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Volumn 14, Issue 1, 2013, Pages

Involving service users in trials: Developing a standard operating procedure

Author keywords

Clinical trials; Consumer involvement; Consumer participation; Service user involvement

Indexed keywords

ARTICLE; CLINICAL TRIAL (TOPIC); DECISION MAKING; HUMAN; SCIENTIST; STANDARD;

EID: 84880335632     PISSN: None     EISSN: 17456215     Source Type: Journal    
DOI: 10.1186/1745-6215-14-219     Document Type: Article
Times cited : (41)

References (51)
  • 1
    • 2342480344 scopus 로고    scopus 로고
    • User involvement in research: exploring the challenges
    • Beresford P. User involvement in research: exploring the challenges. Nursing Times Research 2003, 8:36-46.
    • (2003) Nursing Times Research , vol.8 , pp. 36-46
    • Beresford, P.1
  • 5
    • 2942722282 scopus 로고    scopus 로고
    • Consumer involvement in research projects: the activities of research funders
    • 10.1016/j.healthpol.2003.12.011, 15212869
    • O'Donnell M, Entwistle V. Consumer involvement in research projects: the activities of research funders. Health Policy 2004, 69:229-238. 10.1016/j.healthpol.2003.12.011, 15212869.
    • (2004) Health Policy , vol.69 , pp. 229-238
    • O'Donnell, M.1    Entwistle, V.2
  • 6
    • 0003767164 scopus 로고    scopus 로고
    • Cardiff: Welsh Assembly Government, Wales Office of Research and Development for Health and Social Care
    • Wales Office of Research and Development for Health and Social Care Research Governance Framework for Health and Social Care in Wales: Second Edition 2005, Cardiff: Welsh Assembly Government, Wales Office of Research and Development for Health and Social Care.
    • (2005) Research Governance Framework for Health and Social Care in Wales: Second Edition
  • 7
    • 55549083502 scopus 로고    scopus 로고
    • Developing and evaluating complex interventions: the new Medical Research Council guidance
    • Craig N, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. Br Med J 2008, 337:979-983.
    • (2008) Br Med J , vol.337 , pp. 979-983
    • Craig, N.1    Dieppe, P.2    Macintyre, S.3    Michie, S.4    Nazareth, I.5    Petticrew, M.6
  • 10
    • 0036898817 scopus 로고    scopus 로고
    • From passive subjects to equal partners: qualitative review of user involvement in research
    • 10.1192/bjp.181.6.468, 12456515
    • Trivedi P, Wykes T. From passive subjects to equal partners: qualitative review of user involvement in research. Br J Psychiatry 2002, 181:468-472. 10.1192/bjp.181.6.468, 12456515.
    • (2002) Br J Psychiatry , vol.181 , pp. 468-472
    • Trivedi, P.1    Wykes, T.2
  • 14
    • 84856058722 scopus 로고    scopus 로고
    • VOICE: Developing a new measure of service users' perceptions of inpatient care, using a participatory methodology
    • Evans J, Rose D, Flach C, Csipke E, Glossop H, McCrone P, Craig T, Wilkes T. VOICE: Developing a new measure of service users' perceptions of inpatient care, using a participatory methodology. J Ment Heal 2012, 21(1):57-71.
    • (2012) J Ment Heal , vol.21 , Issue.1 , pp. 57-71
    • Evans, J.1    Rose, D.2    Flach, C.3    Csipke, E.4    Glossop, H.5    McCrone, P.6    Craig, T.7    Wilkes, T.8
  • 15
    • 84883246334 scopus 로고    scopus 로고
    • Credibility and the 'professionalized' lay expert: Reflections on the dilemmas and opportunities of public involvement in health research
    • Thompson J, Bissell P, Cooper C, Armitage C, Barber R. Credibility and the 'professionalized' lay expert: Reflections on the dilemmas and opportunities of public involvement in health research. Health 2012, 16:602-618.
    • (2012) Health , vol.16 , pp. 602-618
    • Thompson, J.1    Bissell, P.2    Cooper, C.3    Armitage, C.4    Barber, R.5
  • 16
    • 84864497809 scopus 로고    scopus 로고
    • Evaluating the impact of service user involvement on research: a prospective study
