Perceived Parenting Ability and Systemic Sclerosis

Musculoskeletal Care

Volumn 9, Issue 1, 2011, Pages 32-40

  Poole, Janet L ^a   Willer, Kelly ^b   Mendelson, Cindy ^c   Sanders, Margaret ^d   Skipper, Betty ^d  

^a UNIVERSITY OF NEW MEXICO   (United States)

^b Heritage Home Care   (United States)

^c UNIVERSITY OF NEW MEXICO   (United States)

^d UNIVERSITY OF NEW MEXICO SCHOOL OF MEDICINE   (United States)

Author keywords

Mothers; Parenting; Systemic sclerosis

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILD REARING; CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; DISABILITY; DISABLED PERSON; FATIGUE; FEMALE; HEALTH STATUS; HUMAN; INFANT; MOTHER; PATHOPHYSIOLOGY; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SYSTEMIC SCLEROSIS;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; CHILD; CHILD REARING; CHILD, PRESCHOOL; CROSS-SECTIONAL STUDIES; DISABILITY EVALUATION; DISABLED PERSONS; FATIGUE; FEMALE; HEALTH STATUS; HUMANS; INFANT; MOTHERS; QUESTIONNAIRES; SCLERODERMA, SYSTEMIC;

EID: 79951985629     PISSN: 14782189     EISSN: 15570681     Source Type: Journal    
DOI: 10.1002/msc.197     Document Type: Article

References (35)

