences of the UCLA Scleroderma Clinical Trial Consortium Gastrointestinal Tract Instrument. J Rheumatol 2011; 38:1920-1924
    • (2011) J Rheumatol , vol.38 , pp. 1920-1924
    • Khanna, D.1    Furst, D.R.2    Maranian, P.3
  • 60
    • 84863220981 scopus 로고    scopus 로고
    • Validity of the Fear of Progression Questionnaire Short Form in patients with systemic sclerosis
    • Kwakkenbos L, van den Hoogen FH, Custers J, et al. Validity of the Fear of Progression Questionnaire Short Form in patients with systemic sclerosis. Arthritis Care Res 2012; 64:930-934
    • (2012) Arthritis Care Res , vol.64 , pp. 930-934
    • Kwakkenbos, L.1    Van Den Hoogen, F.H.2    Custers, J.3
  • 61
    • 84862586543 scopus 로고    scopus 로고
    • Validation of the scleroderma health assessment questionnaire and quality of life in English and Chinese-speaking patients with systemic sclerosis
    • Xinyi NG, Thumboo J, Low AHL. Validation of the scleroderma health assessment questionnaire and quality of life in English and Chinese-speaking patients with systemic sclerosis. Int J Rheum Dis 2012; 15:268-276
    • (2012) Int J Rheum Dis , vol.15 , pp. 268-276
    • Xinyi, N.G.1    Thumboo, J.2    Low, A.H.L.3
  • 62
    • 79960394853 scopus 로고    scopus 로고
    • Development and validation of French version of the UCLA Scleroderma Clinical Trial Consortium Gastrointestinal Tract Instrument
    • Bae S, Allanore Y, Coustet B, et al. Development and validation of French version of the UCLA Scleroderma Clinical Trial Consortium Gastrointestinal Tract Instrument. Clin Exp Rheumatol 2011; 29:S15-S21
    • (2011) Clin Exp Rheumatol , vol.29
    • Bae, S.1    Allanore, Y.2    Coustet, B.3
  • 63
    • 79960421274 scopus 로고    scopus 로고
    • Addressing patient healthcare demands in systemic sclerosis: Prepost assessment of a psycho-educational group programme
    • .Kwakkenbos L, Bluyssen SJ, Vonk MC, et al. Addressing patient healthcare demands in systemic sclerosis: Prepost assessment of a psycho-educational group programme. Clin Exp Rheumatol 2011; 29:S60-S65
    • (2011) Clin Exp Rheumatol , vol.29
    • Kwakkenbos, L.1    Bluyssen, S.J.2    Vonk, M.C.3
  • 64
    • 84867381693 scopus 로고    scopus 로고
    • New directions for patient-centred care in scleroderma: The Scleroderma Patient-centred Intervention Network (SPIN
    • .Thombs BD, Jewett LR, Assassi S, et al. New directions for patient-centred care in scleroderma: The Scleroderma Patient-centred Intervention Network (SPIN). Clin Exp Rheumatol 2012; 30 (Suppl 71):S23-S29
    • (2012) Clin Exp Rheumatol , vol.30 , Issue.SUPPL. 71
    • Thombs, B.D.1    Jewett, L.R.2    Assassi, S.3
  • 65
    • 83255164768 scopus 로고    scopus 로고
    • Functional disturbance of the stressadaptation system in patients with scleroderma
    • .Matsuura E, Ohta A, Suematsu R, et al. Functional disturbance of the stressadaptation system in patients with scleroderma. Mod Rheumatol 2011; 21:397-405
    • (2011) Mod Rheumatol , vol.21 , pp. 397-405
    • Matsuura, E.1    Ohta, A.2    Suematsu, R.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.