Youth Perceptions of Attention-Deficit/Hyperactivity Disorder and Barriers to Treatment

Canadian Journal of School Psychology

Volumn 28, Issue 2, 2013, Pages 193-218

  Walker Noack, Lindsey ^a   Corkum, Penny ^b   Elik, Nezihe ^a   Fearon, Isabel ^c  

^a MOUNT SAINT VINCENT UNIVERSITY   (Canada)

^b DALHOUSIE UNIVERSITY   (Canada)

^c IWK HEALTH CENTRE   (Canada)

Author keywords

ADHD; barriers; stigma; treatment; youth

Indexed keywords

EID: 84880966979     PISSN: 08295735     EISSN: None     Source Type: Journal    
DOI: 10.1177/0829573513491232     Document Type: Article

References (41)

1. Arcia E.,Fernandez M. C.,Jaquez M.Latina mothers' stances on stimulant medication: Complexity, conflict, and compromise.Journal of Developmental and Behavioural Pediatrics. 2004;25:311-317.
2. Arnold L. E.,Elliot M.,Sachs L.,Bird H.,Kraemer H. C.,Wells K. C.,Wigal T.Effects of ethnicity on treatment attendance, stimulant response/dose, and 14-month outcome in ADHD.Journal of Consulting & Clinical Psychology. 2003;71:713-727.
3. Baxley G. B.,Turner P. F.,Greenwold W. E.Hyperactive children's attitudes concerning drug treatment.Journal of Pediatric Psychology. 1978;3:172-176.
4. Bennett D. S.,Power T. J.,Rostain A. L.,Carr D. E.Parent acceptability and feasibility of ADHD interventions: Assessment, correlates, and predictive validity.Journal of Pediatric Psychology. 1996;21:643-657.
5. BowenJ.FentonT.RappaportL. (1990). Stimulant medication and attention deficit/ hyperactivity disorder: The child's perspective. American Journal of Diseases of Children, 145, 291-295. Retrieved from http://archpedi.jamanetwork.com/article.aspx?articleid=515582.
6. Brook U.,Boaz M.Attention-deficit/hyperactivity disorder and learning disabilities: Adolescents' perspective.Patient Education and Counseling. 2005;58:187-191.
7. Bussing R.,Koro-Ljungberg M. E.,Gary F.,Mason D. M.,Garvan C. W.Exploring help-seeking for ADHD symptoms: A mixed methods approach.Harvard Rev Psychiatry. 2005;13 (2): 85-101.
8. Charach A.,Ickowicz A.,Schachar R.Stimulant treatment over five years: Adherence, effectiveness, and adverse effects.Journal of the American Academy of Child and Adolescent Psychiatry. 2004;43:559-567.
9. Chronis A. M.,Jones H. A.,Raggi V. L.Evidence-based psychosocial treatments for children and adolescents with attention-deficit/hyperactivity disorder.Clinical Psychology Review. 2006;26:486-502.
10. Coleman D.,Walker J. S.,Lee J.,Friesen B. J.,Squire P. N.Children's beliefs about causes of childhood depression and ADHD: A study of stigmatization.Psychiatric Services. 2009;60:950-957.
11. CorkumP.RimerP.SchacharR. (1999). Parental knowledge of attention-deficit hyperactivity disorder and opinions of treatment options: Impact on enrollment and adherence to a 12-month treatment trial. Canadian Journal of Psychiatry, 44, 1043-1048. Retrieved from http://web.ebscohost.com/ehost/pdfviewer/pdfviewer?sid=112c5c6e-0e39-48e3-85db-eee3b464aa21%40sessionmgr15&vid=7&hid=14.
12. dosReis S.,Barksdale C. L.,Sherman A.,Maloney K.,Charach A.Stigmatizing experiences of parents of children with a new diagnosis of ADHD.Psychiatric Services. 2010;61:811-816.
13. Efron D.,Jarman F. C.,Barker M. J.Child and parent perceptions of stimulant medication treatment in attention deficit hyperactivity disorder.Journal of Pediatric Child Health. 1998;34:288-292.
14. Harris M. J.,Milich R.,Corbitt E. M.,Hoover D. W.,Brady M.Self-fulfilling effects of stigmatizing information on children's social interactions.Journal of Personality and Social Psychology. 1992;63:41-50.
15. Hinshaw S. P.Parental mental disorder and children's functioning: Silence and communication, stigma and resilience.Journal of Clinical Child and Adolescent Psychology. 2004;33:400-411.
16. Hinshaw S. P.The stigmatization of mental illness in children and parents: Developmental issues, family concerns, and research needs.Journal of Child Psychology and Psychiatry. 2005;46:714-734.
17. HollingsheadA. B. (1975). Four factor index of social status. New Haven, CT: Yale University Press. Retrieved from http://www.yale.edu/sociology/faculty/docs/hollingshead_socStat4factor.pdf.
18. Ibrahim E. S.Rates of adherence to pharmacological treatment among children and adolescents with attention deficit hyperactivity disorder.Human Psychopharmacology. 2002;17:225-231.
