Decision Support for Patients: Values Clarification and Preference Elicitation

Medical Care Research and Review

Volumn 70, Issue 1_suppl, 2013, Pages 50S-79S

  Crump, R Trafford ^b  

^a DARTMOUTH MEDICAL SCHOOL   (United States)

^b UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

communication; decision support; eliciting patients preferences; preference sensitive care; shared decision making; values clarification

Indexed keywords

ARTICLE; DECISION MAKING; DECISION SUPPORT SYSTEM; DOCTOR PATIENT RELATION; HUMAN; INTERPERSONAL COMMUNICATION; PATIENT PREFERENCE; PSYCHOLOGICAL ASPECT; PSYCHOLOGY;

COMMUNICATION; DECISION MAKING; DECISION SUPPORT TECHNIQUES; HUMANS; PATIENT PREFERENCE; PHYSICIAN-PATIENT RELATIONS;

EID: 84884542177     PISSN: 10775587     EISSN: 15526801     Source Type: Journal    
DOI: 10.1177/1077558712461182     Document Type: Article

References (112)

1. Araki S. S. Kuntz K. M. Llewellyn-Thomas H. Weinstein M. C. Hornstein M. D. Laufer M. R. Tosteson A. N. A. (2003). Choosing a treatment for endometriosis pain: Does the method of preference elicitation make a difference? Medical Decision Making, 23, 544.
2. Ariely D. Carmon Z. (2003). Summary assessment of experiences: The whole is different from the sum of its parts. In Lowenstein G. Read D. Baumeister R. F.(Eds.), Time and decision: Economic and psychology perspectives on intertemporal choice (pp. 323-349). New York, NY: Russell Sage Foundation.
3. Bales R. F. (1950). Interaction process analysis. Cambridge, England: Addison-Wesley.
4. Bandura A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. Psychology Review, 84, 191-215.
5. Barclay-Goddard R. Epstein J. D. Mayo N. E. (2009). Response shift: A brief overview and proposed research priorities. Quality of Life Research, 18, 335-346.
6. Barnato A. E. Llewellyn-Thomas H. A. Peters E. Siminoff L. Collins D. Barry M. (2007). Communication and decision making in cancer care: Setting research priorities for decision support/patients’ decision aids. Medical Decision Making, 27, 626-634.
7. Barry M. (2010). The prostate cancer treatment bazaar. Archives of Internal Medicine, 170, 450-452.
8. Barry M. Fowler F. Mulley A. Henderson J. V. Wennberg J. E. (1995). Patient reactions to a program designed to facilitate patient participation in treatment decisions for benign prostatic hyperplasia. Medical Care, 33, 771-782.
9. Baxter L. A. Braithwaite D. O. (2008). Engaging theories in interpersonal communication: Multiple perspectives. Thousand Oaks, CA: Sage.
10. Bekker H. Winterbottom A. Fowler J. Volk R. J. Feldman-Stewart D. Butow P. … Dillard A. (2012). Using personal stories. In Volk R. Llewellyn-Thomas H.(Eds.), 2012 Update of the International Decision Aids Standards (IPDAS) collaboration’s background document (Chap. E). Retrieved from http://ipdas.ohri.ca/resources.html
11. Bennett C. Graham I. D. Kristjansson E. Kearing S. A. Clay K. F. O’Connor A. M. (2010). Validation of a preparation for decision making scale. Patient Education and Counseling, 78, 130-133.
12. Berger C. R. (1997). Planning strategic interaction: Attaining goals through communicative action. Mahwah, NJ: Lawrence Erlbaum.
13. Blank T. Graves K. Sepucha K. Llewellyn-Thomas H. (2006). Understanding treatment decision making: Contexts, commonalities, complexities, and challenges. Annals of Behavioral Medicine, 32, 211-217.
14. Busemeyer J. Townsend J. (1993). Decision field theory: A dynamic-cognitive approach to decision making in an uncertain environment. Psychology Review, 100, 432-459.
15. Bylund C. L. Peterson E. B. Cameron K. A. (2012). A practitioner’s guide to interpersonal communication theory: An overview and exploration of selected theories. Patient Education and Counseling, 87, 261-267.
16. Chapman G. B. Elstein A. S. (2000). Cognitive processes and biases in medical decision making. In Chapman G. B. Sonnenberg F. A.(Eds.), Decision making in health care: Theory, psychology and applications (pp. 183-210). Cambridge, England: Cambridge University Press.