    • Barber R, Beresford P, Boote J, Cooper C, Faulkner A. Evaluating the impact of service user involvement on research: a prospective study. Int J Consum Stud 2011, 35:609-615.
    • (2011) Int J Consum Stud , vol.35 , pp. 609-615
    • Barber, R.1    Beresford, P.2    Boote, J.3    Cooper, C.4    Faulkner, A.5
  • 17
    • 84880954858 scopus 로고    scopus 로고
    • Close to the bench as well as at the bedside: involving service users in all phases of translational research
    • Callard F, Rose D, Wykes T. Close to the bench as well as at the bedside: involving service users in all phases of translational research. Heal Expect 2011,
    • (2011) Heal Expect
    • Callard, F.1    Rose, D.2    Wykes, T.3
  • 18
    • 0034718298 scopus 로고    scopus 로고
    • A guide to patient-led good controlled trials
    • Chalmers I. A guide to patient-led good controlled trials. Lancet 2000, 356:774.
    • (2000) Lancet , vol.356 , pp. 774
    • Chalmers, I.1
  • 20
    • 0035799047 scopus 로고    scopus 로고
    • Involving consumers in designing, conducting and interpreting randomised controlled trials: questionnaire survey
    • Hanley B, Truesdale A, King A, Elbourne D, Chalmers I. Involving consumers in designing, conducting and interpreting randomised controlled trials: questionnaire survey. Br Med J 2001, 322:519-523.
    • (2001) Br Med J , vol.322 , pp. 519-523
    • Hanley, B.1    Truesdale, A.2    King, A.3    Elbourne, D.4    Chalmers, I.5
  • 21
    • 5444241403 scopus 로고    scopus 로고
    • Consumer involvement in decisions about what health-related research is funded
    • 10.1016/j.healthpol.2004.04.004, 15488995
    • O'Donnell M, Entwistle V. Consumer involvement in decisions about what health-related research is funded. Health Policy 2004, 70:281-290. 10.1016/j.healthpol.2004.04.004, 15488995.
    • (2004) Health Policy , vol.70 , pp. 281-290
    • O'Donnell, M.1    Entwistle, V.2
  • 22
    • 0035230982 scopus 로고    scopus 로고
    • Involving patients in research. Setting up a service users' advisory group
    • 10.1108/02689230110394679, 11547824
    • Rhodes P, Nocon A, Wright J, Harrison S. Involving patients in research. Setting up a service users' advisory group. J Manag Med 2001, 15:167-171. 10.1108/02689230110394679, 11547824.
    • (2001) J Manag Med , vol.15 , pp. 167-171
    • Rhodes, P.1    Nocon, A.2    Wright, J.3    Harrison, S.4
  • 24
    • 84886944549 scopus 로고    scopus 로고
    • Involving the public in systematic reviews: a narrative review of organisational approaches and eight case examples
    • Boote J, Baird W, Sutton A. Involving the public in systematic reviews: a narrative review of organisational approaches and eight case examples. J Comp Effect Res 2012, 1(5):1-12.
    • (2012) J Comp Effect Res , vol.1 , Issue.5 , pp. 1-12
    • Boote, J.1    Baird, W.2    Sutton, A.3
  • 25
    • 84863646323 scopus 로고    scopus 로고
    • Patient and public involvement in coproduction of knowledge: Reflection on the analysis of qualitative data in a mental health study
    • Gillard S, Simons L, Turner K, Lucock M, Edwards C. Patient and public involvement in coproduction of knowledge: Reflection on the analysis of qualitative data in a mental health study. Qual Heal Res 2012, 22(8):1126037.
    • (2012) Qual Heal Res , vol.22 , Issue.8 , pp. 1126037
    • Gillard, S.1    Simons, L.2    Turner, K.3    Lucock, M.4    Edwards, C.5
  • 28
    • 79961238897 scopus 로고    scopus 로고
    • Public involvement in the design and conduct of clinical trials: a review
    • Boote J, Baird W, Sutton A. Public involvement in the design and conduct of clinical trials: a review. Int J Interdiscip Soc Sci 2011, 5:91-112.
    • (2011) Int J Interdiscip Soc Sci , vol.5 , pp. 91-112
    • Boote, J.1    Baird, W.2    Sutton, A.3
  • 31
    • 84912027905 scopus 로고    scopus 로고
    • 'The missing links': understanding how context and mechanism influence the impact of public involvement in research
