The experience of emotional distress among women with scleroderma

Qualitative Health Research

Volumn 22, Issue 9, 2012, Pages 1195-1206

  Newton, Evan G ^a   Thombs, Brett D ^b   Groleau, Danielle ^a,b  

^a MCGILL UNIVERSITY   (Canada)

^b MCGILL UNIVERSITY   (Canada)

Author keywords

coping and adaptation; depression; disfigurement; illness and disease, chronic; illness and disease, experiences; psychiatry

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; DEPRESSION; EMOTION; FEMALE; HUMAN; MENTAL STRESS; MIDDLE AGED; PSYCHOLOGIC TEST; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITATIVE RESEARCH; SOCIAL SUPPORT; SYSTEMIC SCLEROSIS; VERBAL COMMUNICATION; WOMEN'S HEALTH;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; DEPRESSION; EMOTIONS; FEMALE; HUMANS; INTERVIEW, PSYCHOLOGICAL; MIDDLE AGED; NARRATION; PSYCHOMETRICS; QUALITATIVE RESEARCH; SCLERODERMA, SYSTEMIC; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; WOMEN'S HEALTH;

EID: 84864695217     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732312449207     Document Type: Article

References (39)

1. Adams S. G., Dammers P. M., Saia T. L., Brantley P. J., Gaydos G. R.. Stress, depression, and anxiety predict average symptom severity and daily symptom fluctuation in systemic lupus erythematosus. Journal of Behavioral Medicine. 1994 ; 17 (5). 459-477
2. Baubet T., Ranque B., Taïeb O., Bérezné A., Bricou O., Mehallel S.,... Mouthon L.. Mood and anxiety disorders in systemic sclerosis patients. La Presse Médicale. 2011 ; 40 (2). e111 - e119
3. Bernatsky S., Joseph L., Pineau C. A., Belisle P., Hudson M., Clarke A. E.. Scleroderma prevalence: Demographic variations in a population-based sample. Arthritis Care & Research. 2009 ; 61 (3). 400-404
4. Bijlsma J. W. J., Straub R. H., Masi A. T., Lahita R. G., Cutolo M.. Neuroendocrine immune mechanisms in rheumatic diseases. Trends in Immunology. 2002 ; 23 (2). 59-61
5. Brody D., Khaliq A., Thompson T.. Patients' perspectives on the management of emotional distress in primary care settings. Journal of General Internal Medicine. 1997 ; 12 (7). 403-406
6. Chifflot H., Fautrel B., Sordet C., Chatelus E., Sibilia J.. Incidence and prevalence of systemic sclerosis: A systematic literature review. Seminars in Arthritis and Rheumatism ; 2008 ; 2008. 223.
7. ClarkeD. M.KissaneD. W.TrauerT.SmithG. C. (2005). Demoralization, anhedonia and grief in patients with severe physical illness. World Psychiatry, 4(2), 8-15. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/16633525
8. de Figueiredo J. M.. Depression and demoralization: Phenomenologic differences and research perspectives. Comprehensive Psychiatry. 1993 ; 34 (5). 308-311
9. Frank J. D.. Psychotherapy: The restoration of morale. American Journal of Psychiatry. 1974 ; 131 (3). 271-274
10. Gottesman K. The first year-scleroderma: An essential guide for the newly diagnosed. Cambridge, MA: Da Capo Press ; 2003 :
11. Groleau D., Young A., Kirmayer L. J.. The McGill Illness Narrative Interview (MINI): An interview schedule to elicit meanings and modes of reasoning related to illness experience. Transcultural Psychiatry. 2006 ; 43 (4). 671-691
12. Hobfoll S. E. Stress, culture, and community. New York: Springer ; 1998 :
13. Horwitz A., Wakefield J. The loss of sadness. New York: Oxford ; 2007 :
14. JacobsenJ. C.MaytalG.SternT. A. (2007). Demoralization in medical practice. Primary Care Companion to the Journal of Clinical Psychiatry, 9(2), 139-143. Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1896303/
15. Jacobsen J. C., Vanderwerker L. C., Block S. D., Friedlander R. J., Maciejewski P. K., Prigerson H. G.. Depression and demoralization as distinct syndromes: Preliminary data from a cohort of advanced cancer patients. Indian Journal of Palliative Care. 2006 ; 12 (1). 8-15
16. Jewett L. R., Haythornthwaite J. A., Thombs B. D. Scleroderma: From pathogenesis to comprehensive management. Varga J. Denton C. P. Wigley F. M., ed. New York, NY: Springer ; 2012: 641-649.
17. Joachim G., Acorn S.. Life with a rare chronic disease: The scleroderma experience. Journal of Advanced Nursing. 2003 ; 42 (6). 598-606
18. JohnsonS. R.GlamanD. D.SchentagC. T.LeeP. (2006). Quality of life and functional status in systemic sclerosis compared to other rheumatic diseases. Journal of Rheumatology, 33(6), 1117-1122. Retrieved from http://www.jrheum.org/ content/33/6/1117.abstract