17. Charles C. Gafni A. Whelan T. (1997). Decision making in the medical encounter: Revisiting the shared treatment decision making model. Social Science & Medicine, 49, 651-661.
18. Charles C. Gafni A. Whelan T. O’Brien M. A. (2005). Treatment decision aids: Conceptual issues and future directions. Health Expectations, 8, 114-125.
19. Col N. Bozzuto L. Kirkegaard P. Koelewijn-van Loon M. Majeed H. Jen Ng C. Pacheco-Huergo V. (2011). Interprofessional education about shared decision making for patients in primary care settings. Journal of Interprofessional Care, 25, 409-415.
20. Collaca L. Finniss D. (2012). Nocebo effects, patient-clinician communication, and therapeutic outcomes. Journal of the American Medical Association, 307, 567-568.
21. Collins E. D. Moore C. Clay K. Kearing S. O’Connor A. Llewellyn-Thomas H. Pacheco-Huergo V. (2009). Can women with early-stage breast cancer make an informed decision for mastectomy? Journal of Clinical on cology, 27, 519-525.
22. Crump R. T. Llewellyn-Thomas H. A. (2011). Assessing Medicare beneficiaries’ strength-of-preference scores for health care options: How engaging does the elicitation technique need to be? Health Expectations, 14(Supplement s1), 33-45.
23. Crump T. Wedley W. (2011). A guiding framework for the evaluation of values clarification exercises. Medical Decision Making. Retrieved from http://smdm.confex.com/smdm/2011ch/webprogram/Paper6552.html
24. Deyo R. (2007). Back surgery—who needs it? (2007). New England Journal of Medicine, 356, 2239-2243.
25. Deyo R. A. Cherkin D. C. Weinstein J. Howe J. Ciol M. Mulley A. G. (2000). Involving patients in clinical decisions: Impact of an interactive video program on use of back surgery. Medical Care, 38, 959-969.
26. Dolan J. G. (1996). Are patients capable of using the analytic hierarchy process and willing to use it to help make clinical decisions? Medical Decision Making, 15, 76-80.
27. Dolan J. G. (2008). Shared decision-making—transferring research into practice: The Analytic Hierarchy Process (AHP). Patient Education and Counseling, 73, 418-425.
28. Donabedian A. (1966). Evaluating the quality of medical care. Milbank Memorial Fund Quarterly, 44, 166-206.
29. Dowie J. (2002). The role of patients’ meta-preferences in the design and evaluation of decision support systems. Health Expectations, 5, 16-27.
30. Druckman J. N. Lupia A. (2000). Preference formation. Annual Review of Political Science, 3, 1-24.
31. Durand M. A. Stiel M. Boivin J. Elwyn G. (2008). Where is the theory? Evaluating the theoretical frameworks described in decision support technologies. Patient Education and Counseling, 71, 125-135.
32. Dy S. M. (2007). Instruments for evaluating shared medical decision making. Medical Care Research and Review, 64, 623-649. doi:10.1177/1077558707305941
33. Elwyn G. Edwards A. Mowle S. Wensing M. Wilkinson C. Kinnersley P. Grol R. (2001). Measuring the involvement of patients in shared decision making: A systematic review of instruments. Patient Education and Counseling, 43, 5-22.
34. Elwyn G. Edwards A. Wensing M. Hood K. Atwell C. Grol R. (2003). Shared decision making: Developing the OPTION scale for measuring patient involvement. Quality and Safety in Health Care, 12, 93-99.
35. Entwistle V. (2009). Patient involvement in decision making: The importance of a broad conceptualization. In Elwyn G. Edwards A.(Eds.), Shared decision making in health care: Achieving evidence based patient choice (pp. 17-22). Oxford, England: Oxford University Press.
36. Feather N. T. (1992). Values, valences, expectations, and actions. Journal of Social Issues, 48, 109-124.
37. Feldman-Stewart D. Brennenstuhl S. Brundage M. D. Roques T. (2006). An explicit values clarification task: Development and validation. Patient Education and Counseling, 63, 350-356.