    • Staley K, Buckland SA, Hayles H, Tarpey M. 'The missing links': understanding how context and mechanism influence the impact of public involvement in research. Heal Expect 2012,
    • (2012) Heal Expect
    • Staley, K.1    Buckland, S.A.2    Hayles, H.3    Tarpey, M.4
  • 32
    • 0036085994 scopus 로고    scopus 로고
    • Consumer involvement in health research: a review and research agenda
    • 10.1016/S0168-8510(01)00214-7, 12088893
    • Boote J, Telford R, Cooper CL. Consumer involvement in health research: a review and research agenda. Health Policy 2002, 61:213-236. 10.1016/S0168-8510(01)00214-7, 12088893.
    • (2002) Health Policy , vol.61 , pp. 213-236
    • Boote, J.1    Telford, R.2    Cooper, C.L.3
  • 34
    • 0032492149 scopus 로고    scopus 로고
    • Lay perspectives: advantages for health research
    • 10.1136/bmj.316.7129.463, 2665609, 9492683
    • Entwistle VA, Renfrew MJ, Yearley S, Forrester J, Lamont T. Lay perspectives: advantages for health research. BMJ 1998, 316:463-466. 10.1136/bmj.316.7129.463, 2665609, 9492683.
    • (1998) BMJ , vol.316 , pp. 463-466
    • Entwistle, V.A.1    Renfrew, M.J.2    Yearley, S.3    Forrester, J.4    Lamont, T.5
  • 35
    • 33645223111 scopus 로고    scopus 로고
    • Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda
    • Wright D, Corner J, Hopkinson J, Foster C. Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda. Heal Expect 2006, 9:3-12.
    • (2006) Heal Expect , vol.9 , pp. 3-12
    • Wright, D.1    Corner, J.2    Hopkinson, J.3    Foster, C.4
  • 37
    • 29944441322 scopus 로고    scopus 로고
    • Principles and indicators of successful consumer involvement in NHS research: Results of a Delphi study and subgroup analysis
    • 10.1016/j.healthpol.2005.03.012, 15899535
    • Boote J, Barber R, Cooper CL. Principles and indicators of successful consumer involvement in NHS research: Results of a Delphi study and subgroup analysis. Health Policy 2006, 75:280-297. 10.1016/j.healthpol.2005.03.012, 15899535.
    • (2006) Health Policy , vol.75 , pp. 280-297
    • Boote, J.1    Barber, R.2    Cooper, C.L.3
  • 38
    • 84855909579 scopus 로고    scopus 로고
    • The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research
    • 10.1017/S0266462311000481, 22004782
    • Staniszewska S, Brett J, Mockford C, Barber R. The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research. Int J Technol Assess Health Care 2011, 27(4):391-399. 10.1017/S0266462311000481, 22004782.
    • (2011) Int J Technol Assess Health Care , vol.27 , Issue.4 , pp. 391-399
    • Staniszewska, S.1    Brett, J.2    Mockford, C.3    Barber, R.4
  • 39
    • 77349099730 scopus 로고    scopus 로고
    • Support and Assessment for Fall Emergency Referrals (SAFER 1) trial protocol. Computerised on-scene decision support for emergency ambulance staff to assess and plan care for older people who have fallen: evaluation of costs and benefits using a pragmatic cluster randomised trial
    • Snooks H, Cheung W-Y, Close J, Dale J, Gaze S, Humphreys I, Lyons R, Mason S, Merali Y, Peconi J, Phillips C, Phillips J, Roberts S, Russell I, Sanchez A, Wani M, Wells B, Whitfield R. Support and Assessment for Fall Emergency Referrals (SAFER 1) trial protocol. Computerised on-scene decision support for emergency ambulance staff to assess and plan care for older people who have fallen: evaluation of costs and benefits using a pragmatic cluster randomised trial. BMC Emergency Medicine 2010, 10. http://www.biomedcentral.com/1471-227X/10/2.
    • (2010) BMC Emergency Medicine , vol.10
    • Snooks, H.1    Cheung, W.-Y.2    Close, J.3    Dale, J.4    Gaze, S.5    Humphreys, I.6    Lyons, R.7    Mason, S.8    Merali, Y.9    Peconi, J.10    Phillips, C.11    Phillips, J.12    Roberts, S.13    Russell, I.14    Sanchez, A.15    Wani, M.16    Wells, B.17    Whitfield, R.18
  • 40
    • 77956037521 scopus 로고    scopus 로고
    • Patients' information sheets and multicentre studies
    • Service Users Research Endeavour (SURE) Group