19. Kaidar I.,Wiener J.,Tannock R.The attributions of children with attention deficit/hyperactivity disorder for their problem behaviors.Journal of Attention Disorders. 2003;6 (3): 99-109.
20. KendallJ.HattonD.BeckettA.LeoM. (2003). Children's accounts of attention deficit/hyperactivity disorder. Advances in Nursing Science, 26, 114-130. Retrieved from http://journals.lww.com/advancesinnursingscience/Abstract/2003/04000/Children_s_Accounts_of.4.aspx.
21. Koro-Ljungberg M.,Bussing R.The management of courtesy stigma in them lives of families of teenagers with ADHD.Journal of Family Issues. 2009;30:1175-1200.
22. MacKay L.,Corkum P.Evaluation of a demystification workshop for children with ADHD.Journal of Developmental and Physical Disabilities. 2006;18:319-332.
23. Martin J. K.,Pescosolido B. A.,Olafsdottir S.,McLeod J. D.The construction of fear: Americans' preferences for social distance from children and adolescents with mental health problems.Journal of Health and Social Behaviour. 2007;48:50-67.
24. Monastra V. J.Overcoming the barriers to effective treatment for attention deficit/hyperactivity disorder: A neuro-educational approach.International Journal of Psychophysiology. 2005;58:71-80.
25. Morgan D. L.,Krieger R. A.The focus group kit. Thousand Oaks, CA: SAGE; 1997:.
26. Mukolo A.,Heflinger C.Factors associated with attributions about child health conditions and social distance preference.Community Mental Health Journal. 2011;47:286-299.
27. Pelham W. E.,Wheeler T.,Chronis A.Empirically supported psychosocial treatments for attention deficit hyperactivity disorder.Journal of Clinical Child Psychology. 1998;27:190-205.
28. Pescosolido B. A.Culture, children, and mental health treatment: Special section on the National Stigma Study-Children.Psychiatric Services. 2007;50:611-612.
29. Power T. J.,Russell H. F.,Soffer S. L.,Blom-Hoffman J.,Grim S. M.Role of parent training in the effective management of attention deficit/hyperactivity disorder.Disease Management and Health Outcomes. 2002;10:117-126.
30. Raskind M.,Margalit M. H.,Higgins E. L.My LD: Children's voices on the Internet.Learning Disability Quarterly. 2006;29:253-268.
31. Sciberras E.,Efron D.,Iser A.The child's experience of ADHD.Journal of Attention Disorders. 2011;15:321-327.
32. Singh I.Doing their jobs: Mothering with Ritalin in a culture of mother-blame.Social Sciences & Medicine. 2004;59:1193-1205.
33. Singh I.Clinical implications of ethical concepts: moral self-understandings in children taking methylphenidate for ADHD.Clinical Child Psychology & Psychiatry. 2007;12 (2): 167-182.
34. Singh I.,Kendall T.,Taylor C.,Mears A.,Hollis C.,Batty M.,Keenan S.Young people's experience of ADHD and stimulant medication: A qualitative study for the NICE guideline.Child and Adolescent Mental Health. 2010;15 (4): 186-192.
35. Sleator E. K.,Ullman R. K.,von Neumann A.How do hyperactive children feel about taking stimulants and will they tell the doctor?.Clinical Pediatrics. 1982;21:474-479.
36. Stine J. J.Psychosocial and psychodynamic issues affecting nonadherence with psychostimulant treatment.Journal of Child and Adolescent Psychopharmacology. 1994;4:75-86.
37. Swanson J.Compliance with stimulants for attention-deficit/hyperactivity disorder: Issues and approaches for improvement.CNS Drugs. 2003;17 (2): 117-131.
38. Thiruchelvam D.,Charach A.,Schachar R. J.Moderators and mediators of long- term adherence to stimulant treatment in children with ADHD.Journal of the American Academy of Child and Adolescent Psychiatry. 2001;40:922-927.
39. Travell C.,Visser J."ADHD does bad stuff to you": Young people's and parents' experiences and perceptions of attention deficit hyperactivity disorder (ADHD).Emotional and Behavioural Difficulties. 2006;11:205-216.
40. Wiener J.,Malone M.,Varma A.,Markel C.,Biondic D.,Tannock R.,Humphries T.Children's perceptions of their ADHD symptoms: Positive illusions, attributions, and stigma.Canadian Journal of School Psychology. 2012;27:201-217.
41. World Health Organization. (2003). Adherence to long-term therapies: Evidence for action. Retrieved from http://www.who.int/chp/knowledge/publications/adherence_full_report.pdf.