Predictors of health-related quality of life and fatigue in systemic sclerosis: Evaluation of the EuroQol-5D and FACIT-F assessment tools

Clinical Rheumatology

Volumn 31, Issue 8, 2012, Pages 1215-1222

  Strickland, Gemma ^a   Pauling, John ^a   Cavill, Charlotte ^b   McHugh, Neil ^a,b  

^a ROYAL NATIONAL HOSPITAL FOR RHEUMATIC DISEASES   (United Kingdom)

^b University of Bath   (United Kingdom)

Author keywords

Disability; Fatigue; Outcome assessment; Quality of life; Systemic sclerosis

Indexed keywords

ADULT; ARTICLE; CLINICAL FEATURE; DISEASE DURATION; FATIGUE; FEMALE; HUMAN; MALE; PAIN ASSESSMENT; PHENOTYPE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCLEROSIS; SEROLOGY; SYSTEMIC SLCEROSIS;

AGED; COHORT STUDIES; CROSS-SECTIONAL STUDIES; DISABILITY EVALUATION; FATIGUE; FEMALE; HUMANS; MALE; MIDDLE AGED; PAIN MEASUREMENT; QUALITY OF LIFE; QUESTIONNAIRES; SCLERODERMA, SYSTEMIC; SEVERITY OF ILLNESS INDEX; SICKNESS IMPACT PROFILE;

EID: 84865989652     PISSN: 07703198     EISSN: 14349949     Source Type: Journal    
DOI: 10.1007/s10067-012-1997-1     Document Type: Article

References (27)