    • Service Users Research Endeavour (SURE) Group Patients' information sheets and multicentre studies. Lancet 2010, 376:514-515. Service Users Research Endeavour (SURE) Group.
    • (2010) Lancet , vol.376 , pp. 514-515
  • 41
    • 79960096178 scopus 로고    scopus 로고
    • Consulting parents about the design of a randomized controlled trial of osteopathy for children with cerebral palsy
    • Edwards V, Wyatt K, Logan S, Britten N. Consulting parents about the design of a randomized controlled trial of osteopathy for children with cerebral palsy. Heal Expect 2011,
    • (2011) Heal Expect
    • Edwards, V.1    Wyatt, K.2    Logan, S.3    Britten, N.4
  • 43
    • 62249188430 scopus 로고    scopus 로고
    • Introduction: what counts as knowledge, whose knowledge counts? Towards authentic participatory enquiry
    • Maidenhead: OUP McGraw Hill, Nolan M, Hansen E, Grant G, Keady J
    • Nolan M, Hanson E, Grant G, Keady J, Magnusson L. Introduction: what counts as knowledge, whose knowledge counts? Towards authentic participatory enquiry. User Participation in Health and Social Care Research 2007, 1-13. Maidenhead: OUP McGraw Hill, Nolan M, Hansen E, Grant G, Keady J.
    • (2007) User Participation in Health and Social Care Research , pp. 1-13
    • Nolan, M.1    Hanson, E.2    Grant, G.3    Keady, J.4    Magnusson, L.5
  • 44
    • 84880934346 scopus 로고    scopus 로고
    • Conclusions: realising authentic participatory enquiry
    • Maidenhead: OUP McGraw Hill, Nolan M, Hansen E, Grant G, Keady J
    • Nolan M, Hanson E, Grant G, Keady J. Conclusions: realising authentic participatory enquiry. User Participation in Health and Social Care Research 2007, 183-202. Maidenhead: OUP McGraw Hill, Nolan M, Hansen E, Grant G, Keady J.
    • (2007) User Participation in Health and Social Care Research , pp. 183-202
    • Nolan, M.1    Hanson, E.2    Grant, G.3    Keady, J.4
  • 45
    • 4444364459 scopus 로고    scopus 로고
    • What does it mean to involve consumers successfully in NHS research? A consensus study
    • Telford R, Boote JD, Cooper CL. What does it mean to involve consumers successfully in NHS research? A consensus study. Heal Expect 2004, 7:209-220.
    • (2004) Heal Expect , vol.7 , pp. 209-220
    • Telford, R.1    Boote, J.D.2    Cooper, C.L.3
  • 46
    • 34249314025 scopus 로고    scopus 로고
    • User involvement in the development of a research bid: barriers, enablers and impacts
    • Staniszewska S, Jones N, Newburn M, Marshall S. User involvement in the development of a research bid: barriers, enablers and impacts. Heal Expect 2007, 10:173-183.
    • (2007) Heal Expect , vol.10 , pp. 173-183
    • Staniszewska, S.1    Jones, N.2    Newburn, M.3    Marshall, S.4
  • 49
    • 84888010295 scopus 로고    scopus 로고
    • Consumer involvement in systematic reviews of comparative effectiveness research
    • Kreis J, Puhan M, Schunemann H, Dickersin K. Consumer involvement in systematic reviews of comparative effectiveness research. Heal Expect 2012,
    • (2012) Heal Expect
    • Kreis, J.1    Puhan, M.2    Schunemann, H.3    Dickersin, K.4
  • 50
    • 84855756186 scopus 로고    scopus 로고
    • Involvement of consumers in studies run by the Medical Research Council (MRC) Clinical Trials Unit: Results of a survey
    • 10.1186/1745-6215-13-9, 3398265, 22243649
    • Vale C, Thompson L, Murphy C, Forcat S, Hanley B. Involvement of consumers in studies run by the Medical Research Council (MRC) Clinical Trials Unit: Results of a survey. Trials 2012, 13:9. 10.1186/1745-6215-13-9, 3398265, 22243649.
    • (2012) Trials , vol.13 , pp. 9
    • Vale, C.1    Thompson, L.2    Murphy, C.3    Forcat, S.4    Hanley, B.5
  • 51
    • 84892680343 scopus 로고    scopus 로고
    • Consumers in Canadian Arthritis Research
    • Cooper D. Consumers in Canadian Arthritis Research. EULAR Health Professionals News 2008, 9(2):14-15.
    • (2008) EULAR Health Professionals News , vol.9 , Issue.2 , pp. 14-15
    • Cooper, D.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.