19. JureidiniJ.TonkinA. (2006). Overuse of antidepressant drugs for the treatment of depression. CNS Drugs, 20(8), 1050-1057. Retrieved from http://www.ingentaconnect.com/content/adis/cns/2006/00000020/00000008/art00002
20. MangelliL.FavaG. A.GrandiS.GrassiL.OttoliniF.PorcelliP.... SoninoN. (2005). Assessing demoralization and depression in the setting of medical disease. Journal of Clinical Psychiatry, 66(3), 391-394. Retrieved from http://www.psychiatrist.com/privatepdf/2005/v66n03/v66n0317.pdf
21. Mayes M. The scleroderma book: A guide for patients and families. New York, NY: Oxford ; 1999 :
22. Mayes M. D.. Scleroderma epidemiology. Rheumatic Diseases Clinics of North America. 2003 ; 29 (2). 239-254
23. Mayes M. D., Lacey J. V., Beebe-Dimmer J., Gillespie B. W., Cooper B., Laing T. J., Schottendfeld D.. Prevalence, incidence, survival, and disease characteristics of systemic sclerosis in a large US population. Arthritis & Rheumatism. 2003 ; 48 (8). 2246-2255
24. Morse J. M., Clark L.. Implementing change through education. Qualitative Health Research. 2010 ; 20: 1171-1172
25. Pawlak C., Witte T., Heiken H., Hundt M., Schubert J., Wiese B.,... Schedlowski M.. Flares in patients with systemic lupus erythematosus are associated with daily psychological stress. Psychotherapy and Psychosomatics. 2003 ; 7 (2). 159-165
26. Razykov I., Thombs B. D., Hudson M., Bassel M., Baron M.. Prevalence and clinical correlates of pruritus in patients with systemic sclerosis. Arthritis Care & Research. 2009 ; 61 (12). 1765-1770
27. Ritchie J., Spencer L. The qualitative researcher's companion. Huberman A. M. Miles M. B., ed. Thousand Oaks, CA: Sage ; 2002: 305-331.
28. Robinson C. A.. Managing life with a chronic condition: The story of normalization. Qualitative Health Research. 1993 ; 3: 6-28
29. Sandelowski M.. Whatever happened to qualitative description?. Research in Nursing & Health. 2000 ; 23: 334-340
30. Seibold J. R. Kelley's textbook of rheumatology. 2005 ). Scleroderma. In HarrisE. D.BuddR. C.FiresteinG. S.GenoveseM. C.SergentJ. S.RuddyS.SledgeC. B. (Eds.), Kelley's textbook of rheumatology (7th ed., Vol. 2, pp. 1279-1308). Philadelphia, PA: Elsevier. Harris E. D. Budd R. C. Firestein G. S. Genovese M. C. Sergent J. S. Ruddy S. Sledge C. B., ed. Philadelphia, PA: Elsevier ; 2005: 1279-1308.
31. Selye H. The stress of life. New York: McGraw-Hill ; 1956 :
32. Suarez-AlmazorM. E.KallenM. A.RoundtreeA. K.MayesM. (2007). Disease and symptom burden in systemic sclerosis: A patient perspective. Journal of Rheumatology, 34(8), 1718-1726. Retrieved from http://www.jrheum.org/content/34/ 8/1718.abstract
33. Thombs B. D., Hudson M., Bassel M., Taillefer S. S., Baron M.. Sociodemographic, disease, and symptom correlates of fatigue in systemic sclerosis: Evidence from a sample of 659 Canadian Scleroderma Research Group Registry patients. Arthritis Care & Research. 2009 ; 61 (7). 966-973
34. Thombs B. D., Taillefer S. S., Hudson M., Baron M.. Depression in patients with systemic sclerosis: A systematic review of the evidence. Arthritis Care & Research. 2007 ; 57 (6). 1089-1097
35. Thombs B. D., van Lankveld W., Bassel M., Baron M., Buzza R., Haslam S.,... Worron-Sauve M.. Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda. Arthritis Care & Research. 2010 ; 62 (8). 1181-1189
36. Tiller K.. Psychological screening and referral: A snapshot of a medical oncology department. Psycho-Oncology. 2006 ; 15 (2). S430 - S431
37. von Ballestrem C., Strauss M., Kaechele H.. Contribution to the epidemiology of postnatal depression in Germany-Implications for the utilization of treatment. Archives of Women's Mental Health. 2005 ; 8 (1). 29-35
38. Walker J. G., Littlejohn G. O., McMurray N. E., Cutolo M.. Stress system response and rheumatoid arthritis: A multilevel approach. Rheumatology. 1999 ; 38 (11). 1050-1057
39. Wigley F. M., Hummers L. K. Rheumatology. 2003 ). Clinical features of systemic sclerosis. In HochbergM. C.SilmanA. J.SmolenJ. S.WeinblattM. E.WeismannW. H. (Eds.), Rheumatology (3rd ed., pp. 1463-1480). Philadelphia, PA: Mosby. Hochberg M. C. Silman A. J. Smolen J. S. Weinblatt M. E. Weismann W. H., ed. Philadelphia, PA: Mosby ; 2003: 1463-1480.