1. Allaire SH, Meenan RF, Anderson JJ (1991). The impact of rheumatoid arthritis on the household work performance of women. Arthritis and Rheumatism 34: 669-78.
2. Backman CL, Smith LDF, Smith S, Montie PL, Suto M (2007). Experiences of mothers living with inflammatory arthritis. Arthritis Care and Research 57: 381-8.
3. Barlow JH, Cullen LA, Foster NE, Harrison K, Wade M (1999). Does arthritis influence perceived ability to fulfill a parenting role? Perceptions of mothers, fathers and grandparents. Patient Education and Counseling 37: 141-51.
4. Belza B (1995). Comparison of self-reported fatigue in rheumatoid arthritis and controls. Journal of Rheumatology 22: 639-43.
5. Belza B, Henke C, Yelin EH, Epstein WW, Gilliss CL (1993). Correlates of fatigue in older adults with rheumatoid arthritis. Nursing Research 42: 93-9.
6. Clements PJ, Wong KW, Hurwitz EI, Furst DE, Mayes M, White B, Wigley F, Weisman M, Barr W, Moreland L, Medsger TA Jr, Steen V, Martin R, Collier D, Weinstein A, Lally E, Varga J, Weiner S, Andrews B, Abeles M, Seibold J (1999). Correlates of the disability index of the Health Assessment Questionnaire: A measure of functional impairment in systemic sclerosis. Arthritis and Rheumatism 42: 2372-80.
7. Esdaile SA, Farrell EA, Olson JA (2004). Anticipating occupations of mothering and the development of agency. In: Esdaile SA, Olson JA (Eds), Mothering Occupations: Challenge, Agency, and Participation. Philadelphia, PA: FA Davis.
8. Farber RS (2000). Mothers with disabilities: In their own voice. American Journal of Occupational Therapy 54: 260-8.
9. Farber RS (2004). Experience of mothers with disabilities: Learning from their voice. In: Esdaile SA, Olson JA (Eds), Mothering Occupations: Challenge, Agency, and Participation. Philadelphia, PA: FA Davis.
10. Francis-Connolly E (2000). Toward an understanding of mothering: A comparison of two motherhood stages. American Journal of Occupational Therapy 54: 281-9.
11. Fries J, Spitz P, Kraines G, Holman H (1980). Measurement of patient outcome in arthritis. Arthritis and Rheumatism 23: 137-45.
12. Grant M (2001). Mothers with arthritis, child care and occupational therapy: Insight through case studies. British Journal of Occupational Therapy 64: 322-9.
13. Katz PP, Pasch LA, Wong B (2003). Development of an instrument to measure disability in parenting activity among women with rheumatoid arthritis. Arthritis and Rheumatism 48: 935-43.
14. Khanna D, Ahmed M, Furst DE, Ginsburg SS, Park GS, Hornung R, Tsevat J (2007). Health values of patients with systemic sclerosis. Arthritis Care and Research 57: 86-93.
15. Lopata H, Barnewolt D (1984). The middle years: Changes and variations in social role commitments. In: Baruch G, Brooks-Gunn J (Eds), Women in Mid-life. New York, NY: Plenum Press.
16. Medsger TA Jr (2004). Classifications, prognosis. In: Clements PJ, Furst DE (Eds), Systemic Sclerosis. Philadelphia, PA: Lippincott Williams & Wilkins.
17. Merkel P, Herlyn K, Martin RW, Anderson JJ, Mayes MD, Bell P, Korn JH, Simms RW, Csuka ME, Medsger TA Jr, Rothfield NF, Ellman MH, Collier DH, Weinstein A, Furst DE, Jiménez SA, White B, Seibold JR, Wigley FM. (2002). Measuring disease activity and functional status in patients with scleroderma and Raynaud's phenomenon. Arthritis and Rheumatism 46: 2410-20.
18. Mitten DL, Treharne GJ, Hale ED, Williams RA, Kitas GS (2007). The health and life experiences of mothers with rheumatoid arthritis: A phenomenological study. Musculoskeletal Care 5: 191-205.
19. Moulton L, Rannou F, Bérezné A, Pagnoux C, Guilpain P, Goldwasser F, Revel M, Guillevin L, Fermanian J, Poiraudeau S (2008). Patient preference disability questionnaire in systemic sclerosis: A cross-sectional survey. Arthritis Care and Research 59: 968-73.
20. Neuberger G (2003). Measures of fatigue. Arthritis and Rheumatism 49: S178-80.
21. Ostensen M, Rugelsjoen A (1992). Problem areas of the rheumatic mother. American Journal of Reproductive Immunology 28: 254-5.
22. Poole JL, Steen VD (1991). The use of the health assessment questionnaire (HAQ) to determine physical disability in systemic sclerosis. Arthritis Care and Research 4: 27-31.
23. Poole J, Willer I, Mendelson C (2007). Challenges to mothering occupations for women with chronic rheumatic disease. Paper presented at the Sixth Annual Research Conference of the Society for the Study of Occupation, Albuquerque, NM. Abstract retrieved from
24. Poole JL, Willer K, Mendelson C (2009). The occupation of motherhood: Challenges for mothers with scleroderma. American Journal of Occupational Therapy 63: 214-9.
25. Poole JL, Williams CA, Bloch DA, Hollack B, Spitz, P (1995). Concurrent validity of the Health Assessment Questionnaire in scleroderma. Arthritis Care and Research 8: 189-93.
26. Portney L, Watkins M (2009). Foundations of Clinical Research: Applications to Practice (3rd edn). Upper Saddle River, NJ: Prentice Hall Health.
27. Rannou F, Poiraudeau S, Berezné A, Baubet T, Le-Guern V, Cabane J, Guillevin L, Revel M, Fermanian J, Mouthon L (2007). Assessing disability and quality of life in systemic sclerosis: Construct validities of the Cochin Hand Function Scale, Health Assessment Questionnaire (HAQ), Systemic Sclerosis HAQ, and Medical Outcomes Study 36-Item Short Form Health Survey. Arthritis Care and Research 57: 94-102.
28. Reisine ST, Goodenow C, Grady KE (1987). The impact of rheumatoid arthritis on the homemaker. Social Science and Medicine 25: 89-95.
29. Rosenthal DB (1996). Rheumatoid arthritis and household work limitations in women. Work 6: 33-40.
30. Sandqvist G, Akesson A, Eklund M (2005a). Daily occupations and well-being in women with limited cutaneous systemic sclerosis. American Journal of Occupational Therapy 59: 390-7.
31. Sandqvist G, Eklund M, Akesson A, Nordenskiold U (2005b). Daily activities and hand function in women with scleroderma. Scandinavian Journal of Rheumatology 33: 102-7.
32. SAS (2002-2003). Version 9. Cary, NC: SAS Institute, Inc.
33. Tack B (1991). Dimensions and correlates of fatigue in older adults with rheumatoid arthritis (dissertation). San Francisco, CA: University of California, School of Nursing.
34. Thomas SP (1997). Distressing aspects of women's roles, vicarious stress, and health consequences. Issues in Mental Health Nursing 18: 539-57.
35. Thorne S (1990). Mothers with chronic illness: A predicament of social construction. Health Care for Women International 11: 209-21.