38. Fineberg H. V. Weinstein M. C. (1980). Clinical decision analysis. Philadelphia, PA: Saunders.
39. Fishhoff B. Slovic P. Lichtenstein S. (1980). Knowing what you want: Measuring labile values. In Wallsten T. S.(Ed.), Cognitive processes in choice and decision behavior (pp. 117-141). Hillsdale, NJ: Lawrence Erlbaum.
40. Fraenkel L. (2009). Conjoint analysis. In Kattan M. W.(Ed.), Encyclopedia of medical decision making (pp. 179-184). Thousand Oaks, CA: Sage.
41. Frosch D. L. Bhatnagar V. Tally S. Hamori C. Kaplan R. M. (2008). Internet patient decision support: A randomized controlled trial comparing alternative approaches for men considering prostate cancer screening. Archives of Internal Medicine, 168, 363-369.
42. Gafni A. Charles C. (2009). The physician-patient encounter: an agency relationship? In Elwyn G. Edwards A.(Eds.), Shared decision making in health care: Achieving evidence based patient choice (pp. 73-78). Oxford, England: Oxford University Press.
43. Gigerenzer G. (2008). Rationality for mortals: How people cope with uncertainty. Oxford, England: Oxford University Press.
44. Gigerenzer G. Goldstein D. G. (1996). Reasoning the fast and frugal way: Models of bounded rationality. Psychological Review, 103, 650-669.
45. Guimond P. Bunn H. O’Connor A. Jacobsen M. J. Tait V. K. Drake E. R. Elmslie T. (2004). Validation of a tool to assess health practitioners’ decision support and communication skills. Patient Education and Counseling, 50, 235-245.
46. Hagoel L. Volz S. Palileo L. M. Eldar-Lissai A. Kamath C. C. Cox E. D. (2011). Interprofessional education about decision support for patients across cultures. Journal of Interprofessional Care, 25, 431-433.
47. Härter M. van der Weijden T. Elwyn G. (2011). Policy and practice developments in the implementation of shared decision making: An international perspective. German Journal for Evidence and Quality in Health Care, 4, 229-233.
48. Hoffman R. M. Couper M. P. Zikmund-Fisher B. J. Levin C. A. McNaughton-Collins M. Helitzer D. L. Barry M. J. (2009). Prostate cancer screening decisions: Results from the national survey of medical decisions (DECISIONS Study). Archives of Internal Medicine, 169, 1611-1618.
49. Holmes-Rovner M. Kroll J. Rovner D. R. Schmitt N. Rothert M. Padonu G. Talarczyk G. (1999). Patient decision support intervention: Increased consistency with decision analytic models. Medical Care, 37, 270-284.
50. Holmes-Rovner M. Llewellyn-Thomas H. A. Elwyn G. (2001). Moving to the mainstream. In Elwyn G. Edwards A.(Eds.), Evidence-based patient choice (pp. 270-288). Oxford, England: Oxford University Press.
51. Hsee C. K. Lowenstein G. Blount S. Bazerman M. H. (1999). Preference reversals between joint and separate evaluations of options. Psychological Bulletin, 125, 576-590.
52. Hummel J. M. Ijzerman M. J. (2009). A systematic review of the analytic hierarchy process in health care decision making. Value Health, 12, A227.
53. Janis I. L. Mann L. (1977). Decision making: A psychological analysis of conflict, choice, and commitment. New York, NY: Free Press.
54. Jibaja-Weiss M. L. Volk R. J. Granchi T. S. Neff N. E. Robinson E. K. Spann S. J. Beck J. R. (2011). Entertainment education for breast cancer surgery decisions: A randomized trial among patients with low health literacy. Patient Education and Counseling, 84, 41-48.
55. Lee C. McRae C. Mendes de Abreu M. Carvajal de la Torre A. LeBlanc A. Matlock D. Miesfeldt S. (2011). Interprofessional education about decision support for patients: What are the high-priority research issues? Journal of Interprofessional Care, 25, 428-430.
56. Légaré F. Moher D. Elwyn G. LeBlanc A. Gravel K. (2007). Instruments to assess the perception of physicians in the decision making process of specific clinical encounters: A systematic review. BMC Medical Informatics and Decision Making, 7, 30-46.