1. Merkel PA, Clements PJ, Reveille JD, Suarez-Almazor ME, Valentini G, Furst DE (2003) Current status of outcome measure development for clinical trials in systemic sclerosis. Report from OMERACT 6. J Rheumatol 30(7):1630-1647
2. Thombs BD, Hudson M, Bassel M, Taillefer SS, Baron M (2009) Sociodemographic, disease, and symptom correlates of fatigue in systemic sclerosis: Evidence from a sample of 659 Canadian Scleroderma Research Group Registry patients. Arthritis Rheum 61(7):966-973, Jul 15
3. Thombs BD, Bassel M, McGuire L, Smith MT, Hudson M, Haythornthwaite JA (2008) A systematic comparison of fatigue levels in systemic sclerosis with general population, cancer and rheumatic disease samples. Rheumatology (Oxford) 47(10):1559-1563
4. Bassel M, Hudson M, Taillefer SS, Schieir O, Baron M, Thombs BD (2011) Frequency and impact of symptoms experienced by patients with systemic sclerosis: Results from a Canadian National Survey. Rheumatology (Oxford) 50(4):762-767
5. Cella D, Yount S, Sorensen M, Chartash E, Sengupta N, Grober J (2005) Validation of the Functional Assessment of Chronic Illness Therapy Fatigue Scale relative to other instrumentation in patients with rheumatoid arthritis. J Rheumatol 32(5):811-819
6. Frech T, Hays RD, Maranian P, Clements PJ, Furst DE, Khanna D (2011) Prevalence and correlates of sleep disturbance in systemic sclerosis -results from the UCLA scleroderma quality of life study. Rheumatology (Oxford) 50(7):1280-1287
7. Hudson M, Thombs BD, Steele R, Panopalis P, Newton E, Baron M (2009) Health-related quality of life in systemic sclerosis: A systematic review. Arthritis Rheum 61(8):1112-1120, Aug 15
8. Group E (1990) Euroqol -A new facility for the measurement of health-related quality of life. Health Policy 16:199-208
9. Gualtierotti R, Scalone L, Ingegnoli F, Cortesi P, Lubatti C, Zeni S et al (2010) Health related quality of life assessment in patients with systemic sclerosis. Reumatismo 62(3):210-214, Jul-Sep
10. Muller H, Rehberger P, Gunther C, Schmitt J. Determinants of disability, quality of life and depression in dermatological patients with systemic scleroderma. Br J Dermatol. 2011 Sep 14
11. LeRoy EC, Medsger TA Jr (2001) Criteria for the classification of early systemic sclerosis. J Rheumatol 28(7):1573-1576
12. Clements PJ, Lachenbruch PA, Seibold JR, Zee B, Steen VD, Brennan P et al (1993) Skin thickness score in systemic sclerosis: An assessment of interobserver variability in 3 independent studies. J Rheumatol 20(11):1892-1896
13. Badesch DB, Champion HC, Sanchez MA, Hoeper MM, Loyd JE, Manes A et al (2009) Diagnosis and assessment of pulmonary arterial hypertension. J Am Coll Cardiol 54(1 Suppl):S55-S66, Jun 30
14. Steen VD, Medsger TA Jr (1997) The value of the Health Assessment Questionnaire and special patient-generated scales to demonstrate change in systemic sclerosis patients over time. Arthritis Rheum 40(11):1984-1991
15. Bruce B, Fries JF (2003) The Stanford Health Assessment Questionnaire: A review of its history, issues, progress, and documentation. J Rheumatol 30(1):167-178
16. Marra CA, Esdaile JM, Guh D, Kopec JA, Brazier JE, Koehler BE et al (2004) A comparison of four indirect methods of assessing utility values in rheumatoid arthritis. Med Care 42(11):1125-1131
17. Yellen SB, Cella DF, Webster K, Blendowski C, Kaplan E (1997) Measuring fatigue and other anemia-related symptoms with the Functional Assessment of Cancer Therapy (FACT) measurement system. J Pain Symptom Manag 13:63-74
18. Cohen J. Applied multiple regression/correlation analysis for the behavioural sciences. 2nd ed. Hillsdale N, editor: Erlbaum; 2003
19. Poole JL, Williams CA, Bloch DA, Hollak B, Spitz P (1995) Concurrent validity of the Health Assessment Questionnaire Disability Index in Scleroderma. Arthritis Care Res 8(3):189-193
20. Clements PJ, Wong WK, Hurwitz EL, Furst DE, Mayes M, White B et al (2001) The Disability Index of the Health Assessment Questionnaire is a predictor and correlate of outcome in the highdose versus low-dose penicillamine in systemic sclerosis trial. Arthritis Rheum 44(3):653-661
21. Webster K, Cella D, Yost K (2003) The Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System: Properties, applications, and interpretation. Health Qual Life Outcomes 1:79
22. Lai JS, Beaumont JL, Ogale S, Brunetta P, Cella D (2011) Validation of the functional assessment of chronic illness therapy-fatigue scale in patients with moderately to severely active systemic lupus erythematosus, participating in a clinical trial. J Rheumatol 38(4):672-679
23. Stratton R, Wilson H, Black C (2001) Pilot study of antithymocyte globulin plus mycophenolate mofetil in recent-onset diffuse scleroderma. Rheumatology 40:84-88
24. Rannou F, Poiraudeau S, Berezne A, Baubet T, Le-Guern V, Cabane J et al (2007) Assessing disability and quality of life in systemic sclerosis: Construct validities of the Cochin Hand Function Scale, Health Assessment Questionnaire (HAQ), Systemic Sclerosis HAQ, and Medical Outcomes Study 36-Item Short Form Health Survey. Arthritis Rheum 57(1):94-102, Feb 15
25. van Hoogmoed D, Fransen J, Bleijenberg G, van Riel P (2010) Physical and psychosocial correlates of severe fatigue in rheumatoid arthritis. Rheumatology (Oxford) 49(7):1294-1302
26. Del Rosso A, Boldrini M, D'Agostino D, Placidi GP, Scarpato A, Pignone A et al (2004) Health-related quality of life in systemic sclerosis as measured by the Short Form 36: Relationship with clinical and biologic markers. Arthritis Rheum 51(3):475-481, Jun 15
27. Nguyen C, Berezne A, Baubet T, Mestre-Stanislas C, Rannou F, Papelard A et al (2011) Association of gender with clinical expression, quality of life, disability, and depression and anxiety in patients with systemic sclerosis. PLoS One 6(3):e17551