57. Légaré F. Ratté S. Gravel K. Graham I. (2008). Barriers and facilitators to implementing shared decision making in clinical practice: Update of a systematic review of health professionals’ perceptions. Patient Education and Counseling, 73, 526-535.
58. Légaré F. Ratté S. Stacey D. Kryworuchko J. Gravel K. Graham I. D. Turcotte S. (2010) Interventions for improving the adoption of shared decision making by health care professionals (Systematic Review). Cochrane Database of Systematic Reviews(5):CD006732.
59. Légaré F. Stacey D. (2009). Shared decision making: The implications for health care teams and practice. In Elwyn G. Edwards A.(Eds.), Shared decision making in health care: Achieving evidence based patient choice (pp. 23-28). Oxford, England: Oxford University Press.
60. Levine M. N. Gafni A. Markham B. MacFarlane D. (1992). A bedside decision instrument to elicit a patient’s preference concerning adjuvant chemotherapy for breast cancer. Annals of Internal Medicine, 117, 53-58.
61. Llewellyn-Thomas H. A. (1995). Presidential address—Patients’ health care decision making: A framework for descriptive and experimental investigations. Medical Decision Making, 15, 101-106.
62. Llewellyn-Thomas H. A. (2006a). Comment: Why it’s tricky to measure patients’ preferences for participating in decisions about elective spine surgery. Spine, 31, 861-862.
63. Llewellyn-Thomas H. A. (2006b). Measuring patients’ preferences for participating in health care decisions: Avoiding invalid observations. Health Expectations, 9, 305-306.
64. Llewellyn-Thomas H. A. (2009a). Values clarification. In Elwyn G. Edwards A.(Eds.), Shared decision making in health care: Achieving evidence based patient choice (pp. 123-133). Oxford, England: Oxford University Press.
65. Llewellyn-Thomas H. A. (2009b). The decision “lab.” In Elwyn G. Edwards A.(Eds.), Shared decision making in health care: Achieving evidence based patient choice (pp. 243-248). Oxford, England: Oxford University Press.
66. Llewellyn-Thomas H. A. Schwartz C. (2000). Response shift effects in patients’ evaluations of health states: Sources of artifact. In Schwartz C. Sprangers M.(Eds.), Adaptation to changing health: Response shift in quality-of-life research (pp. 109-122). Washington, DC: American Psychological Association.
67. Llewellyn-Thomas H. A. Sutherland H. J. Thiel E. C. (1993). Do patients’ evaluations of a future health state change when they actually enter that state? Medical Care, 31, 1002-1012.
68. Loomes G. Sugden R. (1982). Regret theory: An alternative theory of rational choice under uncertainty. Economic Journal, 92, 805-824.
69. Luce D. Tukey J. (1964). Simultaneous conjoint measurement: A new type of fundamental measurement. Journal of Mathematical Psychology, 1, 1-27.
70. Makoul G. Clayman M. L. (2006). An integrative model of shared decision making in medical encounters. Patient Education and Counseling, 60, 301-312.
71. Morgan M. Deber R. Llewellyn-Thomas H. A. Gladstone P. Cusimano R. J. O’Rourke K. Detsky A. S. (2000). A randomized trial of the ischemic heart disease shared decision making program: An evaluation of a decision aid. Journal of General Internal Medicine, 15, 685-693.
72. Mullan R. J. Montori V. M. Shah N. D. Christianson T. J. Bryant S. C. Guyatt G. H. Smith S. A. (2009). The diabetes mellitus medication choice decision aid: A randomized trial. Archives of Internal Medicine, 169, 1560-1568.
73. Nelson W. L. Han P. K. J. Fagerlin A. Stefanek M. Ubel P. A. (2007). Rethinking the objectives of decision aids: A call for conceptual clarity. Medical Decision Making, 27, 609-618.
74. Nisbett R. Ross L. (1980). Assigning weights to data: the vividness criterion. Human Inference: Strategies and shortcomings of social judgment (pp. 43-62). Englewood Cliffs, NJ: Prentice Hall.
75. Nunnally J. C. Bernstein I. H. (1994). Psychometric theory. New York, NY: McGraw-Hill.
76. O’Connor A. M. (1989). Effects of framing and level of probability on patients’ preferences for cancer chemotherapy. Journal of Clinical Epidemiology, 42, 119-126.
77. O’Connor A. M. (1995). Validation of a decisional conflict scale. Medical Decision Making, 15, 25-30.
78. O’Connor A. Bennett C. Stacey D. Barry M. J. Col N. F. Eden K. B. Rovner D. R. (2007). Do patient decision aids meet effectiveness criteria of the International Patient Decision Aid Standards Collaboration? A systematic review and meta-analysis. Medical Decision Making, 27, 554-574.
79. O’Connor A. M. Edwards A. (2009). The role of decision aids in promoting evidence-based patient choice. In Elwyn G. Edwards A.(Eds.), Shared decision making in health care: Achieving evidence based patient choice (pp. 191-200). Oxford, England: Oxford University Press.
80. O’Connor A. M. Fiset V. DeGrasse C. Graham I. D. Evans W. Stacey D. Tugwell P. (1999). Decision aids for patients considering options affecting cancer outcomes: Evidence of efficacy and policy implications. JNCI Monographs, 25, 67-80.
81. O’Connor A. M. Llewellyn-Thomas H. A. Stacey D. (2005). International Patients’ Decision Aids Standards (IPDAS) collaboration: Background document. Ottawa, on tario, Canada: Ottawa Health Research Institute. Retrieved from http://ipdas.ohri.ca/IPDAS_Background.pdf
82. O’Connor A. M. Pennie R. A. Dales R. E. (1996). Framing effects on expectations, decisions, and side effects experienced: The case of influenza immunization. Journal of Clinical Epidemiology, 49, 1271-1276.
83. O’Connor A. M. Tugwell P. Wells G. A. Elmslie T. Jolly E. Hollingworth G. Drake E. (1998). A decision aid for women considering hormone therapy after menopause: Decision support framework and evaluation. Patient Education and Counseling, 33, 267-279.
84. O’Connor A. M. Wells G. A. Tugwell P. Laupacis A. Elmslie T. Drake E. (1999). The effects of an explicit values clarification exercise in a women’s decision aid regarding postmenopausal hormone therapy. Health Expectations, 2, 21-32.
85. O’Connor A. M. Wennberg J. E. Legare F. Llewellyn-Thomas H. A. Moulton B. Sepucha K. King J. S. (2007). Towards the tipping point: Decision aids and informed patient choice. Health Affairs, 26, 716-725.
86. Percy M. E. Llewellyn-Thomas H. (1995). Assessing preferences about the DNA order: Does it depend on how you ask? Medical Decision Making, 15, 209-216.
87. Pignone M. Fagerlin A. Abhyankar P. Col N. Feldman-Stewart D. Gavaruzzi T. … Witteman H. (2012). Clarifying and expressing values. In Volk R. Llewellyn-Thomas H.(Eds.), 2012 Update of the International Decision Aids Standards (IPDAS) collaboration’s background document (Chap. D). Retrieved from http://ipdas.ohri.ca/resources.html
88. Politi M. Pieterse A. H. Truant T. Borkhoff C. Jha V. Kuhl L. Goss C. (2011). Interprofessional education about patient decision support in specialty care. Journal of Interprofessional Care, 25, 416-422.
89. Redelmeier D. A. Dickinson V. M. (2011). Determining whether a patient is feeling better: Pitfalls from the science of human perception. Journal of General Internal Medicine, 26, 900-906.
90. Rose A. Llewellyn-Thomas H. A. (2009). Shared decision making. In Kattan M. W.(Ed.), Encyclopedia of medical decision making (pp. 1041-1336). Thousand Oaks, CA: Sage.
91. Sepucha K. R. Fowler F. J. Mulley A. G. (2004). Policy support for patient-centered care: The need for measurable improvements in decision quality. Health Affairs, VAR54-VAR62.
92. Shaffer V. A. Hulsey L. (2009). Are patient decision aids effective? Insight from revisiting the debate between correspondence and coherence theories of judgment. Judgment and Decision Making, 4, 141-46
93. Sheridan S. L. Griffith J. M. Behrend L. Gizlice Z. Cai J. Pignone M. P. (2010). Effect of adding a values clarification exercise to a decision aid on heart disease prevention: A randomized trial. Medical Decision Making, 30, E28-E39.
94. Simon D. Loh A. Härter M. (2007). Measuring (shared) decision making—A review of psychometric instruments. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen (ZaeFQ), 101, 259-267.
95. Singh J. Cuttler L. Shin M. Silvers J. B. Neuhauser D. (1998). Medical decision making and the patient: Understanding preference patterns for growth hormone therapy using conjoint analysis. Medical Care, 36, AS31-AS45.
96. Smith-Dupre A. A. Beck C. S. (1996). Enabling patients and physicians to pursue multiple goals in health care encounters: A case study. Health Communication, 8, 73-90.
97. Sox H. Blatt M. A. Higgins M. C. Marton K. I. (1988). Medical decision making. Boston, MA: Butterworth-Heinemann.
98. Stacey D. Bennett C. L. Barry M. J. Col N. F. Eden K. B. Holmes-Rovner M. Thomson R. (2011). Decision aids for people facing health treatment or screening decisions. Cochrane Database of Systematic Reviews, 10, CD001431. doi:10.1002/14651858.CD001431.pub3
99. Stacey D. Hawker G. Dervin G. Tomek I. Cochran N. Tugwell P. O’Connor A. M. (2008). Management of chronic pain: Improving shared decision making in osteoarthritis. British Medical Journal, 336, 954-955.
100. Stacey D. Higuchi K. A. Menard P. Davies B. Graham I. D. O’Connor A. M. (2009). Integrating patient decision support in an undergraduate nursing curriculum: An implementation project. International Journal of Nursing Education Scholarship, 6(1). doi:10.2202/1548-923X.1741
101. Stacey D. Murray M. A. Légaré F. Sandy D. Menard P. O’Connor A. (2008). Decision coaching to support shared decision making: A framework, evidence, and implications for nursing practice, education, and policy. Worldviews Evidence-based Nursing, 5, 25-35.
102. Stewart A. L. Hays R. D. Ware J. E. (1992). Health perceptions, energy/fatigue, and health distress measures. In Stewart A. L. Ware J. E.(Eds.), Measuring functioning and well-being: The medical outcomes study approach (pp. 143-172). Durham, NC: Duke University Press.
103. Tversky A. Kahneman D. (1981). The framing of decisions and the psychology of choice. Science, 211, 453-458.
104. Tversky A. Slovic P. Kahneman D. (1990). The causes of preference reversal. American Economic Review, 80, 204-217.
105. Ubel P. A. Jepson C. Baron J. (2001). The inclusion of patient testimonials in decision aids: Effects on treatment choices. Medical Decision Making, 2, 60-68.
106. Volk R. J. Jibaja-Weiss M. L. Hawley S. T. Kneuper S. Spann S. J. Miles B. J. Hyman D. J. (2008). Entertainment education for prostate cancer screening: A randomized trial among primary care patients with low health literacy. Patient Education and Counseling, 73, 482-489.
107. Wennberg J. E. (2010). Tracking medicine: A researcher’s quest to understand health care (p. 9). Oxford, England: Oxford University Press.
108. Wennberg J. E. Fisher E. S. Skinner J. S. (2002). Geography and the debate over Medicare reform. Health Affairs (Millwood) Supplemental Web Exclusives, 2002, W96-W114.
109. Wennberg J. E. O’Connor A. M. Collins E. D. Weinstein J. N. (2007). Extending the P4P Agenda, part 1: How Medicare can improve patient decision making and reduce unnecessary care. Health Affairs, 26, 1564-1574.
110. Wilson T. D. Gilbert D. T. (2003). Affective forecasting. In Zanna M. P.(Ed.), Advances in experimental social psychology (pp. 346-411). San Diego, CA: Academic Press.
111. Winterbottom A. Bekker H. (2009). Should patient stories be used in decision aids? In Elwyn G. Edwards A.(Eds.), Shared decision making in health Care: Achieving evidence based patient choice (pp. 217-221). Oxford, England: Oxford University Press.
112. Witterman H. O. Zikmund-Fisher B. J. Waters E. A. Gavaruzzi T. Fagerlin A. (2011). Risk estimates from an on line risk calculator are more believable and recalled better when expressed as integers. Journal of Medical Internet Research, 13, e54.